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Frustrated - Not Getting Well/questions About Enterolab


LoriG

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LoriG Contributor

Hi there-

I got my enterolab results and it said I have a celiac gene and gluten intolerance gene, positive antibodym(18), and moderate malabsorption score (771) SO I believe I have Celiac's Disease because I haven't felt good my whole life.

I also have hashimoto's thyroid disease - so between the two I am still very, very fatigued, constipated, and irritable and depressed. My new doc is putting me on a new thyroid med to get that working better, but it has been almost 3 months gluten-free and 3 weeks dairy free. I am no better! Nothing and I'm frustrated. I read all of these people getting better so much quicker! Is it celiac or thyroid? Both? Ugh!

This was missed because I have fatigue, depression, irritability, and constipation so they were focusing on thyroid.

My new doc says the enterolab results don't necessarily mean I have celiac's, but when I got the results I was RELIEVED because I finally had an answer to this lifelong struggle. Now I'm not so sure and it is taking so long to get well. Any thoughts?


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FootballFanatic Contributor

Okay I'm 3 months into it also. My doctor's have doubted that my enterolab results are true about me having Celiac Disease, but I am sticking with it - just gluten free/dairy free for 6 months...then I will look into eliminating the others...like soy, rice, or corn products...

I would recommend waiting it out. The majority of people I have met took around 1 year to heal.

LoriG Contributor
Okay I'm 3 months into it also. My doctor's have doubted that my enterolab results are true about me having Celiac Disease, but I am sticking with it - just gluten free/dairy free for 6 months...then I will look into eliminating the others...like soy, rice, or corn products...

I would recommend waiting it out. The majority of people I have met took around 1 year to heal.

Thanks for the encouragement. It is good to hear that I'm not alone - waiting for health! Hopefully others will respond with how long this takes.

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    • Lori Lavell
      The body reacts to all grain proteins in all grains from my observation. Call it Gluten, Gliadin, which is what they test for commonly, however, I am Celiac and react with dermatitis herpetiformis to corn and the glutenous protein in it is called Zein. They only test for Gliadin. Testing needs to be updated in my opinion. It only take a small parts per million to continuously create systemic inflammation. This is not productive to healing and all grains contain some for gluten like substance. It's called Molecular Mimicry.
    • Scott Adams
      Thank you for sharing your perspective. It's true that many grains contain proteins that are technically classified as "glutens" (like zein in corn and orzenin in rice), but it's important to clarify that these proteins are not the same as the gluten found in wheat, barley, and rye, which contains gliadin and glutenin. These specific proteins are the ones that trigger an autoimmune response in people with celiac disease. For individuals with celiac disease, the primary concern is avoiding gluten from wheat, barley, and rye, as these are the grains scientifically proven to cause damage to the small intestine. While some people with celiac disease or non-celiac gluten sensitivity may also react to other grains, this is not universal and varies from person to person. For most people with celiac disease, grains like corn and rice are considered safe and are widely recommended as part of a gluten-free diet. That said, you raise an important point about systemic inflammation and individual tolerance. Some people may indeed have sensitivities to other grains or find that eliminating additional grains helps them feel better. However, it’s crucial to differentiate between celiac disease, which requires strict avoidance of wheat, barley, and rye, and other conditions or sensitivities that may involve broader dietary restrictions.
    • trents
      I disagree, Lori. Gluten is a particular protein, not a category of proteins. It is found in wheat, barley and rye. Other cereal grains have proteins that resemble gluten to one degree or another but are not gluten. Gluten is gluten. Avenin is avenin. But yes, it is true, that informally speaking, some have used the term "gluten" to refer to the proteins found in these other cereal grains. It's like the term "kleenex" has come to refer to all facial tissues.
    • Lori Lavell
      In fact ALL grains contain different forms of gluten that go by different names. Corn contains Zein and Rice contains Orzenin. We all need to realize that a very small amount of any of these grains can cause continued systemic inflammation which is not optimal for allowing the body to heal itself.  
    • Scott Adams
      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.     
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