Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms ( Fat Loss Especially) & Celiac

djsurreal

Recommended Posts

djsurreal Newbie
djsurreal
Posted

Hi .. I don't know if I have Celiac or not yet , I'm going to take my blood test this coming Wednesday ( bloody doctor is busy :( )

I just wanna ask if there is anyone in the same boat as me , well .. I barely have any fats around my body especially my FACE ! cheeks are so sunken and eyes sunken too , I LOOK OLD ! so .... Malabsorption maybe? I have had this thinning for quite some time ( since 3 years ago ! ). I look asif I'm aging prematurely.

I do eat alot and constantly hungry , but it seems I get bloated easily when eating even just abit. Stomach always comes out a gurgling sound. Very gassy , and the released gas smells like my stool's strange smell.

- Sunken cheeks , sunken temples ( above eyes , side of the head ) , sunken eyes.

- Sunken buttocks ( both side sucks in from the side , like a poked bursted balloon ) ,

- Knee looks funny because lack of fat I think ( sucked in , like old man's leg ) , kinda feeling imbalance at times.

- Currently having weird stool ( yellowish almost green , very strong strange smell , the stool seems spoiled , rotten like but not exactly rotten ... seems undigested ... maybe nutrients & fats are in there ??) for 8 weeks already .. ( since I first notice .. might have been YEARS and I didnt know , because now I'm living by myself .. so I have become much more observant)

- Constantly feel dehydrated ( feels dry inside and constantly , always want to drink alot of water) , always feeling fatigued , have joint pain , stiff muscles

- Urine have same strange smell as stool (almost ) , it is very yellowish and bubbly ( diabetes check came back fine ) ( last did general blood test 8 weeks ago )

What I'm most concerned would be my fat loss , I feel closeup I look old , haggard and wrinkly ( horrible thing for my age ). I'm just a 19 years old boy !

My face look pinched and I don't look too pleasing , probably more like intimidating. My facial expressions seems unnatural .. when I make them .. wonder if the lack of fats cause that.

So does celiac cause fat loss ?

I have posted pictures .. ( sorry if my face digust you ... but .. I really need help and clarification )

Pic 1 (Warning Gross ! but I really feel sad)

Pic 2 =(

A better picture .. further away from cam

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


djsurreal Newbie
djsurreal
Posted
  • Author

=D

Lisa Mentor
Lisa
Posted

djsurreal,

Welcome to this site. You look like a very normal 19 year old young man.

Many of your symptoms sound like it could be Celiac Disease and at the least a food intolerance.

I am sure that you are anxious for your blood work. If your blood work is negative, you might try the gluten free diet and see if you feel better. Many here can help you with the diet.

But while you wait for your blood work, read here and learn as much as you can. The gluten free diet is complex in the beginning, but easy to deal with once you know your way around ingredient labeling.

ravenwoodglass Mentor
ravenwoodglass
Posted
Hi .. I don't know if I have Celiac or not yet , I'm going to take my blood test this coming Wednesday ( bloody doctor is busy :( )

I just wanna ask if there is anyone in the same boat as me , well .. I barely have any fats around my body especially my FACE ! cheeks are so sunken and eyes sunken too , I LOOK OLD ! so .... Malabsorption maybe? I have had this thinning for quite some time ( since 3 years ago ! ). I look asif I'm aging prematurely.

I do eat alot and constantly hungry , but it seems I get bloated easily when eating even just abit. Stomach always comes out a gurgling sound. Very gassy , and the released gas smells like my stool's strange smell.

- Sunken cheeks , sunken temples ( above eyes , side of the head ) , sunken eyes.

- Sunken buttocks ( both side sucks in from the side , like a poked bursted balloon ) ,

- Knee looks funny because lack of fat I think ( sucked in , like old man's leg ) , kinda feeling imbalance at times.

- Currently having weird stool ( yellowish almost green , very strong strange smell , the stool seems spoiled , rotten like but not exactly rotten ... seems undigested ... maybe nutrients & fats are in there ??) for 8 weeks already .. ( since I first notice .. might have been YEARS and I didnt know , because now I'm living by myself .. so I have become much more observant)

- Constantly feel dehydrated ( feels dry inside and constantly , always want to drink alot of water) , always feeling fatigued , have joint pain , stiff muscles

- Urine have same strange smell as stool (almost ) , it is very yellowish and bubbly ( diabetes check came back fine ) ( last did general blood test 8 weeks ago )

What I'm most concerned would be my fat loss , I feel closeup I look old , haggard and wrinkly ( horrible thing for my age ). I'm just a 19 years old boy !

