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Test Results

kellygirl28

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kellygirl28 Newbie
kellygirl28
Posted

After repeatedly being led to this forum while trying to do online research about why I have felt so crappy for so long, I told my doctor (actually, she is a P.A.) that I wanted to have "the complete celiac panel" done. That was on Wednesday. When I called her office on Friday, they still, "didn't have the results." CAN ANYONE TELL ME HOW LONG IT SHOULD TAKE TO PROCESS THESE TESTS?

I'm worried that my doctor has them, but doesn't know how to interpret them...she didn't know the first thing about this condition, and even less about how to test for it. Can't I just have someone who knows what they should be looking for interpret them? I FEEL LIKE I'M GETTING SICKER BY THE SECOND!

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confused Community Regular
confused
Posted

If they have to send them out which they mostly have to it takes about 7-14 days. Did she say if she has to send them out or not.

paula

kellygirl28 Newbie
kellygirl28
Posted
  • Author

She did senud them out, but to a lab in the area. Normally, when they send my bloodwork there, I have the results the next day.

confused Community Regular
confused
Posted

the celiac panel does take longer then most blood work. So try not to worry to much. I know much easier said then done, I will give her to at least this coming friday. or call her on monday and ask how long til the results will be in.

paula

kellygirl28 Newbie
kellygirl28
Posted
  • Author

Not worrying...that's a toughie! Any suggestions on that?

Thanks,

Kelly

confused Community Regular
confused
Posted

Eat as much gluten as you can handle lol. You can read as much on here as you can handle, so you are not overwhelmed when the test come in. And remember just in case your test comes back negative, dont take that as true, ask for an endoscope to be safe.

paula

ptkds Community Regular
ptkds
Posted

It took 2 wks for mine to come in. Then they only got part of them in and told me it was all normal. So I thought I was safe, until they called a few days later and said the rest of the results were in, and I had Celiac. I was in shock.

Give it about 1-2 wks and then start bugging them. You also have a right to get a copy of them, then you can put the posts on here and someone can interpret them for you!

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Ginsou Explorer
Ginsou
Posted

My blood tests for h.pylori and celiac took about 2 weeks. I had blood drawn at a lab, and the technician said 3 tests would be done there, and two tests would be sent out. I received a letter from the doctor's office saying all tests were negative....but the acutal test result figures were not included in the letter. The negative results shocked me....I've been lactose intolerant for 30 years, and out of the blue became very,very ill this spring.....bloating,gas,nausea,diarrhea,constipation,gut rumbling,abdominal pain/soreness 24/7. I also started to have stinging pains that lasted about 1 second in my abdomen and arms and legs. That progressed to tingling sensation in my arms,back and legs. I was scheduled for a colonoscopy but cancelled because I had no insurance. The fact that I had 3 pain free days in a row led me to believe it was a food problem. I stopped drinking lactaid milk,stopped eating lactose free ice cream, and got slightly better,but was still sick. I purchased several cans of Ensure, and after drinking lactose free Ensure got sicker.That tipped me off.

Did you know that several name brand lactase pills have wheat in them?

I learned of EnteroLab from this website, and since Celiac is an intestinal problem,the logical place to test would be a stool test. I had the tests done, and 3 weeks later my suspicions were confirmed......Celiac,gluten,and casein(cows milk) tests were positive.

Be sure to get the figures from your test and post them here. Now I'm wondering if my blood tests were mis-read. It will cost me $28 for my medical records, so for now I will skip asking for the results.

I'm now gluten,lactose and dairy free. It's tough, but there are many people who have more food problems than me, so I feel fortunate. The diet is very expensive, and I'm fortunate to be able to afford the ingredients and have the time to cook....I'm retired. My mom is 94 and is in assisted living....the residents there with special food needs are ignored and are being served the same food as everyone else. Several residents have been hospitalized because they have been served food they are allergic to.There should be a law against this. I wonder how my special food needs are going to be met when I am older. I just had to turn down a 15 day Hawaiian cruise because my food needs cannot be met. I told my husband we need to win the lottery so we can purchase our own ship......and everyone on this forum will be invited to join us :D

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      Hidden Gluten in distilled vinegar

      By knitty kitty · Posted

      @Manaan2, I was on Miralax for several months after I crushed three vertebrae and fractured my hip.  The compression fractures of my vertebrae affected the Vagus nerve that stimulates digestion and intestinal movement, peristalsis. Miralax just didn't relieve the constipation I was experiencing at all.  Nothing budged.  I tried Milk of Magnesia (magnesium oxide) which pulls water into the digestive tract, and found that rather harsh and dehydrating.   Bad idea. I was already taking thiamine in various forms, Benfotiamine, TTFD (tetrahydrofurfuryl  disulfude), Lipothiamine and Allithiamine.  Click on my name, then Activities in the pull down menu to get to my blog to learn more about my journey with thiamine.   Since we need more thiamine when we are physically ill and emotionally stressed, I decided to focus on TTFD,  Benfotiamine, and magnesium l-threonate.  Within a week of increasing my doses a bit, my constipation was gone.  It took several more months to heal the compressed nerve damage.  For pain, I take a combination of TTFD, Pyridoxine B 6, and  Cobalamine B12 which together have an analgesic effect.  I can't function with pharmaceutical pain killers, besides they cause constipation.   Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Yes, I did just stop the Miralax, but I wasn't on it as long as your daughter.  Yes, there's a difference between adults and children.  Yes, my circumstances were different than your daughter's, but thiamine deficiency does affect the nerves and the brain.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function (which activates the Vagus nerve and controls digestion).   I recommend you visit Dr. Chandler Marrs' website, hormonesmatter.com.  Dr. Marrs worked with Dr. Derrick Longsdale, a pioneer in thiamine research, specifically with children and autism spectrum disorders.  She has been very helpful to me when I reached out to her.  She would be better able to guide you about your daughter's care. https://hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/#google_vignette Do stay in touch, please.  You can start another thread or personal message me any time.  My heart goes out to you, your husband, and especially your daughter.   Namaste
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    • BIg Nodge
      Opinions on my test results/symptoms

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