Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Gi Problems


kochac

Recommended Posts

kochac Rookie

Hi all,

I see there are a couple sort of similar threads here but I thought I'd start a new one to explain my specific situation. I started having GI and other celiac symptoms (chronic fatigue, moodiness, etc.) about two years ago and have been gluten-free for a year and a half now. There's no question in my mind that it's celiac disease because it definitely runs in my family and cutting out the gluten solved everything - until now. For the past few weeks I've been having mild diarrhea, weepiness for no reason, and am starting to be concerned. I haven't changed my eating habits at all so I don't think it's a question of cross-contamination or hidden glutens or anything like that. I tried cutting out dairy for a few days but didn't notice any change so I've gone back. Does anybody have any experience with situations like this? My sister was lactose intolerant before she knew she was a celiac, but once she cut out the gluten she was able to digest lactose again so if that's it it seems weird to me that it would happen in the reverse order - why would cutting out gluten make me intolerant to a new food? Thanks for any thoughts/advice you have.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Glutenfreefamily Enthusiast

I had the same issues and its actually very common on here. I was told it was because you are healing and you are absorbing foods again instead of them just passing right on through you. These intolerances are not probably new. They have likely always been there and now your body is feeling the effects of them. The most popular intolerances I have seen on here are casein, soy, lectin, and corn and I have seen a few with a rice intolerance. Some like me cant handle fats and high protein either.

An elimination diet is a good place to start, start with very basic foods that you are aware of that do not bother you and add one in a week to see if you react to it.

A lactose intolerance is a bit different than these other intolerances. Lactase (what is required to break down lactose) is at the tip of the villi since this would be the first thing to get broken down and destroyed its very common to have a lactose intolerance and once you start healing and it grows back in and you are able to handle it again. Depending on how much damage you have would influence the amount of time it takes for it to grow back.

gfcookie Newbie
Hi all,

I see there are a couple sort of similar threads here but I thought I'd start a new one to explain my specific situation. I started having GI and other celiac symptoms (chronic fatigue, moodiness, etc.) about two years ago and have been gluten-free for a year and a half now. There's no question in my mind that it's celiac disease because it definitely runs in my family and cutting out the gluten solved everything - until now. For the past few weeks I've been having mild diarrhea, weepiness for no reason, and am starting to be concerned. I haven't changed my eating habits at all so I don't think it's a question of cross-contamination or hidden glutens or anything like that. I tried cutting out dairy for a few days but didn't notice any change so I've gone back. Does anybody have any experience with situations like this? My sister was lactose intolerant before she knew she was a celiac, but once she cut out the gluten she was able to digest lactose again so if that's it it seems weird to me that it would happen in the reverse order - why would cutting out gluten make me intolerant to a new food? Thanks for any thoughts/advice you have.

So, did you ever get a diagnosis of celiac disease? or just figure it out for yourself? If you just sort of concluded it on your own, you should go to a doctor, because, it might not even be celiac. Many people who self diagnose benefit from a gluten-free diet but don't even have celiac. My mom eats gluten-free with me every summer when she visits, and she feels wonderful on that diet. The thing is, if celiac runs in your family, other autoimmune diseases probably do also, and, you could have something other than celiac, and still feel better on a gluten-free diet even if it's not celiac simply bc it's a much healthier diet.

Even if you have an "official" diagnosis, you should still get yourself to a GI ASAP, because, if the problem is persisting, it could be something else, especially if you are eating gluten-free. Many celiacs also have another GI issue, chrons, colitis, gastropareisis... especially if it doesn't seemed related to food, go see your doctor. It's sort of dangerous to "self diagnose" in certain cases. Especially if you went gluten-free later on in life, it's possible you have another connected issue. Sorry this post has turned into a small novel, the important thing is, don't self diagnose! You shoudln't have to go through life moody and crying and sick. Keep us all posted! Hope you get it figured out:)

p.s.- i'm not knocking self diagnoses, i'm a big fan of doing whatever makes you feel better, however, in this case, since you dont' even know if you really have celiac or just benefit from being gluten-free, i would go see a doctor and really find out whats up!

Glutenfreefamily Enthusiast

I just wanted to add one thing, dont allow a non diagnostic test keep you from not eating gluten. Just because its not what dr's tests would consider celiac doesnt mean it wont do damage to you in other ways including autoimmune disorders. I agree get checked out but dont feel the dr's opinion is the end all be all.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Lburnett's topic in Related Issues & Disorders
      3

      Labs

    2. - Lburnett replied to Lburnett's topic in Related Issues & Disorders
      3

      Labs

    3. - ChrisSeth replied to ChrisSeth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Waiting on Blood test results…

    4. - Beck1430 replied to Beck1430's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Reaction to gluten or gastro bug?

    5. - trents replied to Lburnett's topic in Related Issues & Disorders
      3

      Labs


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,419
    • Most Online (within 30 mins)
      7,748

    HMM1
    Newest Member
    HMM1
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Chronic mildly elevated liver enzymes was what eventually led to my celiac diagnosis but it took thirteen years to ferret that out and by that time I had developed osteopenia.  Yes, you've got a lot going on there in the way of autoimmune disorders and all of them we now know have a connection with celiac disease. It is true that autoimmune disorders tend to cluster. But it sounds like you are getting medical attention and keeping an eye on things. 
    • Lburnett
      Thank you! Yes, I have celiac disease, lupus and Sjögrens. My ALT and AST have been chronically slightly elevated for a couple years and recently had an acute kidney injury (thinking it was from an antibiotic) with increased Lipase. So my primary doctor referred me to a kidney specialist. Other kidney labs are normal. 
    • ChrisSeth
      My test results for TissueTransglutaminase IgA Antibody test came back normal. Like spot on normal. I do not have celiac! My problems are stemming from this H Pylori infection. I think I’ve had it for years. We’ll see if the doctor wants to do an endoscopy to see how extensive the damage is. Otherwise just a regimen of antibiotics will do the trick. The thanks for your guys’s help! 
    • Beck1430
      Thank you both so much for taking the time to reply.    Cristiana - yes the rashes seemed to resolve when he came off gluten too. I haven’t seen those pictures before, thanks for pointing me to them. I’d say his rash isn’t like the more severe photos which are scabbed and very bumpy. His rash is more like lots and lots of patches of eczema than spots. No we have no celiac in the family to my knowledge, though my mum and sister both have autoimmune diseases and wheat sensitivity. I think you’re right and I’ll have to do another trial to confirm if it was the wheat. I’ve been hoping all day that I come down with the bug to rule out the wheat reaction! But the rest of the family are absolutely fine.    Trents - thank you for the info regarding the genes. That’s very interesting and I’d definitely consider doing that as a way to rule it out without putting him back on wheat. I also didn’t know celiacs were commonly intolerant to dairy and soy. I think you’re right and there is definitely enough factors to show something is going on. I think I’ll do a repeat trial of the wheat challenge and if he reacts again I shall look into the genetic testing.    Thank you both so much for your time. Becky          
    • trents
      Welcome to the forum, @Lburnett! Have you been officially diagnosed with celiac disease? I'm just trying to get a handle on the health context from which your question comes.
×
×
  • Create New...