Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Follow Up Appoinment


jennyj

Recommended Posts

jennyj Collaborator

Dec. 4th is my first regular follow up appt. since having surgery in July. I feel pretty good, considering I have 18 less inches of intestines. I have to set up a CT scan and X ray to make sure everything is healing from the inside. I do have a concern that I would like a few prayers for if you don't mind. I have gained 8 pounds since Oct. and am starting to develope a small bulge around the incision site. I'm sure it is fine but I am a little nervous. Thaks in advance for any help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
Dec. 4th is my first regular follow up appt. since having surgery in July. I feel pretty good, considering I have 18 less inches of intestines. I have to set up a CT scan and X ray to make sure everything is healing from the inside. I do have a concern that I would like a few prayers for if you don't mind. I have gained 8 pounds since Oct. and am starting to develope a small bulge around the incision site. I'm sure it is fine but I am a little nervous. Thaks in advance for any help.

Of course I will add you to my prayers Jenny. I am glad you are healing well and hope that everything goes smoothly. The tests your having are really easy, just make sure that if they give you a contrast that it is gluten free if they use it at all. The fact that you are gaining weight is good. Have you mentioned your concerns about the incision site to a nurse at your doctors office? You may want to give them a quick call. if they have any concerns they could have you run in just to take a quick look. And if it isn't anything to be concerned about then they can set your mind at ease. Of course if there is any increased redness, warmth, discharge or increase in pain in that area you need to call right away. Keep us posted okay and try not to worry.

hayley3 Contributor

What did you have surgery for, that they took out some of your intestines?

jennyj Collaborator

Thank you for the help. I go to church with the receptionist at his office and will see her so I will ask her. I never really thought too much about the contrast being gluten free, thanks so much for reminding me about that. The reason I had surgery was to remove the damaged part of my intestines. There were several lesions and damage from being undiagnosed for so many years. They also removed two tumors growing on the outside of the intestines called GIST (gastrointestinal stromal tumors) which were thankfully benign. There are a few more but they were very small. Thank you so much for the concern and encouragement. I knew that I would get it here.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,877
    • Most Online (within 30 mins)
      7,748

    hannahc
    Newest Member
    hannahc
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @ABP! We can't comment on the test numbers you give as you didn't include the range for negative. Different labs use different units and different ranges. There are no industry standards for this so we need more information. If your daughter doesn't have celiac disease she still could have NCGS (Non Celiac Gluten Sensitivity) which some experts believe can be a precursor to celiac disease and is 10x more common than celiac disease. However, there is no test for it yet but it does share many of the same symptoms with celiac disease. Both require complete abstinence from gluten.  It is seldom the case during testing where all tests are positive, even for those who do have celiac disease. This is no different than when diagnosing other medical conditions and that is why it is typical to run numbers of tests that come at things from different angles when seeking to arrive at a diagnosis. It seems like you are at the point, since you have had both blood antibody testing and endoscopy/biopsy done, that you need to trial the gluten free diet. If her symptoms improve then you know all you need to know, whatever you label you want to give it. But given that apparently at least one celiac antibody blood test is positive and she has classic celiac symptoms such as slow growth, constipation and bloating, my money would be on celiac disease as opposed to NCGS.
    • ABP
      My nine-year-old daughter has suffered with severe constipation and bloating for years as well as frequent mouth sores, and keratosis Polaris on her arms. She also has recently decreased on her growth curve her % going down gradually.  After seeing a gastroenterologist, her IgG GLIADIN (DEAMIDATED) AB (IGG) was 22.4 while her IGA was normal. Her TISSUE TRANSGLUTAMINASE AB, IGA was 11.9.  Most recently her genetic test for celiac was positive.  After an endoscopy her tissue showed inflammation of the tissue as well as , increased intraepithelial lymphocytes (IELs) but there was no blunting of the change in the villi.    It seems that every result that we get one out of two things positive rather than all leading to an inconclusive diagnosis. While we do have another appointment with the doctor to go over the results. I'm curious based on this information what others think.    I would hate to have her eliminate gluten if not necessary- but also don't want to not remove if it is necessary.    Signed Confused and Concerned Mama
    • Scott Adams
      I guess using "GF" instead of "PL" would have been too easy! 😉
    • trents
      I was wrong, however, about there being no particular health concerns associated with high total IGA: https://www.inspire.com/resources/chronic-disease/understanding-high-iga-levels-causes-impacts/ So maybe the physician's "borderline" remark is relevant to that.
    • trents
      Sometimes that is the case but what is curious to me is the remark by your physician about being "borderline". I assume he was referring to the total IGA score but it just seems like an irrelevant remark when it is on the high side rather than being deficient.
×
×
  • Create New...