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Celiac Specialist In Las Vegas Nv?


b91hd7fjk

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b91hd7fjk Apprentice

I am DESPERATE!!!

I have been gluten-free for almost 3 yrs now annd am still having severe symptoms regularly...I think I am allergic to other things but the quest to get an Allergix IGg blood test has been more than difficult!!!!

I have a general doctor who seems to know nothing about what I am going through and seems to think I am just ingesting gluten still!! HELLO?? I have been doing this for 3 yrs!! I can read ingredients in my sleep!!! anyways.......she wants so send me to ANOTHER GI doc (her last referral sent me to a GI who told me I needed Metamucill 3x daily for the rest of my life....no joke!!! IDIOT!) Bottom line is I dont think I need another GI doctor...I just need someone like and allergy specialist, celiac specialist, nutritionist or actually just someone who can call the testing center and ask them to give me the simple blood test!!!!

argggg...sorry to vent....I've been dealing with this for about 4 days now and no one seems to understand.

If you have any suggestions PLEASE let me know.

Thanks,

Staci


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holdthegluten Rising Star
I am DESPERATE!!!

I have been gluten-free for almost 3 yrs now annd am still having severe symptoms regularly...I think I am allergic to other things but the quest to get an Allergix IGg blood test has been more than difficult!!!!

I have a general doctor who seems to know nothing about what I am going through and seems to think I am just ingesting gluten still!! HELLO?? I have been doing this for 3 yrs!! I can read ingredients in my sleep!!! anyways.......she wants so send me to ANOTHER GI doc (her last referral sent me to a GI who told me I needed Metamucill 3x daily for the rest of my life....no joke!!! IDIOT!) Bottom line is I dont think I need another GI doctor...I just need someone like and allergy specialist, celiac specialist, nutritionist or actually just someone who can call the testing center and ask them to give me the simple blood test!!!!

argggg...sorry to vent....I've been dealing with this for about 4 days now and no one seems to understand.

If you have any suggestions PLEASE let me know.

Your best bet is to find a decent Naturopathic doctor. Most of them are well versed in Celiac and Food intolerances. What are your symptoms? Have you looked into candida and leaky gut. I have been gluten free for a year and i still feel awful. I recently got with an ND and she has me on a diet very similat to the Specific Carbohydrate diet. Google SCD Diet and look into starting one. It is a very simple diet that gived your body a chance to heal properly. My diet for 3 months is just seafood,chicken,beef,and vegetables. I can only eat chicken and beef once a week. She has me on L-Glutamine supplements and wants me to boost my omega 3's by eating fish and taking some supps. Fish is much easier to digest and it helps give your gut some of a break. Your gut is constantly working day in and day out. Its like if you have a scab and you keep picking at it, it will keep scabbing up. You need to be gentle and let your gut relax from its work by giving it easy work. Feel free to PM me if you want me to elaborate on anything. Good Luck

Thanks,

Staci

b91hd7fjk Apprentice

I am going to seriously look into it...actually as we speak...how do i PM you because i would love more info (sorry I am pretty new at this) I know there is more work I need but will my insurance cover that king of doctor??? If not...is it affordable?? I am a college student and pretty broke to say the least but I am definately interested in giving the diet a shot...please tell me more!!

-STaci

  • 2 weeks later...
JanS Newbie
I am DESPERATE!!!

I have been gluten-free for almost 3 yrs now annd am still having severe symptoms regularly...I think I am allergic to other things but the quest to get an Allergix IGg blood test has been more than difficult!!!!

I have a general doctor who seems to know nothing about what I am going through and seems to think I am just ingesting gluten still!! HELLO?? I have been doing this for 3 yrs!! I can read ingredients in my sleep!!! anyways.......she wants so send me to ANOTHER GI doc (her last referral sent me to a GI who told me I needed Metamucill 3x daily for the rest of my life....no joke!!! IDIOT!) Bottom line is I dont think I need another GI doctor...I just need someone like and allergy specialist, celiac specialist, nutritionist or actually just someone who can call the testing center and ask them to give me the simple blood test!!!!

argggg...sorry to vent....I've been dealing with this for about 4 days now and no one seems to understand.

If you have any suggestions PLEASE let me know.

Thanks,

Staci

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    • K6315
      Well, that's interesting. I am lactose intolerant and have been managing that for years. I'd be interested in seeing if that changes once I feel better from not eating gluten (one thing at a time for now, though). Helpful to hear about the avenin. I will do some digging and pose that to the dietitian. Grateful for your feedback.
    • kate g
      Recently my daughter ate in nandos harlow I rang in advance to speak about the celiac protocals and learned that childs portion chicken nandinos is cooked on the same grill as garlic bread even if they are celiac! Even if you clean it this is not good practise and will be making many children ill. I learnt adults butterfly chicken cooked on a grill purely for chicken.  This is fine and what we ordered however nandos need to take note of your practises for the safety of celiac children. my daughter has been ill from their nandinos chicken before and i emailed head office and they wouldnt accept responsibility 
    • Scott Adams
      I agree with @RMJ, you have multiple positive tests so celiac disease is likely.  This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.     
    • trents
      One small study found that 50% of celiacs react to the dairy protein "casein" like they do to gluten. It is also common for celiacs to be lactose (the sugar in milk) intolerant, though that often disappears in time as the villi heal. About 10% of celiacs react to the oat protein "avenin" like they do gluten.
    • K6315
      Thank you so much Trents (Scott?)! I have started working with a dietitian and did a deep research dive as soon as I got the diagnosis. I am aware of what you mentioned in the first two paragraphs, and was not aware of anything in the third, so I am grateful for that information, and will talk to the dietitian about that. I think I was most interested in the withdrawal process - it gives me hope that, although I have felt unwell recently, I just need to be patient (not a strong suit). I have printed the article you sent and will look at it more closely. Thanks again!
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