Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Overweight Child And Celiac?


landkwold

Recommended Posts

landkwold Newbie

Hi everyone. I'm new to this whole thing, and I'm wondering if any of you can help me out with the possible link to my daughter's weight problems and a gluten intolerance or Celiac? She has had a whole list of unexplained medical issues starting at about 8 months (She's almost 9 now) including seizures (which she luckily hasn't had since she was three, but the doctors never did determine what was causing them), chronic infections (she had her tonsils removed at 7 after having strep 14 times in 12 months), and most recently severe stomach upset including regular diarrhea and vomiting. She also has bouts of unexplained depression and mini-meltdowns where she will cry for hours with no explanation. These symptoms come and go but they seem to be occuring more frequently. Her doctors have been of no help at all. Recently 2 of her family members have been diagnosed celiac (grandfather and aunt), which has caused me to start looking into it. My question, though-is there a connection with this and being overweight? Her two brothers are pencil thin, and they eat pretty much the same diet as she does-but she is 8 years old and outweighs her 13 year old brother by over 20 lbs. I'm ordering the tests from enterolab for her (as well as for the rest of the family-I've been anemic all my life and am relating to many of the other symptoms as well), but it seems that everything Ive seen about Celiac and children talks about being underweight and small for their age, which she most definitely isn't. Thank you for your replies....I'm so glad I found this site-there's so much helpful information!

:D

Kristi


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nora-n Rookie

There is an article in the bmj (british medical journal) online that says that 30% of celiacs are obese (and probably will lose the extra weight off gluten).

nora

HouseKat Apprentice
There is an article in the bmj (british medical journal) online that says that 30% of celiacs are obese (and probably will lose the extra weight off gluten).

nora

Here are some articles mentioning overweight celiacs, I think one of them is the one Nora mentioned:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Kate

NewGFMom Contributor

My husband just tested positive for Celiac, and he's a Big Guy. He weighs over 250 lbs. We're confirming via biopsy in February (hopefully). But it's common, but doctors NEVER think to test for it in overweight people. We only got tested because our son has it.

It's a weird disease. It can cause lots of symptoms or almost none. My son was starting to get sick when we figured it out. My husband is just about as healthy as a 33 year old man can be. No stomach problems whatsoever.

If you can, I'd get the ELISA panel run at the doctor. I think enterolab sounds a bit sketchy. Pretty much everybody who sends their poop in is told they're intolerant to something or other.

silk Contributor

Hi everyone. I'm new to this whole thing, and I'm wondering if any of you can help me out with the possible link to my daughter's weight problems and a gluten intolerance or Celiac?"

Kristi;

I am really sorry for your daughter. She is at such a tender age and being overweight is so hard even as an adult but other children can be so thoughtless and cruel and rarely consider why a person

my look the way they do. And I'm sure that your daughter is as confused and frustrated as you are at something that is not in her control.

I am very new to this whole thing myself, having just started to put the puzzle pieces in place for myself in this past week but I can tell you that I was a skinny twig as a child and then as an adult have always dealt with being overweight. About two years ago I lost 40 pounds through diet and exercise and still remain an avid exerciser. However, in this past year I have started to put back on some of the weight I had lost. At first I thought it was because my back and hip were causing such pain that I was not able to be as active as I had been but then that cleared up and I resumed the exercise and continued to gain the weight. At about the same time I started adding 'whole grained goodness' into my diet in earnest, trying to add fiber to help with my constipation problem. In the past 2 months alone, I have gained 6 lbs. and my Dr. was as perplexed as I was because I have been walking 3-5 miles a day 4-5 times a week and lifting weights!

In just the little bit of information that I have read about this disease, I have come across other things in other places that mention problems with weight being one of the symptoms. I have been gluten free for a week now and already feel so much better and I was down 2 lbs. this a.m., which could be clothing or water weight, but I am truly hoping that I have found an answer here and I really pray that your daughter does as well.

I have sometimes asked myself why I got to be the lucky child from our family to be a diabetic and now there is this. I honestly think that sometimes we are 'afflicted' with something because we are more capable of coping with it that others and because we are to be instruments or examples, if you will, to others who may not be able to deal or who don't even know about what is happening to them. I have grandchildren. If I am able through my experience to save even one of them from going through a lifetime of needless suffering...it would be worth all of this to me.

There are so many nice people here who came before me and are now helping me to understand what is happening. Someday perhaps you or your daughter will be able to do the same for someone else. One of the most comforting things that I have found here is the knowledge that I am not alone. If your daughter is able, at her age, to post here, maybe she could tell us about what she is going through. I wonder if there are other children who visit here as well?

