Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor Of Elimination?


b91hd7fjk

Recommended Posts

b91hd7fjk Apprentice

Doctor OR* Elimination Diet?!?!?

Hi all, I am headed into my 3rd year of gluten free living and am not sure what I am doing wrong. For the last few months I have been having more frequent relapses and they need to stop! I am looking for an elimination diet that could help me figure out if I need to stop with dairy, soy and corn etc. I am hoping someone out there has found a good' E' diet to follow and could possibly help me or if I should jsut go to a nutritionist???

Also, I currently take a daily mulit-vitamin and a B complex both from companies that are gluten free. I noticed many people take a lot of supplements daily and I was wondering why and if I should be too..I always felt like with how sensitive my stomach is less is more but if there is something I am missing please let me know!

Ok, thats all for now. Thanks in advance for your input.

-Staci


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hathor Contributor

You might try cutting out dairy and soy first. These seem to be common additional intolerances. No reason to go on an elimination diet if the problem is one or both of these two.

If you google, you can find different elimination diets. The one I know about is here:

Open Original Shared Link

There are places that will test for intolerances or food allergies too. For instance, Enterolab tests for casein, egg, soy, and yeast currently.

Do you keep a diet/symptom journal? This can be useful in trying to track down what you are reacting to.

mac8005 Newbie

I'm new so still in the anal retentive stage and its my kid so even more so.

Are you sure the vitamins are still gluten-free ? They change suppliers sometimes.....

Also, if the Natural Flavors come from China, they are mystery and/or contaminated flavors to me. I'm not sure even if a company thinks something is gluten-free it is if it is a supplied ingredient. The supplier could have moved the boxes next to the wheat boxes or something.

The nutritionist I talked to who is a Celiac expert, says symptoms are most always a sign of accidental ingestion.

Health products gluten-free ?????

Like they said Milk and Soy could be bad. Then I would eliminate the vitamins for a bit. I would think that you would know within a week to a month.

Mary

b91hd7fjk Apprentice

Thanks for the replies...

I made an appointment with an Allergist on the 28th. On that date he will perform a "scratch test." I suppose this will do the trick but has anyone found out about other foods this way?? Also, my skin breaks out pretty regularly and I know this will help that but I am a little nervous about the efficiancy of this kind of test for finding ingested food allergies...

I will just have to wait and see.

-Staci

Gwen B Rookie
Thanks for the replies...

I made an appointment with an Allergist on the 28th. On that date he will perform a "scratch test." I suppose this will do the trick but has anyone found out about other foods this way?? Also, my skin breaks out pretty regularly and I know this will help that but I am a little nervous about the efficiancy of this kind of test for finding ingested food allergies...

I will just have to wait and see.

-Staci

I had a scratch test and it showed soy but the Dr admitted that it would not necessarily mean that I couldn't eat cooked soy as heat can destroy certain allergens. He did emphasise that this test would not give any indication of a food intolerance. I seem to be better without soy based cosmetics (tocopherol acetate) but am still clueless as to whether my hives were caused by soy or soy plus accidental wheat ingestion. Dr said no but I've heard from a naturopath who says the opposite!

The scratch test is supposedly the more sensitive of allergy testing, more so than RAST or ELISA blood work, but the RAST test can give more indication of how sesitive you are of a suspected allergen. I don't think that allergy testing is as accurate or sensitive as food intolerance testing. However, this does not seem to be available in mainstream medicine. Enterolab do food intolerance testing, I don't know of any others. I wish I knew more. :(

b91hd7fjk Apprentice

I agree, I am suspicious of so many foods but it is not realistic to cut everything out and keep re-purchasing different foods for me. I need someone who can test me for skin and internal food allergies...it would work wonders but I do not have a good idea as to who I can turn to..I have heard a lot about Naturopathic drs. Is that covered by insurance? I know everyones is different but I definately could not afford to pay out of pocket to see one.

-staci

Gwen B Rookie
I agree, I am suspicious of so many foods but it is not realistic to cut everything out and keep re-purchasing different foods for me. I need someone who can test me for skin and internal food allergies...it would work wonders but I do not have a good idea as to who I can turn to..I have heard a lot about Naturopathic drs. Is that covered by insurance? I know everyones is different but I definately could not afford to pay out of pocket to see one.

-staci

that depends on your insurance! It's a real minfield. But you should write down your questions so you can quiz your allergist. That will be a good place to start. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

An allergist who will assist you in an elimination diet would be the way to go, make sure the allergist will do that, many just deal with histamine reactions and not intolerance. Histamine means a pill they can prescribe then bye bye, with an intolerance issue the elimination process is a bit drawn out and not all are willing to help with them. Call and make sure before your appointment that he deals with intolerances as well as true allergies.

The scratch test will be testing for true allergies, it will NOT pick up intolerances like gluten, soy etc. It is a different mechinism that causes the reaction. Allergies are a histimine reaction that will come on quickly, with intolerances they are autoimmune reactions and it can take days for the reaction to show up.

