Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reaction Time


snomnky

Recommended Posts

snomnky Apprentice

My son is 2.5, he has Celiac, his reactions are atypical according to the GI, his poop turns white/grey and it looks and smells EXACTLY like vomit. He used to vomit when he was younger, but now it is just the poop and irritability. Anyway, I am concerned that even though he has been diagnosed via biopsy that something else is happening. I just really don't understand the poop smelling like vomit and when i tell a doc they look at me like i am crazy. He is still in diapers and the poop burns he bottom to the point of widespread blisters that open and ooze, it causes immense pain for him. Does anyones children have a similar reaction?

My question- how long does it take your kids (or yourself) to react once you have ingested gluten. My Son is in a reaction, but we can't trace it to a specific food, the time line just doesn't make sense. (another reason why i am paranoid there is something else going on)

By the way, we have done extensive allergy testing and have found DS to have no other allergies or intolerances to foods, besides Celiac.

Thanks for the help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

it takes me somewhere between 15 minutes and 2 hours. it takes others here more than a day.

Cherry Tart Apprentice

Hello!

My reaction time is usually 15 - 20 minutes for a heavy glutening or as long as two hours - depends on the amount for me. It usually takes me a day or two to recover. If you're sure his reaction isn't to food, could it be his/your toiletries? Have you checked out his/your lotion, powder, and shampoo? At that age, they are more apt to putting things in their mouths or swallowing water/shampoo during a bath. I'm not sure how long he's been gluten-free, but it may take him a while to recover if he's new to the diet. It took 6 months for my system to calm down. Hope he's feeling better soon! :)

kenlove Rising Star

For me its usually 10 to 30 minutes, faster when I inhale something in the air than when i eat something that was supposedly gluten-free.

My son is 2.5, he has Celiac, his reactions are atypical according to the GI, his poop turns white/grey and it looks and smells EXACTLY like vomit. He used to vomit when he was younger, but now it is just the poop and irritability. Anyway, I am concerned that even though he has been diagnosed via biopsy that something else is happening. I just really don't understand the poop smelling like vomit and when i tell a doc they look at me like i am crazy. He is still in diapers and the poop burns he bottom to the point of widespread blisters that open and ooze, it causes immense pain for him. Does anyones children have a similar reaction?

My question- how long does it take your kids (or yourself) to react once you have ingested gluten. My Son is in a reaction, but we can't trace it to a specific food, the time line just doesn't make sense. (another reason why i am paranoid there is something else going on)

By the way, we have done extensive allergy testing and have found DS to have no other allergies or intolerances to foods, besides Celiac.

Thanks for the help!

snomnky Apprentice

Oh, thank you! For some reason i thought the reaction would take a lot longer, but he grabbed a bag of chips that had been in a bag with wheat bread, then took a sip of my water that i had been drinking while eating the wheat bread. I am sure that was it! Since it was only 5hrs or so i thought it was something else. But that would explain it!

what about vomit smelling poop, a normal response? He has been gluten-free since 6mo old and we have eliminated nearly every bit of gluten from our home (other than the occasional sandwich for me and his dad) but every reaction seems to be worse than the one before.

Kaycee Collaborator

It takes me a couple of hours for my stomach to know that I have eaten gluten. The diarrhoea doesn't set in till about a day and a half later, unless it is a bad case, and then it is sooner than that. As for the vomit smelling poop, I know when I have been glutened my poop smells terrible, and that is part and parcel of coeliac.

Cathy

JustMe75 Enthusiast

It takes me 15 minutes to an hour, and my first symptom is urgent diarrhea that lasts for hours. It still amazes me that something I barely finished chewing could already have gone through my whole digestive tract and caused problems. As far as the vomit smell goes, does it smell like bile, like acidy vomit? That would explain the burning. I know for me when I get sick it burns like you wouldn't believe (and I'm not even sitting in it ;) ) and I think its the acids from my stomach that were suposed to digest the food but were forced out too fast.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

It normally takes about 2 hours for me. I get the acid poops too--that usually goes on for a few days. I feel much better by a week, but not completely back to normal for almost 2 weeks.

My reactions are much less severe than they used to be (I've been gluten-free for 2.5 years now)

aeshlea Apprentice

also dosent take me too long. If its a small amount I feel it quicker ironically. And it usually is just a massive headache within 20-30 minutes...but if its a larger amount I always have D within a 2 hour time period..usually by the 1 and a !/2 hour mark.

snomnky Apprentice

I really applicate all the replies. We went 5 mo with no reactions! But then a reaction happens and I get worried and start wondering if this is normal. He is very verbal for a 2 yr old boy, so with this poop he told us right away that there was an owie in his pants we couldn't see.

I always worry that with every exposure he will be so much worse next time, this has been the case so far. With this reaction we saw a severe behavioral reaction as well.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    2. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    3. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    4. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal

    5. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,347
    • Most Online (within 30 mins)
      7,748

    Emhope1107
    Newest Member
    Emhope1107
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.