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Trying To Get A Diagnosis

panthercreek

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panthercreek Newbie
panthercreek
Posted

Hi, I just happened to stumble across this website in my search for an answer to my health problems. My Dr isn't coming up with anything so I have been doing some digging of my own. I am starting to think I have some sort of food issue but I don't know if it is with gluten or not. I have been having a problem with bloating, when I wake up in the morning it isn't to bad, not very noticable. After I eat breakfast my mid section gets so big that I look pregnant. My breakfast is always Fiber One cereal with strawberries and coffee with milk and sweetner. After breakfast my stomach stays enlarged, one of my daughters teachers asked me if I was pregnant the other day, thats how bad it is. My stomach also hurts and is tender to the touch. I also just generally don't feel good, headaches, hot flashes and weak. This morning I woke up and my stomach was somewhat bloated but not to bad, I don't look 4 months pregnant, lol! I changed what I had to eat, I ate 2 scrablmed eggs and a banana. And my stomach is still just a little bloated like when I woke up. But I don't have all the symptoms that I have read about. Do my symptoms sound like I should look into the possiblity of Celiac disease. So far my Dr has run tests and I have also had a full ultrasound and not come up with anything. Thank you.

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hathor Contributor
hathor
Posted

Nobody has all the symptoms. What used to be viewed as classic celiac is only seen in a minority of patients, as I understand it.

If your symptoms vary according to what you eat, it seems to me that you have a food-related issue. One can react to a food immediately or anytime in the next, say, 48 to 72 hours, so keeping a diet/symptom journal can be useful in figuring things out.

Bloating isn't necessarily due to gluten. If you run a google search you can see that any number of foods can cause it. But if you see that it is worse following gluten, it would be worthwhile to get tested.

Have you noticed a reaction following dairy? This is a common offender. If you skipped the cereal, it could be the absence of the milk you put on it, rather than the cereal itself, which made the difference. I guess if I were you, my first thought would be lactose intolerance. It is common and it causes bloating. Hold off on the dairy or take a lactaid-type product and see how you do.

Also, you mention a sweetener. Some kinds of sweetener can also cause bloating. If the lactose thing doesn't pan out, I would try eliminating all artificial sweeteners. I know things like that can blow me up like a balloon :(

GlutenWrangler Contributor
GlutenWrangler
Posted

It definitely doesn't hurt to get tested! Talk to your doctor and have him or her run a full celiac panel, and possibly a food allergy test. It's a good place to start. Good luck,

-Brian

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    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

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    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
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      By Charlie1946 · Posted

      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
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