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Doctor Appointment Shocker

Ridgewalker

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Ridgewalker Contributor
Ridgewalker
Posted
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Sarah, I found this link on another thread and thought about you and Erza. The relevant article is on page 10, Unexpected Mortality Increase in celiac disease. Part of the article is bad news (sorry!) but one part specifically applies to Erza; a doctor states that he is positive that gluten can be "responsible for psychiatric effects in children as young as five years old." So it looks as if you're on the right track and gluten free may be an answer for Erza. Open Original Shared Link

I wish you, Erza and your whole family good health.

~Laura

Laura, thanks for the link! Some aspects of the article were scary, you're right... I have a feeling that mortality rate will normalize in the future, though. I think that the evolution of the way we view these types of diseases will cause that. It is good to read a doctor's verification of what we've all been thinking!!

The spacy and walking away? I don't know about the spacy part but the walking away could be bordom/add.. because my katie used to do that.. she had both of them bordom and add.

How about watching thru the window? have them put him in a place where he can not see out the window so you can watch that way.. see what happens.. Every kid acts differently in school than at home also-- so i wouldn't worry too much..

I cant think of much else at the moment as we are sort of in a crisis here now. but i wanted to answer asap

HAPPY THANKSGIVING TALK SOON

LYNN

Lynn,

Wow, so much of that sounds just like Ezra!!! I am still keeping the dairy thing in the back of my mind... Actually it's been moving to the forefront of my mind lately. I know that dairy gives many people major problems with mucus...

Sarah--I don't know if Ezra can swallow pills, but we always gave Victoria the OTC Zantac when we thought what she had was reflux. Of course, it didn't help, but I never filled the RX the doctor gave us. Maybe that is an option. $50 is too much!

That may be a possibility. At this point, it's looking like reflux isn't the problem... *sigh*

Gluten intolerance can cause depression, bipolar, anxiety and schizophrenia. I would not consider meds until you try the gluten free diet first

I'm right there with ya on that! ;)

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Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Sarah, I can't remember if I mentioned it in a previous post, but I was able to reduce my own Nexium (like Zantac but more $$ :ph34r: ) by 50% after going off gluten.

Also, if an ulcer is a possibility, they should check for a helicobacter pylori infection....apparently, that bacteria causes 80+% of ulcers.....

  • 2 weeks later...
arc Newbie
arc
Posted

I didn't have time to read all the previous posts, so sorry if someone already posted something similar.

My oldest son had always had anger issues. He would build until he was in an uncontrollable rage. It scared him and it scared us, especially as he has gotten bigger (he is 13 now). It seemed related to carbs somehow and we could keep him at a relatively even keel by keeping him low carb.

After I went gluten-free two years ago, I noticed an evening out of my own moods. The light went on and we had my son try out a gluten-free diet. The rages stopped almost immediately. He can still be snarky and sullen, but it isn't anything that isn't normal for a teenager.

The interesting thing is that we actually put both of our boys on the gluten-free diet. My youngest didn't have the rages but was pretty emotional. If he was happy, he would be bouncing off of the walls. If he was sad, it was the end of the world. It was like all emotions were ramped by 10 times. Once he went gluten-free, the emotions leveled out to much more normal levels.

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    • Scott Adams
      How many grams is there in one slice of wheat bread?

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      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Confused with test results

      By Scott Adams · Posted

      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
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    • trents
      What should I do with these test results?

      By trents · Posted

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    • Jack Common
      How many grams is there in one slice of wheat bread?

      By Jack Common · Posted

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