Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

York Allergy Test Is Back


jaycee30

Recommended Posts

jaycee30 Apprentice

Hello all,

I don't post often but come here a lot for information since I had an inconclusive blood test result for Celiac. I did have a biopsy done, which was negative (thank goodness). I've been gluten free since the blood test, just because I knew that wheat, etc made me sick

Anyway, in my journey to figure out why I keep having stomach issues, I sent off a blood test to York Nutritional Labs and I've got the results. They actually explain so much and since eliminating the culprits, I'm feeling even better. But look at this list! Is anyone else here dealing with multiple allergies, sensitivities, etc?

My worst IGG antibodies are soy, yeast and barley (explains why beer and even gluten free breads sometimes make me sick!)

My lower IGG antibodies are tomato, peppercorn, nutmeg, wheat, gluten and milk.

Interestingly, eggs did NOT show up this time, although I tested moderately severe to them over a year ago and have completely avoided them since them. The milk allergy also showed up at that same time, but I've not excluded it completely from my diet....guess thats why its still there.

Is anyone else here dealing with an allergy list like this? I'm particularly interested in a bread recipe that would meet these requirements. Thankfully, potatos and rice are not a problem, so I'm hoping someone might have a recipe. Mostly though, I'm just looking for support I guess. I feel so betrayed by my body....diagnosed with MS about a year ago and now all this.

Oh, and I also need a brand off supplements that I can take. I'm really getting worried about the calcium thing now. I'm lucky to get one serving of dairy a week and I just found out that low calcium can cause numbness and tingling in the face, extremities, etc. The doc's have written it off as MS but I'd like to try a supplement and see if it helps.

Thanks for listening

Jen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wclemens Newbie

Dear Jen,

I feel so privileged to be the first person to answer your first post! And my overwhelming feeling after reading your message is, "How wonderful if the doctors could be wrong about the MS!" Wouldn't that be just so great, to know that their misdiagnosis would mean such a release and feeling of peace for you, who, most likely, has suffered for so long.

I am 60 and have had food allergies (actually Celiac I know now) since I was 8. I have had to eliminate all grains, all milk and dairy products, egg whites, and yeast during the past years, and find life pretty peaceful and smooth flowing, in terms of diet, since doing that. When I eat at restaurants I eat a hamburger with no bun or a salad (though I have had ill-effects with my asthma from the solution some restaurants clean their lettuce with), or a chicken breast or steak. That is usually a pretty safe way to go.

At home I am a creative and adventurous chef, trying all kinds of new ingredients and recipes, especially trying to mimic recipes that I enjoyed in years past and am no longer allowed to eat. I have found that whenever I eat most of the bread substitutes or anything similar to grains, I have a problem, so I have pretty much given up on the idea of those. However, with Thanksgiving time here, I have made my own pumpkin pie filling (I don't need the crust) and use non-dairy whipped cream from the can (Cool Whip has casein, a milk derivative, so that is out--you have to be really careful about casein and whey, because so many products have them).

I replace milk in recipes with almond milk, which I tolerate better than soy, and it is great stuff. I eat lots of fresh fruits and vegetables, tons of chicken, fish, and meat, and nuts and seeds, especially almonds, walnuts, pecans, and sunflower seeds. I take no extra supplements, though in the past I spent lots of dollars on them, and felt that they made no difference in my quality of health. I am less than five feet tall, and weigh about 106, because I stick with The Carbohydrate Addict's Diet religiously. I eat low carb, high protein foods 23 hours a day and have one hour of eating any of the foods or drinks I can tolerate. Limiting high carbs to 60 minutes assures that no extravagant output of insulin occurs, a danger in families with a history of diabetes, such as mine.

