Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Officially Off Soy And Starting To Feel Better Than Ever


Sarah8793

Recommended Posts

Sarah8793 Enthusiast

It is clear to me now that soy has been causing my stomach problems. I have stopped eating it and can't believe how much better I am beginning to feel. Besides stomach pain and bloating, I have energy returning! I hadn't associated the low energy with soy. I have already been gluten and casein free for over a year, but now that soy is out of my diet, I am honestly feeling better than I can remember. I am just amazed. At first I was disheartened about having to remove soy, but now it is totally worth it. Just wanted to share.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hathor Contributor

I'm glad your experience has been so positive. I was surprised when Enterolab told me I was soy intolerant. Then I went off it and found things improving I hadn't expected. For instance, my complexion is finally clear. Just to think of all the years of this and that skin care product not working and it was something I was eating B)

Sarah8793 Enthusiast

Yes, it is strange how the differenet intolerances affect your body in different ways. I am amazed. And isn't it nice when you realize that you can go off a drug or cream, etc. just by removing something from your diet?

Offthegrid Explorer

I'm wondering now if soy is one of my reactors. Can you help break down any hidden sources of soy that you had to eliminate?

hathor Contributor

As long as you read labels, there are no hidden sources of soy in food. It is an allergen that has to be listed. You do have to check with supplements and medicines, though.

Going out to eat, it is very hard to find something in an Asian restaurant. Most sauces have soy in them. Sometimes you can get Thai curries without soy or can have things made with (hopefully wheat-free) fish sauce. I find it less nervewracking to make safe Asian dishes at home. The folks in those restaurants often seem to have no idea what I'm talking about.

You probably know all the usual forms of soy without that word in the name, right? Like tofu, miso, tempeh, edamame.

Some people don't react to the soybean oil, but some do. You will see some soy allergy sites saying soy lecithin is OK, but there are those of us who do react to it. I think you can only tell by trial and error on this one. If you do react to soy lecithin, be very careful with pills. I doublecheck even if something says it is soyfree, because I had a product where the web site says that and the label used to say that, but the new bottle says it contains soy lecithin in the glaze. Replacing that with another product, I called the company about a product that says "soy free" on the bottle, but the customer service person couldn't say if that included the lecithin form or not. I had to wait for a call back from someone else the following day.

tom Contributor

Woohoo to feeling better!!!

I'm like the poster boy for soy-free. Went off soy may29-07.

EVERYTHING is better. :)

I'm happier than any time since maybe 8 or 9 yrs old, in the 70s.

So many little things better too, like my shoes fit better and I didn't even know my feet were swelled or whatever caused that.

~10 days into soy-free, I felt like I got my brain back. Simply thrilling. :) :) :)

Sarah8793 Enthusiast
Woohoo to feeling better!!!

I'm like the poster boy for soy-free. Went off soy may29-07.

EVERYTHING is better. :)

I'm happier than any time since maybe 8 or 9 yrs old, in the 70s.

So many little things better too, like my shoes fit better and I didn't even know my feet were swelled or whatever caused that.

~10 days into soy-free, I felt like I got my brain back. Simply thrilling. :) :) :)

:lol::lol: I so AGREE! It is exactly the same for me. You are right, it is akin to feeling like you are a kid again! If I had only known about this a long time ago. I have spent the last 8 years feeling like I'm 20 years older than I am. This tops gluten and dairy by a long shot.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sugarmag Newbie
As long as you read labels, there are no hidden sources of soy in food. It is an allergen that has to be listed. You do have to check with supplements and medicines, though.

Going out to eat, it is very hard to find something in an Asian restaurant. Most sauces have soy in them. Sometimes you can get Thai curries without soy or can have things made with (hopefully wheat-free) fish sauce. I find it less nervewracking to make safe Asian dishes at home. The folks in those restaurants often seem to have no idea what I'm talking about.

You probably know all the usual forms of soy without that word in the name, right? Like tofu, miso, tempeh, edamame.

Some people don't react to the soybean oil, but some do. You will see some soy allergy sites saying soy lecithin is OK, but there are those of us who do react to it. I think you can only tell by trial and error on this one. If you do react to soy lecithin, be very careful with pills. I doublecheck even if something says it is soyfree, because I had a product where the web site says that and the label used to say that, but the new bottle says it contains soy lecithin in the glaze. Replacing that with another product, I called the company about a product that says "soy free" on the bottle, but the customer service person couldn't say if that included the lecithin form or not. I had to wait for a call back from someone else the following day.

