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Does Anyone Actually Feel 100% Better?!?!?!


LilyCeliac

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loco-ladi Contributor

I am currently standing at about 9 months 100% gluten free, prior to that I was unsuccessfully gluten free, I didnt know about the "hidden" gluten and was partially free.

My beggining was not as successful but was "better" since going 100% gluten-free earlier this year I see even more improvement..

My best improvement is the fact I dont have to wait to eat until I can "take the chance" of becoming ill after eating...... I get hungry I eat its that simple.

I think the second best thing that happened was the first time I had to "grunt" when in the bathroom, such a glorious sound comapred to what I had before, yeah yeah I know TMI, lol

Third would be finding I did not have to "go without" some of my favorite foods, I have my cookies, brownies and pancakes back! I had missed them so!

I cant say I feel 100% better but a steady 75% at this time, I still have an occational glutening mostly when forced to eat out and am greatful that during my vacation and having 5 houseguests and eating out multiple times I managed NOT to get struck with a poisoning! Cant say all my meals were the best but hey I survived!

It takes time and lucky for me I have the rest of my life to get to 100% but I am enjoying my 75% every day!


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mftnchn Explorer

I second the casein and the soy as possible culprits. If you don't want to just blindly experiment, you could try the Enterolab testing. Also there are food allergy tests out there as well, could help you find some things to try.

Soy has been shown in research to causing villi blunting, as I have read here.

Some great responses here, I have appreciated reading them, as I am also still struggling with symptoms.

  • 1 month later...
kimberly-10 Newbie

I feel sooooo much better! for years i had horrible hip and knee joint pain and cronic constipation. I now have normal bm's consistently! more than one day in a row! my bloating and gas went away and the only time I have problems is when I have been glutend. :lol:

nutralady2001 Newbie

I am some-one that went 47 years without a diagnosis

Here in Australia glucose syrup/dextrose/maltodextrin from wheat is said to have "no detectable gluten" because of the processing renders it at 0.0002% ( 2 parts per million) and is considered "safe" by the Coeliac Society

After chatting in my Aussie Coeliac Yahoogroup I decided as an experiment to cut out any food containing these as well................

The results are positive, brain fog is even less, fatigue lessened even more, depression/mood has lifted...........very subtle differences but noticeable all the same

So I am a Coeliac who can't have these in my diet either . Whether it was because I went for so many years undiagnosed and it has made me even more sensitive I don't know

I don't buy anything that has been processed on any equipment that also processed gluten containing items, my personal care items make-up/skin care etc don't contain gluten

McGluten Newbie

Wow, such great reading here! It looks like this multi-sensitivity to various foods is more the norm and not my own personal nightmare!

Before I forget: the posters asking about the abdominal pain...I had this and still do somewhat. Try a liver/gallbladder cleanse. It worked for me. I had off and on tightness/cramping for years until last Feb. it became servere cramping that didn't go away. I'd be lying fetal on the floor for hours eventually. Open Original Shared Link (you don't need the ornithine or black walnut)

I'm thinking I've always been sensitive to gluten. It just built up so much over 30 years of eating it that it's finally manifested with DH rash on my hands and various other food intolerances.

Good(sad) to hear others have the issue with fruits.

Foods I'm trying to cut out are: gluten, sugars (fruit too), eggs, most dairy (goat milk seems great).

I'm eager to test the age - 20 formula for months. I'm about half way there hopefully!

Ps. Anyone find anywhere to buy Redbridge beer in Calgary?

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    • trents
      Okay, it does make sense to continue the gluten challenge as long as you are already in the middle of it. But what will change if you rule it out? I mean, you have concluded that whatever label you want to give the condition, many of your symptoms improved when you went gluten free. Am I correct in that? According to how I understand your posting, the only symptom that hasn't responded to gluten free eating is the bone demineralization. Did I misunderstand? And if you do test positive, what will you do different than you are doing now? You have already been doing for years the main thing you should be doing and that is eating gluten free. Concerning how long you should stay on the gluten challenge, how many weeks are you into it already?
    • WildFlower1
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