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Origin Of Celiacs?


C'smum

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Betty in Texas Newbie

I really don't know what all I have in me I know I am a American and a Texas I keep telling my Mom which is 93 that I am going to have do a DNA test to see if I am really her's. I have alway told her they must have given her the wrong baby at the hospital she they did'nt. I am the only one out of 7 kids to have all these problems and I am the only one to have RH Negative blood so what do you all thank I have 2 kids grown and they both had RH Negative blood have not been tested for celiac. My daughter has colitis and Haushmotos disease I really think she has celiac but she says no .


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Glutenfreefamily Enthusiast

I am Irish, German, French, Scottish, English, Native American-cherokee, and Dutch. Im sure there are others but these are the ones confirmed through tracing our family history. Im definitely a mix :) I also have rosacea which is suppose to come from Scottish or Irish descent.

brazlebridge Newbie

Mom-American (English/Irish/Native American)

Dad- Dutch American (First generation)

DingoGirl Enthusiast
Its funny for us Eurpeans to think that someone with blond hair and blue eyes from Lombardy is genetically closer to someone with very dark skin and afro hair from Sicily... not to mention Italy didn't exist as a country until Garibaldi in 1878... or that a Hindi family living in Rome (perhaps for over 2000 yrs) are somehow closer than an Austrian to some Italian genotype???

Always such good information from Steve! but somehow it made my brain hurt...... :blink::lol:

I am one-quarter Norwegian, and the rest English, Welsh, Irish, Scottish, and a tiny smattering of French (descendant of Huguenots).

Two summers ago I went to the Celiac conference at Stanford, and there were between 500 - 600 people in attendance. I had never, in all my life, seen such a HUGE group of "white" people - and I do mean WHITE (extremely fair-skinned group)! Here in Central California we have a huge population of southeast Asians and Mexicans - I am pretty sure whites are the minority now - so I was quite startled to see such gathering of what appeared to be nearly 100 percent caucasians.....

celiac-mommy Collaborator

As far as I can research back, I'm Irish nearly 100% (I guess I'm considered 'black Irish' or so I'm told...dad's side. Mom is a freckled redhead), DH is English and French. We haven't done the gene testing, so we don't know who donated to our DD.

pattij Newbie

My husband, the celiac member of our family, is mostly Irish.

Kaycee Collaborator

On my mothers side, Croatian, on my fathers side a mixture of Irish, English and maybe scottish

Cathy


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Yenni Enthusiast

I am born and raised in Sweden. I have done some family tree research and have found nothing but Swedish people so far.

dksart Apprentice

Maternal: 1/2 Italian, almost 1/2 German and a bit of Swedish.

Paternal: almost 1/2 German, 1/4 English, 1/4 French and a bit of American (Creek) Indian.

Fair skinned, green eyed, blond here. Red-headed, freckled Italian Mom and Dark Brown hair & eyed German Dad.

Jodi Mills Apprentice
I reside in Ontario but grew up with my family in England.My family believed themselves to be true English.Recently we found out that we are of Irish decent through my fathers side the same side that has passed on Celiacs to me.There is some belief that Celiacs originate from Ireland.Whats your background?

I am not of Irish decent, My grandparents, on my dad's side, immigrated from Slovania(I think that is how it is spelled, slavic?)...That is the side of the family that handed down the celiac. They also didnt pass on a full set of teeth...two of my adult teeth never formed as a child? I am not a gross person with no teeth, it is only genetics...lol

Jodi Mills Apprentice
On my mothers side, Croatian, on my fathers side a mixture of Irish, English and maybe scottish

Cathy

Just wanted to say Hi, My grandparents are Croation, and a few other things, on my dads side, and i have mutt from my moms side.

ElseB Contributor
I reside in Ontario but grew up with my family in England.My family believed themselves to be true English.Recently we found out that we are of Irish decent through my fathers side the same side that has passed on Celiacs to me.There is some belief that Celiacs originate from Ireland.Whats your background?

I'm Irish (from the North) on my mother's side, and South African (of British and Russion decent) on my father's side.

I've heard there's also a lot of celiacs in Finland. Something to do with pale skin? :D

DingoGirl Enthusiast
I've heard there's also a lot of celiacs in Finland. Something to do with pale skin? :D

Not only are there lots of Celiacs, there are GLUTEN-FREE BIG MACS!!!!!!!!!!!!!!! :P

ENF Enthusiast
I'm Irish (from the North) on my mother's side, and South African (of British and Russion decent) on my father's side.

I've heard there's also a lot of celiacs in Finland. Something to do with pale skin? :D

The reason that there are so many celiacs from Finland and Northern Ireland may be because these areas were not introduced to Roman grain until recent times.

lizard00 Enthusiast

I'm English/Irish (the Irish part,we think) on my Mom's side and French/Romanian on my dad's side.

babinsky Apprentice

Italian on my Mom's side....Irish on my Dad's. Nobody else in my family has Celiac except me....and probably my Dad's whole family...........but ALL of them passed away before they reached 50...my Dad passed at 42

1965kid Apprentice

I am Scotch/Irish

home-based-mom Contributor

My Mom used to say we were Heinz 57! :P But that meant essentially northern and western Europe, including Irish, but also English, German, and Swiss on her side, and Norwegian and Welsh in my Dad's side.

gfmolly Contributor

Norwegian and German from the side that I got Celiac and Greek on the other.

gfpaperdoll Rookie

Irish & English here... I think it is the Vikings that spread the genes around to the Northern Europeans. Also, all you Irish need to educate yourself about Hemochromatosis. Which is what they call the Celtic Curse. But I think the celtic curse also includes the celiac genes, I think you will agree when you read all the illnesses that go with the celtic curse.