Oooh no! I never, ever imagined a supplement that says no soy, or soy free, could have soy in it! I've been using some GNC products, that state 'no wheat, no gluten, no dairy, no soy, no artificial colors, no preservatives', etc. Should I call them to double check then? WHY put that on there if it has soy in it!?!??!

ps...I react to soy lecithin very much. I do have a bit of a rash now, after starting a new supplement, but I thought it was from cc from going out to eat last weekend.

hathor Contributor
Oooh no! I never, ever imagined a supplement that says no soy, or soy free, could have soy in it! I've been using some GNC products, that state 'no wheat, no gluten, no dairy, no soy, no artificial colors, no preservatives', etc. Should I call them to double check then? WHY put that on there if it has soy in it!?!??!

ps...I react to soy lecithin very much. I do have a bit of a rash now, after starting a new supplement, but I thought it was from cc from going out to eat last weekend.

Good question. Now I prefer to make customer service reps think I am paranoid rather than inadvertently eating the stuff. I suppose it could be that they get the glaze from an outside source and didn't know at first what it had in it. Or they changed suppliers. I suppose, too, they might have relied on the notion that folks react to soy protein and so the pure fat isn't an allergen. There aren't any allergen listing requirements in the law for supplements, so I guess what they say is up to them.

I don't know if the supplement I had taken for some time always had soy lecithin in the glaze or not, for sure. If it did, I doubt they would tell me. It would seem like a potential lawsuit to them.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,092
    • Most Online (within 30 mins)
      7,748

    Barb Cook
    Newest Member
    Barb Cook
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @RDB7918393! For some folks, gluten reactions are delayed but I would not think symptoms delayed  of a week or more out would be due to a gluten reaction. Twenty four hours or so but not 7-14 days. I would suspect something else is going on. Eating out is well-known to be the number one sabotaging activity of the gluten-free life style. 
    • RDB7918393
      I was diagnosed with Celiac about 10 months ago after having on and off morning stomach cramping and loose stool that only occurred like once a month. So I don’t get immediate reactions…more if build up reactions. I do my best to be gluten free but hard when on vacation and going to restaurants to fully trust cross contamination problems. I find that if I’m cross contaminated, I don’t get a reaction til about a week or two after. The reaction is stomach cramping morning only with flaky stool. Does anyone else have such a delayed reaction like a week or two after being glutened? Or should I go for more testing to see what’s going on.
    • ElisaAllergiesgluten
      Good morning, I saw that a lot of people were asking wether Polly-O products are gluten free. I just called them and all their cheeses are gluten free! Just wanted to let anyone know.    if you still want you can give them a call.
    • Sicilygirl
      Thank you very much Scott I am glad that there is a light at the end of this tunnel. I am just very impatient and I want to heal asap. I apreciate your honesty in this isnce I am getting absolutely knowhere with the medical system. A year or more? God help me this is hard. But, I am so grateful that I found a site like your that can help me and put my mind at ease in all of this. An you started this and you are ghelping alot of us get through this little by little. I thank you for starting this. Is there a cure coming that you know of? I am in Canada and there is nothing here.   Sophia    
    • Scott Adams
      Your approach is spot-on—trusting reliable sources like Mayo Clinic and sticking to a gluten-free diet that works for you is the best way to navigate all the noise out there. The claim that rice and corn contain forms of gluten harmful to celiacs is indeed a misconception. While these grains do contain proteins that may technically be referred to as "glutens" in a broader scientific sense, they are structurally and functionally different from the gliadin found in wheat, which is the specific protein harmful to those with celiac disease. Scientific research overwhelmingly supports the safety of non-contaminated rice and corn for celiacs unless there’s a separate sensitivity or allergy involved. Some opinion pieces or alternative health sources may blur the lines by conflating these proteins, which can cause unnecessary worry. You're absolutely correct to focus on the distinction between scientifically validated information and anecdotal claims. It's also important to note that some people with celiac disease may develop sensitivities to other grains over time, but this is individual and not a universal rule. If you’re asymptomatic and thriving on a diet that includes certified gluten-free products with rice and corn, there’s no reason to change what’s clearly working for you. The internet is a breeding ground for well-meaning but misguided advice, and it’s easy to feel overwhelmed. Your instinct to validate claims through reliable research is exactly the right way to go. Keep enjoying your gluten-free meals, stick with trusted certifications, and don’t feel pressured to adopt restrictive diets that aren’t backed by science or tailored to your specific needs. Happy New Year to you too!
×
×
  • Create New...