Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Had Blood Taken Yesterday For Tests

fulloftrouble

Recommended Posts

fulloftrouble Newbie
fulloftrouble
Posted

Hey all. I just saw my doctor yesterday and she suspects this or possibly ulcerative colitis. I became lactose intolerant about 4 years ago at the age of 22. Since then, I have greatly modified my diet to cut out all dairy and have been doing great on very specific and plain foods. Fast forward to about a month to 45 days ago I am now becoming regularly sick on what used to be those safe foods. For example, this weekend I got sick from snacking on pretzels and a soda. Yesterday morning oatmeal made me sick. These are foods that I've had countless times and know for sure that they do not make me sick. I'm also getting sick from plain turkey sandwiches that I have at lunch.

It's very frustrating to be going through this uncertain period like I did 4 years ago before I narrowed down the problem to lactose intolerance. I feel like my entire food world has been turned upside down and have no clue what to eat any more.

My doctor took a ton of blood yesterday and I should have the results within a week or so. Is endoscopy really necessary? Also a biopsy? I'd really like to avoid those!! :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


fulloftrouble Newbie
fulloftrouble
Posted
  • Author

2 days later I'm feeling worse. While I haven't had diarrhea like I normally do, now I feel bloated and have not had any stools since being sick on Monday. Also, after every meal I'm becoming VERY dizzy and nauseous. Today I felt like I was going to faint about 1hr after eating. My stomach has also felt really weird, almost like it's churning. It hasn't been painful, just feels like it's definitely not normal. I've also noticed a lack of appetite the past few days.

How long did it take to get results back from blood tests? I hate the waiting game.

Ridgewalker Contributor
Ridgewalker
Posted

I'm sorry you're having such a hard time. :( When my mom had her blood tests, I think it took about a week to get results, but they mailed them instead of calling- so that took longer than it should have. So hopefully you'll have your results soon!

I'm betting your doctors are really going to want to do an endoscopy, especially since ulcerative colitis is a possibility.

I'm not thrilled with the medical community's apparent need for biopsy to diagnose Celiac. But when other conditions are possible, I feel like an endoscopy is a good idea to rule them out. These are just my opinions, though.

It's ultimately your choice!

I hope the waiting game is almost over. Keep us updated!

confused Community Regular
confused
Posted
2 days later I'm feeling worse. While I haven't had diarrhea like I normally do, now I feel bloated and have not had any stools since being sick on Monday. Also, after every meal I'm becoming VERY dizzy and nauseous. Today I felt like I was going to faint about 1hr after eating. My stomach has also felt really weird, almost like it's churning. It hasn't been painful, just feels like it's definitely not normal. I've also noticed a lack of appetite the past few days.

How long did it take to get results back from blood tests? I hate the waiting game.

we had my ss tested on friday we had part of the results back yesterday. But some drs wait for all of the results to be back to call.

paula

fulloftrouble Newbie
fulloftrouble
Posted
  • Author

Still feel terrible tonight. I had some corn chips (no wheat warning on it, so I assume it's safe) and water. I felt 100% after having those. Fast forward about 2hrs I hade a huge glass of gatorade and after that I feel miserable.....dizzy, nauseous, feel like passing out.

What the heck would make me sick from gatorade???

I am pissed. I went through all this getting sick stuff 4 years ago. It took me a while to figure out that I was lactose intolerant and then there have been MANY times where there was unknowningly dairy in something I ate and would make me sick.

I really don't want to go through all this again in order to narrow down what is wrong with me! :(

Ridgewalker Contributor
Ridgewalker
Posted

I'm not sure... the first two thinks I think of when I hear "Gatorade" are sugar and salt. Gatorade is high in both. The corn chips were probably high in sodium, too. I don't really know much about how sodium can affect you. I'm just thinking of what was in what you ate.

You might want to think about calling your dr. office today to see if they have any results yet.

fulloftrouble Newbie
fulloftrouble
Posted
  • Author

Thanks again for your reply! Unfortunately I have to have a higher intake of sodium in my diet. I also have epilepsy and the medication I take for that lowers my blood sodium levels. I just left a message at my doc's office. I hope they call me back today.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


fulloftrouble Newbie
fulloftrouble
Posted
  • Author

Blood test came back negative. I'm going to find a GI specialist and get them to start running tests.

