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- knitty kitty replied to Colleen H's topic in Coping with Celiac Disease6Gluten related ??
@Colleen H, I have had similar reactions and symptoms like yours. I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne. Her book, The Paleo Approach, is very helpful in understanding what's going on in the body. Not only do you have antibodies attacking the body... -
- Kara S replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications9Finding gluten free ingredients
Hello, my family is very new to Celiac Disease so forgive me for asking what Warrior Bread is and is there a recipe for it online? -
- ShariW commented on Scott Adams's article in Autumn 2025 Issue25Gluten-Free Food Ingredients That Can Trigger Celiac Disease and IBS-like Symptoms
I have no problem with unsweetened applesauce. In fact, it's one of my go-to foods when gut issues arise and I'm trying to recover but still need to eat.- additives
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- jessicafreya posted a topic in Gluten-Free Recipes & Cooking Tips0Tamale ingredients
I'd like to make tamales and wonder if anyone has recs for corn husks free of cross contact for a sensitive celiac little boy. Thks! -
- knitty kitty replied to Jmartes71's topic in Coping with Celiac Disease6
My only proof
Just wanted to add that checking B12 and Vitamin D only is not going to give an accurate picture of vitamin deficiencies. B12 Cobalamine needs the seven other B vitamins to work properly. You can have vitamin deficiency symptoms before the B12 blood level changes to show deficiency. You can have "normal" B12, but have deficiencies in other B vitamins...
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By knitty kitty · Posted
@Colleen H, I have had similar reactions and symptoms like yours. I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne. Her book, The Paleo Approach, is very helpful in understanding what's going on in the body. Not only do you have antibodies attacking the body, there are mast cells spreading histamine which causes inflammation. Foods also contain histamine or act as histamine releasers. Our bodies have difficulty clearing histamine if there's too much. Following the low histamine AIP diet allows your body time to clear the excess histamine we're making as part of the autoimmune response, without adding in extra histamine from foods. High histamine foods include eggs, processed foods and some citrus fruits. The AIP diet allows meat and vegetables. No processed meats like sausage, luncheon meats, ham, chicken nuggets, etc. No night shades (potatoes, tomatoes, peppers, eggplant). No dairy. No grains. No rice. No eggs. No gluten-free processed foods like gluten free breads and cookies. No nuts. No expensive processed gluten-free foods. Meat and vegetables. Some fruit. Some fruit, like applesauce, contains high levels of fructose which can cause digestive upsets. Fructose gets fermented by yeasts in the gastrointestinal tract. This fermentation can cause gas, bloating and abdominal pain. The AIP diet changes your microbiome. Change what you eat and that changes which bacteria live in your gut. By cutting out carbohydrates from grains and starchy veggies like potatoes, SIBO bacteria get starved out. Fermenting yeasts get starved out, too. Healthy bacteria repopulate the gut. Thiamine Vitamin B 1 helps regulate gut bacteria. Low thiamine can lead to SIBO and yeast infestation. Mast cells release histamine more easily when they are low in Thiamine. Anxiety, depression, and irritability are early symptoms of thiamine insufficiency. A form of thiamine called Benfotiamine has been shown to promote intestinal healing. Thiamine works with the seven other B vitamins. They all need each other to function properly. Other vitamins and minerals are needed, too. Vitamin D helps calm and regulate the immune system. Thiamine is needed to turn Vitamin D into an active form. Thiamine needs magnesium to make life sustaining enzymes. Taking a B Complex and additional Benfotiamine is beneficial. The B vitamins are water soluble, easily lost if we're not absorbing nutrients properly as with Celiac Disease. Since blood tests for B vitamins are notoriously inaccurate, taking a B Complex, Benfotiamine, and magnesium Threonate, and looking for health improvements is a better way to see if you're insufficient. I do hope you will give the low histamine AIP diet a try. It really works. -
Hello, my family is very new to Celiac Disease so forgive me for asking what Warrior Bread is and is there a recipe for it online?