As another mentioned it is not unusual for us to have reactions to soy and dairy. I have both an allergy and intolerance to soy, this developed 2 years after I was gluten free and seemed to be triggered by diverticulitis and then pancreatitis as a result of a drug I reacted to.

Also if you suspect you may be reacting to soy, eggs, casien or yeast Enterolab can check for the antibodies.

b91hd7fjk Apprentice

THAT was my biggest concern...I had a feeling they were totally different things thats why I wasnt sure it was going to be an efficient visit!!! Wow...that cleared a lot up I will have to make sure to ask.

My interest has peaked many times about this Enterolab test....when I looked on the website it was almost 300 dollars and had many different tests and I honeslty felt lost when looking at it all...my question is does some insurances cover that test? And are they really good and accurate at telling intolerences? Also, if I have been staying away from dairy and of course I am gluten free...will the results come back correct??

-Staci

dksart Apprentice

Our elimination diet was.........

1st week steamed or broiled chicken or Fish, brown rice, veggies (Without seeds, nothing in the nightshade family) and fruit (no citrus or strawberries) and plenty of water and decaf green tea. Herbs are OK. Salt and red pepper is usually OK. Most spices are OK.

2nd week add corn in excess for 2-3 days. If there is no reaction, they can stay in your diet. Then gradually.......one at a time.....add potatoes, citrus fruits, strawberries, tomatoes, eggplant, shellfish, peanuts, tree nuts, eggs, soy, yeast, dairy. When ready to test dairy, try yogurt first. Many people with casein or lactose intolerance can safely handle yogurt.

Go slowly. Avoid processed foods and artificial sweeteners, colors and preservatives. Record any reactions, no matter how small, they may make sense later.

Good Luck! The first time I had to use this it was on my 6 year old (she's 16 now) who turned out to be allergic to eggs, dairy/casein, corn, oranges, peanuts, some tree nuts, artificial sweeteners, colors, flavors and preservatives. I didn't test her for wheat at the time, I thought it would be too difficult (ha!) Turns out she has DH and possibly Celiac and I have Celiac. She has outgrown many of her allergies, but not her gluten sensititvity.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - captaincrab55 replied to Dawn Meyers's topic in Related Issues & Disorders
      9

      Vaccines

    2. - trents replied to Dawn Meyers's topic in Related Issues & Disorders
      9

      Vaccines

    3. - ShariW replied to glucel's topic in Coping with Celiac Disease
      5

      potato chip cross contamination

    4. - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      9

      Vaccines

    5. - trents replied to Dawn Meyers's topic in Related Issues & Disorders
      9

      Vaccines


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,845
    • Most Online (within 30 mins)
      7,748

    carki
    Newest Member
    carki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • captaincrab55
      Hi Dawn,   Back in the Fall of 2019 with Covid looming I considered getting a pneumonia vaccine.  I went as far as getting in line and reading the pamphlet and saw the warning about not getting it if you ever had a reaction to diphtheria.  I instantly recalled a tetanus booster shot in 1971 that caused a severe reaction.  Tetanus booster shots include diphtheria.  I haven't had a tetanus shot since, but recent lab results show that I have many timed the immunity required.  Good Luck.  
    • trents
      Since we don't know what you reacting to when you get vaccinated, we can't say whether or not the pneumonia vaccine will cause a reaction. Is there some common ingredient in these vaccines that is causing a reaction. I mean, with many vaccines the antigen is delivered via a solution containing albumin (chicken egg protein). Some people are allergic to chicken egg protein so they can't take those vaccines. That kind of thing. When you say your "numbers are off the chart", what numbers do you refer to? Are you referring to celiac disease antibodies?
    • ShariW
      Cape Cod potato chips are gluten-free, according to the company. I've never had a problem with these.
    • Dawn Meyers
      I'm 63  Thank you for the article. I have worked with Dietitian at Mayo and also had breath testing done. They felt I was following a strict gluten-free diet along with eliminating sugar alcohol and chicory root. Also don't eat a lot meat, eggs and peppers. Because I get so sick I use only gluten-free products for my skin food medicine my pet food is gluten-free and I live alone so all my cooking stuff is all brand new prior to being diagnosed.  I buy only organic certified gluten free products and if not sure  look up or just don't eat or use. The Dermatologist at Mayo gave me a list of gluten-free products that I can use. ( personal products,  laundry detergent, I use vinegar and baking soda for cleaning ) . I ask family and friends to not bring  anything  in to my home that has gluten in it. I have tried  everything and my numbers still off the charts.   So as for the pneumonia vaccine I question if it has anything in it that will react negative in me? 
    • trents
      Dawn, yes, once the genes that give the potential for the development of celiac disease are "turned on" so to speak, they will be on for the rest of your life. It is not something that is cured or comes and goes but something that must be managed. Eliminating major sources of gluten from one's diet is pretty straight forward but many don't realize the multitude of places and ways gluten is hidden in the food supply and sneaks its way into our eats. So, eating "lower gluten' is easy but attaining a consistently and truly gluten free state is much harder and requires diligence. I am linking this article that might be of help to you in that regard:  
×
×
  • Create New...