Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Probiotics


Trillian

Recommended Posts

Trillian Rookie

Can anyone tell me what probiotics are for?

I've read conflicting things, such as take them all the time, take them when you are on antibiotics, every few days, after getting glutened...

I've read that you should get the freeze-dried kind, not the kind you keep in your fridge.

I've read that you can also get them in yogurt.

But, most importantly, I don't know what they are or what they are for. I'm wary about vitamins because doctors ride the fence on whether or not supplements work.

Should I take probiotics? (BTW, I'm on antibiotics now for a staff infection)

More importantly, what are they?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KAG Rookie

I'm sure that others will reply with the technical stuff. I'm not really good with explaining that part. I do know that I have tried many many different types of probiotics and have learned that some work for me and some don't. I think that they are VERY important, but you have to try and experiment with a few different kinds to see what works best for you.

Kim

Rosebud710 Apprentice

My doctor highly recommends probiotics. They keep the good bacteria flourishing in your intestines. They help especially when you are on antibiotics since it kills pretty much most of the bacteria in your body, good and bad (hence, that's why women get yeast infections when they are on antibiotics). I've used the kind that's kept in the fridge to pills. Right now my doctor recommends FloraStor, but it's extremely expensive. My HF store suggested another brand that is also pretty good (and a lot less money). It's a capsule and I take it on an empty stomach every morning. Probiotics, for me, aren't anything that I notice different when I take them. My doctor suggests that I take probiotics, so I do ;) !

kbtoyssni Contributor

I'm certainly not an expert, but here's what I know. I take them AFTER I take antibiotics. The antibiotics will kill all bacteria in your gut (good and bad) so you want to replenish the good after a round of antibiotics. If you take them during, you'll continue to kill the ones in the pills you take, so I'd wait until after.

Not sure about whether you should take a bunch after antibiotics and then stop or keep going. If you've got a healthy gut, you can probably stop, but I wonder if things like Candida would eventually take over if you have a problem with that if you don't keep going. I also think I read somewhere that birth control pills can alter bacteria in your gut so that might be another reason to keep taking them. Not sure if getting glutened would affect the bacteria in your gut - I lean towards no, but I have no idea.

You can get some from yogurt, but I don't think it's as many as in the pills. And Activia yogurt is not gluten-free so you can't take that.

I get the kind that go in the fridge. I read that you want the "active" cultures. If you take the ones that are just sitting on the shelf, they're not still alive so they won't offer the same benefit. I'm not sure if that's what you meant by freeze-dried. Although I was at Target the other day and their ones on the shelf said "refrigerate after opening" so I don't know if that means they're good or not. I wish I could remember where I read all this and the details, but you know how brain fog is...

ravenwoodglass Mentor

Probiotics balance the good and bad bacteria in your gut. I used to use yogurt for the probiotic effects, when taking antibiotics I would make sure to eat one or two yogurts a day during the treatment and that seems to ward off the antibiotic related D that my family would get. Since I have had to give up dairy I use sauerkraut for the same purpose. Not quite as effective but almost as many of the same 'balancers' are in there as in yogurt. My ex-naturopath told me about the kraut right before he prescribed a soy and dairy loaded probiotic, which I handed right back to him.

gfp Enthusiast

Well I never saw any NEGATIVE side effects to them...

How good they are??? Hard to say but I personally believe that the Western diet has removed them almost completely.

An interesting statistic is that many Mediterranean countries have longer life expectancy, lower infant mortality etc. than the UK, US and countries where these are removed from the diet.

I eat a lot of raw food, including eggs (FREE RANGE ONLY), unpasturised cheeses (sheep and goat cheeses) and raw meat (Carpaccio, prosciutto crudo, Breasola) and drink raw goats milk when I can find it. And I also get the active yogourts.

I know millions of French and Italians who eat this reguarly yet I never heard of anyone actually dying from it!

This doesn't mean people might not get a little tummy bug from time to time, it just means they are not dying from it nor their babies...

