Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

School Cafeteria . . . Disappointment


Darn210

Recommended Posts

Darn210 Enthusiast

A friend of mine had a daughter with Celiac disease. She told me she worked with the school district's dietician to determine which days her daughter could buy the hot lunch. I'm in a different school district, so this year, I talked with OUR school dietician. We determined that my daughter could have the hot dog (not bun) the hamburger (no bun) and the nachos supreme. There were a couple of others but my daughter wouldn't pick those items anyway. I decided to start with the nachos supreme. It comes totally prepackaged from the manufacturer. I would not have to talk with the (local) cafeteria personnel about safe handling like I would for bunless hotdogs or hamburgers.

The school lunch menu has a three week rotation. This mean that once every three weeks, my daughter could buy the hot lunch. She was thrilled.

Last week she got sick after eating the nachos supreme. I went in the next morning to talk to the cafeteria manager. She showed me a label off of the tortilla corn chips. They contained wheat and oats!!!!

I left a message for the dietician on Monday and she called me this morning. The chips that my daughter ate were not the ones that she approved. The supply company had swapped them out. She didn't realize that they could do that but her investigation showed that the food contract was based on price and "similar" items. She was terribly sorry about the situation and I know she learned something about helping parents of kids with allergies/intolerances and food supply contracts . . . and I learned my lesson, too. I can really only trust myself to be dilligent with my daughter's food.

Just thought I would share our experience in case anyone else finds themself trying to work with their school's hot lunch program.

We're still dissapointed, though. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HAK1031 Enthusiast

I've found it easier just to bring lunch. In a pinch, I can get a premade salad...which is pretty much iceberg lettuce (they never have croutons or anything), sometimes soymilk, chips, fruit, things like that. Not the most balanced lunch but it works. Really I just find it easier to bring lunch.

cruelshoes Enthusiast

I'm sorry your daughter got ill from the school lunch. :( That is really annoying because you worked so hard to try to prevent it.

I don't know if it will help you, but we have been able to get a school lunch plan set up for my son with our school district dietician, and it has been working out very well. Their staff is trained that they are not allowed to prepare the lunch if the supplier changes for any reason. I have posted the process we had to go through and the menus that the dietician came up with over here: Open Original Shared Link. My son is actually the first child in the school district to get a celiac-safe lunch from the central kitchen. I almost feel like we are trendsetters. :)

mamaw Community Regular

We also pack lunches most of the time. I believe that is the safest way.Our school will heat foods or micro foods that we request be heated. Many days we actually make fesh at home & then run it to school... we try to match whatever the school menu has on there list for the day Ie: pizza on Monday, tacos on tues. We can let our crew eat the same items only gluten-free. But I have found other kids try to swap there goodies for gluten-free goodies..... Ie: twinkies, ice cream sandwiches,cupcakes....Our kids love to take the soft breadsticks & dip in sauce & even the aides ask for some they smell so good... We use the recipe CarrieFaith posted in the recipe section.

We have a safe box in each kids room too..... for snacking

hth

mamaw

buffettbride Enthusiast

That really stinks, but you'll find many of us pack lunches all the time for our kids, simply to avoid such issues and keep the kiddos healthy.

One option you might consider for ease, is a 504 plan that includes the use of a microwave so your child's meals can be reheated if you pack leftovers. gluten-free leftovers cold aren't always the best, but almost as always, taste fine when heated.

My daughter's school offers NOTHING that is gluten-free but she goes to a small, private Catholic school. Next year she will go to a public school and we are definitely thinking about a 504 plan simply to ensure she has a microwave available for her to use.

As for packing lunches, this has really been a lifesaver for us:

Open Original Shared Link

Darn210 Enthusiast

It really isn't about not wanting to have to pack a lunch . . . we pack a lunch the other 14 days (in the 15 day lunch cycle). It was just that she got to buy her lunch like the other kids. And I really thought it would be safe since all the items were prepackaged. I just hadn't taken into consideration supplier changes. There was nothing in place that would notify me or stop her from buying. I'm just trying to let people know that if they are trying to work out a hot lunch program for their child, that is just one of the things to plan for.

I'm sorry your daughter got ill from the school lunch. :( That is really annoying because you worked so hard to try to prevent it.

I don't know if it will help you, but we have been able to get a school lunch plan set up for my son with our school district dietician, and it has been working out very well. Their staff is trained that they are not allowed to prepare the lunch if the supplier changes for any reason. I have posted the process we had to go through and the menus that the dietician came up with <a href="Open Original Shared Link free.com/topic6072.html" target="external ugc nofollow">over here</a>. My son is actually the first child in the school district to get a celiac-safe lunch from the central kitchen. I almost feel like we are trendsetters. :)

Colleen, that is awesome . . . but your link didn't work :huh:

cruelshoes Enthusiast
It really isn't about not wanting to have to pack a lunch . . . we pack a lunch the other 14 days (in the 15 day lunch cycle). It was just that she got to buy her lunch like the other kids. And I really thought it would be safe since all the items were prepackaged. I just hadn't taken into consideration supplier changes. There was nothing in place that would notify me or stop her from buying. I'm just trying to let people know that if they are trying to work out a hot lunch program for their child, that is just one of the things to plan for.

