Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Guess I'll Have Gallbladder Problems Forever


num1habsfan

Recommended Posts

num1habsfan Rising Star

Hey guys. I'm still feeling too upset to say much right now um...i went back to that doctor at the walk-in clinic and the stool samples/urine sample were negative. And typical stupid doctor, he says "it could just be IBS"...which its NOT. We all know that!! So he already ruled out the gallbladder without me even being tested for it, how is that possible??? And thats not all--turns out the only specialist for this kind of stuff is the same idiot who told me last time I seen him to "live with it". I know its an ultrasound, endoscopy, or MRI that I need to pick up the gallbladder problems. I'm going to make sure I get it somehow because I really can't hack this pain anymore. I can't fit all 3 diets either because then I starve and go crazy. And I keep getting attacks now at least once a week. 2 months with this was much too hard on me as it is, how am i supposed to live through more??

*cries more* :(:(:(

~ Lisa ~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JustMe75 Enthusiast

I'm sorry you are feeling bad and frustrated too. I had my gallbladder out about 9 years ago because they did an ultrasound and saw a stone stuck in the neck of the gallbladder. I only had one "attack" that I was aware of but it was so bad I was taken by ambulance to the ER. They didn't think to look for it there but a few days later my regular doctor did. I can't imagine why they wouldn't want to do an ultrasound, its a simple non-invasive test. I would push for it. I hope you feel better soon.

num1habsfan Rising Star
I'm sorry you are feeling bad and frustrated too. I had my gallbladder out about 9 years ago because they did an ultrasound and saw a stone stuck in the neck of the gallbladder. I only had one "attack" that I was aware of but it was so bad I was taken by ambulance to the ER. They didn't think to look for it there but a few days later my regular doctor did. I can't imagine why they wouldn't want to do an ultrasound, its a simple non-invasive test. I would push for it. I hope you feel better soon.

Thank you.....yeah I dont know why they are stupid enough to not do something as easy as an ultrasound. Do they not realize that if it is the gallbladder how it can affect your other organs if untreated?? Ahhh I dont know if I have ever felt this frustrated before :(

~ Lisa ~

ravenwoodglass Mentor

Lisa, Did they do any blood work on you? There are routine blood tests that would be done as a first step in diagnosing gallbladder problems. If they did these tests and the results were in normal ranges they may not feel the need to ultrasound again as according to your signature they did an abdominal ultrasound back in Sept. Here is a list of the blood tests and what they would be looking for:

Gallbladder problems are diagnosed through various tests. These may include:

Liver function tests (LFTs), which are blood tests that can show evidence of gallbladder disease.

A check of the blood's amylase or lipase levels to look for pancreatic inflammation. Amylase and lipase are enzymes produced in the pancreas.

A complete blood count (CBC), which looks at levels of different types of blood cells such as white blood cells. A high white blood cell count may indicate infection

This is from WebMD. They do of course list the ultrasound and ERCP etc also but if all blood work is in normal ranges the need for the other tests may be negated.

Generic Apprentice

I just had my gallbladder taken out, all my blood work tests were considered within normal range. They did an ultrasound because I asked for it. They found I had multiple stones, plus I still have one wedged in the common bile duct which is causing me to still be sick. I get the stone removed next week...in the mean time I suffer and they don't care. I feel your pain.

madwick Newbie
I just had my gallbladder taken out, all my blood work tests were considered within normal range. They did an ultrasound because I asked for it. They found I had multiple stones, plus I still have one wedged in the common bile duct which is causing me to still be sick. I get the stone removed next week...in the mean time I suffer and they don't care. I feel your pain.

I too had my gallbladder out in September after blood and ultrasounds all came back normal. My gallbladder was so scarred that you couldn't see any stones. I would ask for a HIDA scan--it is the only test that measures the functioning of the gallbladder. The other tests were a waste of time. Most hospitals are able to do this scan.

debmidge Rising Star

I had gallbladder out Aug 07. All my blood tests and HIDA scan and CT scan were OK, but ultra sound picked up possible polyps with stones. I had a few gall bladder attacks but I had gallbladder disease (a diseased gallbaldder and some stones). I did not have a stone lodged in ducts or anywhere: my gallbladder was just bad....similar to when you appendix is bad. I had Chronic Gallbaldder disease and my gallbladder HAD to be removed. It was making me sick (loss of appetite, back and front abdomen pain and soreness, fatigue). The next step would have been infection of the gallbladder. But all my lab tests were fine (until the week before the surgery and my liver enzymes went up). Oh and I had non stop diarrhea as a symptom, which they tell me is possible, but unusual.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aprilh Apprentice

In some cases a gallbladder cleanse will correct gallbladder stones and help flush stuck stones. A lot of people have gallstones that are never a problem. Removing the gallbladder is unnessecarily removed in a lot of cases and this should be a last resort.