Virgie Apprentice
Virgie
Posted

Hi! My 18 year old son was dx 3 years ago with Ulcerative Colitis. So I am sure the GI will also want to do a colonoscopy. I know fun (not) It's kind of weird but my son can not eat Pretzels and soda together. But then there are lots of things that bother him when he eats.

I hope you get the answers that you need.

Virginia

quote name='fulloftrouble' date='Nov 9 2007, 04:37 PM' post='362340']

Blood test came back negative. I'm going to find a GI specialist and get them to start running tests.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. gailc
      - gailc replied to Yenni's topic in Coping with Celiac Disease
      28

      Anyone Got Sick From Canola Oil?

      I get coughing and choking from canola oil. I cough up stuff. Symptom is like bronchitis. I have gluten intolerance, maybe celiac. the choking persists for about a week, it simulates a cold. I got it from the gluten free menu at Outback too, that time I got cramps for 25 hours. the cramps start about 20 minutes after finishing eating.
    2. Wheatwacked
      - Wheatwacked replied to BIg Nodge's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Opinions on my test results/symptoms

      Many of the symptoms, there are over 200, associated with celiac disease and NCGS are vitamin and mineral deficiencies caused by small intestine damage in the case of celiac disease and food avoidance and the poor nutrittion of the Modern American Diet (MAD) I used to turn the heat on even at 78 degrees. The 600 mcg of Liquid Iodine helped. Also...
    3. Wheatwacked
      - Wheatwacked replied to Nicbent35's topic in Introduce Yourself / Share Stuff
      4

      3 year old gluten intolerance?

      If you mean continueing on Gluten Free my answer is yes. She showed significant improvement in her behavior and that translates to a happy family. Do get her tested as sooon as you can. You might want to investigate genetic testing for Celiac Disease. Children recover more quickly than adults. It took my son about 6 months on Nutramigen before going...
    4. Wheatwacked
      - Wheatwacked replied to Nicbent35's topic in Introduce Yourself / Share Stuff
      4

      3 year old gluten intolerance?

      Hi @Nicbent35, When my son was diagnosed with Celiac Disease when he was weaned, so I understand your frustration. With improvement so dramatic, it cannot be a coincedence. Get her to the doctor and tell the story and insist on testing. In the meantime, though, continue on GFD. Her health is more important than convincing...
    5. knitty kitty
      - knitty kitty replied to plumbago's topic in Related Issues & Disorders
      3

      Anyone else with very high HDL?

      @plumbago, Are you taking any folate with your B12? Folate helps regulate HDL levels. You may try taking a methylfolate supplement with your B12. If there's a folate deficiency because you aren't absorbing sufficient folate, or have the MThF mutation causing a functional folate deficiency (methylfolate trap), you can have a functional B12 deficiency...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,892
    • Most Online (within 30 mins)
      7,748
    Lpschmitt
    Newest Member
    Lpschmitt
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • gailc
      Anyone Got Sick From Canola Oil?

      By gailc · Posted

      I get coughing and choking from canola oil. I cough up stuff.  Symptom is like bronchitis.  I have gluten intolerance, maybe celiac.  the choking persists for about a week, it simulates a cold.  I got it from the gluten free menu at Outback too, that time I got cramps for 25 hours. the cramps start about 20 minutes after finishing eating.  
    • Wheatwacked
      Opinions on my test results/symptoms

      By Wheatwacked · Posted

      Many of the symptoms, there are over 200, associated with celiac disease and NCGS are vitamin and mineral deficiencies caused by small intestine damage in the case of celiac disease and food avoidance and the poor nutrittion of the Modern American Diet (MAD) I used to turn the heat on even at 78 degrees.  The 600 mcg of Liquid Iodine helped.  Also good for hair, nails, skin and brain fog.  Another good thing for brain fog is phosphatyl choline.  It is essentil for acetylcholine- a brain chemical. I have familial hyperlipdemia and instead of a statin I got a prescription for Nicotinic Acid, 2000 mg a day.  I was already taking 500 mg a day and was really surprised when my HDL when up to  44 and I began sleeping better and my legs and back are getting more flexible.  In addition after the first few doses of itchiness I get a warm fuzzy feeling Raising your vitamin D is crucial.  Low vitamin D allows the immune system to run amuck. intermittent bouts of fatigue, chills/cold intolerance, and shortness of breath/air hunger (sometimes feels like a hollowness in my chest, hard to describe).  Look at Thiamin deficiency. consistently ran hot, was always cranking the a/c, to someone who wears a down vest.  Any combination of deficiencies in B1, B2, B3, B5, choline and Iodine can cause this.  Likely all of them. After a lifetime of mouthbreathing GFD cleared my sinuses.  Post nasal drip is my first symptom of cross contamination nowaday.  
    • Wheatwacked
      3 year old gluten intolerance?