Colleen, that is awesome . . . but your link didn't work :huh:

Sorry about that. This board eats my links a lot of the time. I fixed it above and I will put it here again: Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kbtoyssni Contributor

When I was a kid I did not have celiac yet, and I brought my lunch from home everyday. My parents had brainwashed me about the need for healthy food so I was never jealous of the other kids eating school lunch. In fact, I distinctly remember being terrified about forgetting my lunch because I was scared to go through the hot lunch line. I mean, how would I know what to do and what food to take and when to pick up a knife and fork and how to put my lunch ticket in the bucket??? My parents had also emphasized the money thing, and I guess hot lunch cost more than lunch from home. It was never even something I thought about - I just didn't get hot lunch. Although I did find my lunches rather boring. A sandwich, apple and pretzels isn't very exciting to an eight-year-old.

Anyway, long story, but if you send your kid with fun lunch everyday, I'm sure she'll eventually get used to it.

Oh, and on second thought, I wonder if I didn't get hot lunch because I was allergic to dairy and sugar as a kid. It made me super hyper so I'm sure my mother was perfectly happy to pack me a lunch in exchange for me being a nice, calm child. I remember there being rules against trading food, too. I wasn't allowed to trade food until sixth grade, and then only on Fridays. I got chips and salsa that day because it was something the other kids would want to trade with me.

celiac-mommy Collaborator
I'm sorry your daughter got ill from the school lunch. :( That is really annoying because you worked so hard to try to prevent it.

I don't know if it will help you, but we have been able to get a school lunch plan set up for my son with our school district dietician, and it has been working out very well. Their staff is trained that they are not allowed to prepare the lunch if the supplier changes for any reason. I have posted the process we had to go through and the menus that the dietician came up with over here: Open Original Shared Link. My son is actually the first child in the school district to get a celiac-safe lunch from the central kitchen. I almost feel like we are trendsetters. :)

Colleen,

Are you in the Vancouver School District??

dandelionmom Enthusiast

What a disappointment! My fingers are crossed that bag lunches will be the "in thing" when my daughter is in full time school!

cruelshoes Enthusiast
Colleen,

Are you in the Vancouver School District??

Nope - we're in about 2 hours north of there, just up from Tacoma.

Ridgewalker Contributor

Janet,

Wow, what a complete BUMMER. I mean, since she's been gluten-free since last spring, I'm sure she's well used to carrying her lunch to school. But that's not really the point--

While she probably doesn't mind carrying her lunch, it would have been nice for her to have a day once in awhile that she could eat what everyone else is eating. It would help her feel normal. The desire to fit in and feel like you belong, is NORMAL and NATURAL.

While we don't want to let that get out of control, as it sometimes does in kids, it is normal and shouldn't be dismissed or ignored.

After you went through all that effort for her happiness, I just hate that it didn't work out. :( Very disappointing. I'm glad you posted this. People need to remember that something that's safe one day, may not be the next.

((Hugs!))

celiac-mommy Collaborator
Nope - we're in about 2 hours north of there, just up from Tacoma.

Bummer! ;) But great for you, congratulations on your success!

mamaw Community Regular

I got to Colleen's post okay!

That is so exciting to have a school district actually care about one student. We have a handful of private schools who prepare gluten-free foods each morning for their gluten-free student but never in the public school system.

We were excited just to be permitted to use freezer space & a microwave!!!

Maybe you could suggest they do a national article so the word can get out it can be done & also done safely.

Heck, our local hospital can't even do good gluten-free anything!!!!!

I guess we all better start thinking of moving to Washinton State!!!!

Colleen, was it difficult to get them moving on this or they just agreed?

thanks for the info & your good news....

mamaw

cruelshoes Enthusiast
I got to Colleen's post okay!

That is so exciting to have a school district actually care about one student. We have a handful of private schools who prepare gluten-free foods each morning for their gluten-free student but never in the public school system.

We were excited just to be permitted to use freezer space & a microwave!!!

Maybe you could suggest they do a national article so the word can get out it can be done & also done safely.

Heck, our local hospital can't even do good gluten-free anything!!!!!

I guess we all better start thinking of moving to Washinton State!!!!

Colleen, was it difficult to get them moving on this or they just agreed?

thanks for the info & your good news....

mamaw

It wasn't hard at all to get it implemented. I actually wasn't going to even try, but when we were updating the paperwork with the school nurse, she said suggested that I talk to the dietician about it. I was so impresses with the understanding she had about preventing CC. She already had several kids on a nut free diet, so this was just a variation of the lunches they prepare for those kids.

I realize our situation is probably unique, but I really think with a little effort most other school systems could do the same thing. That's one of the main reasons I posted the menus on the link above - so people could have something to take to their school dietician as an example.