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By jessicafreya · Posted
I'd like to make tamales and wonder if anyone has recs for corn husks free of cross contact for a sensitive celiac little boy. Thks! -
By knitty kitty · Posted
Just wanted to add that checking B12 and Vitamin D only is not going to give an accurate picture of vitamin deficiencies. B12 Cobalamine needs the seven other B vitamins to work properly. You can have vitamin deficiency symptoms before the B12 blood level changes to show deficiency. You can have "normal" B12, but have deficiencies in other B vitamins like Thiamine and Niacin, for which there are no accurate tests. Take a B Complex supplement with all the B vitamins. Take additional Thiamine B 1 in the form Benfotiamine which has been shown to promote intestinal healing. Thiamine Mononitrate found in most vitamin supplements is not easy for the body to utilize. What makes thiamine mononitrate not break down on the shelf also makes it hard for the body to absorb and utilize. Thiamine and Niacin B 3 deficiency symptoms include anxiety, depression and irritability. The brain uses more Thiamine than other organs. Take the B Complex and Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and look for health improvements in the following weeks. -
By knitty kitty · Posted
Hello, @rei.b, Ehlers Danlos syndrome and Celiac Disease can occur together in genetically predisposed individuals. Losing ones gallbladder is common with celiac disease. I'm glad Naltrexone is helping with your pain. Naltrexone is known to suppress tTg IgA and tTg IgG production, so it's not surprising that only your DGP IgG and DGP IgA are high. Have you tried the Autoimmune Protocol diet designed by Dr. Sarah Ballantyne, a Celiac herself? The AIP diet helps lower inflammation and promotes intestinal healing. The AIP diet is a Paleo diet that eliminates foods that can cause intestinal inflammation until you heal on the inside, then more foods can be added back in. The low histamine AIP diet will help reduce inflammation further. Histamine is released as part of the immune response in celiac disease. Foods also contain various amounts of histamine or provoke histamine release. Lowering the amount of histamine from foods helps. The body, with help from B vitamins, can clear histamine, but if more histamine is consumed than can be cleared, you can stay in an inflammatory state for a long time. Cutting out high histamine foods is beneficial. Omit night shades which contain alkaloids that add to leaky gut syndrome found with celiac disease. Night shades include tomatoes, peppers including bell peppers, potatoes and eggplants. Processed foods like sausages and gluten-free processed products are high in histamines. All Grains are removed from the diet because they are inflammatory and provoke histamine release. Blood tests for deficiencies in B vitamins are notoriously inaccurate. You can have vitamin deficiency symptoms before blood levels show a deficiency. Blood levels do not accurately measure the quantity of B vitamins stored inside the cells where they are utilized. The brain will order stored vitamins to be released from organs into the blood stream to keep the brain and heart supplied while deficiency occurs inside organs, like the gallbladder. Gall bladder dysfunction is caused by a deficiency in Thiamine Vitamin B 1 and other B vitamins. The eight essential B vitamins are water soluble and easily lost with diarrhea and constipation, and the malabsorption and inflammation that occurs with celiac disease. Because they are water soluble, the body can easily excrete any excess B vitamins in urine. The best way to see if you are deficient is to take a B Complex and Thiamine in the form Benfotiamine and look for health improvements in the following weeks. Most B Complex supplements contain Thiamine Mononitrate which is not bioavailable. The body has a difficult time utilizing thiamine mononitrate because it doesn't break down easily. Benfotiamine has been shown to promote intestinal healing. Remember your intestines are in a damaged, permeable state. Treat them tenderly, like you would a baby until they heal. You wouldn't feed a baby spicy bell peppers and hard to digest corn and nuts. Change your diet so your intestines can heal. I use a combination of B12 Cobalamine, B 6 Pyridoxine, and B1 Benfotiamine for pain. These three B vitamins have analgesic properties. They relieve pain better than other otc pain relievers.
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