Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oh No....

FootballFanatic

Recommended Posts

FootballFanatic Contributor
FootballFanatic
Posted

I will be able to call tomorrow, but I usually take them at night. Does anyone know about Seasonale? I take the generic (quasense). I haven't felt better yet and I don't know what to do. If I don't hear back I guess I will skip it tonight.

I am taking it to help with cramping, so I really don't want to go off it.....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


FootballFanatic Contributor
FootballFanatic
Posted
  • Author

Called the manufacturers of Quasense....

They can not guarantee that it is gluten-free because they are not a gluten free company and don't test for gluten.

FootballFanatic Contributor
FootballFanatic
Posted
  • Author

I called about Jolessa the other generic for Seasonale and it IS gluten-free.

Now I just need to call the pharmacy and figure this out!

Lisa Mentor
Lisa
Posted

Many companys that I have called "do not add gluten ingrediences"; and therefore, they "do not test and do not guarantee."

This often is a CYA statement and your own personal judgement needs to apply in taking/consuming or not. I normally would consume.

Call them back and ask if it contains any gluten ingrediences, they owe you that at the least.

FootballFanatic Contributor
FootballFanatic
Posted
  • Author

The Quasense representative did say there were "no starches" in it, but could not guarantee no gluten. I'm just going to switch to the Gluten Free generic, even though my insurance wont cover it until December since I just bought the pack a couple weeks ago...

Sugarmag Newbie
Sugarmag
Posted
The Quasense representative did say there were "no starches" in it, but could not guarantee no gluten. I'm just going to switch to the Gluten Free generic, even though my insurance wont cover it until December since I just bought the pack a couple weeks ago...

I'm sorry you are dealing with this! I do know that Mircette, LoEstrin Fe 24 and Yasmin and Yaz are gluten free, if that helps you! Yaz is also soy free, and casein free too; and I love it!

Amelia01 Rookie
Amelia01
Posted

In the event that you are taking a gluten-free pill but still feeling yucky (bloated, digestion problems etc), I was told by my doctor (while suffering the same even on a declared gluten-free pill!) that many contraceptives cause these kinds of problems, above all in people with a myriad of digestive issues. Even the informative paper in my pack speaks of not using it in cases of biliary problems.

It might be the hormones in the pill itself, not necessarily the gluten.

Hope you feel better!

amelia

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 4 months later...
Butterfly619 Newbie
Butterfly619
Posted
I will be able to call tomorrow, but I usually take them at night. Does anyone know about Seasonale? I take the generic (quasense). I haven't felt better yet and I don't know what to do. If I don't hear back I guess I will skip it tonight.

I am taking it to help with cramping, so I really don't want to go off it.....

Butterfly619 Newbie
Butterfly619
Posted
I will be able to call tomorrow, but I usually take them at night. Does anyone know about Seasonale? I take the generic (quasense). I haven't felt better yet and I don't know what to do. If I don't hear back I guess I will skip it tonight.

I am taking it to help with cramping, so I really don't want to go off it.....

Hi. I don't have health insurance or a doctor and I feel so lost with this disease. I have to take Quasense too for pain and migraines/cysts and I am never able to get a straight answer from manufacturer or pharmacist if there is Gluten. You would think that would be illegal and can be sued for such negligence and knowledge of their product. Were you able to find out if it was okay or not? Also do you know if all "modified food starch" contains Gluten? Thankyou so much for any information about our pills I greatly appreciate it!

psawyer Proficient
psawyer
Posted

Modified food starch is not always gluten. In fact, it is usually corn. In foods in the US, if it is wheat it must say so, but this rule does not apply to drugs.

Cynbd Contributor
Cynbd
Posted

I just started Yaz a couple of weeks ago for severe cramping and heavy cycle (I'm 46 and not much chance of getting pg). I called Bayer and they told me they don't put gluten in their product, but they can't vouch for the ingredients they use that come from "other" sources. I have been taking it and I haven't had any problems so far...

I suspect that most companies can't vouch for the "other" ingredients they put in their meds. and they just don't say so.

HAK1031 Enthusiast
HAK1031
Posted

I have been on numerous BCPs over tthe past 9 months for endometriosis,and all were gluten-free. I was on: Yaz, Seasonique, LoEstrin24, and now Portia (The previous ones did not control my cycle)

All of the above are gluten-free, and seasonique is a seasonale generic

b91hd7fjk Apprentice
b91hd7fjk
Posted

i am on jolessa and love it! I highly recommend it for you...especially if you have a lot of menstral pain. Your going to freak out not getting a period for the first couple months but I promise you get used to it and its a total blessing!!!

Good luck

-Staci

cinnamonroll Newbie
cinnamonroll
Posted

Can anyone link me to the list of gluten free birth control? thank you :)

  • 5 months later...
Christina725 Newbie
Christina725
Posted

Thank you! I was looking to question if Jolessa the generic for Seasonale was gluten free because I have been on it for the past year and love it! and the doctor told me to question if it was gluten free. THanks -Christina

Amyleigh0007 Enthusiast
Amyleigh0007
Posted
I just started Yaz a couple of weeks ago for severe cramping and heavy cycle (I'm 46 and not much chance of getting pg). I called Bayer and they told me they don't put gluten in their product, but they can't vouch for the ingredients they use that come from "other" sources. I have been taking it and I haven't had any problems so far...

I suspect that most companies can't vouch for the "other" ingredients they put in their meds. and they just don't say so.

