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York Allergy Test Is Back


jaycee30

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jaycee30 Apprentice

Hello all,

I don't post often but come here a lot for information since I had an inconclusive blood test result for Celiac. I did have a biopsy done, which was negative (thank goodness). I've been gluten free since the blood test, just because I knew that wheat, etc made me sick

Anyway, in my journey to figure out why I keep having stomach issues, I sent off a blood test to York Nutritional Labs and I've got the results. They actually explain so much and since eliminating the culprits, I'm feeling even better. But look at this list! Is anyone else here dealing with multiple allergies, sensitivities, etc?

My worst IGG antibodies are soy, yeast and barley (explains why beer and even gluten free breads sometimes make me sick!)

My lower IGG antibodies are tomato, peppercorn, nutmeg, wheat, gluten and milk.

Interestingly, eggs did NOT show up this time, although I tested moderately severe to them over a year ago and have completely avoided them since them. The milk allergy also showed up at that same time, but I've not excluded it completely from my diet....guess thats why its still there.

Is anyone else here dealing with an allergy list like this? I'm particularly interested in a bread recipe that would meet these requirements. Thankfully, potatos and rice are not a problem, so I'm hoping someone might have a recipe. Mostly though, I'm just looking for support I guess. I feel so betrayed by my body....diagnosed with MS about a year ago and now all this.

Oh, and I also need a brand off supplements that I can take. I'm really getting worried about the calcium thing now. I'm lucky to get one serving of dairy a week and I just found out that low calcium can cause numbness and tingling in the face, extremities, etc. The doc's have written it off as MS but I'd like to try a supplement and see if it helps.

Thanks for listening

Jen


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wclemens Newbie

Dear Jen,

I feel so privileged to be the first person to answer your first post! And my overwhelming feeling after reading your message is, "How wonderful if the doctors could be wrong about the MS!" Wouldn't that be just so great, to know that their misdiagnosis would mean such a release and feeling of peace for you, who, most likely, has suffered for so long.

I am 60 and have had food allergies (actually Celiac I know now) since I was 8. I have had to eliminate all grains, all milk and dairy products, egg whites, and yeast during the past years, and find life pretty peaceful and smooth flowing, in terms of diet, since doing that. When I eat at restaurants I eat a hamburger with no bun or a salad (though I have had ill-effects with my asthma from the solution some restaurants clean their lettuce with), or a chicken breast or steak. That is usually a pretty safe way to go.

At home I am a creative and adventurous chef, trying all kinds of new ingredients and recipes, especially trying to mimic recipes that I enjoyed in years past and am no longer allowed to eat. I have found that whenever I eat most of the bread substitutes or anything similar to grains, I have a problem, so I have pretty much given up on the idea of those. However, with Thanksgiving time here, I have made my own pumpkin pie filling (I don't need the crust) and use non-dairy whipped cream from the can (Cool Whip has casein, a milk derivative, so that is out--you have to be really careful about casein and whey, because so many products have them).

I replace milk in recipes with almond milk, which I tolerate better than soy, and it is great stuff. I eat lots of fresh fruits and vegetables, tons of chicken, fish, and meat, and nuts and seeds, especially almonds, walnuts, pecans, and sunflower seeds. I take no extra supplements, though in the past I spent lots of dollars on them, and felt that they made no difference in my quality of health. I am less than five feet tall, and weigh about 106, because I stick with The Carbohydrate Addict's Diet religiously. I eat low carb, high protein foods 23 hours a day and have one hour of eating any of the foods or drinks I can tolerate. Limiting high carbs to 60 minutes assures that no extravagant output of insulin occurs, a danger in families with a history of diabetes, such as mine.

I am going to stop now, and hope that you receive this post and have more questions. Being able to share what works and doesn't work makes all the suffering and pain that we Celiacs have endured in the past worthwhile, since now we can help someone else. God bless you Jen. Welda

Rikki Tikki Explorer

Welda:

Your response was so nice and had some really good information. Jen, I would check further because I was told by the doctor about 15 years ago after I had a brain tumor removed that they had found plaque on my brain. According to the doctor I had ms. What I have learned since then is that a lot of people with celiac have this show up on the mri. I have had some small issues over the years but recently have not had any problems other than with my balance which could of been from when they took the tumor out because it was in the part of my brain that controls balance and vision.

I hope this helps

kvogt Rookie

jaycee30,

I too did the York test and came out with milk, beef, carrot, potato, lettuce, soy bean, chilli pepper, garlic, vanilla and yeast on my avoid list. On my rotate list I have gliadin, wheat, oat, egg white, egg yolk, asparagus, lime and mustard mix (cabbage, Brussels sprouts, cauliflower and brocolli).

