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I Just Got..

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mouth Enthusiast
mouth
Posted

Hi all my rock leader gave me this.. i bought it and its great.. It is called "A Guide through the Medicine Cabinet.. It lists most drugs-- the woman who compiled and wrote this book her husband was a pharmacist - the last update was 2006 and alot of the drug co's are starting not to give her help anymore-- but it is still great.. it lists everything brand generic and even some store brands in it, and then in the back is a directory of ALL drug companies and phone numbers.. it cost me $45.. and next year only the directory will be coming out of course at a lesser cost.. if anybody wants the info let me know and i will post it.. I don't want to get into trouble (again) for posting .. i did when i first started here.. now i dont have to freak out everytime i have to take my daughter to the dr and i can take the book with me and make a simple call b4 i leave the dr's office..

lynn

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2kids4me Contributor
2kids4me
Posted

That's great! The contact numbers will be of benefit because formulations change sometimes, it is nice to have abook to open up when drugs are prescribed.

Sandy

ravenwoodglass Mentor
ravenwoodglass
Posted
Hi all my rock leader gave me this.. i bought it and its great.. It is called "A Guide through the Medicine Cabinet.. It lists most drugs-- the woman who compiled and wrote this book her husband was a pharmacist - the last update was 2006 and alot of the drug co's are starting not to give her help anymore-- but it is still great.. it lists everything brand generic and even some store brands in it, and then in the back is a directory of ALL drug companies and phone numbers.. it cost me $45.. and next year only the directory will be coming out of course at a lesser cost.. if anybody wants the info let me know and i will post it.. I don't want to get into trouble (again) for posting .. i did when i first started here.. now i dont have to freak out everytime i have to take my daughter to the dr and i can take the book with me and make a simple call b4 i leave the dr's office..

lynn

Perhaps if your really, really bored and have lots of time on your hands you could create a blog on the front page and list those numbers. :)

This was a great idea on your part but use caution when you bring it to the doctors with you, unless you really trust your doctors. There have been parents of celiac children whose doctors have thought that the parent was purposely making the child sick. This can really be a problem with kids who do not show up celiac under conventional tests. I may be a bit paranoid but trying to find out what was wrong with my DS when he was a baby almost got him taken away from me. He was finally diagnosed at 19 after years of misery. I wouldn't want them to think the same of you and I would check the scripts at home.

mouth Enthusiast
mouth
Posted
  • Author
Perhaps if your really, really bored and have lots of time on your hands you could create a blog on the front page and list those numbers. :)

This was a great idea on your part but use caution when you bring it to the doctors with you, unless you really trust your doctors. There have been parents of celiac children whose doctors have thought that the parent was purposely making the child sick. This can really be a problem with kids who do not show up celiac under conventional tests. I may be a bit paranoid but trying to find out what was wrong with my DS when he was a baby almost got him taken away from me. He was finally diagnosed at 19 after years of misery. I wouldn't want them to think the same of you and I would check the scripts at home.

No worries here. Have know my peds. Dr. for more than 30 years. he did think something of the sort when my kate was young, because i would bring her in and he'd give her something and she wouldnt get better, get worse, bring her back, get worse bring her back etc, then finally something would show up that could be treated with meds.. then we started with the specialists and he never questioned anything again.. but he had not seen me since i was 17, and he was not her orig. dr either.. he old dr's never forwarded her records in completion..

mouth Enthusiast
mouth
Posted
  • Author
Perhaps if your really, really bored and have lots of time on your hands you could create a blog on the front page and list those numbers. :)

This was a great idea on your part but use caution when you bring it to the doctors with you, unless you really trust your doctors. There have been parents of celiac children whose doctors have thought that the parent was purposely making the child sick. This can really be a problem with kids who do not show up celiac under conventional tests. I may be a bit paranoid but trying to find out what was wrong with my DS when he was a baby almost got him taken away from me. He was finally diagnosed at 19 after years of misery. I wouldn't want them to think the same of you and I would check the scripts at home.

No worries here. Have know my peds. Dr. for more than 30 years. he did think something of the sort when my kate was young, because i would bring her in and he'd give her something and she wouldnt get better, get worse, bring her back, get worse bring her back etc, then finally something would show up that could be treated with meds.. then we started with the specialists and he never questioned anything again.. but he had not seen me since i was 17, and he was not her orig. dr either.. he old dr's never forwarded her records in completion..

Also, i brought the book to my pharmacist, and he said "This is wonderful" it will go a long way in helping to make sure the meds are ok. He had a similar book made for pharma's but a whole lot bigger, and I HATE THIS PART-- he is the mgr of my pharma. and his boss came in from HQ when he was on vacation and thought HIS MEDS/MANUF. book looked like a mess and threw it ouT !!!!!!!!!!!!!!!!! HE WAS SO MAD-- HE WAS HELPING TO CREATE A SAFE LIST FOR ME AND MY PEDS, AND FOR I.C.E...

NO, BECAUSE, WHEN THE PEDS PRESCRIBES I OR HE CAN CALL THE PHARMA, SEE WHAT GENERIC THEY HAVE AND CALL THE CO RIGHT THERE AND THEN IF WE NEED TO DOUBLE CHECK.. NO SENSE IN WASTING TIME.. ... THEY BOTH AGREED.

THANK YOU SO MUCH FOR YOUR HELP THOUGH..

LYNN

mouth Enthusiast
mouth
Posted
  • Author
That's great! The contact numbers will be of benefit because formulations change sometimes, it is nice to have a book to open up when drugs are prescribed.

Sandy

HEY SANDY.

That is the idea.. and it is great FOR I.C.E. -- JUST BRING IT WITH YOU....

mouth Enthusiast
mouth
Posted
  • Author
No worries here. Have know my peds. Dr. for more than 30 years. he did think something of the sort when my kate was young, because i would bring her in and he'd give her something and she wouldnt get better, get worse, bring her back, get worse bring her back etc, then finally something would show up that could be treated with meds.. then we started with the specialists and he never questioned anything again.. but he had not seen me since i was 17, and he was not her orig. dr either.. he old dr's never forwarded her records in completion..

I would not even begin to know which drug manufacturers to list.. there are page upon pages..

if you want any specific, email me and i will look them up for you.

BTW, the same woman, also makes a DIRECTORY-- it is just a list of all the manufacturers and their phone numbers.

lynn

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    • Scott Adams
      How many grams is there in one slice of wheat bread?

      By Scott Adams · Posted

      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Confused with test results

      By Scott Adams · Posted

      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
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    • trents
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      By trents · Posted

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    • Jack Common
      How many grams is there in one slice of wheat bread?

      By Jack Common · Posted

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