Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Worry Too Much.


dandelionmom

Recommended Posts

dandelionmom Enthusiast

I couldn't sleep last night because I was worried about how Julia would keep healthy when she goes off to college. That is 15 years away! What is wrong with me?!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



buffettbride Enthusiast

Oh my gosh! So do I! Especially about college since I know my daughter wants to live out of state to go to college.

She's only 10, :o so that's only 8 MORE YEARS!!! :rolleyes:

Thankfully, she'd like to go to college in NY so I feel better about that being a gluten-free-friendly place than just about anywhere from what I've heard.

shan Contributor

You know what my fears are? That her social life will be a nothing, and that no one will like her (she is not yet 3!) but then i think that everyone has to worry about something! I also worry about who will want to marry or date someone who cant even be in a house where there is flour!

hathor Contributor

Rest assured, whatever you are worried about when your kids are little turns out not to be what the problems are when they actually DO go off to college :lol:

There is growing awareness of celiac. Even now, college students can go to the food service and work with them to get acceptable food. The latter have been dealing with allergies, diabetes, etc., for years. This is just one more thing. I think when gluten intolerant college students run into trouble it is when they don't talk to food service and just guess what might be safe.

Any child avoiding gluten for years will learn how to do so, what to look for, how to talk to restaurants, etc.

If someone is shallow enough that s/he wouldn't want to be with someone who can't eat a particular food, I say good riddance!

buffettbride Enthusiast
If someone is shallow enough that s/he wouldn't want to be with someone who can't eat a particular food, I say good riddance!

We assure our daughter of this CONSTANTLY and are trying to set a good example of what someone who cares for her would be like.

-Her home gets to be gluten free and a complete "safe" zone

-Her daddy even only drinks gluten-free beer now so he can smooch our daughter with no worries

We tell her that any boy who is worth anything won't hesitate to make those concessions to keep her safe.

Even at age 10, a boy in class who digs her is always showing off his gluten-free snack bar (his family is very organic and health conscious) to try and impress her. :D It is absolutely adorable.

kbtoyssni Contributor

If it makes you feel any better, I'm 25 and my social life is much better now that I'm gluten-free than it was before. By the time your children reach college, they'll be pros at the diet. They'll take everything you're teaching them now about the diet and how to deal with it with them when they go to college. You've got years to prepare them so I'm sure they'll be just fine.

buffettbride Enthusiast
If it makes you feel any better, I'm 25 and my social life is much better now that I'm gluten-free than it was before. By the time your children reach college, they'll be pros at the diet. They'll take everything you're teaching them now about the diet and how to deal with it with them when they go to college. You've got years to prepare them so I'm sure they'll be just fine.

If I could bottle your outlook and attitude and sell it to the masses, I'd be a very wealthy woman.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



debmom Newbie

I can relate. My daughter was 15 when diagnosed and is 16 now. So college is just two years away. But she is SOOO good about her diet and has found so many things to eat that she enjoys. Occasionally she has a mini-meltdown, but overall she feels so much better that the diet isn't an issue.

I will still send her to school/ college with homemade goodies for all occasions. I make cakes and brownies and freeze them for parties and places she will encounter non-gluten free food that she used to enjoy. So far the kids seem to like my gluten free brownies better than the regular, so the only problem is that I'm baking them all the time.

Her girlfriends had a surprise party for her birthday last week and they were so cute. they shopped for all sorts of gluten free food and even worried about latex in balloons (which I assured them were OK) They seem so relieved to know why she was so sick and seem to cherish her friendship even more now that she is able to be back at school with them. So stop worrying. You will all adjust. I spent almost a year with sleepless nights, but rarely so anymore.

Kids are resilient. And if their friends are really friends, they will hlep your daughter cope with being gluten free.

dandelionmom Enthusiast

Thanks everyone! It is nice to know that I'm not the only one with these worries and the encouraging stories are so good to hear! My husband is fabulous and so supportive but he tends to laugh at me a little when I get going with my crazy worries. :)

darlindeb25 Collaborator

I had to laugh at this thread, not because you worry, but because just last week I told someone that "worry" is my middle name. I worry that my kids have celiac and aren't in the frame of mind to do anything about it for now! I worry that my grandkids will have it and their parents won't realize it! I worry that I recognize the symptoms in friends and can't make them realize the seriousness of the disease. I also worry about the weather, my family, my friends--you name it, I worry.

I do not know how to change. Yet, the way I am is who I am and if I change, then who will I be. Now I will worry about that. :o

kbtoyssni Contributor
If I could bottle your outlook and attitude and sell it to the masses, I'd be a very wealthy woman.

Can I get a percentage of the profits? :P I do have a very positive attitude. Life's too short to spend it being negative and bitter about things I have no control over.

laurelfla Enthusiast

I can so relate to this thread! I am a big worrier, too, and I worry about that and try to change it all the time! ;) No luck yet...

I worry about when to introduce cereals to my baby and how to do that, and I am not planning to have children for at least three more years! I think developing Celiac or taking care of someone who has opens up an entire world of potential worry we couldn't even have imagined beforehand!

