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I Am Going To Try Nixing The Soy...


FootballFanatic

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FootballFanatic Contributor

I really didn't want to eliminate soy because my diet has just narrowed down so far since going gluten free...

BUT, I'm dizzier and dizzier and the B12 isn't helping.

I start my day off with gluten-free waffles(which contain soy)

Snack on an apple and some gluten-free pretzels(which contain soy)

Then I'm dizzy.

Those are really the only things I know have soy in them, but I don't know about my medicine...Do you think that eliminating the foods - going "soy lite" - would help or does it have to be completely removed. I'm not allergic to it, I had an allergy test.

I am asking for the full enterolab package for Christmas this year, how sad is that...but I want to be tested for soy, eggs, dairy and caseins....

I can't keep missing class due to feeling faint!


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Mango04 Enthusiast

There's nothing wrong with cutting out soy, but you might be getting dizzy from all the sugar. You can try balancing things out a bit with a little protein (hard boiled egg, nut butter etc.) and see if that helps. I don't eat much meat, but I get extremely dizzy if I just eat bread-type products and fruit and nothing else.

Also, are you on any medications that might cause dizziness?

EBsMom Apprentice

If you really think it might be the soy, then the only way to really find out is to eliminate it completely for a period of time and see how you feel. Then do a challenge if you want to. My dd had to eliminate soy to *really* get on the path to being well....first gluten, then dairy, then soy. I hear you about the restrictive diet....but it can be done. I'm really hoping that it's temporary for my dd, and that she can eat both dairy and soy again. But for now, it's out.

I also agree with Mango. You need more protein in your diet. Protein will keep your blood sugar level, instead of the highs and lows that come with eating only carbs. I ALWAYS get dizzy if I don't eat a good amount of protein. Eggs, meat, nuts, nut butters, beans....are all good protein sources. When I'm rushed, I grab a handful of walnuts or almonds, instead of snacking ONLY on carbs....it keeps me from needing to gorge on carbs again 30-40 minutes later, and starting the whole high/low blood sugar cycle all over again.

Hope you feel better soon!

Rhonda

psawyer Proficient

Soy intolerance is not uncommon in people with celiac. It can be harder to avoid than gluten, but as a listed allergen under FALCPA it must be clearly disclosed on the label.

If just being gluten-free is not doing it for you, soy might be the next thing to look at.

But first, as a recently diagnosed celiac, your villi may not be producing lactase. You need lactase in order to digest lactose (milk sugar). Many newly diagnosed celiacs need to be lactose free for as much as six months until their villi heal enough to resume the production of lactase. This condition is temporary and will disappear once the villi heal. Usually, though, the symtoms of lactose intolerance are abdominal: flatus (gas) and/or diarrhea.

Take care.

ravenwoodglass Mentor

Soy was the final piece of the puzzle for me. My ataxia which had improved greatly gluten free is now totally gone. I found eliminating soy harder than gluten, I never realized it was in so much. I am older and amazed at how much soy is in our foods. When I was growing up it was in almost nothing.

Offthegrid Explorer

I recently eliminated soy. I'm completley casein free, and challenged the soy idea a couple of times (both on purpose and by accident) and it's clearly the culprit. I was having some pretty sharp intestinal pain and that's completely gone. I'm very rarely gasey. And I've had more normal BMs this week than in 6 months. But still some symptoms now and then, so there might be a bit of soy slipping in.

It's in a lot of stuff, but at least it has to be on the label. So far luckily only one of my McCormick spices has soy (hamburger seasoning).

Ginsou Explorer

Did you know that Enterolab keeps your specimen for 6 months, and if you want an additional test it can be done ? I 've had lactose intolerance for 30 years, and tested positive for Celiac. Eliminated gluten from my diet. Still had some problems....and tested positive for dairy, and also soy!!! Most of my gluten free products also had soy in them......mayonnaise,tuna fish, wheat free soy sauce,salad dressings, dairy free cheese,dairy free ice cream,Crisco, Wesson oil, soup,dairy free margarine,Van's waffles, Pamela's Chocolate Chunk cookie mix etc. The list goes on and on.

So, here I am cleaning out the food supply again.I'm using Nutiva coconut oil for a margarine substitute and love it. Spectrum shortening is working out very well in baking. Canola mayonnaise replaces regular soy containing mayo.

Darn expensive, but I am now well and enjoying life so much more.

Yes, have the tests done if possible.


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hathor Contributor

Ick, I'm just imagining the storage facility. It isn't as if you send in a tiny bit ...

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  • Posts

    • trents
      I guess I would encourage you to abstain from the wine for a while. If you know something causes you pain then it is a good idea not to do it if you don't have to.
    • Celiacsugh
      Encouraging to hear others have had this pain and thanks for the responses   yes I was checked, no H pylori. 
    • trents
      We have had numbers of others on this forum report pain in that same area. Have you been checked for an H. Pylori infection? This is something very common in the celiac population.
    • Celiacsugh
      Hi! Yes I have, endoscopy didn’t show anything other than celiacs. I’ve been wondering if it’s possibly that my intestines are so damaged that the wine is irritating because they have not fully healed. Very odd, I felt better for a few weeks and then all the sudden started noticing the pain again after the weekends when I drink wine (don’t drink during the week). I’ve also heard that dull left side pain isn’t a common symptom with celiacs so my diagnosis was surprising to doctor as well though the pain did initially subside with gluten-free diet. 
    • trents
      Welcome to the forum, @Celiacsugh! Have you been checked for a gastric or peptic ulcer?
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