Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Challenge For 2y/o


celiac-mommy

Recommended Posts

celiac-mommy Collaborator

So we've decided, with the pediatrician to go ahead with the gluten challenge to see of DS's bowel issues and eczema clear up--is it virus or not??? Anyway, I didn't what the norm was for how long to keep him off the gluten. They suggested a week and then see him at the end of next week. Is that long enough, or does it depend on his symptoms and whether or not they clear up? We didn't have to go thru all this stuff before... Thanks in advance for any advice you can give!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Your title confused me, a gluten challenge is usually if you give somebody gluten again who has been off it for a while.

Well, often symptoms take more than a week to clear up on a gluten-free diet. I believe in order to give it an honest chance, a good trial period would be a month, not a week, to see if it makes a significant difference. Especially with eczema it will take a while to start clearing up, if gluten is the problem. On the other hand, bowel problems often start getting better within days, sometimes hours.

It is certainly worth a try. At the same time, you would do well to eliminate dairy as well. Eczema is often caused by dairy.

celiac-mommy Collaborator

I'll rephrase the topic, I wasn't sure what to call it. Thanks for the info though, I didn't think a week was enough. I will definately take it thru his Dr. appt and see if he's doing. I'm getting worried about him. His bottom was bleeding last night, the rash was soooo bad. If I don't change him the minute he poops, he screams in pain. My heart breaks for him. I hope this gets better, I guess I need to rethink the dairy....

Owen'sMom Rookie

I agree to give it at least a month to see if things improve. My sons stools improved within about a week, they weren't perfect but a lot better.

He would also get the diaper rash that bled when we wouldn't change him the second he went. It was horrible to see him in pain like that.

His eczema took a while to get rid of but as long as we keep him off foods he is intolerant of he does fine. Gluten is the biggest offender and he gets sick and vomits the next day after he got a hold of something with gluten in it.

He just got glutened 3 times in a row and now his eczema is horrible again and he was vomitting and wouldn't eat a lot.

celiac-mommy Collaborator
I agree to give it at least a month to see if things improve. My sons stools improved within about a week, they weren't perfect but a lot better.

He would also get the diaper rash that bled when we wouldn't change him the second he went. It was horrible to see him in pain like that.

His eczema took a while to get rid of but as long as we keep him off foods he is intolerant of he does fine. Gluten is the biggest offender and he gets sick and vomits the next day after he got a hold of something with gluten in it.

He just got glutened 3 times in a row and now his eczema is horrible again and he was vomitting and wouldn't eat a lot.

Is his just gluten or is it dairy too?

Worriedtodeath Enthusiast

vaseline works wonders around here and seems better than any diaper creme. Glob it on thick like a paste every time you change him. with my daughter it takes 3 diaper changes for the bloody stuff to heal and about a day for the rawness to not be so raw looking. Keep it thick and hers disappears in about 2-3 days. oh and use only warm water and a very soft thin smooth baby wash cloth for wiping. If I keep this up every single time and keep it thick, it normally keeps the rash at bay. When we let up, she gets that rash.

ANd it took about a solid week for the movements to stop from several times a day to just once or twice a day and to go from mush to stiff. Removing lactose took 2 days to stop the runny runny poop. We went from no gluten to a gluten challenge and 2 months into it , she became lactose deficienct. The poop went from mushy to basic liquid. i now can tell when she has diary because it is runny and snotty looking and the wheat is different looking more like oatmeal or mashed potatoes and so many times more like 8 diapers a day verses one or two. If you suspect diary, cut that out and see if makes any kind of change, then remove wheat. Our gi demanded it be done in that order even when we had an improvement with being gluten free. we had to add wheat back in, remove diary, and then remove wheat when her stomach got worse.

Good luck!

HTH

Stacie

celiac-mommy Collaborator

Vaseline makes it MUCH worse (for us) The only thing that clears it up is Butt-Paste, without fail. It's just that every time he had a BM, it flairs back up. Its been 2 days w/o gluten and he had his 1st solid BM-finally. I know it could still be viral, but I started this so I'm going to see it thru. I think I will just focus on the gluten at the moment and if I don't see an improvement with the eczema I'll do the dairy-- it's hard because it's so cold and dry here right now and we're outside a lot. I think I just need to lock him up in the house and watch him for a few weeks <_< Not realistic, unfortunately ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Owen'sMom Rookie

Owen reacts to gluten, soy, tangerines, blueberries, corn and I'm sure there are more that we haven't figured out yet. We had him strictly dairy free for quite some time but he now does fine with small amounts of cheese and yogurt. I won't give him milk though as he does vomit after a couple of days on it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,862
    • Most Online (within 30 mins)
      7,748

