Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Our Numbers Are Slipping


Mom23boys

Recommended Posts

Lisa Mentor
Were you able to vote today? I can't find it!!!

I went to the second post (in this thread - by Judy) and clicked on the link. I could vote.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 58
  • Created
  • Last Reply
loco-ladi Contributor

voted, and even left a posting, will see what happens

hayley3 Contributor

The page has changed and you have to click on the link to the right that says, "Big Idea Bake Off".

Were you able to vote today? I can't find it!!!
Judyin Philly Enthusiast

Open Original Shared Link

GOING TO TRY TO VOTE WITH THIS OLD ONE.

AH.......THAT ONE DOESN'T WORK ANY MORE. THE WHOLE SITE HAS CHANGED.

DID FINALLY FIND IT AND WILL POST THIS TO SEE WHAT THE DIFFERENCE IS.

Open Original Shared Link

GEEZZ............SHE'S NOT MAKING IT EASY.............YOU HAVE TO SCROLL ALL THE WAY DOWN THE PAGE.........WHEN I DID A GOOGLE THE HOME PAGE CAME UP AND THERE WAS SOMETHING ABOUT DOG BOWLS..........

OR SOMETHING ABOUT DOGS...........

:ph34r::(:angry: STARTING NOT TO EVEN CARE...........LET HER DO WHAT SHE WANTS WITH HER $$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$ :ph34r::( RATHER SAD I'D SAY. tODAY IS THE 7TH..SO GUESS SHE'S TIRED OF THIS.

OK JUST CHECKED IT AGAIN AND THE PAGE IS THE SAME AS IT WAS.........WASN'T LISTED BEFORE.

GUESS WE CAN STILL VOTE NOW..................HOLY MOLEY...........YOU THINK SHE REALLY WANTED OUR OPINIONS?

JUDY

Lisa Mentor
Open Original Shared Link

GOING TO TRY TO VOTE WITH THIS OLD ONE.

AH.......THAT ONE DOESN'T WORK ANY MORE. THE WHOLE SITE HAS CHANGED.

DID FINALLY FIND IT AND WILL POST THIS TO SEE WHAT THE DIFFERENCE IS.

Open Original Shared Link

JUDY

Open Original Shared Link

this worked for me a few minutes ago.

jerseyangel Proficient
Open Original Shared Link

this worked for me a few minutes ago.

That one still works for me, too. I emailed it to Mark, and it also worked for him.

Judyin Philly Enthusiast

LIsa

Thanks funny..........mine didn't work .........then went into the back door under a new title on the home page and found it.

heck, i've voted enough..........as i said earlier..........there are so many people writing notes of support........will be interesting to see what she says on the show on the 12th.

thanks Lisa.........at least if folks want to vote, there are some options easier to get to.

judy

ps......just read Patti's too...........guess it's just me..........nap time................


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mom23boys Contributor
Scrapbooking is more up her alley in the crafty sense.

Most scrapbookers I know tend to disagree!! :o

Judyin Philly Enthusiast

The old link worked for me now and since the site was down when i went on......maybe they were up dating it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,882
    • Most Online (within 30 mins)
      7,748

    tina.walstad
    Newest Member
    tina.walstad
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • gregoryC
      Just finished my second celebrity cruise. My first was on one of their oldest ships, it was awesome! Now we have sailed on the edge class. Wow! Not only do they have so many gluten-free options but the selection is mind blowing! Any given day you will have between 5 to 7 different gluten-free cakes to try. Yes that is right, one day at the coffee shop I had to choose between 5 gluten-free cakes not including the several puddings on display. So they gave me a small piece of each. 2 were great, 2 were just good, and 1 I did not enjoy. But never have I had the tough decision of which cake to eat?  These selections are from their normal options available for all guest. In the main dining room they always surprised me with some awesome desserts.  In my opinion the best pizza was on the Millennium class and best buffet on the Edge class. Although these two ship vary in size they are both consistent and serving high quality food from the main dinning room. The edge class gives you 4 “main” dining rooms (all included). I was unsure how this would work with my gluten-free diet? It worked great! I was able to order or see the next night’s menu for each of the four dinning venues finding that very little to no modifications needed to be made due to their extensive gluten free options.  The Millennium and Edge class ships provide the best gluten-free options from any of the cruise lines I have sailed with. You will find a larger selection and options on the edge class ships, however you will not be disappointed with the smaller Millennium class. Which is still my favorite cruise ship to date.   
    • trents
      Welcome to the forum, @ABP! We can't comment on the test numbers you give as you didn't include the range for negative. Different labs use different units and different ranges. There are no industry standards for this so we need more information. If your daughter doesn't have celiac disease she still could have NCGS (Non Celiac Gluten Sensitivity) which some experts believe can be a precursor to celiac disease and is 10x more common than celiac disease. However, there is no test for it yet but it does share many of the same symptoms with celiac disease. Both require complete abstinence from gluten.  It is seldom the case during testing where all tests are positive, even for those who do have celiac disease. This is no different than when diagnosing other medical conditions and that is why it is typical to run numbers of tests that come at things from different angles when seeking to arrive at a diagnosis. It seems like you are at the point, since you have had both blood antibody testing and endoscopy/biopsy done, that you need to trial the gluten free diet. If her symptoms improve then you know all you need to know, whatever you label you want to give it. But given that apparently at least one celiac antibody blood test is positive and she has classic celiac symptoms such as slow growth, constipation and bloating, my money would be on celiac disease as opposed to NCGS.
    • ABP
      My nine-year-old daughter has suffered with severe constipation and bloating for years as well as frequent mouth sores, and keratosis Polaris on her arms. She also has recently decreased on her growth curve her % going down gradually.  After seeing a gastroenterologist, her IgG GLIADIN (DEAMIDATED) AB (IGG) was 22.4 while her IGA was normal. Her TISSUE TRANSGLUTAMINASE AB, IGA was 11.9.  Most recently her genetic test for celiac was positive.  After an endoscopy her tissue showed inflammation of the tissue as well as , increased intraepithelial lymphocytes (IELs) but there was no blunting of the change in the villi.    It seems that every result that we get one out of two things positive rather than all leading to an inconclusive diagnosis. While we do have another appointment with the doctor to go over the results. I'm curious based on this information what others think.    I would hate to have her eliminate gluten if not necessary- but also don't want to not remove if it is necessary.    Signed Confused and Concerned Mama
    • Scott Adams
      I guess using "GF" instead of "PL" would have been too easy! 😉
    • trents
      I was wrong, however, about there being no particular health concerns associated with high total IGA: https://www.inspire.com/resources/chronic-disease/understanding-high-iga-levels-causes-impacts/ So maybe the physician's "borderline" remark is relevant to that.
×
×
  • Create New...