When I was in France and eating Fresh food almost exclusively I didn't bother supplementing the pro-biotics. Now I'm in London and its near impossible to find fresh food I can eat I think it might be a good idea. (Not that I'd eat raw beef in the UK anyway, the quality is terrible)

So I can't give a definitive answer.... my personal preference is to get these naturally... raw cheeses, yogourts etc. (for instance one important pro-biotic is found in sheeps stomachs and this is exactly the part used to make natural rennet. Hence if the cheese is unpasturised the cheese becomes a culture of this (its a while since I researched this so I forget exactly which one).

Lacking this I think pro-biotics can be a good idea.

tiffjake Enthusiast

I have been taking chewable probiotics that I got at whole foods. I probably would just assume that they are doing *something* but doubt it in the back of my mind if not for the fact that I am having BM's more often and more solid now. Kinda interesting.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wildkat Rookie

Just last week I was checking into probiotics and I read that you needed to take either FOS or inulin with it to make sure the benefitial bacteria's make it to where they need to go because the acids in the gut will kill off alot of them. They say inulin is easier on you than FOS. However if you take too much inulin you will have diarrhea. They also say the only time you will notice any difference (one that you feel) is when you don't feel good and you take them, then you start feeling better. Does that make sense? They work to keep you feeling good so you don't consistantly get yeast infections, for example, especially if you are taking antibiotics. So if you do feel good, you won't feel them working but they are.

Beloved Apprentice

My doctor told me to start taking Align when he found out I had celiac. So far I haven't really seen any benefit to it, but it's only been two weeks. It has the probiotic called Bifidobacterium infantis.

sickchick Community Regular

Probiotics rule!!!!

I wish more people were educated about how important they are

I will eat them every day until I die. I eat 50 BILLLION organisms a day

www.usprobiotics.org

wildkat Rookie

I subscribe to the free newsletter of Women to Women and there is an interesting article on probiotics if you would like to read up a little.

Open Original Shared Link

Trillian Rookie

Thanks to everyone for their information/opinions!

This board has been so informative, and entertaining at times, too. :rolleyes:

I am loading up on yogurt. I couldn't digest it a few months ago, but things seem okay now. Unfortunately, I did get a yeast infection from the antibiotics. I should just ask for a prescription to counter that when they prescribe me the antibiotics... I forget every time.

happygirl Collaborator

You can take probiotics while you are on antibiotics. You just can't take them at the same time (i.e., don't pop the antibiotic and the probiotic at the same time). Leave time in between and you will be fine.

powerbraid Rookie

Hello! I have been gluten-free now since September and I too could not digest yogurt right away. However, I have tried it again, and it really helps my tummy feel better! I have also learned about Kefir, which it amazing stuff, and my body actually seems to crave it now. I figure that has to b a good thing! Also, I am reading a book right now about probiotics called "The Probiotics Revolution" by Gary B. Huffnagle. It is a great and informative book so far, and even has a special little section on Celiac. Check it out. Drink some Kefir, and best of luck! :)

  • 3 weeks later...
TestyTommy Rookie

For those of you taking probiotics:

How often do you take them?

What dosage?

Do you take them with food or on an empty stomach?

Thanks!

wildkat Rookie
For those of you taking probiotics:

How often do you take them?

What dosage?

Do you take them with food or on an empty stomach?

Thanks!

I take one a day with the propriatary blend of 1 billion CFU per capsule the first thing in the morning before I exercise on the bowflex machine (about 20 to 30 minutes before I eat). They tell you to take them with or without food. It depends on how your stomach feels about taking things before you have some food in it. If I've been around to much wheat products or have been contaminated by gluten is when my stomach gets to sensitive to take anything until I can keep food in me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

    2. - JoJo0611 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Yeast extract

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Labs ? Awaiting in person follow up with my GI