    Aracely
    Newest Member
    Aracely
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Villi damage is caused by celiac disease, which does not happen in NCGS, although some people with NCGS do have elevated antibody levels. Some people with NCGS who have the genes for celiac disease may end up developing celiac disease, so in some people NCGS may be a precursor to celiac disease, but more research needs to be done on NCGS. Both low iron and vitamin D are common symptoms of celiac disease. Also, regarding beer:  
    • Scott Adams
      It’s true that some vaccines contain small amounts of preservatives, stabilizers, or adjuvants to ensure their safety and effectiveness. For example: Thimerosal: A preservative that contains ethylmercury (not to be confused with methylmercury, which is toxic). Most routine vaccines no longer contain thimerosal, except for some flu vaccines in multi-dose vials. Aluminum: Used in very small amounts as an adjuvant to boost the immune response. The amount is far below levels considered harmful, but if you suspect an aluminum allergy, it’s worth discussing with your doctor. Sugar alcohols: These are sometimes used as stabilizers, but they are generally well-tolerated. If you have a known intolerance, you can ask about specific ingredients in each vaccine. Since you mentioned an intolerance to metals and jewelry, it’s a good idea to follow up with allergy testing, as you planned. This can help identify specific metals (e.g., nickel, aluminum) to avoid. Your doctor can then guide you on whether any vaccine ingredients might be a concern. Since the Mayo Clinic has already identified potential allergies, it might be helpful to consult an allergist or immunologist. They can review your medical history, perform tests, and provide personalized advice on vaccines and their ingredients. While it’s important to address your intolerances, it’s also worth considering the risks of not being vaccinated. Many vaccine-preventable diseases can have serious consequences, especially for those with underlying health conditions. 
    • knitty kitty
      @Manaan2, I was on Miralax for several months after I crushed three vertebrae and fractured my hip.  The compression fractures of my vertebrae affected the Vagus nerve that stimulates digestion and intestinal movement, peristalsis. Miralax just didn't relieve the constipation I was experiencing at all.  Nothing budged.  I tried Milk of Magnesia (magnesium oxide) which pulls water into the digestive tract, and found that rather harsh and dehydrating.   Bad idea. I was already taking thiamine in various forms, Benfotiamine, TTFD (tetrahydrofurfuryl  disulfude), Lipothiamine and Allithiamine.  Click on my name, then Activities in the pull down menu to get to my blog to learn more about my journey with thiamine.   Since we need more thiamine when we are physically ill and emotionally stressed, I decided to focus on TTFD,  Benfotiamine, and magnesium l-threonate.  Within a week of increasing my doses a bit, my constipation was gone.  It took several more months to heal the compressed nerve damage.  For pain, I take a combination of TTFD, Pyridoxine B 6, and  Cobalamine B12 which together have an analgesic effect.  I can't function with pharmaceutical pain killers, besides they cause constipation.   Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Yes, I did just stop the Miralax, but I wasn't on it as long as your daughter.  Yes, there's a difference between adults and children.  Yes, my circumstances were different than your daughter's, but thiamine deficiency does affect the nerves and the brain.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function (which activates the Vagus nerve and controls digestion).   I recommend you visit Dr. Chandler Marrs' website, hormonesmatter.com.  Dr. Marrs worked with Dr. Derrick Longsdale, a pioneer in thiamine research, specifically with children and autism spectrum disorders.  She has been very helpful to me when I reached out to her.  She would be better able to guide you about your daughter's care. https://hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/#google_vignette Do stay in touch, please.  You can start another thread or personal message me any time.  My heart goes out to you, your husband, and especially your daughter.   Namaste
    • Manaan2
      @knitty kitty  The information you've provided is invaluable!  I have a lot more homework to do before we make the official switch but you have significantly increased my hope that we can get her off Miralax (she started at 3 years old and is almost 8!).  This weekend my husband and I plan to solidify all the details for a start point, then adjust as we go along.  I realize that everyone's body is different, then there's also the fact that she's a child but just out of curiosity if you don't mind sharing and if you'd rather not, no problem at all-how long did you take Miralax before switching and when you switched, did you just completely stop the Miralax or was there a period where you did Miralax and the supplements?  I plan to research that piece this weekend but just curious what you did.  
    • BIg Nodge
      Scott, thanks so much for the thoughtful replies. My doctor did actually just re-order thyroid labs to see what is going on with my TPOs. I agree that will be interesting information.  I think I know the answer to this, but as far as the biopsy . . .. that would be quite conclusive as far as celiac goes, but a negative result would not rule out NCGS, correct? Does NCGS also cause damage to the lower intestine/leaky gut?  I appreciate the thought that I should be open-minded to other causes. I did not have dysautonomia on my radar, so I will look into that. From a quick scan at the potential symptoms it seems like almost anyone could convince themselves they have it, very broad! I can see why that is a tricky one to diagnose. I did also show low vitamin D, I'm in New England so that is somewhat common. I have a memory of low iron on some lab result as well but I can't find it, so I'll look into that. My cholesterol is high too, so working on that.  While the initial adjustment was tough, I have actually adapted fairly well to going gluten-free at home. The tough part for me is I love eating out and traveling, so that has been a challenge. I suppose if the answer ends up being NCGS then I could maintain a mostly gluten-free diet but also experiment with the occasional splurges. Snowboarding just doesn't feel right without a beer in the lodge . . ... cider is just not the same!  Thanks again.  
×
×
  • Create New...