Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fertile After Going Gluten Free. Suprise!


JENinMICH

Recommended Posts

JENinMICH Newbie

I'm 35 and have had 5 years of infertility. I had four doctors say never, ever and that I had bad eggs (menopause). I didn't even make any follicles despite fertility drugs.

I was very ill this year, terrible diarrhea, reflux, nausea, iron deficiency anemia, Vit D def, mouth sores, depression, bad fibromyalgia, and weakness. My antibody tests were negative (which I HAD to demand) and I diagnosed myself because my GI doc thought I was a hypochondriac.

I stopped eating wheat in July and almost all my symtpoms went away! November 10th, I started eating again because they wanted to do a biopsy. After three weeks I found out I was pregnant!!!!!!! I'm four months along and immediately went back to doing Gluten Free!

How can they not be related? Honestly!!! Doctors stink.

Now if I could just them to check my vitamin levels as well.

They won't do it!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



angel-jd1 Community Regular

Congrats on the pregnancy!!! I am sure you are super excited!! It is amazing what dietary changes can do for our bodies. Modern medicine doesn't ALWAYS know it all. Stay healthy and keep us posted on your progress!!

-Jessica

blueeyedmanda Community Regular

Congrats on the Pregnancy!!!!!!! Very exciting news!!!

skichikk18 Rookie

Congrats on being pregnant. I am also in a similar situation. I went gluten free about a month ago because of GI issues. My gastro actually suggested it though. I also have been trying for 2 1/2 years to get pregnant with no luck. Maybe this month will be my lucky one! I am going through all those wonderful shots. I am hoping it works, I feel so much better after going gluten free it has to help. Or so I keep telling myself!!!

lizard00 Enthusiast

Congratulations on your good news!!!! I'm pretty sure your going gluten-free had a huge hand in your situation turning around!

  • 2 weeks later...
alamaz Collaborator

Congrats! I went gluten-free in Feb. 2007, DH went gluten-free June 2007 and August 2007 I was pregnant :P I think going gluten-free is the best thing a woman with fertility issues can do! Good luck with your pregnancy!

Ursa Major Collaborator

Jen, that is exciting news! And it doesn't surprise me a bit.

If your doctor won't check your vitamin and mineral levels, it may be time to find yourself a new doctor.

In the meantime, take a good prenatal vitamin that has folic acid in it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



loco-ladi Contributor
I'm 35 and have had 5 years of infertility. I had four doctors say never, ever and that I had bad eggs (menopause). I didn't even make any follicles despite fertility drugs.

I was very ill this year, terrible diarrhea, reflux, nausea, iron deficiency anemia, Vit D def, mouth sores, depression, bad fibromyalgia, and weakness. My antibody tests were negative (which I HAD to demand) and I diagnosed myself because my GI doc thought I was a hypochondriac.

I stopped eating wheat in July and almost all my symtpoms went away! November 10th, I started eating again because they wanted to do a biopsy. After three weeks I found out I was pregnant!!!!!!! I'm four months along and immediately went back to doing Gluten Free!

How can they not be related? Honestly!!! Doctors stink.

Now if I could just them to check my vitamin levels as well.

They won't do it!

Jen, that is exciting news! And it doesn't surprise me a bit.

If your doctor won't check your vitamin and mineral levels, it may be time to find yourself a new doctor.

In the meantime, take a good prenatal vitamin that has folic acid in it.

I recently went to my doctor and had them order blood test to check my levels, but then I didn't exactly "ask" I told... there is a difference

Take charge of your health its your life and your money they are using to play gold at the country club if they dont want to do what you want time to send a different doctor to play golf!

  • 1 month later...
caz999 Newbie

hi there i'm going through something very similar, i had problems getting pregnant 6 years ago the said it was just unexplained infertility i had no scans etc and they put me on clomid and luckily i fell pregnant 1st time.

My daughter whos 4 has been diagnosed with coeliac for 3 years, me and my husband have never been tested for it don't know why.

Well we have started trying again for another baby for the first 6 months onour own then my G.P put me back on clomid for 6 months with no joy.

They now think i have poly cystic ovaries but as before now follow up no scan etc just guessing they have put me on Metformin and have been on them for 4 months know.