My face look pinched and I don't look too pleasing , probably more like intimidating. My facial expressions seems unnatural .. when I make them .. wonder if the lack of fats cause that.

So does celiac cause fat loss ?

I have posted pictures .. ( sorry if my face digust you ... but .. I really need help and clarification )

Pic 1 (Warning Gross ! but I really feel sad)

Pic 2 =(

A better picture .. further away from cam

First off I know that being ill can really mess with our self image, you are far from disgusting even if a bit thin. It does sound like you are having some malabsorption issues and do make sure you are getting enough fluids.

All of your symptoms could be a result of celiac. Are you in the US? The reason I am asking is because there are certain 'gluten intolerant' genes in the US that are in reality celiac genes in other parts of the world. If you happen to be a DQ9 like I am you may end up with a false negative with blood testing. I was blood test negative even when close to death. DQ9 is not a recognized celiac gene in the US but it is one in Japan and the Middle East.

Often a GI doctor will want to endo you if your blood work is positive but many will not bother if your blood work does not show up. Some of us don't feel a need for a doctors confirmation of whether or not gluten is poison to us and if you are one of those after your bloodwork is drawn you will want to try a good couple of months on a strict gluten free diet to see if it helps. If you are going to want to have an endo exam you will need to continue eating gluten until the endo is done, but be aware that the endo can only confirm that you have celiac not that you for sure don't. No matter what the results of testing you have done do a trial of the diet afterwards. You can also go with Enterolab, you would not have to be still eating gluten foods and they can also test for antibodies to casien (milk protien), eggs, soy and yeast and check for malabsoption issues. They can also tell you what genes you carry.

You have come to a great place for info and for support. Don't lose heart, if gluten intolerance or full blown celiac has 'reared its head' it can be a bit hard to get used to the diet and all the little things that go with it. You say you are living alone right now, that can be hard when we are not feeling well but if you need the diet sometimes it is easier to get a clear answer when we are the only ones eating in a house. It can also make it very hard and lonely in the early stages, especially if you go through gluten withdrawl, which many of us do. Be aware that when you start the diet you may have some ups and downs emotionally because of the withdrawl and because of the neurotoxic effects that gluten has. This is normal depression and anxiety and usually does not need medicating and resolves pretty quickly as long as we are strict with the diet. My DS and I have used acupucture to get through the rough spots, and we still do when needed. Don't know if you have tried it but it may help if needed.

Post any query you may have, no matter how gross or odd you might think it. Honestly when you said your picks were disgusting I thought you had posted pics of your stool until I looked :lol: Believe it or not it has been done. We are here for you and I hope you get some answers soon.

djsurreal Newbie
djsurreal
Posted
  • Author

Thank you for the kind words. Does anyone else face the problem of fat loss ? I don't like looking gaunt , I want to look healthy !

Btw blood test taken yesterday , gonna take a while for the results. :(

ravenwoodglass Mentor
ravenwoodglass
Posted

I am glad you were able to get the blood test done. Regardless of the outcome of the tests be sure you try the diet. Fat loss is real common with celiac, especially in the areas you are referring to. If you google celiac and click on Images you may be able to find some pics. If celiac is causing your loss it should resolve once you are on the diet. If you plan on getting an endoscopic exam done you will need to keep eating gluten until that test is done. When all the testing you choose to have done is finished be sure to try the diet no matter what those tests say.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,860
    • Most Online (within 30 mins)
      7,748
    Terin83
    Newest Member
    Terin83
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Hidden Gluten in distilled vinegar

