Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Probiotics


Trillian

Recommended Posts

Trillian Rookie

Can anyone tell me what probiotics are for?

I've read conflicting things, such as take them all the time, take them when you are on antibiotics, every few days, after getting glutened...

I've read that you should get the freeze-dried kind, not the kind you keep in your fridge.

I've read that you can also get them in yogurt.

But, most importantly, I don't know what they are or what they are for. I'm wary about vitamins because doctors ride the fence on whether or not supplements work.

Should I take probiotics? (BTW, I'm on antibiotics now for a staff infection)

More importantly, what are they?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KAG Rookie

I'm sure that others will reply with the technical stuff. I'm not really good with explaining that part. I do know that I have tried many many different types of probiotics and have learned that some work for me and some don't. I think that they are VERY important, but you have to try and experiment with a few different kinds to see what works best for you.

Kim

Rosebud710 Apprentice

My doctor highly recommends probiotics. They keep the good bacteria flourishing in your intestines. They help especially when you are on antibiotics since it kills pretty much most of the bacteria in your body, good and bad (hence, that's why women get yeast infections when they are on antibiotics). I've used the kind that's kept in the fridge to pills. Right now my doctor recommends FloraStor, but it's extremely expensive. My HF store suggested another brand that is also pretty good (and a lot less money). It's a capsule and I take it on an empty stomach every morning. Probiotics, for me, aren't anything that I notice different when I take them. My doctor suggests that I take probiotics, so I do ;) !

kbtoyssni Contributor

I'm certainly not an expert, but here's what I know. I take them AFTER I take antibiotics. The antibiotics will kill all bacteria in your gut (good and bad) so you want to replenish the good after a round of antibiotics. If you take them during, you'll continue to kill the ones in the pills you take, so I'd wait until after.

Not sure about whether you should take a bunch after antibiotics and then stop or keep going. If you've got a healthy gut, you can probably stop, but I wonder if things like Candida would eventually take over if you have a problem with that if you don't keep going. I also think I read somewhere that birth control pills can alter bacteria in your gut so that might be another reason to keep taking them. Not sure if getting glutened would affect the bacteria in your gut - I lean towards no, but I have no idea.

You can get some from yogurt, but I don't think it's as many as in the pills. And Activia yogurt is not gluten-free so you can't take that.

I get the kind that go in the fridge. I read that you want the "active" cultures. If you take the ones that are just sitting on the shelf, they're not still alive so they won't offer the same benefit. I'm not sure if that's what you meant by freeze-dried. Although I was at Target the other day and their ones on the shelf said "refrigerate after opening" so I don't know if that means they're good or not. I wish I could remember where I read all this and the details, but you know how brain fog is...

ravenwoodglass Mentor

Probiotics balance the good and bad bacteria in your gut. I used to use yogurt for the probiotic effects, when taking antibiotics I would make sure to eat one or two yogurts a day during the treatment and that seems to ward off the antibiotic related D that my family would get. Since I have had to give up dairy I use sauerkraut for the same purpose. Not quite as effective but almost as many of the same 'balancers' are in there as in yogurt. My ex-naturopath told me about the kraut right before he prescribed a soy and dairy loaded probiotic, which I handed right back to him.

gfp Enthusiast

Well I never saw any NEGATIVE side effects to them...

How good they are??? Hard to say but I personally believe that the Western diet has removed them almost completely.

An interesting statistic is that many Mediterranean countries have longer life expectancy, lower infant mortality etc. than the UK, US and countries where these are removed from the diet.

I eat a lot of raw food, including eggs (FREE RANGE ONLY), unpasturised cheeses (sheep and goat cheeses) and raw meat (Carpaccio, prosciutto crudo, Breasola) and drink raw goats milk when I can find it. And I also get the active yogourts.

I know millions of French and Italians who eat this reguarly yet I never heard of anyone actually dying from it!

This doesn't mean people might not get a little tummy bug from time to time, it just means they are not dying from it nor their babies...

When I was in France and eating Fresh food almost exclusively I didn't bother supplementing the pro-biotics. Now I'm in London and its near impossible to find fresh food I can eat I think it might be a good idea. (Not that I'd eat raw beef in the UK anyway, the quality is terrible)

So I can't give a definitive answer.... my personal preference is to get these naturally... raw cheeses, yogourts etc. (for instance one important pro-biotic is found in sheeps stomachs and this is exactly the part used to make natural rennet. Hence if the cheese is unpasturised the cheese becomes a culture of this (its a while since I researched this so I forget exactly which one).

Lacking this I think pro-biotics can be a good idea.

tiffjake Enthusiast

I have been taking chewable probiotics that I got at whole foods. I probably would just assume that they are doing *something* but doubt it in the back of my mind if not for the fact that I am having BM's more often and more solid now. Kinda interesting.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wildkat Rookie

Just last week I was checking into probiotics and I read that you needed to take either FOS or inulin with it to make sure the benefitial bacteria's make it to where they need to go because the acids in the gut will kill off alot of them. They say inulin is easier on you than FOS. However if you take too much inulin you will have diarrhea. They also say the only time you will notice any difference (one that you feel) is when you don't feel good and you take them, then you start feeling better. Does that make sense? They work to keep you feeling good so you don't consistantly get yeast infections, for example, especially if you are taking antibiotics. So if you do feel good, you won't feel them working but they are.

Beloved Apprentice

My doctor told me to start taking Align when he found out I had celiac. So far I haven't really seen any benefit to it, but it's only been two weeks. It has the probiotic called Bifidobacterium infantis.

sickchick Community Regular

Probiotics rule!!!!

I wish more people were educated about how important they are

I will eat them every day until I die. I eat 50 BILLLION organisms a day

www.usprobiotics.org

wildkat Rookie

I subscribe to the free newsletter of Women to Women and there is an interesting article on probiotics if you would like to read up a little.

Open Original Shared Link

Trillian Rookie

Thanks to everyone for their information/opinions!

This board has been so informative, and entertaining at times, too. :rolleyes:

I am loading up on yogurt. I couldn't digest it a few months ago, but things seem okay now. Unfortunately, I did get a yeast infection from the antibiotics. I should just ask for a prescription to counter that when they prescribe me the antibiotics... I forget every time.

happygirl Collaborator

You can take probiotics while you are on antibiotics. You just can't take them at the same time (i.e., don't pop the antibiotic and the probiotic at the same time). Leave time in between and you will be fine.

powerbraid Rookie

Hello! I have been gluten-free now since September and I too could not digest yogurt right away. However, I have tried it again, and it really helps my tummy feel better! I have also learned about Kefir, which it amazing stuff, and my body actually seems to crave it now. I figure that has to b a good thing! Also, I am reading a book right now about probiotics called "The Probiotics Revolution" by Gary B. Huffnagle. It is a great and informative book so far, and even has a special little section on Celiac. Check it out. Drink some Kefir, and best of luck! :)

  • 3 weeks later...
TestyTommy Rookie

For those of you taking probiotics:

How often do you take them?

What dosage?

Do you take them with food or on an empty stomach?

Thanks!

wildkat Rookie
For those of you taking probiotics:

How often do you take them?

What dosage?

Do you take them with food or on an empty stomach?

Thanks!

I take one a day with the propriatary blend of 1 billion CFU per capsule the first thing in the morning before I exercise on the bowflex machine (about 20 to 30 minutes before I eat). They tell you to take them with or without food. It depends on how your stomach feels about taking things before you have some food in it. If I've been around to much wheat products or have been contaminated by gluten is when my stomach gets to sensitive to take anything until I can keep food in me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

    2. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,107
    • Most Online (within 30 mins)
      7,748

    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.