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Heritage


Rikki Tikki

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lovegrov Collaborator

Mostly English, some Cajun, and a tiny bit of American Indian from many generations ago.

richard


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strack2004 Rookie

Not diagnosed with celiac, but on the diet with improvement in some areas. Parents both had digestion issues. Paternal Grandmother, also. Didn't know that many of my family members. My parents were both from large families, but younger than the others. My heritage is German-Norwegian. Don't think my two sisters have had digestive problems. One daughter does out of my six children. Really don't know about my 18 grandchildren. My 1 great-grand daughter doesn't have problems. There is diabetes on both sides, especially paternal side. I think everybody had it of those I know about. One of my daughters is pre-diabetic. Lots of arthritis on both sides, glaucoma also. Ruth S.

YankeeDB Contributor

I'm joining the Irish, Scotch-Irish, English crowd!

I have one brother with a weak positive (blood test and endoscopy), another tested negative.

I suspect very strongly my mother had a bad case that was never diagnosed before she died.

Maggie1956 Rookie

My mother's side is English/Scotish. I don't think her family had celiac disease anywhere. Just thyoid trouble (which I also have).

My father's side is mainly English. I'm not too sure what else.

I think Dad had coeliac disease. (He passed awy at 88 this past August). He always had trouble with his stomach, and used to gag on food etc., have a lot of pain after he ate.

I seem to take after my Dad in most areas, so. lucky me, I inheritted his tummy troubles.

Maggie

Maggie1956 Rookie

Oh yes, sorry, I forgot to mention that my mother had mature onset diabetes, and a bone disease called Paget's Disease. Mum also had heart troubles, and died 2001 after a lot of heart/lung problems.

On my Dad's side, there is a lot of cancer, as well as the problems I mentioned. My Dad died of bladder cancer.

Maggie

McDougall Apprentice

It really amazes me how everything is making sense. You all even have the same heritage as me. I was born in London, I'm 75% English and 25% Scottish, lived in usa for most my life. My parents both had/have alot of health issues, hard to say if they had/have Celiac. My Mom died from inflammatory breast cancer and had digestive problems most of her life. She wasn't the type to ever let it on though, the fact that I know she had issues with her belly really makes me think, she had a 4 inch hole in her back she woudn't tell anyone about from a horrible operation so it's hard to say. My Dad has been severly brain damaged for decades so again it's hard to say.

Nice to meet you all btw I live in Ft. Lauderdale, Florida 51 hours gluten-free

dmchr4 Apprentice

My 8 yo daughter is the one that likely has celiac. (positive AGa test, feeling better after almost 2 weeks on gluten-free diet.)

My mother- is swedish

My dad - english ancestry

My husband's mother - english (I think)

My husband's father - danish

On my side, my mother's mother died of lung cancer (chain smoker). My brother and sister had terrible food allergies as children, sister still has them, brother eats what he wants but maybe still has them. My mother has all sorts of wierd health problems (I think she's been going through menopause for about 10 years now). I hate to say it but I really don't know what all her symptoms are because she complains so much I tune her out. I had stomachaches every day in 1st grade, my mom had to get me from school every day around 1p.m. Then we moved and they went away. Around highschool, I started to have episodes of very painful stomachaches, bloating, gas & diarrhea. This mostly went away after I got married and pregnant with my first kid. But I do still occasionally get bad stomachaches and diarrhea. I'm also pretty skinny (105 and 5'4") and I don't gain weight (unless I'm pregnant) and I'm wondering if maybe I have celiac disease too. (Although I really don't want it - like anyone does! - until I figure out how to cook tastier gluten-free foods! Today's cookie baking episode was NOT really encouraging! :) )

On my husband's side, his 76 yo father has been healthy his whole life, doesn't drink/smoke but he had lymphoma about 7 years ago (now apparently gone.) His 7mother is in terrible shape (after nine kids!) - on dialysis, has diabetes, and probably some other problems but those are the big ones. My husband has acid reflux and joint pain, but no other apparent symptoms, but I still wonder if he's the one that has celiac disease, or maybe both of us. I'm probably just getting paranoid!

