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- Bernade replied to JuggaloDad's topic in Parents, Friends and Loved Ones of Celiacs4My 16yr daughter was recently diagnosed
Honestly My daughter has been gluten free for more then 8 years I never understood it,she has a thyroid issue and gluten knocks her down awful 😞 so being a parent I’ve understood what it means. Now I have celiac disease and I tell you it has been very challenging but I have felt so so much more comfortable eating gluten free and understanding all the effe... -
- knitty kitty replied to JuggaloDad's topic in Parents, Friends and Loved Ones of Celiacs4My 16yr daughter was recently diagnosed
Welcome to the forum, @JuggaloDad, Kudos to you for being such a concerned parent! Gluten can attach to opioid receptors throughout the human body, including the brain. Gluten in the brain can be attacked by tTg 6 antibodies. This inflammation can cause ataxia. TTg 6 antibodies are also found in diseases involving ataxia such as Alzheimer's and... -
- JuggaloDad replied to JuggaloDad's topic in Parents, Friends and Loved Ones of Celiacs4My 16yr daughter was recently diagnosed
Thank you Scott, it means a lot especially with the speed you responded.. In life I've learned that you got to be openminded and open to understand and adjust .Thank you again I hope she will come around to the adjustment as it's not going away and it's for her own comfort and health in the long run....Thanks -
- Scott Adams replied to JuggaloDad's topic in Parents, Friends and Loved Ones of Celiacs4My 16yr daughter was recently diagnosed
I’m so sorry to hear about the challenges you and your daughter are facing. A celiac diagnosis, especially during adolescence, can be overwhelming, and it’s understandable that she’s struggling with the lifestyle changes it requires. Coupled with the complexities of self-medication and signs of an eating disorder, this is undoubtedly a difficult time for y... -
- JuggaloDad posted a topic in Parents, Friends and Loved Ones of Celiacs4
My 16yr daughter was recently diagnosed
It is only the very start of this journey but it's actually been one of the hardest things we have had to deal with as parents.she started complaining about her stomach and after months and test after test the diagnosis came back as Celiac disease but while this was happening she has been self medicating with THC and also started making showing signs of a...
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Honestly My daughter has been gluten free for more then 8 years I never understood it,she has a thyroid issue and gluten knocks her down awful 😞 so being a parent I’ve understood what it means. Now I have celiac disease and I tell you it has been very challenging but I have felt so so much more comfortable eating gluten free and understanding all the effects it can have.
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By knitty kitty · Posted
Welcome to the forum, @JuggaloDad, Kudos to you for being such a concerned parent! Gluten can attach to opioid receptors throughout the human body, including the brain. Gluten in the brain can be attacked by tTg 6 antibodies. This inflammation can cause ataxia. TTg 6 antibodies are also found in diseases involving ataxia such as Alzheimer's and Parkinson's. Serum Antibody tests for Celiac Disease check for tTg 2 antibodies. TTg 3 antibodies are found in Dermatitis Herpetiformis. THC can dislodge gluten from the opioid receptors in the brain and body, taking gluten's place on the opioid receptor. THC is then easier to remove from the opioid receptors than gluten. THC is being used medically in opioid addiction cessation. THC has other benefits such as calming mast cells so they don't release histamine. Histamine lease from mast cells causes inflammation and is part of the autoimmune reaction in Celiac. Thiamine Vitamin B 1 is instrumental in brain and nerve health. Opioid and THC use can deplete thiamine stores. Malabsorption due to Celiac Disease can prevent those stores being replenished. Early Thiamine deficiency disorder symptoms includes eating disorders such anorexia and bulimia. Ataxia is improved with Thiamine. Anxiety and depression are also improved with Thiamine. Thiamine helps stop mast cells from degranulating and releasing histamine. Gastroparesis and Gastrointestinal BeriBeri are improved with Thiamine. Thiamine with Pyridoxine and Cobalamine have analgesic properties. Thiamine in the form Benfotiamine promotes gastrointestinal health. The form of Thiamine called TTFD (tetrahydrofurfuryl disulfide) helps immensely with the ataxia and neurological symptoms. Doctors undervalue the benefits of supplementation with essential nutrients in Celiac Disease. Correction of nutritional deficiencies quickly in Celiac is important to health and recovery. Most blood tests for vitamin deficiencies are not accurate. None the less, discuss supplementing with doctors and nutritionists. Do look into a low histamine Paleo Diet like the Autoimmune Protocol Diet developed by a Celiac, Dr. Sarah Ballentyne, shown to promote intestinal healing. This is the diet that really improved my health along with supplementing the essential vitamins and minerals. After struggling with Gastrointestinal BeriBeri, Ataxia and eating disorders myself, TTFD has made a world of difference. My blog has more information. I'm happy to share what I've learned on my journey. -
By JuggaloDad · Posted
Thank you Scott, it means a lot especially with the speed you responded.. In life I've learned that you got to be openminded and open to understand and adjust .Thank you again I hope she will come around to the adjustment as it's not going away and it's for her own comfort and health in the long run....Thanks -
By Scott Adams · Posted
I’m so sorry to hear about the challenges you and your daughter are facing. A celiac diagnosis, especially during adolescence, can be overwhelming, and it’s understandable that she’s struggling with the lifestyle changes it requires. Coupled with the complexities of self-medication and signs of an eating disorder, this is undoubtedly a difficult time for your family. It’s great that you’re already engaged in therapies—this is a crucial step. For celiac disease, connecting with support groups (like those from the Celiac Disease Foundation) and working with a dietitian specializing in gluten-free diets can help ease the transition. For the emotional and mental health aspects, family therapy or support groups for parents of teens with similar struggles might provide additional tools and comfort. You’re doing the right thing by seeking help and information—stay patient and compassionate with both your daughter and yourself as you navigate this journey together. -
By JuggaloDad · Posted
It is only the very start of this journey but it's actually been one of the hardest things we have had to deal with as parents.she started complaining about her stomach and after months and test after test the diagnosis came back as Celiac disease but while this was happening she has been self medicating with THC and also started making showing signs of a eating disorder, we are in therapies of all sorts in relation to these issues and well I'm just reaching out to find any and all information tools and knowledge as at 16 my daughter is fighting the change but it will be with her for a lifetime so I just trying to do all I can do ... If anyone can help with anything like anything mentioned please reach out to me.....thank you all for existing
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