I love Yaz. I have been on it for about 10 months now and it has made a huge difference in my monthly agony.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,204
    • Most Online (within 30 mins)
      7,748
    DreDre
    Newest Member
    DreDre
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • kopiq
      starting to heal, vitamin d deficiant but cannot tolerate vitamins. what to do? also multiple ongoing issues.

      By kopiq · Posted

      I also have food particles left on toiet paper when i wipe and my stool is light yellow not absorbing fats. I urinate about 15 times a day and have very sticky snot,dry throat.
    • kopiq
      starting to heal, vitamin d deficiant but cannot tolerate vitamins. what to do? also multiple ongoing issues.

      By kopiq · Posted

      Hi all, I was diagnosed by blood work about 2 months ago and have since went on a strict gluten free diet. I have an endoscopy in January and the GI dr said nothing about staying on gluten for it; hes aware i went no gluten. starting to heal symptoms include: (this is huge) sensation coming back to genitals and when having a bowl movement. everything has been numb for a long time down there including lower belly button area. good size (not abnormal) bowel movements once a day or every two days. small dot size wart just fell off my finger that was there for years. have not broke out with a cold sore this winter (every winter prior for years i would develop a cold sore on my lip) Ongoing issues I don't sweat. not from my hands, or armpits or feet. I do not get butterflys in stomach. my hands have been so dry for years ive been using a crack cream as they crack and bleed very severely in the fall and winter.  (since going gluten free ive not used crack cream but they are still very very dry and chapped/flaky, no sweat or moisture in palms of hands at all. I dont crave food. i have no cravings at all, not for pizza, ice cream , nothing. my cravings are dead. smell of foods kinda make me hungry, but my stomach blocks it. pins needles in feet get weak legs standing up from sitting and dizzy, things almost turn black. i cannot tolerate veggies or vitamins. Iam vitamin D deficient according to my Dr and Ive tried vitamin D pills. they give me a massive migraine for 8 hours and upset my stomach. the heat from the direct sun make me extremely tired to the point of wanting to pass out. again i don't sweat. broccoli gives me a migraine headache as well. mushrooms, bell peppers burn my stomach. fruits burn my stomach, fats (peanut butter, any oil or fat from meats make me sick to my stomach for a couple hours or longer. salt and pepper burns my stomach. all these issues cause pain at my belly button area and expand to the rest of my upper stomach and sides the more i ingest through out the day. I currently eat bland basmati rice, chicken, pork chops (fat trim), boiled russet potatoes no skin for three meals a day. my snacks are gluten free ground buckwheat flour pancakes. (just water, no oil , salt, dairy.) how am i to get vitamins in my system if i cannot tolerate them in my stomach? i mentioned epidermal vitamin patchs but dr said no. why cant i stand the heat from the sun ? why cant i sweat? thanks for any info.                
    • trents
      Celiac Maybe a Possibility?

      By trents · Posted

      Because you have significantly reduced your gluten intake over a considerable amount of time, it is likely that you will test negative on the antibody tests. However, if the $112 for the Quest test is not a burden, it wouldn't hurt to try. It tests for total IGA (to ascertain if you are IGA deficient) and tTG-IGA. If total IGA is deficient, it can result in false negatives in other IGA tests. The tTG-IGA is the single most popular test ordered by physicians. The Quest test is not a complete celiac panel by any means (refer to the linked article above) but it might be a good place to start. Personally, I think you know enough to conclude that you need to get serious about avoiding gluten, whether you have celiac disease or NCGS. Human nature being what it is, however, many people seem to need an official diagnosis of celiac disease in order to stay on the bandwagon. Otherwise, they seem to rationalize cheating on the gluten-free diet. And there is this misconception out there that NCGS is inconvenient and uncomfortable but not harmful so it's okay to cheat. The more we learn about gluten-related disorders the more they seem to not fit into our neat little black and white categories. By the way, celiac disease is not a food allergy. It is classified as an autoimmune disorder.
    • More2Learn
      Celiac Maybe a Possibility?

      By More2Learn · Posted

      These responses are all extremely helpful, ty.  Really good reminder about omega 6.  I also know I'm low in zinc; I took the zinc test where I drank it on a spoon and couldn't taste it.  To that end, I try to eat a lot of oysters.  I do think it would be a good idea to get the blood test.  Two questions: 1-  Is there any reason you wouldn't recommend that I just buy and take a test like this as a first step? 2- I've been somewhat gluten free since ~Jan 2023 (technically organic, gluten free, soy free, light on dairy).  I eat a lot of meat, vegetables, rice -- a common breakfast for me is three eggs and a sausage link, and I can't remember the last time I had a sandwich or bread.  However, because in my mind I didn't think I had an allergy, and I more was doing gluten free to avoid artificially iron-enriched foods, I do make exceptions.  I'll eat breaded calamari.  When my Dad visits, I split mozzarella sticks with him because he loves them so much.  I'll eat the "gluten sensitive" items at a restaurant and if they asked, "is cross contamination ok?",  I always said yes.  Based on that, since I never probably fully eliminated gluten, but it was significantly reduced... is that good enough to take the blood test?  Because the pain in my side gets SO bad (really sometimes I can't function, and I absolutely thought I was dying), I am hesitant to do the gluten challenge.  Would it make sense to take the test, and if it's negative, then consider doing the challenge and seeing if I can deal with eating the bread every day? Thanks again!
    • Yaya
      Muscle Twitching

      By Yaya · Posted

      For me, with osteoporosis, Celiac and more than 1 heart condition, the slower, safer route is preferable.  I'm on 5 meds per day.  Too much of anything can disturb absorption of this or that. Have a Happy Thanksgiving.  I'm gone for a few days.  
×
×
  • Create New...