But to throw in my two cents, after diagnosis a little over two years ago, I met the man of my dreams who, once he found out what I had, investigated on his own to learn about the disease, still won't eat pizza in front of me, and readily accepted living in a completely gluten free house in December after we get married and eating gluten free at home for the rest of his life! He's more supportive than I ever would have dared ask for. So not to worry! These guys are out there! :D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,962
    • Most Online (within 30 mins)
      7,748

    zaysmomsarah
    Newest Member
    zaysmomsarah
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.1k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @glucel, I agree with @trents.  You can still do the AIP diet while taking aspirin.   I'm one of those very sensitive to pharmaceuticals and have gotten side affects from simple aspirin.  Cardiac conduction abnormalities and atrial arrhythmias associated with salicylate toxicity https://pubmed.ncbi.nlm.nih.gov/3952006/ Another part of the problem is that those drugs, aspirin and warfarin, as well as others, can cause nutritional deficiencies.  Pharmaceuticals can affect the absorption and the excretion of essential vitamins, (especially the eight B vitamins) and minerals.   Potential Drug–Nutrient Interactions of 45 Vitamins, Minerals, Trace Elements, and Associated Dietary Compounds with Acetylsalicylic Acid and Warfarin—A Review of the Literature https://pmc.ncbi.nlm.nih.gov/articles/PMC11013948/   Aspirin causes a higher rate of excretion of Thiamine Vitamin B1.  Thiamine deficiency can cause tachycardia, bradycardia, and other heart problems.  Other vitamins and minerals, like magnesium, are affected, too.  Thiamine needs magnesium to make life sustaining enzymes.  Without sufficient Thiamine and magnesium and other essential nutrients our health can deteriorate over time.  The clinical symptoms of Thiamine deficiency are subtle, can easily be contributed to other causes, and go undiagnosed because few doctors recognize Thiamine deficiency disorders. Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ Celiac Disease causes malabsorption of vitamins and minerals.  Supplementing with essential vitamins and minerals can boost absorption.   Our bodies cannot make vitamins and minerals.  We must get them from our diet.  The Gluten free diet can be low in Thiamine and the other B vitamins.  Gluten free processed foods are not required to be enriched nor fortified with vitamins and minerals like their gluten containing counterparts. You would be better off supplementing with essential vitamins and minerals than taking herbal remedies.  Turmeric is known to lower blood pressure.  If you already have low blood pressure, taking turmeric would lower it further. Curcumin/turmeric supplementation could improve blood pressure and endothelial function: A grade-assessed systematic review and dose-response meta-analysis of randomized controlled trials https://pubmed.ncbi.nlm.nih.gov/38220376/ I've taken Benfotiamine for ten years without any side effects, just better health. Other References: Association of vitamin B1 with cardiovascular diseases, all-cause and cardiovascular mortality in US adults https://pmc.ncbi.nlm.nih.gov/articles/PMC10502219/ Prevalence of Low Plasma Vitamin B1 in the Stroke Population Admitted to Acute Inpatient Rehabilitation https://pmc.ncbi.nlm.nih.gov/articles/PMC7230706/ Bradycardia in thiamin deficiency and the role of glyoxylate https://pubmed.ncbi.nlm.nih.gov/859046/ Aspirin/furosemide:  Thiamine deficiency, vitamin C deficiency and nutritional deficiency: 2 case reports https://pmc.ncbi.nlm.nih.gov/articles/PMC9023734/ Hypomagnesemia and cardiovascular system https://pmc.ncbi.nlm.nih.gov/articles/PMC2464251/ Atypical presentation of a forgotten disease: refractory hypotension in beriberi (thiamine deficiency) https://pubmed.ncbi.nlm.nih.gov/31285553/
    • Wheatwacked
      Polymyositis is a rare autoimmune disease that makes your immune system attack your muscles. Any autoimmune disease is associated with low vitamin D.   Even as a kid I had weak legs.  Now I feel the burn just walking to the mailbox. A case-control study found that patients with polymyositis (PM) had higher lactate levels at rest and after exercise, indicating impaired muscle oxidative efficiency. The study also found that an aerobic training program reduced lactate levels and improved muscle performance.
    • Wheatwacked
      Micronutrient Inadequacies in the US Population "A US national survey, NHANES 2007-2010, which surveyed 16,444 individuals four years and older, reported a high prevalence of inadequacies for multiple micronutrients (see Table 1). Specifically, 94.3% of the US population do not meet the daily requirement for vitamin D, 88.5% for vitamin E, 52.2% for magnesium, 44.1% for calcium, 43.0% for vitamin A, and 38.9% for vitamin C. For the nutrients in which a requirement has not been set, 100% of the population had intakes lower than the AI for potassium, 91.7% for choline, and 66.9% for vitamin K. The prevalence of inadequacies was low for all of the B vitamins and several minerals, including copper, iron, phosphorus, selenium, sodium, and zinc (see Table 1). Moreover, more than 97% of the population had excessive intakes of sodium, defined as daily intakes greater than the age-specific UL" My Supplements: Vitamin D 10,000 IU (250 mcg) DHEA 100 mg  (Dehydroepiandrosterone (DHEA) levels in the body decrease steadily with age, reaching 10–20% of young adult levels by age 70. DHEA is a hormone produced by the adrenal glands that the body uses to create androgens and estrogens.) 500 mcg Iodine 10 drops of Liquid Iodine B1 Thiamin 250 mg B2 Riboflavin 100 mg B3 Nicotinic Acid 500 mg B5 Pantothenice Acid 500 mg Vitamin C 500 mg Selenium twice a week 200 mcg
    • Wheatwacked
      The paleo diet is based on the idea that the human body evolved to consume a balanced ratio of omega-6 and omega-3 fatty acids, and that the modern diet is out of balance. A healthy ratio of omega-6 to omega-3 is 1:1–4:1, while the modern diet is closer to 20:1–40:1. The paleo diet aims to restore this balance.
    • Wheatwacked
      Best thing you can do for them! First-degree family members (parents, siblings, children), who have the same genotype as the family member with celiac disease, have up to a 40% risk of developing celiac disease. Make sure you and they get enough vitamin D and iodine in their diet.   Iodine deficiency is a significant cause of mental developmental problems in children, including implications on reproductive functions and lowering of IQ levels in school-aged children. Vitamin D deficiency is common in the United States, affecting up to 42% of the population.
×
×
  • Create New...