No one else in the family has been tested yet, since this is so new to us. BTW, is there a best (covered by insurance) test to get a positive diagnosis w/o a biopsy?

When my daughter goes back to the doctor in about 3 weeks we'll think about testing the rest of the family.

My daughter has about 55 or 60 first cousins! (Too tired to count them all right now.)


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gypsyfey Newbie

I am German French Irish & Scottish. Although they won't get tested, I am sure that my mother and at least 2 of my kids are suffering from celiac disease. Has anyone else heard that the rate is much higher in twins? My husband and I each have a set of twins and all four have celiac disease.

My husband is Scottish, Welsh and more Scots. He was diagnosed 9 yrs ago. Since then his parents have also gone gluten-free. They are convinced that his only brother also has celiac disease, but he has no interest in being tested. I think people shy away from the testing because a doc tells them that they have IBS, and they don't have to change much. Going gluten-free is such a major thing, most people would rather just live with what they have always delt with.

haans42 Newbie

Hi,

Prussian, (Eastern Germany before Poland was created after WWI) Austrian, and Azerbijani.

As I understand it celiac is more common among people from central Europe.

Haans

Guest shai

Mother's side= Irish

Father's side= Irish and Native American

FreyaUSA Contributor

An interesting addition...my husband's coworker just had her son diagnosed with celiac disease (and soy allergy as well.) They're from Nigeria.

llj012564 Newbie

Mostly German from both sides B) then its a mix of Northern Europe

Grandfather died : Colon cancer

Father : Colon Polyps

Brother : Colon Polyps

You think I can get them to even listen to the Idea that they may have celiac disease and should be tested...... <_< Even though they both have many symptoms they dont want to listen :unsure: I blame it on the stuborn German blood <_< Maybe someday I will get them to see the connection.

stef-the-kicking-cuty Enthusiast

Yes, i know the german stubbornness :lol: . I'm from germany, my mother has colon polyps, too. I try to convince her since 6 month now to get the biopsy. No success so far. Well, in germany we have a proverb: Who doesn't want to listen has to suffer.

Nice greetings, Stef

  • 2 weeks later...
tyki Newbie

Father's side -

Scottish Grandmother (years of people thinking her inability to eat wheat was all in her head but they played along to keep her happy).

Irish Grandfather - really don't have health history on him, he was killed in an auto accident when I was young.

Paternal Uncle - HD, but at 75 he says he's not changing his diet...he just weighs how much he wants the gluten item, against the discomfort of the rash. He says at his age, somethings gonna get him, why make himself miserable to delay it further.

Dad - Adult onset lactose intolerance, and "vague issues" resolved when he cut back on bread when he went on Atkins diet.

Mother's side -

English Grandmother - Adult onset diabetic

Czechoslavakian Grandfater - He was in immigrant to the US, complications from Parkinson's took him at the rich age of 95.

Mom - Adult onset diabetes

I don't have blood test diagnosis, but my doc is convinced from food challenge that Celiac is the answer to the problems I have.

Daughter says she has some minor problems when she eats wheat products.

Grandson was tested for autism (came back negative) but may be borderline ADHD. His pediatrician has taken my family history into account and decided to NOT complete grandson's immunizations. Some of the vaccinations are wheat based.