Also, since I am still an anal overprotective mother, I only let my son buy lunch once a week and we have his antibodies tested yearly.

ryebaby0 Enthusiast

Oh bummer!! But hang in there --- my son's school has responded really well (he's in a middle school of about 700 students) and the other day when he went to get fries, the cafeteria aide goes "Wait! Let's double check the label, these are new". And when they buy bagged chips, they always set aside a few for the kids with allergies, so those don't get sold out to "regular" kids.

He goes to high school next year, where there are sufficient numbers of celiac and wheat-reactive kids that they stock Amy's mac/cheese as an alternate selection :)

joanna

frec Contributor

The elementary school I teach at (in Oregon) is managing a gluten-free hot lunch once a week for a celiac first grader. Eating hot lunch at school is part of being a "big" first grader--she just felt so left out. There are two other celiac kids in our building. Anyway, if there are any uncertainties about food all the teachers know to send them to me, and we read labels together. Once or twice we've gone to the kitchen to investigate. Perhaps as the diagnosis of celiac becomes more common there will be more adults in the schools who can help monitor the food. (Last year the little girl couldn't remember my name and just called me the label reader!)

mamaw Community Regular

Our public schools have lunches that are like airline lunches , ready made & just heated up.... no cooking in our cafeteria' like some schools do.....

We were excited just to be permitted to use the fridge & micro. ANd tha twas a big thing for the school to agree upon!!!!!

Is it a law that if hot lunches are served to reg kids then the schools must provide for kids with allergies---- I don't think I would trust anyone to cook a meal for my gluten-free kids!!!!I think I'm to protective but if someone hasn't walked the walk they are not as careful as they should be....thats my opinion.......

Colleen, I'm so glad for you & your child to have things work out so well..... And I agree if she took care of kosher foods she would know.....

mamaw

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to KDeL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      diagnostic testing variance

    2. - Scott Adams replied to KDeL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      diagnostic testing variance

    3. - KDeL posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      diagnostic testing variance

    4. - Peggy M replied to louissthephin's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Does Kroger Offer Affordable Gluten-Free Options?

    5. - Scott Adams replied to Sunshine4's topic in Related Issues & Disorders
      4

      Neurologic symptoms - Muscle Twitching and Hand Tremors


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,278
    • Most Online (within 30 mins)
      7,748

    Pinkwells19
    Newest Member
    Pinkwells19
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Yes, I'd like to know also if a "total IGA" test was ever ordered. It checks for IGA deficiency. If you are IGA deficient, it will likely render the individual celiac IGA antibody tests invalid. Total IGA goes by other names as well:  Immunoglobulin A (IgA) Test Serum IgA Test IgA Serum Levels Test IgA Blood Test IgA Quantitative Test IgA Antibody Test IgA Immunodeficiency Test People who are IGA deficient should have IGG tests run as well. Check this out:    I am also wondering if your on again/off again gluten free experimentation has sabotaged your testing. For celiac disease testing to be valid, one must be eating generous amounts of gluten for weeks/months leading up to the test.
    • Scott Adams
      I’m so sorry you’re going through this—it sounds like you’ve been on a really challenging journey with your health. Your symptoms (stomach pains, bloating, low iron, joint pain, brain fog, etc.) do sound like they could be related to gluten sensitivity or another condition like non-celiac gluten sensitivity (NCGS). It’s interesting that your bloodwork hasn’t shown celiac markers, but the lymphocytosis in your duodenum could still point to some kind of immune response or irritation, even if it’s not classic celiac disease. The fact that your symptoms improved when you went gluten-free but returned when you reintroduced gluten (especially with the donut incident) is a pretty strong clue that gluten might be a trigger for you. It’s also worth noting that symptoms can be inconsistent, especially if your body is still healing or if there are other factors at play, like stress, cross-contamination, or other food intolerances. Do you have more info about your blood test results? Did they do a total IGA test as well? 
    • KDeL
      For years, I have dealt with various gluten related symptoms like stomach pains, bloating, IBS-C "ish" digestive issues, low iron, low Vit D, joint pains, brain fog, and more. I finally got a double scope and stomach looks clear, but I have some lymphocytosis of the duodenum. I am wondering if this sounds familiar to anyone, where I have not shown celiac red flags in bloodwork IGA tests. WIll be following up soon with GI Dr, but so far, my symptoms are intermittent. I go back and forth with gluten-free diet (especially this past year.... did two tests where the stomach pains I had went away without gluten in diet. HOWEVER, I added it back a third time and I didn't get the pains)   Anyway, I am so confused and scared to eat anything now because I recently had a few bites of a yeasty donut and I immediately got so sick. Any thoughts??
    • Peggy M
      Kroeger has quite a few Gluten free items.  Right now they are redoing my Kroeger store and are adding everything into the regular sections.  Since this was done some new ones have been added.  Publix and Ingles also have great selections. I actually shop Walmart and Food City to since prices on some items vary from store to store.
    • Scott Adams
      Sorry but I don't have specific recommendations for doctors, however, starting out with good multivitamins/minerals would make sense. You may want to get your doctor to screen you for where you different levels are now to help identify any that are low, but since you're newly diagnosed within the past year, supplementation is usually essential for most celiacs.
×
×
  • Create New...