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- knitty kitty replied to Matt13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Can food allergies like milk and soy flatten villi?
@Matt13, Your symptoms sound similar to the ones I had. I had developed nutritional deficiencies, in particular, thiamine deficiency. Gastrointestinal BeriBeri has all those symptoms and the fatigue was horrible. Quick field test from WHO: can you rise unaided from a squat? If you have a serious thiamine deficiency, you cannot stand back... -
- RMJ replied to Toaster's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8What might this EMA result mean?
g/L, a weight per volume unit, would be a very unusual unit for a celiac specific (EMA) test. 1.24 g/L would be in the normal range if this was a TOTAL IgA test. Best to ask the doctor.- 1
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- Lieke posted a topic in Doctors0Searching for good MD/PCP in Portland ME Area
Hi Hi! I am looking for a PCP in the Portland ME area. I have been dealing with Celiac disease for 30 years. My specialist Celiac MD is in Boston, but I want somebody closer by. Am thinking of an MD working in functional medicine/integrative medicine who is willing to ‘walk the journey’ with me. Despite a strict gluten-free diet, I still have challenges, am... -
- knitty kitty replied to Mnofsinger's topic in Related Issues & Disorders4
Food Tasting Salty
Part of the body's immune reaction to gluten is to release histamine. This tastes salty, just like tears and snot. -
- knitty kitty replied to aperlo34's topic in Related Issues & Disorders4
Eye irritation 2.5 months into gluten free diet
I've had dry eye symptoms. The eye drops did not help me. What did help was making sure I was consuming Omega Three fats like flax seed oil and olive oil, and taking essential B vitamins, especially Riboflavin, Thiamin, and Vitamin C, as well as Vitamin A, one of the fat soluble vitamins. Newly diagnosed Celiac can have trouble absorbing fats and...- eyes
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By knitty kitty · Posted
@Matt13, Your symptoms sound similar to the ones I had. I had developed nutritional deficiencies, in particular, thiamine deficiency. Gastrointestinal BeriBeri has all those symptoms and the fatigue was horrible. Quick field test from WHO: can you rise unaided from a squat? If you have a serious thiamine deficiency, you cannot stand back up after squatting. Really cool test. Read for yourself the article below, compare the symptoms, discuss with your doctors. Doctors can administer high dose thiamine via IV and you will improve very quickly. I had improvement within an hour. No harm in trying, process of elimination and all that. Thiamine is safe and nontoxic even in high doses. Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ Are you aware regular Ensure Plus contains dairy? Are you aware Plant Protein Ensure Plus contains oats? Just checking. Have you tried the AutoImmune Protocol diet? Highly recommend. Check out my blog to read excerpts of my journey and my clueless doctors. Keep us posted on your progress! -
g/L, a weight per volume unit, would be a very unusual unit for a celiac specific (EMA) test. 1.24 g/L would be in the normal range if this was a TOTAL IgA test. Best to ask the doctor.
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Hi Hi! I am looking for a PCP in the Portland ME area. I have been dealing with Celiac disease for 30 years. My specialist Celiac MD is in Boston, but I want somebody closer by. Am thinking of an MD working in functional medicine/integrative medicine who is willing to ‘walk the journey’ with me. Despite a strict gluten-free diet, I still have challenges, am ‘super sensitive celiac’ with at time cross contact issues when going out to dinner. any suggestions? much appreciated! lieke
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By knitty kitty · Posted
Part of the body's immune reaction to gluten is to release histamine. This tastes salty, just like tears and snot. -
By knitty kitty · Posted
I've had dry eye symptoms. The eye drops did not help me. What did help was making sure I was consuming Omega Three fats like flax seed oil and olive oil, and taking essential B vitamins, especially Riboflavin, Thiamin, and Vitamin C, as well as Vitamin A, one of the fat soluble vitamins. Newly diagnosed Celiac can have trouble absorbing fats and absorbing B vitamins. Most gluten free processed foods contain saturated fats which the body can't utilize. Gluten free processed foods are not enriched with vitamins like gluten containing products. The eyes make a film of healthy omega three fats which keeps the eyes lubricated. Insufficient omega threes can show up as dry eyes. Most newly diagnosed Celiac are low in Vitamin D, as well as Vitamin A, both fat based vitamins. Thiamin Vitamin B 1 and Riboflavin B 2 are needed for eye health and optic nerve health. Taking a B Complex vitamin supplement is beneficial. Since the B vitamins are water soluble, any excess that the body doesn't need is excreted easily in urine. The gluten free diet is low in essential B vitamins because gluten free processed foods that replace gluteny breads are not required to have vitamins and minerals added to them in order to replace vitamins and minerals lost in processing as is required with gluten containing products. Other things that are helpful is to refrain from using highly perfumed products (hair care, body washes, deodorants, room fresheners, cleaning products, etc.). These can dry out the eyes, too. Staring at computer screens can be detrimental because you STARE and don't blink. The tear ducts that keep the eyes lubricated are in the corners of the eyes. Take breaks from staring at the computer screen. Look out of the corners of your eyes to the right and blink several times, then look to the left and blink to help the tears spread over the whole eye. My eyes have sustained permanent damage because of nutritional deficiencies. My ophthalmologist and my doctors did not connect any of my health problems with nutritional deficiencies which occurred with undiagnosed Celiac Disease. My optic nerve shuts down and I lose my vision if I spend too much time looking at computer screens, led lights, and TV. My vision goes gray and dim. It's much worse than "optic snow". It can take hours or days for my vision to return. My ophthalmologist said my vision might not come back from that sometime. My ophthalmologist said the flash rate, refresh rate, is registered by the optic nerve which gets over stimulated and shuts down. The optic nerve uses lots of Thiamine. Thiamine insufficiency will cause permanent optic nerve damage unless corrected promptly. My thiamine insufficiency/deficiency was not corrected promptly and I have this permanent damage and light sensitivity. I take Benfotiamine, a form of Thiamine that also is beneficial for healing the intestinal tract. Riboflavin, Pyridoxine B 6, and Vitamin A are also needed for eye health. Thiamine insufficiency can also cause anxiety. Thiamine and magnesium will relieve muscle cramps. Talk to your nutritionist and doctor about supplementing with essential vitamins and minerals while your intestines are recovering. Hope this helps!
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