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Had Endoscopy Today!

blondebombshell

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blondebombshell Collaborator
blondebombshell
Posted

had endoscopy today and the doc said my intestines looked ok.

he did however find the following:

- small hiatal hernia

- evidence of acute gastritis of the antrum and the body of the stomach. the mucosa appeared edematous and erythematous.

he also did biopsies.

what does the above mean??

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ravenwoodglass Mentor
ravenwoodglass
Posted

To put it simply, your stomach had some inflammation and your intestinal mucosa showed signs of swelling and redness. All could be a result of gluten intolerance reactions. Your biopsies will be the most telling. But do remember that even if your biopsies are negative you still need to try the diet for a while to be sure. Damage, especially in the early stages or if someone has been off and on gluten free can be patchy and easily missed.

blondebombshell Collaborator
blondebombshell
Posted
  • Author

i was off gluten for a month and felt much better; then the GI doc said to be back on it for the test so i really do hope that the biopsy gives me some indication.

everyone seems to think i am fine, including the doc and its pissing me off (sorry but it is) because i feel like poop!!

ravenwoodglass Mentor
ravenwoodglass
Posted
i was off gluten for a month and felt much better; then the GI doc said to be back on it for the test so i really do hope that the biopsy gives me some indication.

everyone seems to think i am fine, including the doc and its pissing me off (sorry but it is) because i feel like poop!!

Believe me if anyone understands it is me. Since I don't show up in blood work I had a very long, very painfilled 15 years before I was finally diagnosed. If you felt better off of gluten I think you have your answer already. I hope you feel great soon.

blondebombshell Collaborator
blondebombshell
Posted
  • Author

so what do you all think?

from this point on i am eliminating the gluten but part of me feels like people think i am nuts and making up things. when i tell my doc about the hives, the way i feel, etc...he said - ok. well your intestines look ok.

so wtf! sorry - just frustrated now that i do not know whats going on.

nora-n Rookie
nora-n
Posted

They just told me I should go to a psychiatrist too, so I can relate. I have these "hives" too that come back when in contact with gluten or baking gluten bread (for others).

They do not want to send me to a skin dctor for the suspected DH so I will have to go private. Well, it is only slightly more thatn 100 dollars here but I have to pay for a membership fisrt at the private centre and that costs about 150 dollars. Not much by US sstandards.

DH= celiac

nora

ravenwoodglass Mentor
ravenwoodglass
Posted
so what do you all think?

from this point on i am eliminating the gluten but part of me feels like people think i am nuts and making up things. when i tell my doc about the hives, the way i feel, etc...he said - ok. well your intestines look ok.

so wtf! sorry - just frustrated now that i do not know whats going on.

So many of us have dealt with the 'it's all in your head' syndrome. When I lost the ability to walk I was offered prozac, when I couldn't get through the night without waking with shaking, sweating, pass out pain from 3 straight hours of D every night I was given.....valium. When my children started showing celiac tummy problems they just didn't want to go to school. When I broke out in DH blisters I had acne and my 'nerves' were responsible for the lesions because I was a picker, how about some prozac to calm you down. Your not nuts, the doctors are just woefully ignorant. Try not to worry about folks thinking you are crazy, what proved to my family that I was not nuts was the result of the diet. Within 6 months my family saw a completely different person, not only was I not sick anymore but my emotional stability is now normal and noone gets the treat of Mom having a melt down on almost a daily basis. Stick with the diet, no matter what those around you say, your response to it will be the biggest judge of how much you need it.

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blondebombshell Collaborator
blondebombshell
Posted
  • Author

so the hiatal hernia and gastritis...

could those be cuases from gluten or because of it?

ravenwoodglass Mentor
ravenwoodglass
Posted
so the hiatal hernia and gastritis...

could those be cuases from gluten or because of it?

In particular the gastritis can be directly from the gluten reaction and I don't know for sure about the hiatial hernia but I do know a lot of us have them. If your doctor decides you need an acid blocker or a PPI you may want to try the diet and pepto bismal first before the meds. There is a good chance you won't need them and they can be hard to get off once you are on them.

Betty in Texas Newbie
Betty in Texas
Posted
In particular the gastritis can be directly from the gluten reaction and I don't know for sure about the hiatial hernia but I do know a lot of us have them. If your doctor decides you need an acid blocker or a PPI you may want to try the diet and pepto bismal first before the meds. There is a good chance you won't need them and they can be hard to get off once you are on them.
Betty in Texas Newbie
Betty in Texas
Posted

I know how you feel I was having the hives almost everyday for 2 years, I don't like to go to the dr but finally went after I could'nt stop crying and the dr said it is your hormones since I was 52 let me give you a hormone shot and give you some prozac it will make you feel so much better. Well it did't I got sicker and finally found the right GI and bingo he was my hero Hope you feel better

Judyin Philly Enthusiast
Judyin Philly
Posted
Within 6 months my family saw a completely different person, not only was I not sick anymore but my emotional stability is now normal and noone gets the treat of Mom having a melt down on almost a daily basis. Stick with the diet, no matter what those around you say, your response to it will be the biggest judge of how much you need it.

I so agree with Raven....here.

We can't worry about what the others think of us.......it's hard.........but we have to listen to our bodies and yours doesn't seem to like gluten AT ALL.........

GOOD LUCK .

sneezydiva Apprentice
sneezydiva
Posted
i was off gluten for a month and felt much better; then the GI doc said to be back on it for the test so i really do hope that the biopsy gives me some indication.

everyone seems to think i am fine, including the doc and its pissing me off (sorry but it is) because i feel like poop!!

I know exactly how you feel! I've run into the same thing. And when I finally found a nice primary doctor who believed me and referred me to specialists, the specialists would tell me I'm crazy. I went through this for almost 10 years. To make it worse, my DH is military, and so many military doctors treat wives like hypochondriacs while they send the officers to get MRIs for hangnails! When my husband had a herniated disk my eyes were opened to how differently the doctors treated him than they treated me. What finally got the doctors to actually try to figure out what was wrong with me was my husband coming with me into the exam room for appointments. And yet, I still don't have a complete answer. Celiac blood tests were negative. But I do have a positive wheat allergy test and it is now in my record, so no more eye rolling when I mention it.

I understand the feeling of wanting a firm diagnosis. I wanted to stick it to all the doctors who told me I was crazy. I'm still comtemplating writing about my wheat allergy to a university allergist who basically told me I was a whiner, and had "poor symptom tolerance" Of all people, he should've figured out hidden food allergies/gluten intolerance/celiac diasease.

But there comes a point where you have to accept that you've done everything you can to get the medical community to validate you, and just do what you know you have to do. Truthfully, I was going to stay on the diet no matter what my allergy tests said. I had already noticed a positive difference, and my husband had also. He said I seemed happier and less irritable, and more energenic. As others have said, family will come around when they see the results.

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      I wasn't given any blood tests. I think I should try the gluten free diet because when I cut it out a few weeks ago for just a couple of days, I know I started feeling better. The difference was actually pretty dramatic. When I learned gluten free eating may cause false negative biopsy results, I went back to gluten full force and feel like you know what × 10. Do you feel it would be okay since the gold standard for diagnosis is behind me or should I wait for biopsy results? In your opinion, of course. I know you can't offer me medical advice.
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