Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Blood Test Came Back Normal

Sootie Patches

Recommended Posts

Sootie Patches Rookie
Sootie Patches
Posted

I have a question about being wheat intolerant. I have had a miserable time the last 6 months not feeling well. I have been in and out of the ER three times thinking something was wrong with my heart. My heart would race and I would get really naustious. I have done every heart test under the sun and the end result has come out that I am extremely healthy and I am probably suffering from anxiety. That has not sat well with me. I am not going through anything at this point in my life. I meditate and do yoga. I have recently been doing acupuncture to try and get rid of the nausea. 3 different people had recommended to me that I try and cut wheat out of my diet so reluctantly I finally did. I have had the best week not eating wheat. I have not had one bout of nausea. I went in and had a blood test to screen for celiac and I just got the results back and they said that my blood looked great and I am not showing any signs of celiac disease. They also recommended seeing a GI doctor and getting a biopsy done for a more accurate result. Are the symptoms that I mentioned above typical for wheat intolerant people? I have been nausea non stop until I have cut wheat out. Even though the blood test isn't showing any signs of me having a wheat problem could I still? I have been going nuts for the past 6 months trying to play doctor for myself. I really thought wheat was the problem and now I feel set back. Any comments or suggestions would be appreciated. Thank you, Jen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


woolwhippet Explorer
woolwhippet
Posted

Hi Jen, you can still be reacting even with a neg blood test. People here will attest to that. Listen to your body--you are probably right!

Sootie Patches Rookie
Sootie Patches
Posted
  • Author
Hi Jen, you can still be reacting even with a neg blood test. People here will attest to that. Listen to your body--you are probably right!

Thank you for your reassurance and your reply.

Lisa Mentor
Lisa
Posted

Welcome to the forum!

You most certainly could have a wheat allergy or a sensitivity to wheat. Some researchers think that a sensitivity may be a precursor to Celiac Disease. Celiac can have over 200 symtoms. The Celiac Blood Panel is not aways considered 100% accurate. The blood test can rule Celiac in, if possitive; but, it can't rule it out if the tests are negative.

The bottom line here is that you feel better off of wheat products. It's sort of like stopping beating your head against a wall - it feels so good when you stop. :rolleyes:

Your best for a diagnosis either for a wheat allergy or sensitivity is a positive dietary response. And you already know that answer.

This site is a great source of dietary information. Take a walk around

Joe Hoffman Rookie
Joe Hoffman
Posted

My first set of blood work came back negative but I had already started on the diet. My biopsy came back negative and I stopped the diet. My body went into shock after just two days off the diet. Then my second set of blood work came back positive.

I'm new to this Celiac thing,,,,, but my opinion is the diet is by far the best test for Celiac Disease.

I've only been back on the diet for three weeks and I can already see minor improvements.

I am really upset that with all of our Nation's resources, Celiac Disease is still in the dark ages.

Joe

ravenwoodglass Mentor
ravenwoodglass
Posted

Don't trust those blood tests, trust your body. Trusting the blood tests almost killed me. Doctors wouldn't tell me what 'sprue' was, just that I was lucky I didn't have it cause I wouldn't be 'able to eat anything' (a quote from my rheumy). No one bothered to tell me what sprue was or suggest the diet. I would literally be almost dead before an allergist I was bullied into seeing by my PT finally diagnosed me. I was seeing the PT to improve my strength and get in better condition so they could do a GI surgery on me. I never had to walk back through the surgeons door.

Try the diet strictly and make sure you are eliminating gluten and not just wheat. Gluten is also in barley, rye and in almost all oatmeal and hides in a lot of manufactured food. Read all you can here and ask any question you may need to.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,962
    • Most Online (within 30 mins)
      7,748
    Tiannuo
    Newest Member
    Tiannuo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Pasballard
      Increasing symptoms after going gluten free

      By Pasballard · Posted

      I have Celiacs and want you to be aware of the amount of weight you can potentially put on if you rely on gluten free snacks, bread etc.,they  are high in carbs.  I put on 25 lbs in a short amount of time.  Whole Foods are the best way to go but I struggle with this.  The cost of gluten free is also a problem.  I love black licorice but most have gluten.  My favorite chili seasoning as well.  The list is endless.  I take  Advil liquid gels and had no idea until I read this.  I hope you do better than I have done.  I feel I am destined to suffer daily no matter what.  My aunt didn’t take care of herself and died from complications.  I hope you can get on a good routine.
    • growlinhard1
      Colonoscopy with large area of inflammation

      By growlinhard1 · Posted

      Thank you, I appreciate the response. I'm going to begin the gluten free diet and wait for the biopsy results. I feel fairly certain that it's the right thing for my well being. I will keep you posted.
    • Scott Adams
      Vaccines

      By Scott Adams · Posted

      The flu vaccine is indeed not 100% effective every year, as its effectiveness varies depending on how well the vaccine strains match the circulating flu viruses. However, even in years when the match is less than perfect, the flu vaccine still provides significant benefits. Studies consistently show that vaccinated individuals who contract the flu often experience milder symptoms, a lower risk of complications, and a reduced likelihood of hospitalization or death compared to those who are unvaccinated. For high-risk groups, such as the elderly, young children, and individuals with chronic health conditions, the flu vaccine remains a critical tool for reducing severe outcomes. Regarding the mention of risks associated with vaccines, it’s important to note that the flu vaccine is generally very safe for most people. Serious side effects are extremely rare, and the benefits of vaccination far outweigh the risks for the vast majority of individuals. If someone has specific concerns about vaccine safety due to medical conditions or allergies, they should consult their healthcare provider to discuss their options. As for alternative measures like a D Lamp (ultraviolet light disinfection), while these can be useful for reducing pathogens in the environment, they are not a substitute for vaccination. The flu virus spreads primarily through respiratory droplets, and personal protection measures like hand hygiene, masking, and improving indoor ventilation can complement vaccination but cannot replace its targeted immune protection.
    • trents
      Colonoscopy with large area of inflammation

      By trents · Posted

      Because you have already had the "gold standard" test done, and because you have some experiential evidence that removing gluten from your diet causes you to feel better, it would make sense to begin the gluten-free diet as you wait for biopsy results.
    • growlinhard1
      Colonoscopy with large area of inflammation

      By growlinhard1 · Posted

      I wasn't given any blood tests. I think I should try the gluten free diet because when I cut it out a few weeks ago for just a couple of days, I know I started feeling better. The difference was actually pretty dramatic. When I learned gluten free eating may cause false negative biopsy results, I went back to gluten full force and feel like you know what × 10. Do you feel it would be okay since the gold standard for diagnosis is behind me or should I wait for biopsy results? In your opinion, of course. I know you can't offer me medical advice.
×
×
  • Create New...