Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kidney Stone Or Gluten ?


JustJust

Recommended Posts

JustJust Apprentice

Just wondering if anyone else had this problem............. My vit. D levels were extremely low so my dr. put me on 50,000 units of vit. D weekly for 3 months and I also took a Calcium supplement of 2000 mgs daily which had about 1,500 mgs of Vit. D in it......... Anyway, after 3 months my levels were within range but on the lowest side so they gave me two more months of vit. D and now I am suffering from horrible back pain which feels like my kidneys. I am wondering if it could be because now I have too much calcium and vit. D in my system or if I have been gluteneted by CC the past few weeks.......... Does anyone else ever suffer from back pain that feels like it's from their kidneys when glutened along with really sore muscles that feel like they just worked out? Any input would be appreciated! Thanks, Justine


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



~alex~ Explorer

I get an ache in my back when glutened, kind of like a bad soreness and cramping. I've never had a kidney stone but I don't think the back pain I experience when glutened is near as bad as pain from a kidney stone would be. I would certainly get it checked out if the pain is severe or it doesn't go away.

I would definitely get yourself to a doctor if you start feeling nauseous, feverish, really yucky, as you might have a kidney infection and in my experience that's not something to fool around with.

Ginsou Explorer

Before being diagnosed with gluten/casein/soy intolerance I also had pain that started out in my lower abdomen near the bladder area, then the entire abdomen was painful, then as the weeks went on I had pain in my right lower back in the kidney area in addition to the daily pain everywhere else. I was concerned about a kidney infection,possible kidney stone, etc. A urinalysis showed a very slight bladder infection that would not cause that amount of pain. I also started to have slight nausea. All of these symptoms were related to the undiagnosed food intolerances......and constipation was no help either. A urinalysis test is easy enough to do, for peace of mind I'd have it done.

ravenwoodglass Mentor

I do get back pain when glutened but it is nothing compared to a kidney stone.

That will generally be so severe you can hardly move, many who have had one say it is worse than childbirth. I passed a small one with a bit of 'sand' early this week and when it woke me I thought I might be having a heart attack. It resolved until it got further down the line. Many times with a kidney stone the pain will start out in one area and then move as it passes out of the body. You may also see a pinkish tinge to your urine when it is in the process. It is not uncommon for the pain to be severe enough for the person to get nauseous and shocky, ie chills with sweating. If this is happening you need to get yourself to the doctor or ER. They can do an ultrasound, which is totally noninvasive, to see if they can find a stone. If it is too large to pass they can use lipotripsy to break it up. They will also be able to help with the pain. The increase in calcium could have been a trigger for this so do call your doctor to check it out.

There are also some of us who have had their kidneys damaged by years of inflammation and in those cases a glutening may impact the kidney function also. If you have edema in your hands or feet or ankles when glutened that might be a sign of that. Drinking plenty of water to help your system detoxify and prevent stone formation can be helpful in shortening the effects.

It may just be an inflammatory response from gluten, a lot of us get muscle and joint pain, but if this is becoming worse or is already severe you should get checked out.

gottaBGfree Newbie

I have been having these achey feelings too. Mostly back pain for me. I am also low in vit D and calcium. My doc has me on supplements now to help. I have been having horrible constipation now (i'd honestly rather have the 'D" than this), nutritionsit says most likely due to taking these supplements. I am beginning to wonder if I am intolerant to soy. I had gluten-free stir fry the other night and have had this achey feeling since then. I feel like I'm getting a cold/flu and it mostly hurts in my back. I never really thought that I could have been glutened (I did have a milkshake the other day and could have been glutened) or it could be the soy that I am reacting to!?

I can tell you that I have had the pain similar to kidney stones and had none. I;ve had stones before, so I know what that feels like...it's hell! My kidneys were functioning poorly at the time I was dx'd with celiac. I was made to drink massive amounts of water while in the hosp. and given iv fluids. You really may want to have your doc check that out just to be safe..it is nothing to play around with and can be very serious if left alone too long!!

Takala Enthusiast

What is in the calcium type in the calcium supplement? It isn't calcium carbonate, (like in Tums) is it? Too much calcium carbonate in the bloodstream causes too much bicarbonate in the blood, (symptom, muscle soreness) and gets pulled out by the kidneys as they regulate the blood calcium levels, and it causes kidney crystals and stones to form. This in turn can cause repeated bladder and urinary tract infections, which can progress to kidney infections, which cause excrutiating back pain.

Switching to a non calcium carbonate form can help stop this. Drinking a LOT of water can help flush things out, but if you are also having a burning sensation, you may want to call the doctor's office for testing for a uti infection.

Also, calcium needs magnesium to be able to be used by the body. Are you taking a magnesium supplement?

Suddenly it's quite fashionable for doctors to be proscribing lots of vitamin D, that's good, BUT, what are the other ingredients in the pills, if it is being taken in pill form ?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,546
    • Most Online (within 30 mins)
      7,748

    Kkiloh
    Newest Member
    Kkiloh
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.