Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Probiotics


Trillian

Recommended Posts

Trillian Rookie

Can anyone tell me what probiotics are for?

I've read conflicting things, such as take them all the time, take them when you are on antibiotics, every few days, after getting glutened...

I've read that you should get the freeze-dried kind, not the kind you keep in your fridge.

I've read that you can also get them in yogurt.

But, most importantly, I don't know what they are or what they are for. I'm wary about vitamins because doctors ride the fence on whether or not supplements work.

Should I take probiotics? (BTW, I'm on antibiotics now for a staff infection)

More importantly, what are they?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KAG Rookie

I'm sure that others will reply with the technical stuff. I'm not really good with explaining that part. I do know that I have tried many many different types of probiotics and have learned that some work for me and some don't. I think that they are VERY important, but you have to try and experiment with a few different kinds to see what works best for you.

Kim

Rosebud710 Apprentice

My doctor highly recommends probiotics. They keep the good bacteria flourishing in your intestines. They help especially when you are on antibiotics since it kills pretty much most of the bacteria in your body, good and bad (hence, that's why women get yeast infections when they are on antibiotics). I've used the kind that's kept in the fridge to pills. Right now my doctor recommends FloraStor, but it's extremely expensive. My HF store suggested another brand that is also pretty good (and a lot less money). It's a capsule and I take it on an empty stomach every morning. Probiotics, for me, aren't anything that I notice different when I take them. My doctor suggests that I take probiotics, so I do ;) !

kbtoyssni Contributor

I'm certainly not an expert, but here's what I know. I take them AFTER I take antibiotics. The antibiotics will kill all bacteria in your gut (good and bad) so you want to replenish the good after a round of antibiotics. If you take them during, you'll continue to kill the ones in the pills you take, so I'd wait until after.

Not sure about whether you should take a bunch after antibiotics and then stop or keep going. If you've got a healthy gut, you can probably stop, but I wonder if things like Candida would eventually take over if you have a problem with that if you don't keep going. I also think I read somewhere that birth control pills can alter bacteria in your gut so that might be another reason to keep taking them. Not sure if getting glutened would affect the bacteria in your gut - I lean towards no, but I have no idea.

You can get some from yogurt, but I don't think it's as many as in the pills. And Activia yogurt is not gluten-free so you can't take that.

I get the kind that go in the fridge. I read that you want the "active" cultures. If you take the ones that are just sitting on the shelf, they're not still alive so they won't offer the same benefit. I'm not sure if that's what you meant by freeze-dried. Although I was at Target the other day and their ones on the shelf said "refrigerate after opening" so I don't know if that means they're good or not. I wish I could remember where I read all this and the details, but you know how brain fog is...

ravenwoodglass Mentor

Probiotics balance the good and bad bacteria in your gut. I used to use yogurt for the probiotic effects, when taking antibiotics I would make sure to eat one or two yogurts a day during the treatment and that seems to ward off the antibiotic related D that my family would get. Since I have had to give up dairy I use sauerkraut for the same purpose. Not quite as effective but almost as many of the same 'balancers' are in there as in yogurt. My ex-naturopath told me about the kraut right before he prescribed a soy and dairy loaded probiotic, which I handed right back to him.

gfp Enthusiast

Well I never saw any NEGATIVE side effects to them...

How good they are??? Hard to say but I personally believe that the Western diet has removed them almost completely.

An interesting statistic is that many Mediterranean countries have longer life expectancy, lower infant mortality etc. than the UK, US and countries where these are removed from the diet.

I eat a lot of raw food, including eggs (FREE RANGE ONLY), unpasturised cheeses (sheep and goat cheeses) and raw meat (Carpaccio, prosciutto crudo, Breasola) and drink raw goats milk when I can find it. And I also get the active yogourts.

I know millions of French and Italians who eat this reguarly yet I never heard of anyone actually dying from it!

This doesn't mean people might not get a little tummy bug from time to time, it just means they are not dying from it nor their babies...

When I was in France and eating Fresh food almost exclusively I didn't bother supplementing the pro-biotics. Now I'm in London and its near impossible to find fresh food I can eat I think it might be a good idea. (Not that I'd eat raw beef in the UK anyway, the quality is terrible)

So I can't give a definitive answer.... my personal preference is to get these naturally... raw cheeses, yogourts etc. (for instance one important pro-biotic is found in sheeps stomachs and this is exactly the part used to make natural rennet. Hence if the cheese is unpasturised the cheese becomes a culture of this (its a while since I researched this so I forget exactly which one).

Lacking this I think pro-biotics can be a good idea.

tiffjake Enthusiast

I have been taking chewable probiotics that I got at whole foods. I probably would just assume that they are doing *something* but doubt it in the back of my mind if not for the fact that I am having BM's more often and more solid now. Kinda interesting.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wildkat Rookie

Just last week I was checking into probiotics and I read that you needed to take either FOS or inulin with it to make sure the benefitial bacteria's make it to where they need to go because the acids in the gut will kill off alot of them. They say inulin is easier on you than FOS. However if you take too much inulin you will have diarrhea. They also say the only time you will notice any difference (one that you feel) is when you don't feel good and you take them, then you start feeling better. Does that make sense? They work to keep you feeling good so you don't consistantly get yeast infections, for example, especially if you are taking antibiotics. So if you do feel good, you won't feel them working but they are.

Beloved Apprentice

My doctor told me to start taking Align when he found out I had celiac. So far I haven't really seen any benefit to it, but it's only been two weeks. It has the probiotic called Bifidobacterium infantis.

sickchick Community Regular

Probiotics rule!!!!