I have recently been having some pains in that area so I am drinking green apple juice (fresh made) because the malic acid helps dissolve the stones.

There is lots of good information on www.mercola.com.

debmidge Rising Star

Be careful about the "flush" because if you get a stone that passes thru the duct and it scratches the lining of the duct, it could make "scar damage" and ruin the duct. A damaged bile duct is serious and they cannot be replaced. They are delicate and only surgeons with a lot of bile duct experience should work on them. This is why doctors tell you not to get involved in those flushes. If you flush out stones you could have an even bigger problem.

Phyllis28 Apprentice

Lisa,

My Gallbladder was removed in Aug 07. My ultrasound was inconclusive and the CAT scan showed slug indicating a possible problem with stones. My bloodwork however showed elevated levels in my liver and pancreous which was do to the stones. I was diagnosed primarily on the symptoms during a gallbladder attack and the blood test results. The surgeon said that my gallbladder was full of stones when he pulled it out.

Keep pushing for the tests you know you need.

Is it possible to see a private practice doctor in Canada? If possible, you may get better care although I expect it would be expensive.

I hope you feel better soon.

tarnalberry Community Regular

do you have a regular general physician - the same person you see for general things - who keeps up on this who can help direct your care? they should be making sure you get the proper tests so that you aren't left in an unnecessary, debilitating position.

Alternative mama Apprentice

I too have done Hulda Clarks Liver cleanse and can't belive how great it went.

This is from www.curezone.com

there is direct link between intrahepatic stones, celiac disease and gallstones, not necessarily casual link.

Intrahepatic stones are usually the first to start forming, or in the same time as gallstones are forming.

Intrahepatic stones block liver function and intestinal function.

Intrahepatic stones cause allergies and celiac disease.

Open Original Shared Link

I had no idea I had gallstones until I did the flush. I was having alot of "acid reflux" indegestion and didn't know why. It completely went away after I flushed out about 70+ stones.

This is the recipe I used:

Open Original Shared Link

and yes......Hulda clark has you work up to the liver cleanse.

debmidge Rising Star
I have been using Dr. Hulda Clark's Liver Flush protocol for more than 15 years and it was a major factor in my survival since I didn't know I was intolerant of gluten. She does not recommend doing the Liver flush until you have (1) done a parasite cleanse to clear the parasites out of the gall bladder system. (2) Done a Kidney Cleanse to dissolve the hard calcuim gallstones which might get stuck in the bile ducts. As an ND she had guided many people through the process and nobody, even the elderly or children, had problems. I followed her advice and it took me a few years to work up to the Liver Cleanse. Since I had so many problems from the unidagnosed Celiac Disease and so many gall stones, at first I would feel quite ill during the flush but I recovered qickly and felt much better after a day or so. One of the gall stones came out with a big piece of metal filling embedded in it so maybe that sort of foreign object could cause scratching - the gall sones themselves are usually quite solt. And if you have done the Kidney Cleanse (the vegetable glycering may contain gluten so don't use it) the hard Calcium stones will either have dissolved or be very small. After a few years I began passing very large stones and I had to push them along to get them out of the common bile duct through my small intestine.

Although there are other Liver Cleanses and Gall Bladder Flushes most people have the best success with Dr. Clarks method but some of these other methods are not as difficult to do. I you do a web search for Liver Cleanses there is a website which lists many of them - one uses coca cola and it works for some people. A local ND conducts Liver Cleanse Weekends where her clients can do this as a group. There is also a Liver Cleanse Forum and I noticed that may celiacs do this procedure.

Dr. HUlda Clark- What is an N.D.?

