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Ain't That The Truth


Darn210

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Darn210 Enthusiast

Shared by a member of our local support group:

YOU KNOW YOU HAVE CELIAC DISEASE:

if you read the ingredient label on green tea - plain green tea.

if you just discovered how to make flour out of turnips.

if you know that Xanthan Gum is not for chewing.

if you know exactly when Post added barley flavoring back to the

Fruity Pebbles and you're ticked.

if a 7 Course Meal is a 1 Course Meal for you. Lettuce.

if your mother is afraid to do the cooking.

if you don't lick stamps.

if you cry when you discover a new way to make gluten-free bread. And

call all your relatives.

if you sit on the phone with a pharmacy for an hour to find out what

type of starch they use just so that you can take a generic Tylenol

and be rid of your headache.

if you know that spelt is a distant cousin of wheat, but buckwheat is

not related to wheat at all.

if the construction workers working on the house next door to you can

EASILY substitute your bread for one of their bricks.

if your grandmother INSISTS that you don't have celiac, you're just

"suffering from malabsorption"

if you burst into tears of relief at the sight of the words "gluten

free" stamped on the corner of the Nestle hot cocoa mix.

if you actually KNOW what an anti-TTG and an IGA blood test are.

if you've disinherited loved ones for putting their knife in your mayo.

if you sold your house to buy groceries.

if you compare all of your food to "normal-people-food."

if you can find "hidden gluten" in food labels in the blink of an eye.

if your family couldn't find it if they had a magnifying glass,

dictionary, and Ph.D.

if you wept the first time you tried to make gluten free sugar cookies

if you get a medical exemption out of cooking class because they are

baking bread.

if at Christmas, visions of guar gum dance in your head.

if you've had to give a doctor a crash course in Celiac 101.

if you've "brown bagged it" to an elegant dinner engagement.

if you've installed floor-to-ceiling bookcases in your bathroom.

if you've ever driven more than 40 miles to buy flour or a cookie.

if you hold your breath when passing by the bakery counter.

if you've ever deliberately rammed your cart into a Shredded Wheat

display in a fit of rage.

if the centerpiece on your dining room table is a bread machine with

memorial candles.

if your bread looks like a moon rock and tastes like dried out Play Doh.

if your bread weighs more than any moon rock could possibly weigh.

if one of your primary goals in life is to create "Fake Oreo Cookies".

if you've brought a suitcase full of food with you on a cruise.

if you pace and circle the store three or four times when deciding on

a new product - pick it up and look at the ingredients each time -

only to leave without it, figuring why bother.

if your family thinks you're crazy for not tasting their new chocolate

chip cookie recipe, because surely a little nibble couldn't hurt,

right?

if you are up late at night trying to develop a recipe for pizza

without flour, cheese, yeast, tomatoes, beef, garlic and oregano.

if you can spell transglutaminase and dermatitis herpetiformis.

if you show up at the annual church pancake breakfast with a mask and

sardine lettuce rollups

if having solid poop is the highlight of your day.

if you have actually doodled a new cartoon dog on your notes named "Sprue".

if you have ever dreamt about Wonder Bread.

if you have considered using a gluten-free bagel for a hockey puck.

if you hide the gluten-free cookies when guests come over, so they

don't eat them.

if you cried when you saw your usually careful husband brushing the

crumbs off his hands (from making a gluten-containing sandwich) RIGHT

OVER the open utensil drawer

if you talk about your disease so much to your friends and

acquaintances that your husband tells you you need to get another

hobby

if you talk about endoscopies and colonoscopies like these are normal

everyday occurences that everyone gets nearly every year.

if you bring "special" beer to the party, and don't share.

if you see someone buying rice flour in the bulk section and you just

have to ask them if they are gluten intolerant too!


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Ridgewalker Contributor

Janet, I LOVE these! This one is my favorite--

if you've ever deliberately rammed your cart into a Shredded Wheat

display in a fit of rage.

:lol: :lol: :lol:

Totally me.

ptkds Community Regular

THanks for posting this! I really needed the laughs today! It is scary how I can relate to so many of those!

kbtoyssni Contributor

You mean these aren't normal-person behaviors??? :) Thanks for posting!

MedicMan Newbie

Thank you. I really needed that today. It's good to know that I'm not alone in this new adventure.

See ya'

MedicMan

mommyagain Explorer
YOU KNOW YOU HAVE CELIAC DISEASE:

if you've "brown bagged it" to an elegant dinner engagement.

This is me! In just 2 months I've brown-bagged it to a bridal shower, a wedding, a baby shower, a fall festival, and countless meetings for work where "lunch is provided".

blueeyedmanda Community Regular

You know you have celiac if you can pinpoint all the bathrooms between point A and point B of your trip.


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mamaw Community Regular

Too cute!!!! The sad thing it is all true..........

Silly Yak Pete Rookie

That just describes me so accurately and funny to.

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  • Posts

    • trents
      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
    • Levi
      When I was first Dg’d I researched like mad. One thing I remember from then, which may have changed with advancement in medical science, is that Coeliac is a first generation disease which means either you or your husband need be Coeliac for your daughter to have inherited it. Far as I know, and I’m not a scientist just a victim, the amount of gluten (wheat, rye, or barley) one consumes does not cause a person to contract Coeliac Disease. So if neither of you as her biological parents have Coeliac then your daughter cannot pass any blame should she contract this horrific disease.     It’s humbling, and sometimes I believe GOD allows such as these autoimmune diseases for those who need it most. 
    • Lori Lavell
      The body reacts to all grain proteins in all grains from my observation. Call it Gluten, Gliadin, which is what they test for commonly, however, I am Celiac and react with dermatitis herpetiformis to corn and the glutenous protein in it is called Zein. They only test for Gliadin. Testing needs to be updated in my opinion. It only take a small parts per million to continuously create systemic inflammation. This is not productive to healing and all grains contain some for gluten like substance. It's called Molecular Mimicry.
    • Scott Adams
      Thank you for sharing your perspective. It's true that many grains contain proteins that are technically classified as "glutens" (like zein in corn and orzenin in rice), but it's important to clarify that these proteins are not the same as the gluten found in wheat, barley, and rye, which contains gliadin and glutenin. These specific proteins are the ones that trigger an autoimmune response in people with celiac disease. For individuals with celiac disease, the primary concern is avoiding gluten from wheat, barley, and rye, as these are the grains scientifically proven to cause damage to the small intestine. While some people with celiac disease or non-celiac gluten sensitivity may also react to other grains, this is not universal and varies from person to person. For most people with celiac disease, grains like corn and rice are considered safe and are widely recommended as part of a gluten-free diet. That said, you raise an important point about systemic inflammation and individual tolerance. Some people may indeed have sensitivities to other grains or find that eliminating additional grains helps them feel better. However, it’s crucial to differentiate between celiac disease, which requires strict avoidance of wheat, barley, and rye, and other conditions or sensitivities that may involve broader dietary restrictions.
    • trents
      I disagree, Lori. Gluten is a particular protein, not a category of proteins. It is found in wheat, barley and rye. Other cereal grains have proteins that resemble gluten to one degree or another but are not gluten. Gluten is gluten. Avenin is avenin. But yes, it is true, that informally speaking, some have used the term "gluten" to refer to the proteins found in these other cereal grains. It's like the term "kleenex" has come to refer to all facial tissues.
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