      By knitty kitty · Posted

      @Manaan2, I was on Miralax for several months after I crushed three vertebrae and fractured my hip.  The compression fractures of my vertebrae affected the Vagus nerve that stimulates digestion and intestinal movement, peristalsis. Miralax just didn't relieve the constipation I was experiencing at all.  Nothing budged.  I tried Milk of Magnesia (magnesium oxide) which pulls water into the digestive tract, and found that rather harsh and dehydrating.   Bad idea. I was already taking thiamine in various forms, Benfotiamine, TTFD (tetrahydrofurfuryl  disulfude), Lipothiamine and Allithiamine.  Click on my name, then Activities in the pull down menu to get to my blog to learn more about my journey with thiamine.   Since we need more thiamine when we are physically ill and emotionally stressed, I decided to focus on TTFD,  Benfotiamine, and magnesium l-threonate.  Within a week of increasing my doses a bit, my constipation was gone.  It took several more months to heal the compressed nerve damage.  For pain, I take a combination of TTFD, Pyridoxine B 6, and  Cobalamine B12 which together have an analgesic effect.  I can't function with pharmaceutical pain killers, besides they cause constipation.   Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Yes, I did just stop the Miralax, but I wasn't on it as long as your daughter.  Yes, there's a difference between adults and children.  Yes, my circumstances were different than your daughter's, but thiamine deficiency does affect the nerves and the brain.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function (which activates the Vagus nerve and controls digestion).   I recommend you visit Dr. Chandler Marrs' website, hormonesmatter.com.  Dr. Marrs worked with Dr. Derrick Longsdale, a pioneer in thiamine research, specifically with children and autism spectrum disorders.  She has been very helpful to me when I reached out to her.  She would be better able to guide you about your daughter's care. https://hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/#google_vignette Do stay in touch, please.  You can start another thread or personal message me any time.  My heart goes out to you, your husband, and especially your daughter.   Namaste
    • Manaan2
      Hidden Gluten in distilled vinegar

      By Manaan2 · Posted

      @knitty kitty  The information you've provided is invaluable!  I have a lot more homework to do before we make the official switch but you have significantly increased my hope that we can get her off Miralax (she started at 3 years old and is almost 8!).  This weekend my husband and I plan to solidify all the details for a start point, then adjust as we go along.  I realize that everyone's body is different, then there's also the fact that she's a child but just out of curiosity if you don't mind sharing and if you'd rather not, no problem at all-how long did you take Miralax before switching and when you switched, did you just completely stop the Miralax or was there a period where you did Miralax and the supplements?  I plan to research that piece this weekend but just curious what you did.  
    • BIg Nodge
      Opinions on my test results/symptoms

      By BIg Nodge · Posted

      Scott, thanks so much for the thoughtful replies. My doctor did actually just re-order thyroid labs to see what is going on with my TPOs. I agree that will be interesting information.  I think I know the answer to this, but as far as the biopsy . . .. that would be quite conclusive as far as celiac goes, but a negative result would not rule out NCGS, correct? Does NCGS also cause damage to the lower intestine/leaky gut?  I appreciate the thought that I should be open-minded to other causes. I did not have dysautonomia on my radar, so I will look into that. From a quick scan at the potential symptoms it seems like almost anyone could convince themselves they have it, very broad! I can see why that is a tricky one to diagnose. I did also show low vitamin D, I'm in New England so that is somewhat common. I have a memory of low iron on some lab result as well but I can't find it, so I'll look into that. My cholesterol is high too, so working on that.  While the initial adjustment was tough, I have actually adapted fairly well to going gluten-free at home. The tough part for me is I love eating out and traveling, so that has been a challenge. I suppose if the answer ends up being NCGS then I could maintain a mostly gluten-free diet but also experiment with the occasional splurges. Snowboarding just doesn't feel right without a beer in the lodge . . ... cider is just not the same!  Thanks again.  
    • Dawn Meyers
      Vaccines

      By Dawn Meyers · Posted

      I did some research and found out that vaccines put preservatives, sugar alcohols and metals in them. Which I have a intolerance too.  I was supposed to do testing to find out metal's I was allergic to because I can't  wear jewelry of any kind. Mayo felt I had other allergies also.
    • Scott Adams
      Vaccines

      By Scott Adams · Posted

      For individuals who have experienced negative reactions to the flu vaccine, there are alternative formulations that may reduce the risk of allergic responses. Traditional flu vaccines are typically produced using egg-based methods, which can pose issues for those with egg allergies. However, there are now several egg-free options available, such as cell-based and recombinant flu vaccines. Recombinant Vaccines (e.g., Flublok Quadrivalent): These are produced without the use of eggs and are grown in insect cells, making them a suitable option for individuals with egg allergies. Cell-Based Vaccines (e.g., Flucelvax Quadrivalent): These vaccines are also egg-free and are produced using mammalian cell cultures, which can be a safer alternative for those with egg allergies. Other Considerations: If you have had a reaction to a specific component of the flu vaccine (e.g., gelatin, preservatives, or antibiotics), discussing your medical history with a healthcare provider is crucial. They can help identify vaccines that exclude these ingredients. It's important to consult with an allergist or healthcare provider to determine the safest option based on your specific allergies and medical history. They can also provide guidance on pre-vaccination testing or desensitization protocols if necessary. Also, at @trents mentioned, could you be getting hidden gluten in your diet? Do you eat in restaurants? If so, this could be why you still have high gluten antibodies.
×
×
  • Create New...