Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Cant Believe Im Saying This But....

Glutenfreefamily

Recommended Posts

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted

Diarrhea from cross contamination is much better than constipation for me :ph34r::blink:

I was like this for about 10 hours this weekend :blink: :blink: Of course I had no red bull either and was too sick to get some from the store. I was glutened in the grocery store, Im assuming its because of the bakery as I walked past there and there were ladies baking within a few feet of me. I could not think at all, I felt like a drug addict because I was so out of it.

I had the worst case of brain fog I have ever had, I cant believe it lasted for 10 hours and of course I was glutened on a busy day in the morning so I was horribly unproductive that day. This is also the first time I had been constipated from gluten as its always diarrhea.

I wonder if it lasted so long because my body didn't force its evacuation, I hope to goodness I never get another glutening like that again. Anybody else swing from one to the other and notice your symptoms lasted longer than normal with constipation?

Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I was dealing with something similar last spring after my bout with diverticulitis. In my case it was not gluten it turned out to be soy. Soy gave me very similar mental effects but clogs my system for days. My BMs will look like train wrecks, little pieces distinct that ball up at the end of the line and are very difficult to pass. The only thing I found that helps that is not a med of some sort is sweet potatoes. I assume it is the added fiber that helps but it works for me within 24 hours without any cramps or other unpleasent side effects.

You may want to look at soy reactions as a possibility.

darlindeb25 Collaborator
darlindeb25
Posted

Me too! When I get constipated, it is either soy or corn causing the problem, never gluten. I honestly do not think walking past the bakery in your grocery store will gluten you, I can't be sure of course, yet I do doubt it. I will say though, after over 7 yrs of being gluten free, the smell of fresh baked bread in a bakery no longer makes me want it, now it kind of makes me feel like running the other way!!!! I guess it's like a turning point in my celiac life, up until now, I still wanted bread when I smelled it, but lately, the scent has been making me turn away.

It's not unusual for a celiac to be intolerant of soy too. I was gluten free for 3 yrs before my soy intolerance reared it's ugly head and it was another 6 months or so before corn joined the group. They say the gluten intolerance hides the other intolerance's for a while. Live and learn huh?

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted
  • Author

Thanks :)

Im positive it wasnt soy since I avoid it usually and have lately been avoiding it and eating a whole foods vegan diet. I cant imagine how I would get glutened otherwise since we didnt attend parties or have any gluten products in the home but ah well at least its done now. Im sure its gluten since I had my standard seizure which is my classic symptom since I was little.

I have been gluten free for over 2 years and now gluten totally turns me off, I do not want to feel what I use to feel before changing our diets.

hathor Contributor
hathor
Posted

I have heard several people notice that they felt glutened and the only thing they can think of is being in places where there may be flour in the air. So it is not impossible.

Is it possible that some product you bought was cross-contaminated? Those "made on the same equipment" type warnings are strictly voluntary. Anything new you've tried, either a food or a personal care product? You carefully read labels on everything?

Yes, it is frustrating when you have a reaction and any possibility you come up with seems so unlikely. But I guess unlikely things do happen sometimes.

Leslie-FL Rookie
Leslie-FL
Posted

I have wondered, myself, about flour in the air when someone is baking. So far I have had no reaction when going to places where baking is done, but I don't know that I've ever been somewhere WHILE they are doing their baking.

I wanted to help my mother with her holiday baking this year because she has a foot injury and standing for long periods of time is hard for her, but I was so leery of the flour-in-the-air thing. I offered to get one of those masks like they sell in the paint department, but my mom was just as concerned about it as I was and wouldn't let me help her.

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted
  • Author

Hathor- Thanks :) I have been doing mwl program so the only thing I can think of in terms of food if it had it on the skin of my veggies and it didnt get washed off properly. I havent used any new products. I hope its not corn :unsure: since that is used on a spray on my veggies and fruit. I would think I would still have it though since I have been eating them all along. I use to wash them with baking powder but not for the last six months since I have had to be really careful with my salt intake. Does red bull have soy in it? That is the only thing I have drank a few times this week for migraines.

Leslie- Thanks :) I could see the flour poof into the air :blink: when she threw some kind of dough onto the table within a few feet behind a counter as I was walking past. I panicked right there just wondering if it was going to happen. I know how you feel with wanting to help your Mom but I wouldnt risk it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


hathor Contributor
hathor
Posted

Red Bull has no soy in it, but I suppose it could contain something else that bothers you. Or have you had it before without problems?

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted
  • Author

So far I havent noticed problems with it, I drink it with migraines and when I have been glutened since it seems to help the headaches and me being tired.

Thanks Again :)

misdiagnosed6yrs Apprentice
misdiagnosed6yrs
Posted

Did you wash the handles on the cart? Or maybe touched something? Probably but that was my first thought

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,930
    • Most Online (within 30 mins)
      7,748
    quinnmac
    Newest Member
    quinnmac
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      How many grams is there in one slice of wheat bread?

      By Scott Adams · Posted

      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Confused with test results

      By Scott Adams · Posted

      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
      Water filters and gluten

      By MaryMJ · Posted

      I called zero water and they state their filters do not contain gluten or gluten containing ingredients. 
    • trents
      What should I do with these test results?

      By trents · Posted

      I agree. Doesn't look like you have celiac disease. Your elevated DGP-IGG must be due to something else. And it was within normal at that after your gluten challenge so it is erratic and doesn't seem to be tied to gluten consumption.
    • Jack Common
      How many grams is there in one slice of wheat bread?

      By Jack Common · Posted

      Hello! I want to share my situation. I had symptoms like some food intolerance, diarrhea, bloating, belching one year ago. I thought I could have celiac disease so I did the blood tests. The results were ambiguous for me so I saw the doctor and he said I needed to do tests to check whether I had any parasites as well. It turned out I had giardiasis. After treating it my symptoms didn't disappear immediately. And I decided to start a gluten free diet despite my doctor said I didn't have it. After some time symptoms disappeared but that time it wasn't unclear whether I'd had them because of eliminating gluten or that parasite. The symptoms for both are very similar. Giardiasis also damages the small intestine. The only way to check this was to start eating bread again as I thought. Now about my results.   These are my first test results (almost a year ago) when I had symptoms: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months. Symptoms disappeared. And I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   Nowadays I didn't have any symptoms except tiredness but I think it's just work. I think it was this parasite because two years ago, for example, and before I didn't have these symptoms and I always ate gluten food. But I'm still not sure especially because the Deamidated gliadin peptide IgG results are sometimes high. What do you think? @Scott Adams
×
×
  • Create New...