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Back From The Ped Gi


crittermom

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crittermom Enthusiast

We talked to the doctor, now it's time to consult the experts! ;)

Well Michael and I went to the GI today. I brought with me a list of all of the changes in him during the last 9 weeks. She reviewed his blood tests from his last draw in September along with the print out I brought in. His TTG was normal, his IgA was slightly elevated. She said that she doesn't usually go by the IgA test as they can be thrown off by people with an IgA deficiency. She agreed that since he was DNA tested and carries a Celiac gene (not sure which) that the visit was definitely warranted in relation to the slightly elevated IgA and the change in behavior, personality, belly aches, bizarre poops, dark circles under his eyes after 12 straight hours of sleep, change in appetite and food desires and constant congestion. She said all these things can point to Celiac so it is worth it to check it out just to be safe.

She has ordered a full Celiac panel done along with a CBC with differentials. She is also testing for IgA deficiency. Along with that we collected a stool sample to rule out parasitic infection and are also doing a 3 day stool smear to look for blood in the stool.

She said if all tests come back negative, to keep his diet the same and keep monitoring him. She then wants to reevaluate him in 3-4 months. If any tests come back positive then she will either give us meds to take care of the parasites or get us in for biopsy ASAP. It shouldn't take long if it comes to that, she got Katharine in in less than 2 weeks time.

If anyone has any suggestions of anything else that should be done, please throw them my way.

TIA


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    • cristiana
      Hi Dc91 Excellent advice there from Trents.  He is right, not eating gluten now could generate a negative result if you do end up having an endoscopy especially as NHS waiting lists can be quite long.    I'd definitely double check with the doc. Cristiana  
    • Dc91
      Perfect, I guess I won’t know for certain until I know if I need a endoscopy/biopsy. My father is also celiac so I’m guessing that’s where I’ve got it from. My doctors has told me to start a gluten free diet which I’m 4 days into but it would be nice if I could have my last hurrah at eating gluten again. I’ll ring in the morning and ask if she’s referred me for an endoscopy/biopsy. 
    • trents
      The tTG-IGA is considered the centerpiece of celiac disease blood antibody testing. Your test results exceed 10x normal range so you could be officially declared to have celiac disease without going through an endoscopy/biopsy of the small bowel lining. As you used the term "bloods" to refer to your antibody testing, I am assuming you live in the UK and it has become common practice there since the COVID pandemic years to dispense with the endoscopy/biopsy when the tTG-IGA score reaches 10x normal. Though I would not go so far as to say it is yet a universal practice to do so. So, I would hold off on the gluten free diet until you find out if you will be required to undergo an endoscopy/biopsy of the small bowel. If you quit gluten now, healing of the small bowel lining will commence and it may generate a false negative biopsy by the time you get to the procedure. So, ask that question of your doctor. That is, if he feels a need to refer you to a GI doc for an endoscopy/biopsy.
    • GeoPeanut
      I had no idea! Thank you. 
    • Dc91
      Hi Cristina, 0-6.9 is normal range and I’m >100
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