Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened... But No Idea How And When?

shimo

By shimo
in Coping with Celiac Disease

Recommended Posts

shimo Rookie
shimo
Posted

Hi there,

I guess I've been glutened because my symptoms have somewhat restarted lightly (D, few cramps and big time irritability).

I haven't had anything new, really. I have been extra careful with everything I eat.

The only things I have added to my diet are cookies from Schar, and also a few other things from them such as pasta (I used Glutano only until now and was feeling fine).

Any idea? I did not have anything not gluten free, seriously. Actually I do not have anything at home that is not gluten free. I got rid of everything. Plus I do not eat out at all. I only drink coffee outside.

My doctor also prescribed me a few vitamins and as he believes I might also have bacterial overgrowth, I'm taking pills to oxygenate the whole digestive system, digestive enzymes and a few others that I really do not know what they are for (i take 8 pills per meal total). Now I presume he knew what he was doing, most of those pills say they are fine for celiacs and those that have no information on that whatsoever say that they are free of allergens...

Can one of those pills be doing this?

What has been the most stupid anti-gluten reaction you have had? I heard we can get a reaction without even eating it, is this true? I just want to know what to avoid...

Thanks a lot!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


wowzer Community Regular
wowzer
Posted

It wouldn't hurt to check the medication and make sure that it is gluten free. The pharmisist can do it for you or you can check www.glutenfreedrugs.com

loco-ladi Contributor
loco-ladi
Posted

I would check the pills yes, but also concider even if you only are drinking coffee outside home that still poses some risk, those little doughnut crumbs that everyone else left go everywhere. Also check shampoo, hand cream, lotions, toothpaste........ you may have done this before however someone may have changed their "recipe" I would concintrate on any "new" bottles you have opened recently.

FootballFanatic Contributor
FootballFanatic
Posted

I'm going to have to half-disagree with what wowzer said. Don't call your pharamacist, sure, some may go out of their way to call the manufacturer, but I called my pharmacist who said everything I was taking was gluten free, I have found out in the past week that 2 of those drugs are for sure not gluten free but only from calling the manufacturer.

I am about to make a posting about this in the "Post-Diagnosis" section....Since it's the weekend the pharmacutical companies and the doctor's offices are closed (so I have to wait for tomorrow to find an alternative for mine) I'm feeling crappy due to not taking it, but I know it's not safe so I'm calling first thing in the morning.

darlindeb25 Collaborator
darlindeb25
Posted

I had a pharmicist tell me he had no idea what gluten free was and that he didn't have the time to bother finding out. His boss reprimanded him for that attitude and told me from now on I would never have trouble with him again, yet now, I do not trust him. I will never use that pharmacy again. I would never trust him to actually find out if the product was safe for me. I have a different pharmacy now and he is very good with me, always very helpful, yet I do always research the medicine myself first. It is our responsibility to take care of ourselves and if we truly want to be safe, then we need to check with the maker of the drug. It's sad, but sometimes people will tell you anything, just to get you to pay and leave, they just do not understand the seriousness of the situation. Even your doctor probably has no idea if the medicine he is giving you is safe, unless he is a celiac doctor.

wowzer Community Regular
wowzer
Posted

I have had great luck with my pharmacist checking. I had her check 2 different ones. They told her they couldn't guarantee they weren't gluten free on one which I quit taking. The other was a cream that I was using for the itching and they said it wouldn't matter being a cream. The pharmacist checked further and did find out that it was safe to use.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,285
    • Most Online (within 30 mins)
      7,748
    kristine Michaelson
    Newest Member
    kristine Michaelson
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      gluten-free and continued upper left side pain after drinking wine

      By trents · Posted

      I think most of us, when we first got our diagnosis, imagined that going gluten free would be the magic the bullet that would restore us to perfect health. We soon find out that it usually isn't quite that simple and that celiac disease has long fingers.
    • Celiacsugh
      gluten-free and continued upper left side pain after drinking wine

      By Celiacsugh · Posted

      Thanks! I still have much to learn, I'd hoped going gluten-free would be a magic bullet and I'm learning my system is still very sensitive which is overwhelming and discouraging at times. Thanks for the yogurt tip! There is comfort in knowing that this is common during early healing and I'm not alone! 
    • Celiacsugh
      gluten-free and continued upper left side pain after drinking wine

      By Celiacsugh · Posted

      Thanks so much for the response. Are you usually able to pinpoint a trigger when you get the pain again? What I didn’t share in my earlier post is that I also usually eat out on weekends (though I share celiacs/needs to be gluten-free) and I’ve also been under a lot of stress lately in my personal life. While I’m speculating that it’s the wine it could certainly be a number of things. Do you ever notice the pain more when you are stressed? Learning so much about the brain/gut connection and celiacs. Thanks, there is comfort in hearing others have experienced similar symptoms. 
    • Raquel2021
      gluten-free and continued upper left side pain after drinking wine

      By Raquel2021 · Posted

      This was my main symptom. I still get it from time to time. Also feels like a burning pain on the upper abdomen. I think the wine could definitely cause the pain to be worse. There are do many things I still can't eat.
    • trents
      Intolerance after eating certified pasta gluten free could be caused by additives & or stabilaiser added in the composition of the pasta ingredients, even in the best brands please ceck well before buyng & eating

      By trents · Posted

      Yes and this is true of gluten free ready made, processed and prepackaged foods in general. In particular, hard to digest polysaccharides are commonly used in these products that give many celiacs issues and I personally don't handle some emulsifiers well. IMO, reactions to these ingredients are often mistaken for a gluten reaction.
×
×
  • Create New...