Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When

FootballFanatic

Recommended Posts

FootballFanatic Contributor
FootballFanatic
Posted

I first started having symptoms October 06, and I got diagnosed in July. It's December. Another month gone and I still have not gone a whole day without feeling terrible. It's just getting worse and worse. I'm living off xanax and pepto. My grades and my social life have gone to hell because I don't want to leave my house, but I don't want to be in my house either.

I just want to break out of my skin. I don't want to die but I don't want to live this life.

What's wrong, There is NO way I'm getting gluten. I have replaced every single thing I cook with, I only eat 3 different meals that are all gluten free. I wash my hands like gluten is a poison on everything I touch. I moved out of the kitchen and do everything in my room - except when i use the stove and I cover my pot that I'm cooking with.

When am I going to get better?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Maybe you are not eating a balanced diet with your 3 meals. List what you are eating and we can suggest some healthy/balanced meal choices.

AndreaB Contributor
AndreaB
Posted

Have you looked into other food intolerances? Soy and dairy are often culprits....especially at the beginning if you've had damage to the instestines.

If you continue to have fewer things you can eat then you'd really need to look into the reason behind it.....which could be one of many things. For my family it's metals, for many others it's lyme, parasites, viruses. There is almost always something behind numerous intolerances, the tricky part is finding what.

If it's just a few foods then you could always reintroduce them at a later time.

If you've not had a good day since you started the diet......absolutely no improvement, then I would suspect something else along with the gluten intolerance/celiac that is keeping you down.

happygirl Collaborator
happygirl
Posted

Are you under a doctor's care? I would guess that you are having "beyond gluten" problems based on what you are describing.

sickchick Community Regular
sickchick
Posted

I am going Soy & Dairy free as of today....

I feel for ya FF...

Breathe and keep positive. You can get control it just might take a few hits or misses

I can't take Pepto, it has no effect on me at all...nor Immodium

:P

loraleena Contributor
loraleena
Posted

I would seriously look into candida overgrowth. Try taking probiotics. Find a good digestive enzyme to take before meals. Maybe get checked for small bowel bacteria as well. And ditto the above suggestions about other intolerances. Xanax and pepto will only worsen your condition in the long run. They are bandaids. Pepto also constipates you as well.

Offthegrid Explorer
Offthegrid
Posted

Didn't somebody just post somewhere that Xanas is not gluten-free?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Yenni Enthusiast
Yenni
Posted

Hang in there. Like others have mentioned, maybe you have other food intolerances as well.

It took me a long time to start feeling better. Months before I noticed some changes actually. It came on gradually and one day it hit me I wasn't as tired any more. Then later I realized other symptoms were better or less too.

Now, over a year after I got my diagnosis I feel pretty good. Kinda little like my old self.

It can take time to heal and some feel better sooner than others. Just do as best as you can and you will get better. Make sure to read and learn about the diet. Learn from mistakes and such.

It will get better. I know how hard it can be.

Carafate has helped me lots when I feel sick. I do get cross-contaminated now and then (thank Gd not as often as it used to be) and the Carafate always helps me.

ENF Enthusiast
ENF
Posted
Didn't somebody just post somewhere that Xanas is not gluten-free?

Just a reminder:

Xanax contains gluten, as does the generic version of it by Greenstone, a subsidiary of Pfizer.

GlutenWrangler Contributor
GlutenWrangler
Posted

Well there you go!

scotty Explorer
scotty
Posted

i don't take meds---eexcept prilosec--wondering if i should stop that---all others gave me trouble, even probiotics eventually bothered me---oh but i don't want the flaming gut roaring up my esophagus again......

JNBunnie1 Community Regular
JNBunnie1
Posted
Just a reminder:

Xanax contains gluten, as does the generic version of it by Greenstone, a subsidiary of Pfizer.

Just wanted to make sure you got this info, Football Fanatic. How uncool is that? Hope you can just stop taking it.....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,204
    • Most Online (within 30 mins)
      7,748
    DreDre
    Newest Member
    DreDre
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • kopiq
      starting to heal, vitamin d deficiant but cannot tolerate vitamins. what to do? also multiple ongoing issues.

      By kopiq · Posted

      I also have food particles left on toiet paper when i wipe and my stool is light yellow not absorbing fats. I urinate about 15 times a day and have very sticky snot,dry throat.
    • kopiq
      starting to heal, vitamin d deficiant but cannot tolerate vitamins. what to do? also multiple ongoing issues.

