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Good Drs

Worriedtodeath

By Worriedtodeath
in Doctors

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Worriedtodeath Enthusiast
Worriedtodeath
Posted

We've been struggling with my 18 month since her 12 month well check. I've posted elsewhere about her. From the beginning the ped who is close to retirement but is the leading ped in her practice and oversees the drs and staff has said Celiac even with neg blood work. We have a biopsy scheduled in Jan and even if it comes back neg (or inclusive since she said it won't rule out Celiac just may not prove it), she is going to label the baby NCGS and take her off of gluten (unless the biopsy shows something sinsiter that we haven't picked up on though neither the ped or gi feel that is a reality) So I call this week to see if we can get another blood panel run since she is much sicker and has been on wheat longer than when last tested and to see if we can test the other kids.

Now the two boys have been in her practice under the care of other drs and when we moved to this side of town, we went to her location since it was closer. And she has seen the boys (one well check and two sick visits a piece) and has been dismissive about their ongoing tummy troubles since it is an old recurrent theme that at the time of onset was reviewed by other drs and dismissed with the the usual themes -- too much juice, red dye in the juice turned the stools green, they fell several percentile points but never off the chart so don't worry, kids have tummy aches for attention, blah blah blah..... and she gave them the once over and they seem fine and look great - as the baby does and we know how far from the truth that is.

Now, she ordered Celiac blood panels from Prometheus(sp?) because given that the baby is "classic manifestation of Celiac despite the test results" and a review of the boys charts, she feels that they warrant testing just to see if the tummy aches are more than the normal tummy ache complaints of little kids.

I had fully anticipated having to do sick visits with each one and justifying why I thought they should get a test performed.

Now I go tomorrow (today if I could get there) and pick up their orders and run over to have the lab to get it done. :blink:

Now I'm scared! :o

Now I have a week or two to worry if it is positive (my babies have been sick for years- how horrible of me not to have know about this and had this done earlier) or if it is negative - what a crazy mom I am to think my kids are sick and project some disease onto them!! :unsure:

I figured ya'll would understand since I am driving my hubby crazy.

Stacie

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