Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reaction Time


snomnky

Recommended Posts

snomnky Apprentice

My son is 2.5, he has Celiac, his reactions are atypical according to the GI, his poop turns white/grey and it looks and smells EXACTLY like vomit. He used to vomit when he was younger, but now it is just the poop and irritability. Anyway, I am concerned that even though he has been diagnosed via biopsy that something else is happening. I just really don't understand the poop smelling like vomit and when i tell a doc they look at me like i am crazy. He is still in diapers and the poop burns he bottom to the point of widespread blisters that open and ooze, it causes immense pain for him. Does anyones children have a similar reaction?

My question- how long does it take your kids (or yourself) to react once you have ingested gluten. My Son is in a reaction, but we can't trace it to a specific food, the time line just doesn't make sense. (another reason why i am paranoid there is something else going on)

By the way, we have done extensive allergy testing and have found DS to have no other allergies or intolerances to foods, besides Celiac.

Thanks for the help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

it takes me somewhere between 15 minutes and 2 hours. it takes others here more than a day.

Cherry Tart Apprentice

Hello!

My reaction time is usually 15 - 20 minutes for a heavy glutening or as long as two hours - depends on the amount for me. It usually takes me a day or two to recover. If you're sure his reaction isn't to food, could it be his/your toiletries? Have you checked out his/your lotion, powder, and shampoo? At that age, they are more apt to putting things in their mouths or swallowing water/shampoo during a bath. I'm not sure how long he's been gluten-free, but it may take him a while to recover if he's new to the diet. It took 6 months for my system to calm down. Hope he's feeling better soon! :)

kenlove Rising Star

For me its usually 10 to 30 minutes, faster when I inhale something in the air than when i eat something that was supposedly gluten-free.

My son is 2.5, he has Celiac, his reactions are atypical according to the GI, his poop turns white/grey and it looks and smells EXACTLY like vomit. He used to vomit when he was younger, but now it is just the poop and irritability. Anyway, I am concerned that even though he has been diagnosed via biopsy that something else is happening. I just really don't understand the poop smelling like vomit and when i tell a doc they look at me like i am crazy. He is still in diapers and the poop burns he bottom to the point of widespread blisters that open and ooze, it causes immense pain for him. Does anyones children have a similar reaction?

My question- how long does it take your kids (or yourself) to react once you have ingested gluten. My Son is in a reaction, but we can't trace it to a specific food, the time line just doesn't make sense. (another reason why i am paranoid there is something else going on)

By the way, we have done extensive allergy testing and have found DS to have no other allergies or intolerances to foods, besides Celiac.

Thanks for the help!

snomnky Apprentice

Oh, thank you! For some reason i thought the reaction would take a lot longer, but he grabbed a bag of chips that had been in a bag with wheat bread, then took a sip of my water that i had been drinking while eating the wheat bread. I am sure that was it! Since it was only 5hrs or so i thought it was something else. But that would explain it!

what about vomit smelling poop, a normal response? He has been gluten-free since 6mo old and we have eliminated nearly every bit of gluten from our home (other than the occasional sandwich for me and his dad) but every reaction seems to be worse than the one before.

Kaycee Collaborator

It takes me a couple of hours for my stomach to know that I have eaten gluten. The diarrhoea doesn't set in till about a day and a half later, unless it is a bad case, and then it is sooner than that. As for the vomit smelling poop, I know when I have been glutened my poop smells terrible, and that is part and parcel of coeliac.

Cathy

JustMe75 Enthusiast

It takes me 15 minutes to an hour, and my first symptom is urgent diarrhea that lasts for hours. It still amazes me that something I barely finished chewing could already have gone through my whole digestive tract and caused problems. As far as the vomit smell goes, does it smell like bile, like acidy vomit? That would explain the burning. I know for me when I get sick it burns like you wouldn't believe (and I'm not even sitting in it ;) ) and I think its the acids from my stomach that were suposed to digest the food but were forced out too fast.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

It normally takes about 2 hours for me. I get the acid poops too--that usually goes on for a few days. I feel much better by a week, but not completely back to normal for almost 2 weeks.

My reactions are much less severe than they used to be (I've been gluten-free for 2.5 years now)

aeshlea Apprentice

also dosent take me too long. If its a small amount I feel it quicker ironically. And it usually is just a massive headache within 20-30 minutes...but if its a larger amount I always have D within a 2 hour time period..usually by the 1 and a !/2 hour mark.

snomnky Apprentice

I really applicate all the replies. We went 5 mo with no reactions! But then a reaction happens and I get worried and start wondering if this is normal. He is very verbal for a 2 yr old boy, so with this poop he told us right away that there was an owie in his pants we couldn't see.

I always worry that with every exposure he will be so much worse next time, this has been the case so far. With this reaction we saw a severe behavioral reaction as well.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      1

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    2. - Jmartes71 replied to Jmartes71's topic in Doctors
      6

      Second chance

    3. - trents replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Concerning GP advice

    4. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      327

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,641
    • Most Online (within 30 mins)
      7,748

    JennaK23222
    Newest Member
    JennaK23222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jmartes71
      Thats the thing, diagnosed in 1994 before foods eliminated celiac by biopsy colonoscopy at Kaiser in Santa Clara  now condo's but it has to be somewhere in medical land.1999 got married, moved, changed doctor's was with former for 25 years told him I waz celiac and that.Fast forward to last year.i googled celiac specialist and what popped up was a former well known heard of hospital. I thought I would get answers to be put through unnecessary colonoscopy KNOWING im glutenfree and she wasn't listening to me for help rather than screening me for celiac! Im already diagnosed seeking medical help.I did all the appointments ask from her and when I wanted my records se t to my pcp, thats when the with holding my records when I repeatedly messaged, it was down played the seriousness and I was labeled unruly when I asked why am I going through all this when its the celiac name that IS what my issue and All my ailments surrounding it related. I am dea6eoth the autoimmune part though my blood work is supposedly fabulous. Im sibo positive,HLA-DQ2 positive, dealing with skin, eye and now ms.I was employed as a bus driver making good money, I loved it for the few years my body let me do until I was yet again fired.i went to seek medical help because my body isn't well just to be made a disability chaser. Im exhausted,glutenfree, no lawyer will help and disability is in limbo thanks to the lax on my health from the fabulous none celiac Google bay area dr snd team. Its not right.
    • trents
      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
    • Scott Adams
      Here are some articles on cross-reactivity and celiac disease:      
    • knitty kitty
      @HectorConvector, Here are some articles about "dry Beriberi" and neuropathy.  I hope you've been able to acquire thiamine hydrochloride or Benfotiamine.  I'm concerned.   Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke's Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pubmed.ncbi.nlm.nih.gov/30862772/ Dry Beriberi Manifesting as Acute Inflammatory Demyelinating Polyneuropathy in a Patient With Decompensated Alcohol-Induced Cirrhosis https://pmc.ncbi.nlm.nih.gov/articles/PMC7707918/ A Rare Case of Thiamine Deficiency Leading to Dry Beriberi, Peripheral Neuropathy, and Torsades De Pointes https://pmc.ncbi.nlm.nih.gov/articles/PMC10723625/
    • cristiana
      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.