After internet search etc and coeliac uk help, coeliac cans cause unexplained fertility, so approched my G.p today and after demanding a coeliac test (they did'nt even know it causes infertility) so have to wait 1 week for results, so hopefully there will be good news.

I think it pays to demand things from gp's if you think you might be right.

mommida Enthusiast

:D Congratulations!!!! :D

I think the gluten free diet had something to do with it too!

To all the others,

Good Luck!

Laura

kyga Rookie

I have a similar story. I went gluten-free at the end of January, just based on a hunch, and I found out last weekend that I'm pregnant after two years of trying! This is very fast. Could that be it?

My celiac blood panel was negative but I have one of the two genes. It could be a coincidence, but I doubt it. I can't know for sure because since I'm pregnant they can't do an endoscopy. My sister said she had heard of someone getting diagnosed via MRI. Has anyone heard of this?

  • 11 months later...
Gracie21 Newbie
I have a similar story. I went gluten-free at the end of January, just based on a hunch, and I found out last weekend that I'm pregnant after two years of trying! This is very fast. Could that be it?

My celiac blood panel was negative but I have one of the two genes. It could be a coincidence, but I doubt it. I can't know for sure because since I'm pregnant they can't do an endoscopy. My sister said she had heard of someone getting diagnosed via MRI. Has anyone heard of this?

Hi,

I have never had any gastro intestinal problems but my husband and I have been TTC for 11months now without any luck (I'm 36). We've both been tested for many things and everything is normal so I've been told it is "unxplained" infertility by my OBGYN. I recently heard of someone who struggled with unexplained iinfertility for 3 years saw a naturopath and went glutten free-3 months later she was pregnant. I know I am not gluten intolerant but maybe I am gluten sensitive? I am low iron even with supplements and I have low blood sugar though it tests normal but I go to the dark side if I don't eat often. My naturopath is teaching me how to balance my blood sugar. I am staring a gluten free diet now hoping this is the answer. I'm starting my third cycle of clomid but no luck so far.

I wonder if my urinary tract infections could be linked to this? Low iron, itchy skin, brain fog, blood sugar sensitivities? Unexplained infertility? Am I reaching?

  • 4 weeks later...
Mrs. Smith Explorer

I am literally crying while reading this. I had tried 3yrs to get pregnant with one misscarrage and finally gave up. About a week ago I realised that its all gluten related! I am so angry and sad but VERY hopeful. Im currently not trying but this makes me think after I heal some more I may just try again! Thank you!

  • 1 month later...
elm77 Newbie
Congrats on being pregnant. I am also in a similar situation. I went gluten free about a month ago because of GI issues. My gastro actually suggested it though. I also have been trying for 2 1/2 years to get pregnant with no luck. Maybe this month will be my lucky one! I am going through all those wonderful shots. I am hoping it works, I feel so much better after going gluten free it has to help. Or so I keep telling myself!!!

Wow, our stories are very similar also.....

My husband and I have been trying for 2.5 yrs and nothing. I had the tests, procedures, pills and everything else under the sun and still nothing. I was diagnosed as a Celiac 3 months ago (endoscopy) and have been gluten-free. We are still trying and i'm feeling much much better. I was trying not to get my hopes too high, but i honestly keep telling myself it is going to happen, much like you. I've had cysts before and know those pains. This week, i started to feel them again, went back to my doctor and had an US done. She actually had good news.....I was ovulating and not only that I had 3 follicles on my one ovary that looked good.....you know the rest of the story.

So i'm very excited to see what happens in a few weeks with my menstrual cycle or hopefully, lack thereof. Now my hopes are a little higher. I wonder however if i'm crazy and this is a little too soon for my body to be healed or if things could truly change that quickly.

Keep me posted on your progress.

  • 2 weeks later...
Jamie1763 Newbie

Congrats! I'm hopin for the same results for myself now that I am gluten-free! Wish you all the best of luck!

Aren Newbie

Wow - it's amazing what a diet change will do. I had been trying for two years to have a baby and thought nothing was happening due to the birth control I started on three years ago. Stopped that after feeling side effects :angry: !! Not knowing anything about the gluten/fertility connection, I went gluten free to lose weight and feel better (and boy did I!) Three months later!! Surprise - I was pregnant (thank you, Lord!) I was totally not expecting it!

