Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking Pretty Bad


The One

Recommended Posts

The One Apprentice

I want to know if anyone else has this problem, when I was still throwing up from gluten as I didn't know it was what was making me sick I would get face rashes, they wouldn't be itchy though (as DH tends to be), but they would stay for quite a few hours and then go away (though never went away completely) every time I would throw up it would get worse and after I stopped eating gluten every time I would get glutened the rash would come back, it would usually be around the nose as if i were blushed and on the cheek next to the ear (left) i also had really bad circles under my eyes and very puffy. You can always still see some of the rash on my face and the circles under the eyes are definitely not gone at all, sometimes I look at myself and I really don't recognize myself from what I looked like before (and before i lost about 20lbs) I still feel like I look pretty bad, could something else be causing me to look like this? maybe milk? has anyone had such a problem? or possibly it could be vitamin related?

Thanks,

AJ


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

If it was caused by dairy that would mean that you have an allergy not lactose intolerance. I have an allergy and don't get a rash but get one or two small to large sores on my face if I drink milk or cream or if my cumulative intake of dairy is too much. This particular symptom is more delayed and I do have other reactions too, but everyone's different.

If I don't get enough rest or skip a dose of vitamins my under-eye area can be quite pufy in the am an I get dark circles. Being a little underweight doesn't help either.

I hope you're feeling better soon. Take Care.

The One Apprentice

That's interesting, now that I remember, the first time I got the rash it was a spot [about the size of a penny] on my left cheeck after throwing up and what i had ate was gluten free instant mash potatoes [made with regular milk] and an egg. So it wasn't the gluten making me throw up in that one instance. So what would be the difference between dairy allergy and lactose intolerance? does that mean that lactose free milk could give me a reaction too?

I will definitely try to get a vitamin level testing next time i'm at the doctors, so far i've been unsuccessful in trying to get tested because they don't believe me I have celiac.

thanks for your input,

AJ

Ursa Major Collaborator

It looks like you may have a casein intolerance (not allergy), which is similar to a gluten intolerance and is mediated by the immune system as well. Meaning that you should try eliminating all dairy (including cheese, yogourt, butter, whey as well as milk).

If it was just a lactose intolerance you would be fine using lactaid pills or drinking lactaid milk. It appears that you are not fine using those.

Dairy is also well known to be causing rashes and eczema. My oldest granddaughter was covered in eczema from head to toe for the first 1 1/2 years of her life, until my daughter stopped giving her dairy. Within weeks she had beautiful, clear skin (still does at the age of 7 now). When my daughter made the family gluten-free, the dark circles under her eyes finally disappeared as well.

Soy could also be causing those same problems.

Susie, my youngest daughter, will also throw up from dairy (she is also gluten intolerant).

The One Apprentice

I will try that and see if it improves, does the rash have to be itchy? because mine doesn't itch it just gets more noticeable certain days more than others. I did switch to lactose free milk and it doesn't upset my stomach but the rash is still there so it makes sense that it could be casein.

Do you know of any substitutes to dairy products or do I have to completely eliminate them? i looove cheese and i always use milk and butter for mash potatoes and such, what else could i use?

thanks,

AJ

missy'smom Collaborator
That's interesting, now that I remember, the first time I got the rash it was a spot [about the size of a penny] on my left cheeck after throwing up and what i had ate was gluten free instant mash potatoes [made with regular milk] and an egg. So it wasn't the gluten making me throw up in that one instance. So what would be the difference between dairy allergy and lactose intolerance? does that mean that lactose free milk could give me a reaction too?

Open Original Shared Link

That penny size sore sounds like ones I've gotten. Here is a link that explains the difference between lactose intolerance and milk allergy.

I used to think that I could get away with some dairy but now that I've eliminated it completely my constant nasal stuffiness has gone and I notice a diference in my BM's if I eat even a little bit of butter. I used to use lactaid milk seemingly without problem(but not lactaid pills and cream), but my mother was told that I had a milk allergy as a baby and my symptoms fit one of the allergy profiles on that link. Hope it helps.

Ursa Major Collaborator

You could use coconut oil (cold pressed, non-hydrogenated, which is extremely healthy) and rice milk (not rice dream, it isn't gluten-free) in your mashed potatoes. I always do, and nobody knows the difference (only my tummy does ;) ).

No, the rash doesn't have to be itchy. DH is always itchy, so that just means it isn't that.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MyMississippi Enthusiast

You might have rosacea (don't think I spelled that right ) :)

I had red cheeks, chin, and nose that would come and go for years. And then the redness got better, but never went away completely. Then I noticed this red little patch on the end of my nose that came and went for years. Finally went to dermatologist because I thought it might be a skin cancer. Turned out to be rosacea. I was floored ! Even though I'm a nurse, it never occured to me that I had rosacea, (I guess I had just gotten used to my rosey face). :D

If I were you , I would see a dermatologist.

TheRockShow182 Newbie

I've found that I was allergic to milk (I think it's the whey in milk more than the lactose), corn and gluten. I first eliminated gluten but didn't start to feel completely better until I eliminated the other two things. The trouble for me is that corn is in almost everything and I have just gotten over being sick after consiming food I did not know contained ingredients i was allergic to. It all happened so slowly it was hard to tell I was having an allergic reaction but the build up of toxic food has destroyed all my hard work I've put towards repairing my body.

I think you may have other allergies so I would maybe try eliminating some other foods and see where that takes you.

The One Apprentice

I'll probably have to end up buying two different milks, my husband is weird about his food and he even looks at it weird when i buy lactose free milk, maybe if i make him trying without knowing he will eat it ;]

You're right Mississippi, it could be rosacea, never thought of it even though i've heard of it. The rash looks exactly like the butterfly rash from Lupus, but I have tested negative for lupus, I will definitely have to see a dermatologist and also try to get tested for other allergies or just do elimination because I can't keep being this way, anxiety doesn't help though.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,217
    • Most Online (within 30 mins)
      7,748

    Beanography
    Newest Member
    Beanography
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.