      By kopiq · Posted

      Hi all, I was diagnosed by blood work about 2 months ago and have since went on a strict gluten free diet. I have an endoscopy in January and the GI dr said nothing about staying on gluten for it; hes aware i went no gluten. starting to heal symptoms include: (this is huge) sensation coming back to genitals and when having a bowl movement. everything has been numb for a long time down there including lower belly button area. good size (not abnormal) bowel movements once a day or every two days. small dot size wart just fell off my finger that was there for years. have not broke out with a cold sore this winter (every winter prior for years i would develop a cold sore on my lip) Ongoing issues I don't sweat. not from my hands, or armpits or feet. I do not get butterflys in stomach. my hands have been so dry for years ive been using a crack cream as they crack and bleed very severely in the fall and winter.  (since going gluten free ive not used crack cream but they are still very very dry and chapped/flaky, no sweat or moisture in palms of hands at all. I dont crave food. i have no cravings at all, not for pizza, ice cream , nothing. my cravings are dead. smell of foods kinda make me hungry, but my stomach blocks it. pins needles in feet get weak legs standing up from sitting and dizzy, things almost turn black. i cannot tolerate veggies or vitamins. Iam vitamin D deficient according to my Dr and Ive tried vitamin D pills. they give me a massive migraine for 8 hours and upset my stomach. the heat from the direct sun make me extremely tired to the point of wanting to pass out. again i don't sweat. broccoli gives me a migraine headache as well. mushrooms, bell peppers burn my stomach. fruits burn my stomach, fats (peanut butter, any oil or fat from meats make me sick to my stomach for a couple hours or longer. salt and pepper burns my stomach. all these issues cause pain at my belly button area and expand to the rest of my upper stomach and sides the more i ingest through out the day. I currently eat bland basmati rice, chicken, pork chops (fat trim), boiled russet potatoes no skin for three meals a day. my snacks are gluten free ground buckwheat flour pancakes. (just water, no oil , salt, dairy.) how am i to get vitamins in my system if i cannot tolerate them in my stomach? i mentioned epidermal vitamin patchs but dr said no. why cant i stand the heat from the sun ? why cant i sweat? thanks for any info.                
    • trents
      Celiac Maybe a Possibility?

      By trents · Posted

      Because you have significantly reduced your gluten intake over a considerable amount of time, it is likely that you will test negative on the antibody tests. However, if the $112 for the Quest test is not a burden, it wouldn't hurt to try. It tests for total IGA (to ascertain if you are IGA deficient) and tTG-IGA. If total IGA is deficient, it can result in false negatives in other IGA tests. The tTG-IGA is the single most popular test ordered by physicians. The Quest test is not a complete celiac panel by any means (refer to the linked article above) but it might be a good place to start. Personally, I think you know enough to conclude that you need to get serious about avoiding gluten, whether you have celiac disease or NCGS. Human nature being what it is, however, many people seem to need an official diagnosis of celiac disease in order to stay on the bandwagon. Otherwise, they seem to rationalize cheating on the gluten-free diet. And there is this misconception out there that NCGS is inconvenient and uncomfortable but not harmful so it's okay to cheat. The more we learn about gluten-related disorders the more they seem to not fit into our neat little black and white categories. By the way, celiac disease is not a food allergy. It is classified as an autoimmune disorder.
    • More2Learn
      Celiac Maybe a Possibility?

      By More2Learn · Posted

      These responses are all extremely helpful, ty.  Really good reminder about omega 6.  I also know I'm low in zinc; I took the zinc test where I drank it on a spoon and couldn't taste it.  To that end, I try to eat a lot of oysters.  I do think it would be a good idea to get the blood test.  Two questions: 1-  Is there any reason you wouldn't recommend that I just buy and take a test like this as a first step? 2- I've been somewhat gluten free since ~Jan 2023 (technically organic, gluten free, soy free, light on dairy).  I eat a lot of meat, vegetables, rice -- a common breakfast for me is three eggs and a sausage link, and I can't remember the last time I had a sandwich or bread.  However, because in my mind I didn't think I had an allergy, and I more was doing gluten free to avoid artificially iron-enriched foods, I do make exceptions.  I'll eat breaded calamari.  When my Dad visits, I split mozzarella sticks with him because he loves them so much.  I'll eat the "gluten sensitive" items at a restaurant and if they asked, "is cross contamination ok?",  I always said yes.  Based on that, since I never probably fully eliminated gluten, but it was significantly reduced... is that good enough to take the blood test?  Because the pain in my side gets SO bad (really sometimes I can't function, and I absolutely thought I was dying), I am hesitant to do the gluten challenge.  Would it make sense to take the test, and if it's negative, then consider doing the challenge and seeing if I can deal with eating the bread every day? Thanks again!
    • Yaya
      Muscle Twitching

      By Yaya · Posted

      For me, with osteoporosis, Celiac and more than 1 heart condition, the slower, safer route is preferable.  I'm on 5 meds per day.  Too much of anything can disturb absorption of this or that. Have a Happy Thanksgiving.  I'm gone for a few days.  
×
×
  • Create New...