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Recent Activity
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- pmarklesparkle replied to Itchyperson's topic in Dermatitis Herpetiformis25
Cycle of dermatitis herpetiformis
Thank you! I will try this. -
- pmarklesparkle posted a topic in Dermatitis Herpetiformis0
Best apps for people with celiac
I was diagnosed with dermatitis herpetiformis and ultimately celiac disease in September 2024. I am trying to navigate the world with celiac, unsuccessfully, still having dermatitis herpetiformis outbreaks. Grocery shopping is difficult, shopping for toiletries is nearly impossible. Dining out is also a challenge. Can anyone recommend iPhone apps that will... -
- trents replied to Itchyperson's topic in Dermatitis Herpetiformis25
Cycle of dermatitis herpetiformis
Welcome to the forum, @pmarklesparkle! Thanks for sharing your diagnostic journey as it may be helpful to others who are getting mixed results during the diagnostic phase. Kudos to the gastro NP who dug deeper and ordered the endoscopy/biopsy. You may also wish to investigate a low iodine diet to get a handle on your continued outbreaks of... -
- pmarklesparkle replied to Itchyperson's topic in Dermatitis Herpetiformis25
Cycle of dermatitis herpetiformis
After seeing 2 doctors for a rash on my elbows and forearms, that did NOT get better with steroids or creams, I was directed to a dermatologist. She took a biopsy from one of the lesions, September 3, 2024. A week later, the result was dermatitis herpetiformis, positive for celiac. She prescribed Clobetasol Propionate USP, 0.05% cream. This is the only... -
- trents replied to kim-d's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Postponing seeking a diagnosis?
Although the gluten challenge guidelines suggest at least two weeks of at least 10g of gluten daily, I would go for 4 weeks to make sure - if you can tolerate it, that is. When you go in for the blood draw, make sure to ask your physician to order not only the tTG-IGA test but the total IGA test. The tTG-IGA test result cannot be trusted if you are IGA...
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