Just be careful about the flushes.....kidney stones and gall stones are two different areas of the body and do not interchange with each other. I recommend talking to doctor & having tests done to confirm that you have stones in kidney or gall bladder before trying to do any type of flush as you could be making a bad situation worse. Gallstones come in different "varieties" and some can be broken down by medication and some can be flushed out. Unless you know you have one or the other you can be playing with fire. If you damage your common bile duct with a stone via a flush, there's little that can be done to "reconstruct" the bile duct. You need your bile duct to live. Also, you could have polyps in your gallbladder and they can be precursors to cancerous conditions (not likely but still exists).

lmvrbaby Newbie

I too had the ultra sound.....Nothing. Then they did the endoscopy to rule out ulsers and found hiatal hernie and gall bladder problems. We also went as far as to have the HIDA scan which came back with 12.8%. I asked what that meant and was told that is how much it was working. I asked out of 100%. I was told yes. THen told my choice to have it out or not. UMMMMM no brainer, live with pain and eat applesauce for the rest of my life or have it out????????? I had it out a couple weeks later, with all of the tests that is when I was diagnosed with Celiac. Then had a follow up blood test to confirm the rest of biopsies and such. Only one gall bladder attack that did not quit and ended up in the ER. Took two months from day one til surgery, but well worth getting out.

AliB Enthusiast

I had an attack 2 weeks or so ago that I thought was gallbladder. I had been getting terrible pain every time I ate and ended up in hospital with it, thinking my gallbladder was blocked, as my stools had suddenly turned pale and floaty and had then degenerated into liquid diarrhea.

When the Ultrasound was done, there was nothing there. Zilch. The gallbladder was slightly tender, but not leap when it was touched tender.

A few weeks prior to this I had been taking Milk Thistle for a few weeks in an attempt to boost my liver and and surrounding organs and stop my hair falling out which had worked. I had also been drinking lemon juice and water. I vaguely remember seeing a couple of little things floating in the loo that i am now wondering might have been stones as they looked like peas and I hadn't eaten any (I wish I'd captured them now!!!) but I didn't think much of it at the time and flushed the loo and went on my way.

Now I am wondering if I had had some stones, but the Milk Thistle and lemon just managed to clear them out gently without me realising. I am relieved as the last thing I would want is to have my gall-bladder out!

The fatty diarrhea has been a bit of a blessing as it has made me look for other possibilities and I have come up with Celiac for which I have now had a blood test done and am awaiting the results. My symptoms and family history all fit and a light bulb has gone on.

I stopped the gluten on Monday and the pain in my stomach subsided within a few hours although it is still getting bloated and is a little tender. The diarrhea I had for over a week also stopped. My main concern at the moment is symptoms of B12 deficiency which I need to know more about so that is subject for another topic.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,817
    • Most Online (within 30 mins)
      7,748

    Terry49
    Newest Member
    Terry49
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @Kiwifruit, I agree further testing is needed.  Disaccharidase deficiency is a symptom of Celiac disease.   On your test results, this line  "IgA: 0.9 g/l (norm 0.8 - 4.0)" is referring to Total IgA and it's very low.  People with low or deficient Total IgA should also have DGP IgG test done.  Low Total IgA means you are making low levels of tTg  IgA as well, leading to false negatives or "weak positives".  Maybe a DNA test for known Celiac genes.   Anemia, diabetes, and thiamine deficiency can cause test results like these.  Get checked for B12 deficiency anemia and have your iron (ferritin) checked.  Vitamin D deficiency is common, too.   Might be time to find a gastrointestinal doctor who is more familiar with diagnosing Celiac Disease.   Best wishes on your journey!  Please keep us posted on your progress.  
    • trents
      Yes, there is a trend in the medical community to forego the endoscopy/biopsy and grant an official celiac diagnosis based on high tTG-IGA antibody scores alone. This trend started in the UK and is spreading to the USA medical community. And yes, 5-10x the normal level is what I have been seeing as the threshold as well. Here is the relevant section dealing from the article above dealing with the importance of the total IGA test being ordered. See the embedded attachment.
    • hmkr
      Ok, interesting. Not what I was thinking that meant. I'm reading the article and trying to understand. I see this “According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy” My IgG is 90, which is 6 times. So to me that means it's highly likely I do have it. 
    • trents
      It just means you aren't IGA deficient, i.e., that IGA deficiency cannot have given you artificially low scores in the individual IGA celiac antibody tests. This is explained in the article Scott linked above.
    • hmkr
      Normal range: 70 - 400 mg/dL, a little above middle of the range. So what does that mean? Thank you! I will check out that page you linked. Appreciate it! 
×
×
  • Create New...