Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Know If You're Intolerant?


devo

Recommended Posts

devo Explorer

For those who have food intolerance issues in addition to gluten, how did you figure it out? I'm just wondering if there were any methods or testing that you would recommend for someone like myself who wants to know if there are other issues besides the gluten. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hathor Contributor

I knew for some time I was intolerant to dairy and egg. I would get sick whenever I had any and my reactions seemed to be getting worse. Even largely avoiding them for years (and not bothering about bits in restaurant meals or special occasion desserts) I still had elevated antibodies to both when I tested with Enterolab.

Enterolab's finding of a soy intolerance surprised me. But then I did a trial and felt better without it.

Now the lab found a yeast intolerance and I've yet to confirm this with actual experience, plus my score is pretty close to the cutoff point. So I'm not sure of that one.

It hasn't been confirmed, but I know if I eat anything very fatty I will probably feel ill. I don't know if this is an intolerance, but it is enough to avoid such things.

I keep a diet/symptom journal trying to figure things out. I've heard of people who have success with this approach, but I have problems seeing patterns. Or rather, I can find far too many possible causes of any problem and so I can't point to one thing. Or I think I've figured it out, then I test and, no, I'm wrong.

There is always an elimination diet. I've put off doing this because it seems so grim and my husband wonders what he would eat for the months it would take for me to laboriously challenge everything.

Here is a link that lists the most common intolerances and then the elimination diet. If you think you have something and don't want to test for it (I can't go into the other testing methods at any depth -- I've heard people satisfied with them and folks who say they had positive results which don't seem linked to symptoms), you could try eliminating the most common culprits and see if you then feel fine. If so, you could then simply challenge those particular foods, rather than starting from the beginning.

Open Original Shared Link

Juliebove Rising Star

Daughter and I had the RAST test done. We have actual allergies and not just an intolerance.

confusedks Enthusiast

For example, my soy intolerance, my allergist suggested I go soy free for a while because a lot of people who have a hard time breaking down dairy (which we had known since I was little) also have a hard time with soy. I went soy lite and after having cereal, I didn't have the same symptoms. I thought it was the corn in my cereal, but once I stopped the soy milk, no more symptoms.

You could try something like that...if you suspect it's dairy for example, you could try your cereal or coffee with a milk replacement product and see what happens. The biggest thing is make sure you don't take out more than one thing at a time, unless you are going to do a full on elimination diet (kudos to you if you decide to go this route).

I hope you can figure out what you may be intolerant to.

Kassandra

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on dixonpete's blog entry in Pete Dixon
      2

      An early incubation and inoculation

    2. - Scott Adams replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Is it gluten?

    3. - Scott Adams replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Is it gluten?

    4. - Scott Adams replied to Mantooth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Anyone Else Experiencing These Symptoms?

    5. - trents replied to Kipman's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Indeterminate transglutaminase iga


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,584
    • Most Online (within 30 mins)
      7,748

    QueenRo
    Newest Member
    QueenRo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      @Woodster991, were you eating lots of daily gluten in the 6-8 weeks leading up to your blood test for celiac disease? If not, then your results could be false negative. Many of your symptoms are identical to mine before I was diagnosed, with the exception of constipation. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   
    • Scott Adams
      Welcome to the forum @Mantooth, your symptoms are very common in people with undiagnosed celiac disease (I had most of your symptoms as well), and this article talks about the various symptoms of celiac disease:  When you were tested in the past for celiac disease were you on a gluten-free diet? In order to properly test anyone for celiac disease you need to be eating lost of gluten everyday for 6-8 weeks before being screened, otherwise your results could be false negative. Feel free to share your old blood test results if you have them. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • trents
      Welcome to the forum, @Kipman! When you say your Iga is low I assume you are referring to total IGA. Can you confirm this? If so, the antibody test score for the transglutaminase iga (what we generally refer to as tTG-IGA) test score cannot be trusted. Low total IGA (i.e., being "IGA deficient) will drive down the scores in the tTG-IGA test and can cause false negatives. Ask your physician to run a more complete celiac antibody panel which would include the DGP-IGA test as well as the DGP-IGG and TTG-IGG tests as well as the total IGA and the tTG-IGA. You must not be engaging in the gluten free diet until all testing is completed, both the serum antibody testing and the endoscopy/biopsy, if the phyiscian should refer you for a GI doc consult who may want to do that procedure. Being on a gluten free diet or a reduced gluten diet will sabotage any testing. Here is an article presenting an overview of the various tests that can be run when checking for celiac disease: From the above article:  IgA Levels/Deficiency Blood Test This should always be included in any blood panel for celiac disease, but it does not test directly for celiac disease, and is done to determine the accuracy of the other blood tests. People who are IgA deficient may score lower, of have no measurable levels on certain celiac disease blood tests. This test measures the levels of Immunoglobulin A (IgA) in the bloodstream. IgA is an important antibody that plays a significant role in the immune system, particularly in protecting the body's mucosal surfaces (e.g., respiratory and digestive tracts). Low IgA levels can indicate IgA deficiency, a condition where the body does not produce enough IgA, leading to an increased risk of infections and other health issues. The IgA Levels/Deficiency Test helps healthcare providers diagnose and monitor IgA-related conditions. Other Names for the IgA Levels/Deficiency Test: Immunoglobulin A (IgA) Test Total IgA Test Serum IgA Test IgA Serum Levels Test IgA Blood Test IgA Quantitative Test IgA Antibody Test IgA Immunodeficiency Test
    • nanny marley
      Oh yes same here I've been called a weirdo and health aniexty nut even at first my own daughter's were making fun of me but now they have seen the results there's too doing the gluten and lactose free has they both now older have realised they have problems too and threw me ranting on and changing it's helped them to stop suffering early so you keep doing what your doing a true friend will always understand you and help you I couldn't dream of making someone eat something they can't my granddaughter has a bit allergy imagine he saying it's just a nut build your immunity people can be so self centred wen it comes to compromise around food your not crazy your a human being with a different need hold your head up for all the ones in the same boat and you look after yourself regardless of wat anyone says or thinks  a good saying I like the rainbow has many different colours that's why it's so beautiful so shine your colour 🤗
×
×
  • Create New...