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- Itsabit replied to Itsabit's topic in Dermatitis Herpetiformis17SkinSafe
Hi. Yes. I’m awaiting my Biopsy results. I had B12 and other labs drawn on Mon, including Thyroid levels, as I am on Levothyroxine for radiation-induced hypothyroidism. Those levels should indicate any iodine issues. We had discussed the urine iodine, but he went with the thyroid instead. We’ll see. I never had any of those Pellagra skin changes, or... -
- Aretaeus Cappadocia commented on Scott Adams's article in Cancer, Lymphoma and Celiac Disease1New Study Reveals High Risk of Digestive Cancers in Patients with Celiac Disease
I read your summary here, as well as the article that you linked. I don't see any reference to the diet of the exposed or control groups. Did the subjects adhere to gluten-free diet after their celiac disease diagnosis? Were there subgroups that adhered and ones that didn't? For this study, did diet impact the odds ratio for the various conditions that were... -
- James47 replied to Cathijean90's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease5I’m terrified it’s too late for me😭
Hiya..I was 48 when diagnosed two years ago and I was in right bad way but strict gluten-free diet you will recover I promise x -
- James47 posted a topic in Coping with Celiac Disease0
Long term recovery
Hi everyone I'm James, I hope you are all feeling well??. Accidentally had gluten at weekend and I've had severe diarrhea since sat night. My question is ,the longer someone like myself has been following a strict gluten-free diet will the exposure to gluten be lot more extreme as body now has been free of it well over a year ? Any information...
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Hi. Yes. I’m awaiting my Biopsy results. I had B12 and other labs drawn on Mon, including Thyroid levels, as I am on Levothyroxine for radiation-induced hypothyroidism. Those levels should indicate any iodine issues. We had discussed the urine iodine, but he went with the thyroid instead. We’ll see. I never had any of those Pellagra skin changes, or Casal’s necklace. Just itchiness in the supraclavicular hollows on both sides of my neck, and the anterior aspect as my neck radiation site. The hollows had no changes until I scratched them, then I got the rash on those areas like the ones I have now scattered in different areas, usually on both sides with the exception of my anterior thighs. My right is affected, my left isn’t. I am 70 and have all my teeth as well - amazingly after having had max dose radiation in 2002. 😂 Unfortunately, because of long term changes in my oral mucosa because of it I can’t use mouthwashes - even non-alcohol ones, as they all burn my mouth like fire. Toothpastes burn as well, but not nearly as bad. I have an electric toothbrush but it is getting more difficult to use due to increasing trismus. Some days I cannot open my mouth wide enough to get the electric brush between my back teeth, so on those days I use a regular one. Gotta do what you gotta do. Thank you for your input. Any insight I can get into this is appreciated. So, for now it’s the waiting game for test results, then we can form a treatment plan going forward. -
Hiya..I was 48 when diagnosed two years ago and I was in right bad way but strict gluten-free diet you will recover I promise x
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Hi everyone I'm James, I hope you are all feeling well??. Accidentally had gluten at weekend and I've had severe diarrhea since sat night. My question is ,the longer someone like myself has been following a strict gluten-free diet will the exposure to gluten be lot more extreme as body now has been free of it well over a year ? Any information be much appreciated and any tips on how to stop the constant diarrhoea I have currently also be appreciated guys x
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By Wheatwacked · Posted
I use Listerine. Rinse first to soften the tarter, then brush with Oral B electric toothbrush super sonic. The $15 ones at the supermarket. At 73 I still have all my teeth. While a blood test can measure iodine levels, it's not the most accurate method for assessing iodine status, and urinary iodine excretion is considered a better indicator. Have any of your dermatologists ever done a biopsy for dermatitis herpetiformis? I may have missed it. Note the similarity of Casal's necklace to one of your symptoms. Pellagra rash is a characteristic skin manifestation of niacin (vitamin B3) deficiency. It typically presents as: Erythema: Red, sunburned-like areas of skin, often on the face, neck, arms, and legs. Scaliness: Dry, flaky skin that may become thickened and crusty. Hyperpigmentation: Darkened patches of skin, particularly in sun-exposed areas. Casal's necklace: A dark, pigmented band around the neck. I am currently taking these} Vitamin D 10,000 IU (250 mcg) DHEA 100 mg 500 mcg Iodine 10 drops of Liquid Iodine B1 Thiamin 250 mg B2 Riboflavin 100 mg B3 Nicotinic Acid 500 mg 4 times a day for hyperlipidemia. B5 Pantothenice Acid 500 mg Vitamin C 500 mg Selenium 200 mcg Several times a week
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