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One Year And Still Feel Awful

holdthegluten

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holdthegluten Rising Star
holdthegluten
Posted

I dont know what to do to feel better! I eat chicken,fish,beef,veggies,peanut butter,almond butter,Lara Bars, and flax seed bars, bananas,apples,strawberries. I am gluten-free,DF,Sugar Free, and SOY FREE. I eat so clean,and i feel no difference. I dont know if I should get another endoscopy or what........What can i do to figure out what is wrong. I know i am Gluten free.

I still have awful fatigue, leg weakness, nausea,little dizziness, tired red eyes, little brain fog, bloating.

What else could be causing this. I use Dove Shampoo, Crest toothpaste. I take a good Probiotic given to me by my ND.

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jerseyangel Proficient
jerseyangel
Posted

Hi--

First I have to tell you that your new baby picture is just adorable :D

It sounds like you're doing everything right--you have gone over your personal care products and your kitchen--right?

One thing that pops out at me is the probiotic. I have yet to try one that agrees with me. I get nauseous, dizzy, and feel terribly sick on them.

I wonder if it would make a difference to stop them for a week or so and see if that doesn't make you feel better. I had to literally stop all suppliments while I was healing.

gfpaperdoll Rookie
gfpaperdoll
Posted

If I were you I would give up the lara bars (I cannot eat them) & the flax seed bars, & the peanut butter and almond butter. I would eat fresh walnuts, in place of peanuts & almond butter. A lot of people have problems with the almonds (me). I would try to add in fresh pecans also. You did not mention if you are eating white potatoes, if you are i would cut them out. Replace with sweet potatoes. I would also look at what kind of beans you are eating.

when you go gluten-free/DF you really need to keep researching and learning about foods. The high lectin foods, the nightshade family, the oxalates, etc.

I have changed my diet several times, to the better each time. It is a process & I hope you continue to find out what your problems are.

Peanuts are a legume & they contribute to leaky gut, not a good choice for a newly gluten-free person...

holdthegluten Rising Star
holdthegluten
Posted
  • Author
If I were you I would give up the lara bars (I cannot eat them) & the flax seed bars, & the peanut butter and almond butter. I would eat fresh walnuts, in place of peanuts & almond butter. A lot of people have problems with the almonds (me). I would try to add in fresh pecans also. You did not mention if you are eating white potatoes, if you are i would cut them out. Replace with sweet potatoes. I would also look at what kind of beans you are eating.

when you go gluten-free/DF you really need to keep researching and learning about foods. The high lectin foods, the nightshade family, the oxalates, etc.

I have changed my diet several times, to the better each time. It is a process & I hope you continue to find out what your problems are.

Peanuts are a legume & they contribute to leaky gut, not a good choice for a newly gluten-free person...

I tried fresh almonds and walnuts and they bloated me up, which is why i switched to almond butter........i am afraid i wont get enough calories if i cut out the nuts (almond butter, lara bars, flax seed bar,etc). My ND wants me to eat a lot of fish, but it is so low in calories im worried i will lose more weight if i cut out the fatty nuts.

chatycady Explorer
chatycady
Posted

Do you have a blood sugar problem? Your symptoms could be many things, but they sound similar to mine. And I have hypoglycemia. Celiac can mess up blood sugar. Just a thought.

I would skip the peanutbutter and banana's for now.

hathor Contributor
hathor
Posted

If I'd gone a year and still felt awful, I would do an elimination diet. I think very quickly you would learn if your symptoms are food-related. It might take some time to pin down which foods are the problems, but it would be worth it.

You could also get testing done for food allergies.

Do you take any medicines or supplements that you haven't checked out? That's the only other thing I can think of. That, or you are regularly eating some product that is cross-contaminated or has casein, hidden gluten, etc.

gfpaperdoll Rookie
gfpaperdoll
Posted

re calories you might want to read the book "Good Calories Bad Calories" then cook a half pound of bacon & fry a couple of eggs in the bacon fat, that ought to give you a few good calories to start the day.

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holdthegluten Rising Star
holdthegluten
Posted
  • Author
Do you have a blood sugar problem? Your symptoms could be many things, but they sound similar to mine. And I have hypoglycemia. Celiac can mess up blood sugar. Just a thought.

I would skip the peanutbutter and banana's for now.

No............i dont have any blood sugar problems

holdthegluten Rising Star
holdthegluten
Posted
  • Author
If I'd gone a year and still felt awful, I would do an elimination diet. I think very quickly you would learn if your symptoms are food-related. It might take some time to pin down which foods are the problems, but it would be worth it.

You could also get testing done for food allergies.

Do you take any medicines or supplements that you haven't checked out? That's the only other thing I can think of. That, or you are regularly eating some product that is cross-contaminated or has casein, hidden gluten, etc.

I cut out the nut butters and i feel a little better today..............I think i may have a candida problem despite the fact that the blood/stool tests said i didnt. I took 2 Grapefruit seed extract pills yesterday and i saw these tiny specs in my stool that i read could be yeast. Hmmmmmmmmm. I dont know what to think anymore.

holdthegluten Rising Star
holdthegluten
Posted
  • Author
Hi--

First I have to tell you that your new baby picture is just adorable :D

It sounds like you're doing everything right--you have gone over your personal care products and your kitchen--right?

One thing that pops out at me is the probiotic. I have yet to try one that agrees with me. I get nauseous, dizzy, and feel terribly sick on them.

I wonder if it would make a difference to stop them for a week or so and see if that doesn't make you feel better. I had to literally stop all suppliments while I was healing.

Thanks for the baby compliment...........i am trying to change the picture often, since he changes weekly........everybody on here is so kind. Thanks again

JodiC Apprentice
JodiC
Posted

Your symptoms you mentioned sound like a possible sjogren's syndrome, especially the dry red eyes. I have this. I also have Vitamin D and C deficiencies. Get these tested along with the irons and thiamin levels. Sometimes just going gluten free does not do the trick especially if other auto-immune disorders are present.

WW340 Rookie
WW340
Posted

I can't do many of the lara bars, and flax seed hurts my stomach.

I agree with JodiC that you may need to have some testing done. I would also suggest B12 and thyroid.

I continued to have the fatigue and just not feeling well until I got a B12 shot 2 weeks ago. My B12 was at the low end of normal, but the B12 made a huge difference for me.

I agree with adding eggs for protein and calories if you can tolerate them.

I had to stop all supplements for a while, even though they were verified gluten free. I just had not healed enough to tolerate them. I was able to add them back later.

happygirl Collaborator
happygirl
Posted

Have you been to the doctor to be evaluated for common problems? (i.e., a check up with bloodwork, etc.) Might be a good place to start if you haven't taken that step yet.

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