I am going to stop now, and hope that you receive this post and have more questions. Being able to share what works and doesn't work makes all the suffering and pain that we Celiacs have endured in the past worthwhile, since now we can help someone else. God bless you Jen. Welda

Rikki Tikki Explorer

Welda:

Your response was so nice and had some really good information. Jen, I would check further because I was told by the doctor about 15 years ago after I had a brain tumor removed that they had found plaque on my brain. According to the doctor I had ms. What I have learned since then is that a lot of people with celiac have this show up on the mri. I have had some small issues over the years but recently have not had any problems other than with my balance which could of been from when they took the tumor out because it was in the part of my brain that controls balance and vision.

I hope this helps

kvogt Rookie

jaycee30,

I too did the York test and came out with milk, beef, carrot, potato, lettuce, soy bean, chilli pepper, garlic, vanilla and yeast on my avoid list. On my rotate list I have gliadin, wheat, oat, egg white, egg yolk, asparagus, lime and mustard mix (cabbage, Brussels sprouts, cauliflower and brocolli).

If you aren't aware, York is now recommending that you avoid all items in your rotate list. I too am stuggling with these eliminations. I reckon my best tack is to take them out one at a time. I'm not struggling too much with things I never cared much for anyway, but the rest are proving much more challenging.

I have noticed that I can eat some vegetables cooked that bother me when eaten raw. For instance, onion (related to garlic) tears me up raw, but cooked I never notice it. I also think that if I eat too many forbidden foods at once I have trouble, so I try to keep it to one at a meal.

Regarding palatability, I often wait until I'm famished before I eat, then anything tastes good. I'm not recommending this, but I'm finding I'm taking less interest in food than I used to do.

Another thing to remember is that celiac is predominately an IgA mediated allergy. York tests for IgG. As I understand it, IgA is more specific to the gut. IgG problems can effect you in many ways, so you need to look carefully at their list of complaints associated with IgG and see where you find yourself there. Then monitor yourself closely when you eat forbidden foods and assess your reaction.

kabowman Explorer

I have not gone through York testing but through elemination diet, have realized that I cannot have: lactose/casein, gluten, yeast, MSG, vinegar, soy, garbonzo, almonds, peanuts, corn, & wine. My celiac disease biopsy was negative...

For a while, I lamented the lack of ever having a real bread substitute since I discovered the yeast thing, however, I have adjusted. I eat a lot of fruit, veggies, and meat...more chicken the beef.

As to suppliments, I have been concerned for years about calcium and take 1,000MG a day (check with local health food stores there is one brand that is gluten-free, DF, CF, SF, etc). Also, GNC sells a liquid multi-vitamin (tastes pretty bad) that is pretty safe. My doc also has me on Mega B and C daily.

Almost all the problems I have been having with my body over the last 13-15 years have finally gotten better - except when I make a mistake and eat something with hidden ingredients or I forgot to re-check ingredients. However, it has taken almost 6 months of being strict to get here. I won't ever go back.

-Kate

mela14 Enthusiast

How can I go about doing the York Test/ does a dr need to order it or can I do it myself.

any information is appreciated as i have lots of food allergies that I am finding out about through a food diary and working with a dietician. Too bad she doesn't know more about gluten.

mel

christtheking Contributor

Welcome to the forum! I too have had very similar York lab results. My question to all those out there is thus: Yeast, it can be found in so many things... and so if brewer's and baker's yeast are on your list...does this eliminate all alcoholic beverages? And how vigilant are folks out there against all the forms of yeast. For example yeast can grow on the skin of fruit and also grow in your stomach. I have heard that garlic is a good source for killing bad internal yeast growth.

Check out this page here and let me know what you folks think:

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



christtheking Contributor

RE: York

Everything you need to know about York can be found by visiting the links below. I highly recommend York, as do many others on the forum. Just do it and stop worrying about it. Often it is covered by your insurance, but you must pay up front on your own. No local Doc needed. An MD will be provided through York.

Open Original Shared Link

Open Original Shared Link

PS please remember my previous post regarding yeast. I am eager to receive your replies on this subject.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    2. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    4. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,258
    • Most Online (within 30 mins)
      7,748

    TracyMc
    Newest Member
    TracyMc
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.