Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking Pretty Bad


The One

Recommended Posts

The One Apprentice

I want to know if anyone else has this problem, when I was still throwing up from gluten as I didn't know it was what was making me sick I would get face rashes, they wouldn't be itchy though (as DH tends to be), but they would stay for quite a few hours and then go away (though never went away completely) every time I would throw up it would get worse and after I stopped eating gluten every time I would get glutened the rash would come back, it would usually be around the nose as if i were blushed and on the cheek next to the ear (left) i also had really bad circles under my eyes and very puffy. You can always still see some of the rash on my face and the circles under the eyes are definitely not gone at all, sometimes I look at myself and I really don't recognize myself from what I looked like before (and before i lost about 20lbs) I still feel like I look pretty bad, could something else be causing me to look like this? maybe milk? has anyone had such a problem? or possibly it could be vitamin related?

Thanks,

AJ


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

If it was caused by dairy that would mean that you have an allergy not lactose intolerance. I have an allergy and don't get a rash but get one or two small to large sores on my face if I drink milk or cream or if my cumulative intake of dairy is too much. This particular symptom is more delayed and I do have other reactions too, but everyone's different.

If I don't get enough rest or skip a dose of vitamins my under-eye area can be quite pufy in the am an I get dark circles. Being a little underweight doesn't help either.

I hope you're feeling better soon. Take Care.

The One Apprentice

That's interesting, now that I remember, the first time I got the rash it was a spot [about the size of a penny] on my left cheeck after throwing up and what i had ate was gluten free instant mash potatoes [made with regular milk] and an egg. So it wasn't the gluten making me throw up in that one instance. So what would be the difference between dairy allergy and lactose intolerance? does that mean that lactose free milk could give me a reaction too?

I will definitely try to get a vitamin level testing next time i'm at the doctors, so far i've been unsuccessful in trying to get tested because they don't believe me I have celiac.

thanks for your input,

AJ

Ursa Major Collaborator

It looks like you may have a casein intolerance (not allergy), which is similar to a gluten intolerance and is mediated by the immune system as well. Meaning that you should try eliminating all dairy (including cheese, yogourt, butter, whey as well as milk).

If it was just a lactose intolerance you would be fine using lactaid pills or drinking lactaid milk. It appears that you are not fine using those.

Dairy is also well known to be causing rashes and eczema. My oldest granddaughter was covered in eczema from head to toe for the first 1 1/2 years of her life, until my daughter stopped giving her dairy. Within weeks she had beautiful, clear skin (still does at the age of 7 now). When my daughter made the family gluten-free, the dark circles under her eyes finally disappeared as well.

Soy could also be causing those same problems.

Susie, my youngest daughter, will also throw up from dairy (she is also gluten intolerant).

The One Apprentice

I will try that and see if it improves, does the rash have to be itchy? because mine doesn't itch it just gets more noticeable certain days more than others. I did switch to lactose free milk and it doesn't upset my stomach but the rash is still there so it makes sense that it could be casein.

Do you know of any substitutes to dairy products or do I have to completely eliminate them? i looove cheese and i always use milk and butter for mash potatoes and such, what else could i use?

thanks,

AJ

missy'smom Collaborator
That's interesting, now that I remember, the first time I got the rash it was a spot [about the size of a penny] on my left cheeck after throwing up and what i had ate was gluten free instant mash potatoes [made with regular milk] and an egg. So it wasn't the gluten making me throw up in that one instance. So what would be the difference between dairy allergy and lactose intolerance? does that mean that lactose free milk could give me a reaction too?

Open Original Shared Link

That penny size sore sounds like ones I've gotten. Here is a link that explains the difference between lactose intolerance and milk allergy.

I used to think that I could get away with some dairy but now that I've eliminated it completely my constant nasal stuffiness has gone and I notice a diference in my BM's if I eat even a little bit of butter. I used to use lactaid milk seemingly without problem(but not lactaid pills and cream), but my mother was told that I had a milk allergy as a baby and my symptoms fit one of the allergy profiles on that link. Hope it helps.

Ursa Major Collaborator

You could use coconut oil (cold pressed, non-hydrogenated, which is extremely healthy) and rice milk (not rice dream, it isn't gluten-free) in your mashed potatoes. I always do, and nobody knows the difference (only my tummy does ;) ).

No, the rash doesn't have to be itchy. DH is always itchy, so that just means it isn't that.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MyMississippi Enthusiast

You might have rosacea (don't think I spelled that right ) :)

I had red cheeks, chin, and nose that would come and go for years. And then the redness got better, but never went away completely. Then I noticed this red little patch on the end of my nose that came and went for years. Finally went to dermatologist because I thought it might be a skin cancer. Turned out to be rosacea. I was floored ! Even though I'm a nurse, it never occured to me that I had rosacea, (I guess I had just gotten used to my rosey face). :D

If I were you , I would see a dermatologist.