If you aren't aware, York is now recommending that you avoid all items in your rotate list. I too am stuggling with these eliminations. I reckon my best tack is to take them out one at a time. I'm not struggling too much with things I never cared much for anyway, but the rest are proving much more challenging.

I have noticed that I can eat some vegetables cooked that bother me when eaten raw. For instance, onion (related to garlic) tears me up raw, but cooked I never notice it. I also think that if I eat too many forbidden foods at once I have trouble, so I try to keep it to one at a meal.

Regarding palatability, I often wait until I'm famished before I eat, then anything tastes good. I'm not recommending this, but I'm finding I'm taking less interest in food than I used to do.

Another thing to remember is that celiac is predominately an IgA mediated allergy. York tests for IgG. As I understand it, IgA is more specific to the gut. IgG problems can effect you in many ways, so you need to look carefully at their list of complaints associated with IgG and see where you find yourself there. Then monitor yourself closely when you eat forbidden foods and assess your reaction.

kabowman Explorer

I have not gone through York testing but through elemination diet, have realized that I cannot have: lactose/casein, gluten, yeast, MSG, vinegar, soy, garbonzo, almonds, peanuts, corn, & wine. My celiac disease biopsy was negative...

For a while, I lamented the lack of ever having a real bread substitute since I discovered the yeast thing, however, I have adjusted. I eat a lot of fruit, veggies, and meat...more chicken the beef.

As to suppliments, I have been concerned for years about calcium and take 1,000MG a day (check with local health food stores there is one brand that is gluten-free, DF, CF, SF, etc). Also, GNC sells a liquid multi-vitamin (tastes pretty bad) that is pretty safe. My doc also has me on Mega B and C daily.

Almost all the problems I have been having with my body over the last 13-15 years have finally gotten better - except when I make a mistake and eat something with hidden ingredients or I forgot to re-check ingredients. However, it has taken almost 6 months of being strict to get here. I won't ever go back.

-Kate

mela14 Enthusiast

How can I go about doing the York Test/ does a dr need to order it or can I do it myself.

any information is appreciated as i have lots of food allergies that I am finding out about through a food diary and working with a dietician. Too bad she doesn't know more about gluten.

mel

christtheking Contributor

Welcome to the forum! I too have had very similar York lab results. My question to all those out there is thus: Yeast, it can be found in so many things... and so if brewer's and baker's yeast are on your list...does this eliminate all alcoholic beverages? And how vigilant are folks out there against all the forms of yeast. For example yeast can grow on the skin of fruit and also grow in your stomach. I have heard that garlic is a good source for killing bad internal yeast growth.

Check out this page here and let me know what you folks think:

Open Original Shared Link


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christtheking Contributor

RE: York

Everything you need to know about York can be found by visiting the links below. I highly recommend York, as do many others on the forum. Just do it and stop worrying about it. Often it is covered by your insurance, but you must pay up front on your own. No local Doc needed. An MD will be provided through York.

Open Original Shared Link

Open Original Shared Link

PS please remember my previous post regarding yeast. I am eager to receive your replies on this subject.

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    • Scott Adams
      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
      I called zero water and they state their filters do not contain gluten or gluten containing ingredients. 
    • trents
      I agree. Doesn't look like you have celiac disease. Your elevated DGP-IGG must be due to something else. And it was within normal at that after your gluten challenge so it is erratic and doesn't seem to be tied to gluten consumption.
    • Jack Common
      Hello! I want to share my situation. I had symptoms like some food intolerance, diarrhea, bloating, belching one year ago. I thought I could have celiac disease so I did the blood tests. The results were ambiguous for me so I saw the doctor and he said I needed to do tests to check whether I had any parasites as well. It turned out I had giardiasis. After treating it my symptoms didn't disappear immediately. And I decided to start a gluten free diet despite my doctor said I didn't have it. After some time symptoms disappeared but that time it wasn't unclear whether I'd had them because of eliminating gluten or that parasite. The symptoms for both are very similar. Giardiasis also damages the small intestine. The only way to check this was to start eating bread again as I thought. Now about my results.   These are my first test results (almost a year ago) when I had symptoms: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months. Symptoms disappeared. And I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   Nowadays I didn't have any symptoms except tiredness but I think it's just work. I think it was this parasite because two years ago, for example, and before I didn't have these symptoms and I always ate gluten food. But I'm still not sure especially because the Deamidated gliadin peptide IgG results are sometimes high. What do you think? @Scott Adams
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