Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Setback With Being Gluten Free

Sootie Patches

Recommended Posts

Sootie Patches Rookie
Sootie Patches
Posted

I have had a major setback this week. After being gluten free and feeling great for 3 weeks I have had two major setbacks. Durning the holidays which happen to be during my period I started to feel bad again. It started out as a few stomach aches and then finally hightened with an evening of extreme nausea and the shakes. My stomach hasn't felt right since then. It hurts so bad and I definitely don't have an appetite. I am trying to force myself to eat but it is all so terrible. My bloodtest for ceilac spure have come back normal. I have an appt. with a GI doctor and a procedure coming up on the 11th. I am really discouraged that I thought all my problems were caused from wheat and gluten and now this setback is making me think it is something else that is causing me to have these symptoms, beings I have been gluten free for the past 3 weeks and still having these symptoms. I am tired of self diagnosing myself and just want to know what is wrong with me. Any comments and advice would be appreciated. Thanks for listening. I am miserable.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kenlove Rising Star
kenlove
Posted

Dont give up! I had 3 normal blood tests here in Hawaii and finally a scope before they could confirm celiac which was backed up with a different type of blood test that they didnt know about here but my old doctor from Chicago told me

about. There are so many small things that can cause the problems, especially cross contamination. After 2 years of being gluten-free I got glutened Christmas night at a friends just breathing the air after they were breading things for tempura. Sometimes the things we least expect to contain gluten do so -- like some of the milk here.

I'm sure some of the others on this forum can give you other ideas for tests to ask the doctor about. With luck you wont have to wait as long as I which was 6 months and 3 hospital stays before they figured it out. Some of the folks on the forum went years without knowing. Your on the right track by posting messages and learning about it.

good luck

ken

I have had a major setback this week. After being gluten free and feeling great for 3 weeks I have had two major setbacks. Durning the holidays which happen to be during my period I started to feel bad again. It started out as a few stomach aches and then finally hightened with an evening of extreme nausea and the shakes. My stomach hasn't felt right since then. It hurts so bad and I definitely don't have an appetite. I am trying to force myself to eat but it is all so terrible. My bloodtest for ceilac spure have come back normal. I have an appt. with a GI doctor and a procedure coming up on the 11th. I am really discouraged that I thought all my problems were caused from wheat and gluten and now this setback is making me think it is something else that is causing me to have these symptoms, beings I have been gluten free for the past 3 weeks and still having these symptoms. I am tired of self diagnosing myself and just want to know what is wrong with me. Any comments and advice would be appreciated. Thanks for listening. I am miserable.
nora-n Rookie
nora-n
Posted

I had something like that recently and it was just a sensitive stomach and two weeks on ranitidin did the trick. It is probably an over-the counter- medicine. The thing that triggered it was a flu or cold (=stress to the body---increased cortisol in the body= effects on the stomach(they think leucotriens or other substances in the body due to stress and high cortisol are to blame))

nora

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,400
    • Most Online (within 30 mins)
      7,748
    Siar
    Newest Member
    Siar
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Waiting on Blood test results…

      By Scott Adams · Posted

      Yes, this sounds right. Let us know when you find out your results.
    • ChrisSeth
      Waiting on Blood test results…

      By ChrisSeth · Posted

      Hi thanks for your response! This is the only other info that’s on my test results for the IgA. The initial testing performed in the Celiac Disease Reflex Panel is the total IgA. If the total IgA is <10 mg/dL, the reflex tests that will be ordered are the Tissue Transglutaminase IgG Antibody and the Deamidated Gliadin Peptide IgG Antibody. If the total IgA is >=10 mg/dL, the reflex test that will be ordered is the Tissue Transglutaminase IgA Antibody. Does that give some insight?  following up with my Dr early next week… thanks again.  And I didn’t eat more gluten than usual during the last 6-8 weeks on purpose. Just a normal diet prior to testing. I had gluten everyday for 6-8 weeks though I’m sure.
    • Scott Adams
      Celiac, Fructose and Lactose

      By Scott Adams · Posted

      Have you tried sheep's milk and goat's milk cheeses? After my diagnosis I could not tolerate cow's milk for ~2 years until my villi healed, but for some reason I did not have issues with sheep milk or goat milk cheeses.  I also had temporary issues with chicken eggs, but could eat duck eggs.
    • Scott Adams
      Waiting on Blood test results…

      By Scott Adams · Posted

      This is not a test for celiac disease, but your total IgA levels. This test is usually done with other celiac disease blood tests to make sure the results are accurate. Did they do a tTg-IgA test as well? Were you eating lots of gluten in the 6-8 weeks leading up to your blood tests? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • ChrisSeth
      Waiting on Blood test results…

      By ChrisSeth · Posted

      Test results came back for everything that was tested now. Cholesterol is off the charts high. Not sure if that’s related to celiac, I have no idea how it could be so high. Also tested positive for H pylori  infection… is there a link to celiac and H pylori? Or am I just experiencing symptoms of the H pylori infection? 
×
×
  • Create New...