I really do not think that the human body is made to eat grains, much less the gene altered wheat that we have today...

lm9 Newbie

I'm full Native America, Navajo to be exact. I have yet to meet another Navajo Celiac. ;)

Gluten free 11/07.

Larissa

dbmamaz Explorer

Another first for this list, I'm Jewish - which is kinda a 'breed' if not a nationality. I'm also blonde and very fair, which is unusual for jews. My mom's mom's family was from austria, my mom's dad and my dad's mom from russia, and my dad's dad from rumania. My father had the awful stomach symptoms i have, and died of cancer, and my mom's mom had tons of food allergies. OH, and both grandfathers were blonde lol!

  • 5 weeks later...
flourgirl Apprentice

Wheeee! This is fun! :lol: I see lots of the fair skinned types here. but not all of us are such. My Dad's family is Cherokee/Scottish. I resemble that side of the family (in looks, not their health!) Very dark hair, dark dark brown eyes, skin more olive colored (turn bronze in the sun).

My mom's side however is English/Irish. I'm convinced that she has Celiac, but won't get tested. (Sigh).

Thanks for the fun topic and for sharing.

ive Rookie

I guess I am another first for this list. I am Belarusian (Belarus is a small country bordering with Russia, Poland and Ukraine and was part of ex-USSR). My dad's family probably has some Polish roots, my mom is Belarusian. I suspect I get it from my mom's side. It is hard to say as in Belarus / Russia nobody knows about this disease. I immigrated to Canada almost 8 years ago, got diagnosed just last week. It would be very hard for celiac to live in Russia / Belarus, I am so glad I am here:-)

MaryJones2 Enthusiast

My father was Dutch and my mother is half German and half Seminole Indian.

Someone mentioned still having baby teeth. I'm 35 and still have 3 baby teeth because my real teeth never developed so there was nothing to push my baby teeth out. I just had the 4th replaced with an implant. I also am missing my wisdom teeth. It's really neat to see my baby teeth on x-rays because the roots are so tiny compared to my other teeth. My teeth are the same size as the regular teeth. It's a hereditary condition and usually referred to as having congenitally missing teeth and having fewer than 6 missing teeth is called Hypodontia. I get it from my mother who is also missing all of those teeth. As far as I know it is not related to celiac disease but I wouldn't be surprised to find out there was a connection somewhere.

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    • trents
      If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid.
    • englishbunny
      it did include Total Immunoglobin A which was 135, and said to be in normal range. when i did the blood test in January I would say I was on a "light' gluten diet, but def not gluten free.  I didn't have any clue about the celiac thing then.  Since then I have been eating a tonne of gluten for the purpose of the endoscopy....so I'm debating just getting my blood test redone right away to see if it has changed so I'm not waiting another month...
    • trents
      Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
    • englishbunny
      I'm upset & confused and really need help finding a new gastro who specializes in celiac in California.  Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which don't seem to get significantly worse with gluten but I can't really tell... my main issues being extreme fatigue and joint pain. The celiac panel was done by my endocrinologist to try and get to the bottom of my fatigue and I was shocked to have a positive result. Just got negative biposy result from endoscopy. Doctor only took two biopsies from small intestine (from an area that appeared red), and both are normal. Problem is his Physician's Assistant can't give me an answer whether I have celiac or not, or what possible reason I might have for having positive antibodies if I don't have it. She wants me to retest bloods in a month and says in the meantime to either "eat gluten or not, it's up to you, but your bloodwork won't be accurate if you don't" I asked if it could be I have early stage celiac so the damage is patchy and missed by only having two samples taken, and she said doctor would've seen damaged areas when performing endoscopy (?) and that it's a good sign if my whole intestine isn't damaged all over, so even if there is spotty damage I am fine.  This doesn't exactly seem satisfactory, and seems to be contrary to so much of the reading and research I have done. I haven't seen the doctor except at my endoscopy, and he was pretty arrogant and didn't take much time to talk. I can't see him or even talk to him for another month. I'm really confused about what I should do. I don't want to just "wait and see" if I have celiac and do real damage in the meantime. Because I know celiac is more that just 'not eating bread' and if I am going to make such a huge lifestyle adjustment I need an actual diagnosis. So in summary I want to find another doctor in CA, preferably Los Angeles but I don't care at this stage if they can do telehealth! I just need some real answers from someone who doesn't talk in riddles. So recommendations would be highly welcomed. I have Blue Shield CA insurance, loads of gastros in LA don’t take insurance at all 😣
    • trents
      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
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