      By Wheatwacked · Posted

      If you mean continueing on Gluten Free my answer is yes.  She showed significant improvement in her behavior and that translates to a happy family.  Do get her tested as sooon as you can.  You might want to investigate genetic testing for Celiac Disease.  Children recover more quickly than adults.  It took my son about 6 months on Nutramigen before going to regular food, gluten free.  Blood tests are not always accurate in very young children. You may be advised to see a gastroenterologist instead of relying on blood tests results. Logic: She is better off gluten than before.  Wheat flour has no nutritional value and has an omega 6: omega 3 ratio of 22:1.  Our bodies do better at 3:1.  Omega 6 causes inflammation. When my son was diagnosed, back in 1976, his doctor recommended my wife and I also go gluten free.  We declined and lived to regret it.  I started GFD at 63 and have spent the last 10 years undoing the damage, some of my symptons went all the way back to my childhood and things I lived with all my life got better.
    • Wheatwacked
      3 year old gluten intolerance?

      By Wheatwacked · Posted

      Hi @Nicbent35,             When my son was diagnosed with Celiac Disease when he was weaned, so I understand your frustration.       With improvement so dramatic, it cannot be a coincedence. Get her to the doctor and tell the story and insist on testing.  In the meantime, though, continue on GFD.  Her health is more important than convincing a doctor.  Bring videos of her behaviors if you can.  Even if the blood tests and biopsy prove negative, that is part of the diagnosis process for NCGS and later when she is recovered you can always do a Gluten Challenge.      This is an important time in her developement.  Celiac Disease causes malabsorption syndrome, leading to malnutrition, regardles of what she eats.  Though NCGS may not cause malabsorption, it will affect food choices which can lead to malnutrition.  There may be benifits that an official diagnosis may have, but they don't trump a healthy child.      Get her healthy, then worry about validation later.  Celiac Disease is difficult to diagnosed, especially in children, because doctors look for antibodies in the blood and young children have immature immune systems.  Also you don't mention any gastrologic symtoms and celiac disease is traditionally considered gastrolic only.  Not true.  There are over 200 symptom that celiac disease and the accompaning malnutrion mimics or causes that often causes misdiagnosis and delay in recovery. While at the doctors, ask them about vitamin D deficiency and Iodine deficiency in particular. Milk being the primary source of iodine in the diet, but concerns exist regarding the lower iodine content in organic milk and reduced milk consumption in certain demographics.  Vitamin D deficiency is 40% of the industrialized population and a recent study in the Great Britain showed a wopping 60%, beaten only by some areas of Canada at 70%. And B1, B2, B3, B5 and B6.  Deficiencies in these are common in untreated Celiac Disease and they affect energy production. Are You Confused About Your Celiac Disease Lab Results?
    • knitty kitty
      Anyone else with very high HDL?

      By knitty kitty · Posted

      @plumbago, Are you taking any folate with your B12?   Folate helps regulate HDL levels.  You may try taking a methylfolate supplement with your B12.   If there's a folate deficiency because you aren't absorbing sufficient folate, or have the MThF mutation causing a functional folate deficiency (methylfolate trap), you can have a functional B12 deficiency despite supplementing, resulting in HDL levels not getting regulated, but running high or low.   Pushing the envelope in explanations, too. P. S. Are you taking a B Complex?  Folate and B12 Cobalamine need enzymes made from B6 Pyridoxine's interaction with Thiamine, and B2 Riboflavin's interaction with Thiamine.  Is your Vitamin D low?
×
×
  • Create New...