I wish more people were educated about how important they are

I will eat them every day until I die. I eat 50 BILLLION organisms a day

www.usprobiotics.org

wildkat Rookie

I subscribe to the free newsletter of Women to Women and there is an interesting article on probiotics if you would like to read up a little.

Open Original Shared Link

Trillian Rookie

Thanks to everyone for their information/opinions!

This board has been so informative, and entertaining at times, too. :rolleyes:

I am loading up on yogurt. I couldn't digest it a few months ago, but things seem okay now. Unfortunately, I did get a yeast infection from the antibiotics. I should just ask for a prescription to counter that when they prescribe me the antibiotics... I forget every time.

happygirl Collaborator

You can take probiotics while you are on antibiotics. You just can't take them at the same time (i.e., don't pop the antibiotic and the probiotic at the same time). Leave time in between and you will be fine.

powerbraid Rookie

Hello! I have been gluten-free now since September and I too could not digest yogurt right away. However, I have tried it again, and it really helps my tummy feel better! I have also learned about Kefir, which it amazing stuff, and my body actually seems to crave it now. I figure that has to b a good thing! Also, I am reading a book right now about probiotics called "The Probiotics Revolution" by Gary B. Huffnagle. It is a great and informative book so far, and even has a special little section on Celiac. Check it out. Drink some Kefir, and best of luck! :)

  • 3 weeks later...
TestyTommy Rookie

For those of you taking probiotics:

How often do you take them?

What dosage?

Do you take them with food or on an empty stomach?

Thanks!

wildkat Rookie
For those of you taking probiotics:

How often do you take them?

What dosage?

Do you take them with food or on an empty stomach?

Thanks!

I take one a day with the propriatary blend of 1 billion CFU per capsule the first thing in the morning before I exercise on the bowflex machine (about 20 to 30 minutes before I eat). They tell you to take them with or without food. It depends on how your stomach feels about taking things before you have some food in it. If I've been around to much wheat products or have been contaminated by gluten is when my stomach gets to sensitive to take anything until I can keep food in me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      0

      Celiac support is hard to find

    2. - cristiana replied to hjayne19's topic in Traveling with Celiac Disease
      2

      Mallorca Guide

    3. - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Insomnia help

    4. - cristiana replied to hjayne19's topic in Traveling with Celiac Disease
      2

      Mallorca Guide

    5. - trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,943
    • Most Online (within 30 mins)
      7,748

    KELLYDAMON
    Newest Member
    KELLYDAMON
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
    • cristiana
      Forgot to add...  Quite a lot of 'tapas' are gluten free. Ones to look for:  Tortilla de patata (a thick omelette made with potatoes and onions) should be 'sin gluten', and chorizo cooked in red wine makes a nice dish.  Look out for sobrasada, which is very Mallorcan, a softer type of sausage/pate which you can spread on gluten free crispbread which you should be able to buy for supermarkets.  Until very recently we could not buy it here in the UK but we've managed to find a local source, and Lidl have started to sell it in tubs, too. Here's more info on it: Sobrasada is a soft, spreadable, cured pork sausage from Spain's Balearic Islands (like Mallorca), distinguished by its reddish color from paprika, sweet-spicy flavor, and pâté-like texture, perfect for spreading on toast, cooking into dishes like eggs or pasta, or drizzling with honey. Its unique texture comes from the island's humid climate preventing full drying, resulting in a semi-soft sausage that's gently aged, unlike drier mainland chorizo.
    • hjayne19
      Hi @cristiana   Thank you so much for your reply. This is so helpful. I definitely suffer from anxiety mostly related to health. Brain fog definelty doesn’t help this when it comes. I find my 4 am wake ups are potentially more food related if that’s a possibility (eating enough carbs with protein and fats) and if I eat a small snack before bed to hold throughout the night. I just haven’t been able to help the sudden increase in more days where I can’t fall asleep for hours - it’s those racing thoughts like you describe. I feel like a machine that’s running and can’t shut down.    I will try the epsom salt bath that’s a great suggestion. I think I’m probably working through some other food triggers that may be contributing as well with brain fog.    Anyways sorry to go off. It feels so reassuring finding this community and being able to chat with others. I was definitely feeling a bit crazy until I realized there are many others going through the same thing. 
    • cristiana
      Hi Jayne Great choice for a gluten-free cycling holiday, I know the island well. The words you need to look for are 'sin gluten' when you are out and about.   I think you will be amazed at how many packets and canned goods are clearly labelled 'sin gluten' in the supermarkets - many more than one sees here - often in quite large type.  There seems to be a thought in the UK that if you label something gluten free it will affect flavour etc and will put people off buying it!  However, in the case of Spain, it is almost as if the the Spanish see it as an endorsement of quality and flavour!  There is a supermarket called Mercadona and they label their produce very clearly. Paella should be gluten free so long as the chef use the right stock such as Knorr or a gluten-free homemade stock - you can check.  Most Mallorquins in catering speak English but if not, ask, "Contiene gluten?"  Tumbet is a wonderful dish if you like peppers, tomato, aubergines, garlic and olive oil!  A sort of variation on ratatouille.   Slow roast lamb shank should be safe, and there are endless fish dishes to choose from and salads.  Flan is made with eggs, sugar and caramel, and should be gluten-free.  Lots of gluten-free ice cream and sorbets, they should be clearly labelled. If you want specific restaurant recommendations, feel free to PM me. Cristiana    
    • trents
      One thing to keep in mind is that it's pretty safe to take a B-complex since B vitamins are water soluble. You just pee out any excess. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.