Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tempted To Test Gluten

Lizz7711

Recommended Posts

Lizz7711 Apprentice
Lizz7711
Posted

I've been gluten-free and CF for two months now and I really haven't noticed any major changes. I was only experiencing minor digestive issues which are improved somewhat but not in a big way. When i've inadvertently gotten casein, i"ve noticed right away with body issues (headache, joint pain, sleepiness). Since i've been so good with the gluten, a part of me is tempted to just try a piece of bread. NOT to say I can then have it in my daily life...just to see what happens...almost hoping to have a bad reaction to help me know that my body must be getting better even if I feel the same. Anyone else ever do this? I never had diarrhea before from gluten, or nausea, but i've read alot of people having this reaction when "glutened". Did you have that problem beforehand or was that new after being gluten-free for a while? I'm curious to test this in myself...but also scared, lol!

thanks,

Liz

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I do not think two months is enough time to heal. If you want to heal you should not risk anything just to see what would happen.

happygirl Collaborator
happygirl
Posted

Were you diagnosed via bloodwork/biopsy for Celiac?

Lizz7711 Apprentice
Lizz7711
Posted
  • Author

That's one of the reasons I thought it wouldn't be so bad to test now as the reaction may not kill me :) I'm not saying it's "smart", but I keep reading about people getting deathly ill...and I just want to know what MY body will do. Maybe my reaction will be more like I have with casein...it would just be nice to know ahead of time.

I do not think two months is enough time to heal. If you want to heal you should not risk anything just to see what would happen.
Lizz7711 Apprentice
Lizz7711
Posted
  • Author

Yes, positive Enterolab stool tests...positive blood tests, no biopsy...also have DQ2 gene.

Were you diagnosed via bloodwork/biopsy for Celiac?
Lizz7711 Apprentice
Lizz7711
Posted
  • Author

I should add that I have recently been diagnosed with adrenal fatigue and hypothyroid--so i'm assuming that that is how the gluten manifested itself for me. Thing is, none of those symptoms have improved since going gluten-free either, but I am starting hypo meds and have been taking hydrocortisone for adrenal fatigue for past 5 months which has helped incredibly with my energy and ability to handle stress.

Were you diagnosed via bloodwork/biopsy for Celiac?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,133
    • Most Online (within 30 mins)
      7,748
    Spicer12
    Newest Member
    Spicer12
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Skg414228
      Does High DGP IGA Typically Mean Celiac?

      By Skg414228 · Posted

      I went to the gastroenterologist for what I thought was IBS. They thought it sounded like celiac. I got a blood test with normal everything except a deamidated gliadine peptide iga of 688. Total iga was in normal range so not deficient.    My question is with a dgp iga like that is it pretty much only celiac at that point. I haven’t seen anything else that would cause the dgp iga to be that high. Already have the biopsy scheduled so nothing is going to change I’m just curious what else it could be and is the number high enough that I should really be preparing expecting a positive biopsy and it’s just a confirmation at this point? 
    • Aussie Celiac
      Increasing symptoms after going gluten free

      By Aussie Celiac · Posted

      Sometimes celiacs can also have other things like lactose intolerance which is fairly common. Also research fodmap foods, it's quite complicated but there are some other foods which can cause digestive issues. For me it's too many onions and garlic.
    • Wheatwacked
      Less than 10 parts per billion issues

      By Wheatwacked · Posted

      You may be reacting to some of the ingredients used to imitate gluten products. I eat Amy's Chilli quite often with no problems. When I eat Bush's chilli beans or Hormel Chilli with the same ingredient list, I get heartburn.  Break out the alka seltzer.   Barillo spaghetti has CORN FLOUR, RICE FLOUR, MONO AND DIGLYCERIDES. Udi's White bread Ingredients - water, tapioca starch, brown rice flour, canola oil, dried egg whites, sugar, tapioca maltodextrin, tapioca syrup, sorghum flour, less than 2% of: rice starch, sorghum grain, flaxseed meal,  gum blend (xanthan gum, sodium alginate, guar gum), apple cider vinegar, apple fiber, molasses, salt, amaranth flour, teff flour, yeast, cultured brown rice, locust bean gum, enzymes Chobani Greek Yogurt Cultured nonfat milk, cane sugar, water, natural flavors, fruit pectin, guar gum, locust bean gum, vanilla extract, lemon juice concentrate.
    • Soleihey
      Endoscopy

      By Soleihey · Posted

      My TTG was 167 one year ago. Recently had it retested one month ago and it went down to 16. I only recently had an endoscopy done as I was pregnant within the last year. I did not eat gluten prior to this endoscopy as I get very sick. Prior to obtaining the biopsies, the endoscopy said “ diffuse moderately erythematous mucosa to the second part of the duodenum without bleeding.” However, the biopsy came back negative. I assume it’s a false negative as I have also had genetic testing to confirm celiac. However, what would cause the inflammation to the second part of the duodenum and continued positive blood markers if the intestines have healed?
    • TerryinCO
      Status Update...

      By TerryinCO · Posted

      Thank you for direction.  Eating out is a concern though we rarely do, but I'm prepared now.
×
×
  • Create New...