Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking Pretty Bad


The One

Recommended Posts

The One Apprentice

I want to know if anyone else has this problem, when I was still throwing up from gluten as I didn't know it was what was making me sick I would get face rashes, they wouldn't be itchy though (as DH tends to be), but they would stay for quite a few hours and then go away (though never went away completely) every time I would throw up it would get worse and after I stopped eating gluten every time I would get glutened the rash would come back, it would usually be around the nose as if i were blushed and on the cheek next to the ear (left) i also had really bad circles under my eyes and very puffy. You can always still see some of the rash on my face and the circles under the eyes are definitely not gone at all, sometimes I look at myself and I really don't recognize myself from what I looked like before (and before i lost about 20lbs) I still feel like I look pretty bad, could something else be causing me to look like this? maybe milk? has anyone had such a problem? or possibly it could be vitamin related?

Thanks,

AJ


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

If it was caused by dairy that would mean that you have an allergy not lactose intolerance. I have an allergy and don't get a rash but get one or two small to large sores on my face if I drink milk or cream or if my cumulative intake of dairy is too much. This particular symptom is more delayed and I do have other reactions too, but everyone's different.

If I don't get enough rest or skip a dose of vitamins my under-eye area can be quite pufy in the am an I get dark circles. Being a little underweight doesn't help either.

I hope you're feeling better soon. Take Care.

The One Apprentice

That's interesting, now that I remember, the first time I got the rash it was a spot [about the size of a penny] on my left cheeck after throwing up and what i had ate was gluten free instant mash potatoes [made with regular milk] and an egg. So it wasn't the gluten making me throw up in that one instance. So what would be the difference between dairy allergy and lactose intolerance? does that mean that lactose free milk could give me a reaction too?

I will definitely try to get a vitamin level testing next time i'm at the doctors, so far i've been unsuccessful in trying to get tested because they don't believe me I have celiac.

thanks for your input,

AJ

Ursa Major Collaborator

It looks like you may have a casein intolerance (not allergy), which is similar to a gluten intolerance and is mediated by the immune system as well. Meaning that you should try eliminating all dairy (including cheese, yogourt, butter, whey as well as milk).

If it was just a lactose intolerance you would be fine using lactaid pills or drinking lactaid milk. It appears that you are not fine using those.

Dairy is also well known to be causing rashes and eczema. My oldest granddaughter was covered in eczema from head to toe for the first 1 1/2 years of her life, until my daughter stopped giving her dairy. Within weeks she had beautiful, clear skin (still does at the age of 7 now). When my daughter made the family gluten-free, the dark circles under her eyes finally disappeared as well.

Soy could also be causing those same problems.

Susie, my youngest daughter, will also throw up from dairy (she is also gluten intolerant).

The One Apprentice

I will try that and see if it improves, does the rash have to be itchy? because mine doesn't itch it just gets more noticeable certain days more than others. I did switch to lactose free milk and it doesn't upset my stomach but the rash is still there so it makes sense that it could be casein.

Do you know of any substitutes to dairy products or do I have to completely eliminate them? i looove cheese and i always use milk and butter for mash potatoes and such, what else could i use?

thanks,

AJ

missy'smom Collaborator
That's interesting, now that I remember, the first time I got the rash it was a spot [about the size of a penny] on my left cheeck after throwing up and what i had ate was gluten free instant mash potatoes [made with regular milk] and an egg. So it wasn't the gluten making me throw up in that one instance. So what would be the difference between dairy allergy and lactose intolerance? does that mean that lactose free milk could give me a reaction too?

Open Original Shared Link

That penny size sore sounds like ones I've gotten. Here is a link that explains the difference between lactose intolerance and milk allergy.

I used to think that I could get away with some dairy but now that I've eliminated it completely my constant nasal stuffiness has gone and I notice a diference in my BM's if I eat even a little bit of butter. I used to use lactaid milk seemingly without problem(but not lactaid pills and cream), but my mother was told that I had a milk allergy as a baby and my symptoms fit one of the allergy profiles on that link. Hope it helps.

Ursa Major Collaborator

You could use coconut oil (cold pressed, non-hydrogenated, which is extremely healthy) and rice milk (not rice dream, it isn't gluten-free) in your mashed potatoes. I always do, and nobody knows the difference (only my tummy does ;) ).

No, the rash doesn't have to be itchy. DH is always itchy, so that just means it isn't that.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MyMississippi Enthusiast

You might have rosacea (don't think I spelled that right ) :)

I had red cheeks, chin, and nose that would come and go for years. And then the redness got better, but never went away completely. Then I noticed this red little patch on the end of my nose that came and went for years. Finally went to dermatologist because I thought it might be a skin cancer. Turned out to be rosacea. I was floored ! Even though I'm a nurse, it never occured to me that I had rosacea, (I guess I had just gotten used to my rosey face). :D

If I were you , I would see a dermatologist.

TheRockShow182 Newbie

I've found that I was allergic to milk (I think it's the whey in milk more than the lactose), corn and gluten. I first eliminated gluten but didn't start to feel completely better until I eliminated the other two things. The trouble for me is that corn is in almost everything and I have just gotten over being sick after consiming food I did not know contained ingredients i was allergic to. It all happened so slowly it was hard to tell I was having an allergic reaction but the build up of toxic food has destroyed all my hard work I've put towards repairing my body.

I think you may have other allergies so I would maybe try eliminating some other foods and see where that takes you.

The One Apprentice

I'll probably have to end up buying two different milks, my husband is weird about his food and he even looks at it weird when i buy lactose free milk, maybe if i make him trying without knowing he will eat it ;]

You're right Mississippi, it could be rosacea, never thought of it even though i've heard of it. The rash looks exactly like the butterfly rash from Lupus, but I have tested negative for lupus, I will definitely have to see a dermatologist and also try to get tested for other allergies or just do elimination because I can't keep being this way, anxiety doesn't help though.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      315

      Terrible Neurological Symptoms

    2. - Russ H replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    3. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      315

      Terrible Neurological Symptoms

    4. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      315

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,585
    • Most Online (within 30 mins)
      7,748

    canmich111
    Newest Member
    canmich111
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • HectorConvector
      These symptoms started initially in 2009/2010 and I've had normal blood sugar readings in all the blood tests - so never been diagnosed with diabetes or pre-diabetes. I did request another blood test recently (yesterday in fact) which I have had, and if the blood sugar looks high it'll come up in my results which I'll be able to see next week. I don't have any other symptoms relevant to diabetes except for the nerve pain, which had been in existence for many years with "normoglycaemia", but we'll see. In terms of my current diet: I get roughly 60% of my calories from fat and protein, and 40% from carbs (an estimation). I'm on currently about 2200 calories per day, which is too low for someone of my size, so I've been slowly losing weight that I want to put back on again. But I don't want to do that without using weights, which flare my pain up unfortunately. 
    • Russ H
      I used to react very badly to milk - much worse than to gluten and I was always worried about exposure. Any diary product would make me extremely ill and put me out of action for 5 days or so. I would have watery and bloody diarrhoea, bloating, malaise and be unable to eat. If I recall correctly, it was about a year after being diagnosed with coeliac disease and going on a strict gluten free diet that I accidentally consumed dairy products and didn't react. From then on, I have been fine with diary. 
    • Jane02
      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
    • knitty kitty
      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.