Oprah says we should all love the bodies we are in....but wouldn't it be great if our bodies loved us back for a change!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,859
    • Most Online (within 30 mins)
      7,748

    Lilac41
    Newest Member
    Lilac41
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Manaan2, I was on Miralax for several months after I crushed three vertebrae and fractured my hip.  The compression fractures of my vertebrae affected the Vagus nerve that stimulates digestion and intestinal movement, peristalsis. Miralax just didn't relieve the constipation I was experiencing at all.  Nothing budged.  I tried Milk of Magnesia (magnesium oxide) which pulls water into the digestive tract, and found that rather harsh and dehydrating.   Bad idea. I was already taking thiamine in various forms, Benfotiamine, TTFD (tetrahydrofurfuryl  disulfude), Lipothiamine and Allithiamine.  Click on my name, then Activities in the pull down menu to get to my blog to learn more about my journey with thiamine.   Since we need more thiamine when we are physically ill and emotionally stressed, I decided to focus on TTFD,  Benfotiamine, and magnesium l-threonate.  Within a week of increasing my doses a bit, my constipation was gone.  It took several more months to heal the compressed nerve damage.  For pain, I take a combination of TTFD, Pyridoxine B 6, and  Cobalamine B12 which together have an analgesic effect.  I can't function with pharmaceutical pain killers, besides they cause constipation.   Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Yes, I did just stop the Miralax, but I wasn't on it as long as your daughter.  Yes, there's a difference between adults and children.  Yes, my circumstances were different than your daughter's, but thiamine deficiency does affect the nerves and the brain.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function (which activates the Vagus nerve and controls digestion).   I recommend you visit Dr. Chandler Marrs' website, hormonesmatter.com.  Dr. Marrs worked with Dr. Derrick Longsdale, a pioneer in thiamine research, specifically with children and autism spectrum disorders.  She has been very helpful to me when I reached out to her.  She would be better able to guide you about your daughter's care. https://hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/#google_vignette Do stay in touch, please.  You can start another thread or personal message me any time.  My heart goes out to you, your husband, and especially your daughter.   Namaste
    • Manaan2
      @knitty kitty  The information you've provided is invaluable!  I have a lot more homework to do before we make the official switch but you have significantly increased my hope that we can get her off Miralax (she started at 3 years old and is almost 8!).  This weekend my husband and I plan to solidify all the details for a start point, then adjust as we go along.  I realize that everyone's body is different, then there's also the fact that she's a child but just out of curiosity if you don't mind sharing and if you'd rather not, no problem at all-how long did you take Miralax before switching and when you switched, did you just completely stop the Miralax or was there a period where you did Miralax and the supplements?  I plan to research that piece this weekend but just curious what you did.  
    • BIg Nodge
      Scott, thanks so much for the thoughtful replies. My doctor did actually just re-order thyroid labs to see what is going on with my TPOs. I agree that will be interesting information.  I think I know the answer to this, but as far as the biopsy . . .. that would be quite conclusive as far as celiac goes, but a negative result would not rule out NCGS, correct? Does NCGS also cause damage to the lower intestine/leaky gut?  I appreciate the thought that I should be open-minded to other causes. I did not have dysautonomia on my radar, so I will look into that. From a quick scan at the potential symptoms it seems like almost anyone could convince themselves they have it, very broad! I can see why that is a tricky one to diagnose. I did also show low vitamin D, I'm in New England so that is somewhat common. I have a memory of low iron on some lab result as well but I can't find it, so I'll look into that. My cholesterol is high too, so working on that.  While the initial adjustment was tough, I have actually adapted fairly well to going gluten-free at home. The tough part for me is I love eating out and traveling, so that has been a challenge. I suppose if the answer ends up being NCGS then I could maintain a mostly gluten-free diet but also experiment with the occasional splurges. Snowboarding just doesn't feel right without a beer in the lodge . . ... cider is just not the same!  Thanks again.  
    • Dawn Meyers
      I did some research and found out that vaccines put preservatives, sugar alcohols and metals in them. Which I have a intolerance too.  I was supposed to do testing to find out metal's I was allergic to because I can't  wear jewelry of any kind. Mayo felt I had other allergies also.
    • Scott Adams
      For individuals who have experienced negative reactions to the flu vaccine, there are alternative formulations that may reduce the risk of allergic responses. Traditional flu vaccines are typically produced using egg-based methods, which can pose issues for those with egg allergies. However, there are now several egg-free options available, such as cell-based and recombinant flu vaccines. Recombinant Vaccines (e.g., Flublok Quadrivalent): These are produced without the use of eggs and are grown in insect cells, making them a suitable option for individuals with egg allergies. Cell-Based Vaccines (e.g., Flucelvax Quadrivalent): These vaccines are also egg-free and are produced using mammalian cell cultures, which can be a safer alternative for those with egg allergies. Other Considerations: If you have had a reaction to a specific component of the flu vaccine (e.g., gelatin, preservatives, or antibiotics), discussing your medical history with a healthcare provider is crucial. They can help identify vaccines that exclude these ingredients. It's important to consult with an allergist or healthcare provider to determine the safest option based on your specific allergies and medical history. They can also provide guidance on pre-vaccination testing or desensitization protocols if necessary. Also, at @trents mentioned, could you be getting hidden gluten in your diet? Do you eat in restaurants? If so, this could be why you still have high gluten antibodies.
×
×
  • Create New...