Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood In Stool


Virgie

Recommended Posts

Virgie Apprentice

Hi! Just wondering if any of your kids have blood in their stools. Daughter (age 13) was dx with Celiac first part of September & has been gluten-free since 9/9. Been feeling much better. But the last few days hasn't been feeling as well and has had bloody diarreha. Is this a symptom of being glutened? Or is something else going on with her? Her older brother has Ulcerative Colitis and I always worry that she could have that too. Sure hope not as that is a horrid thing to have (especially if you have a hard time reaching remission).

What do you all think? This always happens when the weekend comes. Otherwise will probably be calling her doctor if it keeps up.

Thanks.

Virginia

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



vanillazeis Rookie

Hi, Virgie! My 3 year old was diagnosed in July, She had blood in her stools. She improved with going gluten-free, BUT the blood in her stools didn't stop until we went casein free a month later. My GI dr. always recommends his newly diagnosed celiac patients also go casein free. I dunno about it always happening when the weekend comes... maybe she is cheating on her diet at school... maybe friday is something she just can't resist, like pizza day or something... either that... or maybe you guys have ice cream on fridays!? I dunno. Maybe she's not purposely cheating, but doesnt realize that something she's eating has gluten in it. Maybe ask her to keep a food journal, and go over it with her. Maybe it's a cross-contamination thing. Hope she feels better soon... ill keep my fingers crossed that this is not Ulcerative Colitis, and that it is related to her celiac. Good luck!!!

Link to comment
Share on other sites
crittermom Enthusiast

Hi Virgie,

Blood in the stool is actually how we found Katharine's celiacs. The nurse practitioner kept telling me it was a fissure but the suppositories didn't work. When I got into her doctor and told her there was still a large amount of blood in very large white stools she suggested the celiac test. Now if Katharine gets glutened the stool first goes white, then if it persists the blood comes next. Katharine's loss of blood mixed with the celiac caused anemia for her so watch out for that one as well. Once she is gluten free again the blood goes away. However I should say that Katharine does not have bloody diarrhea, just very large bowel movements streaked with blood, blood on the tissue and floating in the toilet. Good luck and I hope she is feeling better soon.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sh00148 replied to sh00148's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Nighttime Soiling (5 year old)

    2. - cristiana replied to sh00148's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Nighttime Soiling (5 year old)

    3. - Scott Adams replied to Blue Roan's topic in Related Issues & Disorders
      2

      Lymph nodes in neck + thyroid issues

    4. - Scott Adams replied to StrongerThanCeliac's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      2 Separate Glutenings - Recovery Timeline?

    5. - Scott Adams replied to Therockfrog's topic in Related Issues & Disorders
      2

      Itchy skin, tingling in feet and scalp


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,786
    • Most Online (within 30 mins)
      7,748

    bjboudreau
    Newest Member
    bjboudreau
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      68.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sh00148
      Thanks.  So something has come up on his blood tests and I have an appointment to discuss the findings on Monday. My son has been soya free and dairy free for a while as we did York food testing to check for allergies intolerances.     
    • cristiana
      Hi @sh00148 I am so glad that your son is going to have a blood test next week.    If the blood test is that soon, and he has been consuming normal levels of gluten up until now, he should have had enough exposure to gluten to test positive should you decide to stop the gluten immediately, as Scott suggest.  However, one thing you may wish to change in the short term instead/as well is to stop him consuming dairy products.  If he is a coeliac, he may have become temporarily dairy intolerant.  The tips of the villi, which line the gut and are damaged in coeliacs, produce lactase, an enzyme essential for the digestion of dairy.  If they are damaged it can contribute to diarrhea and gas.  I had this some months after my own coeliac diagnosis, and it improved no end when I gave up dairy for a while.  Once on a gluten free diet they heal, and most coeliacs can return to consuming dairy. I would have thought that with those bowel issues in a young child what is happening to him is entirely normal.    
    • Scott Adams
      It’s understandable to feel frustrated, especially when you’re managing celiac well but still experiencing new, unexplained symptoms. Many people with celiac notice sensations around the neck and jaw area, even without visible swelling. Sometimes, lymph node sensitivity or a tight feeling in the throat can linger as part of the body’s inflammatory response, even if your thyroid and other tests come back normal. It sounds like you’ve been thorough with testing and have seen multiple specialists, which is great. A few things might be worth considering: for some people with celiac, there can be lingering sensitivities to trace gluten, cross-reactive foods, or even certain environmental factors that can cause persistent inflammation. Since you’ve tried antihistamines and a humidifier, you might want to discuss options like different allergy medications or seeing an ENT specialist if you haven’t already. Some find that supplements (like anti-inflammatory options or probiotics) help support overall inflammation reduction, though you should always check with your doctor first. It’s frustrating when you feel the symptoms without an obvious cause, but trust your instincts—hopefully, with persistence, you’ll find answers and some relief soon.
    • Scott Adams
      It sounds like you’re really going through it—accidental gluten exposure can definitely take a toll, and when it happens twice close together, it can feel like it drags on even longer. Many people find that each glutening is a bit unpredictable in terms of recovery, and it could take a little extra time if your body hasn’t fully cleared out the first exposure before the second one hit. Staying hydrated, avoiding other potential irritants (like alcohol and spicy foods), and resting can help ease the symptoms as your gut heals. Hopefully, things start to settle soon! In the meantime, it could be helpful to communicate with friends about specific brands to look out for, even when it’s hard to ask in the moment. Hang in there—hope you’re feeling much better soon! This article, and the comments below it, may be helpful:    
    • Scott Adams
      @Therockfrog, it sounds like you’ve been through so much, and managing these symptoms must be incredibly challenging. Tingling in your feet and scalp, especially after eating specific foods, can sometimes be related to histamine intolerance or even a sensitivity to certain food proteins, as you’ve suggested. Since you’ve already noticed patterns with gluten, nuts, and dairy, it might be worth looking into a histamine intolerance or mast cell activation syndrome (MCAS), where the body has an exaggerated response to histamine and other triggers, which can cause itching, tingling, and even high cortisol levels. This would explain why your symptoms change with seasonal pollen too. If you’re considering eating some of these trigger foods before seeing the allergist, it could help with identifying specific IgE reactions. However, since this can worsen symptoms, you might consider working with your doctor to approach this slowly, maybe introducing one trigger at a time. It’s great you’ve tracked your symptoms so closely—that detailed information will help the allergist a lot. In the meantime, perhaps continue with antihistamines, as sometimes trying different types (H1 and H2 blockers, for example) under guidance can make a difference. Hang in there! It sounds like you’re very close to finding the root of these reactions.
×
×
  • Create New...