TheRockShow182 Newbie

I've found that I was allergic to milk (I think it's the whey in milk more than the lactose), corn and gluten. I first eliminated gluten but didn't start to feel completely better until I eliminated the other two things. The trouble for me is that corn is in almost everything and I have just gotten over being sick after consiming food I did not know contained ingredients i was allergic to. It all happened so slowly it was hard to tell I was having an allergic reaction but the build up of toxic food has destroyed all my hard work I've put towards repairing my body.

I think you may have other allergies so I would maybe try eliminating some other foods and see where that takes you.

The One Apprentice

I'll probably have to end up buying two different milks, my husband is weird about his food and he even looks at it weird when i buy lactose free milk, maybe if i make him trying without knowing he will eat it ;]

You're right Mississippi, it could be rosacea, never thought of it even though i've heard of it. The rash looks exactly like the butterfly rash from Lupus, but I have tested negative for lupus, I will definitely have to see a dermatologist and also try to get tested for other allergies or just do elimination because I can't keep being this way, anxiety doesn't help though.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      10

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - Rogol72 replied to suek54's topic in Dermatitis Herpetiformis
      10

      Awaiting dermatitis herpetiformis confirmation following biopsy

    3. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      10

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - trents replied to dani nero's topic in Dermatitis Herpetiformis
      191

      DH Photo Bank

    5. - KeriRae replied to dani nero's topic in Dermatitis Herpetiformis
      191

      DH Photo Bank

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,719
    • Most Online (within 30 mins)
      7,748

    Choulj
    Newest Member
    Choulj
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • suek54
      Many thanks for your reply Rogol72.  People have been very kind and made all sorts of suggestions. I am bearing them all in mind but at this early stage just desperately need to be itch free.  I have literally had this horrid rash from scalp to feet. My most recent outbreak was all across my face as well. At one stage it was so widespread I was having very bad thoughts. Dapsone has changed that.  I think my situation is worsened by Addison's Disease. I am totally steroid dependent. Its a constant trade-off between increasing steroids to cope with dermatitis herpetiformis vs increased risk of high steroids. I also have hypothyroidism. In fact dermatitis herpetiformis is my fifth autoimmune condition.  Hey ho, I'm muddling through. Its nice to hear that others with the condition have found various ways to get back on track.  I don't want to be on Dapsone a day longer than necessary but it's far better than the awful state I was in.  My dermatologist is keeping a close eye on my bloods. So far, so good.  Thank you again for your advice. Very much appreciated.  Sue    
    • Rogol72
      Hey @suek54, I also have Dermatitis Herpetiformis. I used to be on Dapsone but have managed to wean myself off it after many attempts. It's quiet a toxic drug, as it affects the bone marrow and red blood cells. It also artificially reduces Hemoglobin A1C. Mine was at 21 at one stage, I think normal is around 37. With dermatitis herpetiformis, you need to be really strict. It wasn't until I focused on getting the trace minerals the body needs that I managed to get off it. I believe getting the thyroid numbers in the optimal range also helped with Iodine and Selenium. Iodine doesn't bother me for some reason, but flares others as knitty kitty said. I take Viridian Trace Mineral complex and it's made a huge difference, among other vitamins and minerals. Now I can tolerate gluten free oats which I could never eat before. Though I only have them very occasionally in the form of gluten free soda bread . One thing I miss is my Mums Irish soda bread. Hope this helps.
    • suek54
      Hi all Biopsy confirmed dermatitis herpetiformis. Strict gluten free diet going OK, I cook nearly everything from scratch anyway and am finding gluten free  adaptations for most recipes.  I seem to be tolerating 50mg Dapsone well, regular blood tests OK so far.  Next derma appt in 8 weeks. I have some continuing itching and rash outbreaks, though nowhere near as severe as they were, so I am hoping for an increased dose, as the effect only seems to last 6-7 hours.  I think I may be burning through it more quickly than some due to other medication. Also I cannot mount a response to inflammation due to Addison's Disease.  I hope others are finding their way though the minefield that is dermatitis herpetiformis. Hang on in there! Sue (in UK)
    • trents
      @KeriRae, have you been diagnosed with celiac disease or with dermatitis herpetiformis?
    • KeriRae
      I've had this same rash on my back on and off for the last year or two.  I was taking LDN to help with other issues but quit awhile back. I'm wondering if LDN would help with this rash. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.