I definitely feel there is a link. I am now trying to convince my fully in-love-with gluten sister who has been trying five years to have a baby. She is a total nonbeliever. She even just had a miscarriage (a first step in the long process doctors put you through to conceive), so she's pretty distraught. What a huge change to your diet - but so worth it!!

  • 5 weeks later...
shirleyujest Contributor

Congratulations on your joyful news! That must make it so worth it that you persisted.

Regarding vitamin testing, why not go to a nutritionist? With all your symptoms I would think your insurance would cover food allergy and vit. deficiency testing, and especially now that you're pregnant you can justify making sure all bases are covered. In meantime I'm betting you're started taking multiples w/folic acid.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,817
    • Most Online (within 30 mins)
      7,748

    Terry49
    Newest Member
    Terry49
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • ABP2025
      Got it. Thanks Scott. I'll set up an appointment with a GI after the holidays and get all the celiac disease screening done. Thanks to this amazing forum and to all who have answered my question, I now know what my next steps are.
    • ABP2025
      Aah it sucks that there's no definitive way to confirm NCGS or celiac. I've found a GI clinic that is covered by my insurance and I'll contact them after the holidays to setup an appointment. I hope to get some sort of clarity with further tests. 
    • ABP2025
      Thanks @knitty kitty. I didn't know about thiamine deficiency before you had mentioned it. I'm doing more research into what it is and how I can test for that deficiency. Is Vitamin B1 test the best way to find it? I saw that there is another test: Erythrocyte transketolase activity coefficient (ETKAC) assay to test for thiamine deficiency but I'm not sure how that test is done. Is that something I can take on my own or do I need GI referral. If it does turn out that I'm thiamine deficient, does that confirm that I have celiac disease or could it just mean that I have not been consuming Vitamin B1 rich food and once I address that with a supplement or food, I would no longer be thiamine deficient? Also full disclosure, I'm a vegetarian and only last year I found out that my Vitamin D level was very low. It was 3.7 ng/ml and the ideal range is >29.9 ng/ml. After a year of taking multivitamin supplement, my Vitamin D level has gone up to 27 ng/ml. Though it's better than 3.7 ng/ml, it's still below the range. I'm not sure for how long my Vitamin D level was around 3.7 ng/ml before 2023 as I didn't have my Vitamin D test taken prior to that. My doctor also wanted to check my Vitamin B12 level as I might not be getting enough of it from vegetarian sources. When I took that test last year, Vitamin B12 was 247 pg/ml and ideal range is 200-1100 pg/ml. So it's still within the range though it's on the lower end of the ideal range. I also have recently started taking vitamin b-complex tablets daily. I've never checked other Vitamin B levels including Vitamin B1. Do you know if such a very low level of Vitamin D and moderately lower level of Vitamin B12 would cause celiac disease or may contribute to some of the symptoms I've been experiencing? Regarding the DNA test to test celiac genes, are you referring to HLA DQ2 and HLA DQ8 tests? As soon as I got the result where my IgG was above range, I had ordered the "HLA Typing for Celiac Disease" test in Quest Diagnostics which measures HLA DQ2 and HLA DQ8. The test is 2 weeks from now and I'll post my results here once I receive them.  
    • Russ H
      Small amounts of gliadin are detectable in some samples of human breast milk but these are at too low a level to cause symptoms. No gliadin has been detected in the beef of grain-fed cattle.   https://pmc.ncbi.nlm.nih.gov/articles/PMC5622696/
    • knitty kitty
      Welcome to the forum, @Kiwifruit, I agree further testing is needed.  Disaccharidase deficiency is a symptom of Celiac disease.   On your test results, this line  "IgA: 0.9 g/l (norm 0.8 - 4.0)" is referring to Total IgA and it's very low.  People with low or deficient Total IgA should also have DGP IgG test done.  Low Total IgA means you are making low levels of tTg  IgA as well, leading to false negatives or "weak positives".  Maybe a DNA test for known Celiac genes.   Anemia, diabetes, and thiamine deficiency can cause test results like these.  Get checked for B12 deficiency anemia and have your iron (ferritin) checked.  Vitamin D deficiency is common, too.   Might be time to find a gastrointestinal doctor who is more familiar with diagnosing Celiac Disease.   Best wishes on your journey!  Please keep us posted on your progress.  
×
×
  • Create New...