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,166
    • Most Online (within 30 mins)
      7,748

    rgfeeg
    Newest Member
    rgfeeg
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
    • trents
      Welcome to the celiac.com community, @Seabeemee! The fact that the genetic testing shows you do not have either of the two genes associated with the potential to develop celiac disease (HlA DQ2 and HLA DQ8) pretty much ensures that you do not have celiac disease and the biopsy of the small bowel showing "normal villous architecture" confirms this. But you could have NCGS (Non Celiac Gluten Sensitivity) which would not damage the villous architecture. You could also have SIBO (Small Intestine Bacterial Overgrowth) or H. Pylori infection. Both of these conditions would thrive on carbs and you do say you feel better when you don't eat a lot of carbs. And with your resection of the small bowel, that could be causing it's own problems like you describe. When was that surgery done? You have had over 1 foot of your small bowel removed by that surgery in 2022 so that would certainly challenge digestion and nutrient absorption.  Edited
    • Seabeemee
      My Doctor messaged me that I have no sign of Celiac disease so until I meet with her next week I don’t know what the labs mean. I am being evaluated by my new GI for Celiac disease because of digestive issues (bloating, distention, fullness in mid section, diarrhea).  I also have been diagnosed with GERD and some associated issues hence the endoscopy. I also was diagnosed with NAFLD after an abdominal CT scan in December - which surprises me because I gave up alcohol 5 years ago, workout 5 days a week, cardio / weights and cook from scratch every night. Anecdotally,  I do feel better when I do not eat a lot of carbs and have been staying away from gluten 95% of the time until my follow up.  History: I had an emergency bowel obstruction operation in August 2021 for a double closed loop obstruction, open surgery removed 40 cm of my small intestine, my appendix, cecal valve and illeocectomy. Beside the fact that this put me in the situation of no longer being able to absorb Vitamin B12  from my diet and having to  inject Vit B 12 2x a month, I also became Iron deficient and am on EOD iron to keep my levels high enough to support my Vitamin B12 injections, as well as daily folic acid. I tested positive for pernicious anemia in 2022 but most recently that same test came back negative. Negative Intrinsic Factor. My results from the biopsies showed 2nd part of Duodenum, small bowel Mildly patch increased intraepithelial lymphocytes with intact villious architecture. Comment: Duodenal biopsies with normal villous architecture and increased intrepithelial lymphocytes (Marsh I lesion) are found in 1-3% of patients undergoing duodenal biopsy, and an association with celiac disease is well established however the specificity remains low. Similar histologic findings may be seen in H pylori gastritis, NSAID and other medication use including olmesartan, bacterial overgrowth, tropical sprue and certain autoimmune disorders. So my GI ordered Labs for Celiac confirmation: Sorry I couldn’t upload a photo or pdf so typed below: TEST NAME                               IN RANGE and/or RESULTS RESULTS:  IMMUNOGLOBULIN A :           110 GLIADIN (DEAMIDATED) AB (IGG, IGA)                            <1.0 GLIADIN (DEAMIDATED) AB (IGA)                                     <1.0 GLIADIN (DEAMIDATED) AB (IGG)                                    <1.0 TISSUE TRANSGLUTAMINASE ANTIBODY, IGG, IGA TISSUE TRANSGLUTAMINASE AB, IGG                                     <1.0 TISSUE TRANSGLUTAMINASE AB, IGA                                     <1.0 INTERPRETATION: <15.0 ANTIBODY NOT DETECTED  > OR = 15.0 ANTIBODY DETECTED RESULTS: HLA TYPING FOR CELIAC DISEASE INTERPRETATION (note The patient does not have the HLA-DQ associated with celiac disease variants) More than 97% of celiac patients carry either HLA-DQ2 (DQA1*05/DQB1*02) or HLA-DQ8 (DQA1*03/DQB1*0302) or both. Genetic counseling as needed. HLA DQ2 : NEGATIVE HLA D08: NEGATIVE HLA VARIANTS DETECTED: HLA DA1* : 01 HLA DA1* : 05 HLA DQB1*: 0301 HLA DQB1*: 0501 RESULTS REVIEWED BY: Benjamin A Hilton, Ph.D., FACMG I appreciate any input, thank you.         
    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.