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    • trents
      Kathleen, I am not sure I agree with you that your son is asymptomatic with regard to his celiac disease. The horrible stomach pains you describe in your first post could be celiac symptoms as easily as they could be H. Pylori or viral infection symptoms. Yes, the social impact of having celiac disease is perhaps the most difficult dimension of the disorder to deal with. It requires thinking ahead and providing safe substitutes for snacks and party foods so that your son doesn't feel left out and singled out or different. Some of those feeling are unavoidable but they can be minimized. Dining at eateries is a huge challenge to celiacs as even when you order gluten free menu items they are often heavily cross contaminated back in the kitchen from being cooked together with wheat things or handled with the same utensils. You need to be bold in asking a lot of questions and requesting that your son's food be cooked in separate pots and pans. It's awkward at first but you get used to it. Speaking of CC (Cross Contamination), how careful you have to be with this will depend on the sensitivity level to gluten your son will demonstrate. This can be a challenge to get a handle on for those celiacs who are of the "silent" type. By "silent" is meant they are largely asymptomatic. It is common for sensitivity levels to increase over time when gluten is withdrawn from the diet as whatever tolerance we may have had to gluten when we were being exposed to it constantly may disappear. Whether or not that proves to be the case, it would be important for you to have his antibody levels checked at regular intervals (say every six months to a year) to check for compliance with the gluten free diet. And I would not worry about him touching wheat food products. It is highly unlikely that any significant exposure will occur transdermally. That would only be an issue for the most extremely sensitive subset of celiacs. Of course, you wouldn't want him getting wheat flour on his hands and then putting fingers in his mouth.  At school, you will need to pack his lunches and also have conversations with the school dietary staff to ensure his safety.  I know this all seems overwhelming right now but you are not the only parents who are having to go through this kind of thing. Celiac disease is not uncommon and thankfully there is much more public awareness about it than there was a generation ago. It can be done. It's the kind of thing that requires parents to be willing to find that extra gear of assertiveness in order to keep their child safe and to guard his/her psyche as much as possible. Count your blessings. It could be worse. He doesn't have cancer. This might be helpful in getting off to a good start with eating gluten free. Some of it may be overkill depending on how sensitive to minute levels of gluten your son is:  
    • trents
      Staci, take note of the forms of magnesium and zinc I recommended. With some of the vitamins and minerals, the formulation can be very important in how well they are absorbed. Many of the vitamin and mineral products on supermarket shelves are in a form that maximizes shelf life rather than bioavailability which, in your case, would seem to be a critical issue. And with magnesium, if you use the typical over the counter form (magnesium oxide) you may find it has a definite laxative effect (think, "milk of magnesia") simply because it isn't well absorbed and draws water into the colon. Spend some extra money and get quality vitamin and mineral products and research the issue of bioavailability. There are forum members who are knowledgeable in this area who may have recommendations. Do you have Costco stores where you live? Is Amazon available to you?
    • Kathleen JJ
      And yes, of course it's better to know and we will adjust.  It's just, he's 7 and in our house we can control what he gets. But he plays soccer 3 times a week and in the changing room the boys share candies. I can and will tell him not to accept them any more, but "mistakes" will be made.   I'm really burdened by the potential social impact for him. He so loves to go to a restaurant as a family - I'll guess that's finished. Going to birthday parties at another kids house? I am reading about Coeliacs and apparently the fact that something as much as TOUCHED something with wheat is enough, even if he doesn't feel the symptoms - how can we control that bar from keeping him locked up?    And the worst worry of all: how do you tell a little boy to do all of this to not have symptoms that he does not have. If he'd been having horrible diarrhea or feeling really tired, we could tell him 'see, you feel so much better now, that kind of food was just not good for your body', but now, what will our argument be? For clarity: of course we will put him on the diet, I am not saying I don't believe in the necessity of that, it is just that it will be quite a stretch to 'sell' it to him 😞
    • StaciField
      I’m 41. You have helped me achieve the goals of finding a way of getting nutrients into my body so I will see how it works for me. Thank you so much.
    • Kathleen JJ
      Thank you for your reaction. The reference values are both "<10", although I found a medical paper from Netherlands (I'm Belgian) who use the same values and there the see a positive daignosis as twice more then 200 and a positive biopsie. I didn't see how to change this in my original message, sorry...
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