Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fell Off The Wagon


Muzz

Recommended Posts

Muzz Rookie

I joined last week, had been gluten-free for 6 days but tonight was out GD 2nd bday and the sight of pizza was too much for me and I broke down and ate 2 pieces. I really hadn't been having too tough of a time with the dietary changes, in fact I was prob eating a bit healthier, subbing a banana or an apple for a few crackers for a snack. Is this a makor setback?

Also, I need to know..altho I was only gluten-free for 6 days, should I have not experienced SOME kind of difference? Less bloating, stomach discomfort, fatigue? I didn't feel any better at all. Now, I know that the vets will poo-poo this and tell me it take mths and yrs to see a real diff but should I notice ANY diff at all right away or is that wishful thinking ? :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient
  Muzz said:
I joined last week, had been gluten-free for 6 days but tonight was out GD 2nd bday and the sight of pizza was too much for me and I broke down and ate 2 pieces. I really hadn't been having too tough of a time with the dietary changes, in fact I was prob eating a bit healthier, subbing a banana or an apple for a few crackers for a snack. Is this a makor setback?

Also, I need to know..altho I was only gluten-free for 6 days, should I have not experienced SOME kind of difference? Less bloating, stomach discomfort, fatigue? I didn't feel any better at all. Now, I know that the vets will poo-poo this and tell me it take mths and yrs to see a real diff but should I notice ANY diff at all right away or is that wishful thinking ? :)

____________________________________________________________________________________________________

______________

Hi Muzz:

I think it is pretty much unique for each individual. From what I have read some have incredible changes right away, others just keep plugging on and pretty soon become aware they are feeling better. For me, the arthritis symptoms abated in two months (but unfortunately last night they started coming back so it may have just been a normal flare/regression :( . My bloating and insomnia and other gastro symptoms took about two or three weeks to recede, but come back the next day if I get glutened, but fortunately only last a day or so. We all go "off the wagon" at some point, sometimes intentionally, sometimes accidentally. I was in the supermarket and they were offering samples of a new hummus dip. I carefully checked out that it was gluten free before I tried it, and then realised I had sampled it on a piece of melba toast!! Ouch. Told him he should have some Sakata crackers. My psoriasis is still receding little by little, probably never will totally go away because that is the nature of the beast, but at least I don't feel like I have chicken pox any more, like I did for the last three years. (I have been gluten-free since November)

Don't give up, because the improvement will come, and it will get easier to resist the pizza once that happens.

Neroli

psawyer Proficient

Reactions vary. After only six days without gluten, a relapse to gluten will not be that alien to your system, so a noticeable adverse effect is unlikely. It does take time for your body to recover from years of exposure to gluten.

Move forward. No more gluten. You can do it.

RiceGuy Collaborator

Once you see improvements, it will be much easier to resist. But, you do need to hold on to your willpower long enough to get those benefits. Yes, it does take time for many, though not everyone, to get real improvement. I was gluten-free for six months before I noticed much of anything, and during that time I wondered every so often if I was on the right track. Then suddenly, like out of nowhere, boom! Boy oh boy did things start changing! Then I really knew I had struck gold.

dbmamaz Explorer

I know it sounds weird, but you might want to bring something for you to eat which is similar to what's being served. I havent tried it since I'm also off dairy, but Amy's apparently makes awesome gluten-free pizza.

On the other hand, cutting out dairy too might help your symptoms ease up more quickly . ..

Muzz Rookie

TY all....I'll just consider this a minor relapse :) I was going to take something to munch on at the party but got in a hurry and forgot. My family isn't a prob, they're used to seeing me not eat much at family functions ;)

gfcookie Newbie
  Muzz said:
I joined last week, had been gluten-free for 6 days but tonight was out GD 2nd bday and the sight of pizza was too much for me and I broke down and ate 2 pieces. I really hadn't been having too tough of a time with the dietary changes, in fact I was prob eating a bit healthier, subbing a banana or an apple for a few crackers for a snack. Is this a makor setback?

Also, I need to know..altho I was only gluten-free for 6 days, should I have not experienced SOME kind of difference? Less bloating, stomach discomfort, fatigue? I didn't feel any better at all. Now, I know that the vets will poo-poo this and tell me it take mths and yrs to see a real diff but should I notice ANY diff at all right away or is that wishful thinking ? :)

you won't start to feel better untill you totally cut gluten out. you probably reversed the small amount of healing that you had over the past week. try again. you will notice a difference pretty soon, some of it is pyschological that you are finally on the road to getting better. but it can take up to six months or a year for your tummy to fully heal. don't give up. But, you won't get better eating gluten "light", and having a few pieces of pizza a week.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Muzz Rookie
  gfcookie said:
you won't start to feel better untill you totally cut gluten out. you probably reversed the small amount of healing that you had over the past week. try again. you will notice a difference pretty soon, some of it is pyschological that you are finally on the road to getting better. but it can take up to six months or a year for your tummy to fully heal. don't give up. But, you won't get better eating gluten "light", and having a few pieces of pizza a week.

TY :) I had figured that was prob the case. Actually, tho, the GI sx for me are the least of it, not alot of diahhrea but alot o bloating and discomfort but I guess I'e "gotten used" to it. My main prob is th eoverwhelming fatigue, (in spite of a hemoglobin of 12.9) and the neuropathy of feet and legs. Some days I can berely function. Is this familiar to anyone here and if so, did relief come with the gluten-free diet? I can totally go gluten-free if I know that it may help, I'm so desperate for relief.

gfcookie Newbie
  Muzz said:
TY :) I had figured that was prob the case. Actually, tho, the GI sx for me are the least of it, not alot of diahhrea but alot o bloating and discomfort but I guess I'e "gotten used" to it. My main prob is th eoverwhelming fatigue, (in spite of a hemoglobin of 12.9) and the neuropathy of feet and legs. Some days I can berely function. Is this familiar to anyone here and if so, did relief come with the gluten-free diet? I can totally go gluten-free if I know that it may help, I'm so desperate for relief.

even things that you never even thought could be gluten related could improve when you go gluten-free, because your body will be healing, and before, when your body was "sick", alot of things were probably not working right in your body! stick to it! you can do it!

aikiducky Apprentice

One of my most annoying symptoms is fatigue and brain fog. I don't mind the GI symptoms so much. One thing that helps me is taking a vitamin B complex that has all the vit. B's in it, when I get glutenend I take an extra dose. Just check that the ones you get are gluten free!

Pauliina

BFreeman Explorer
  mushroom said:

____________________________________________________________________________________________________

______________

My psoriasis is still receding little by little, probably never will totally go away because that is the nature of the beast, but at least I don't feel like I have chicken pox any more, like I did for the last three years. (I have been gluten-free since November)

Does a gluten free diet help psoriasis? We are gluten free at home because husband needs to be, but I have psoriasis (not bad; on hands and elbows). It wouldn't be so hard to go totally gluten-free myself since I'm used to the "rules."

BF

ravenwoodglass Mentor
  BFreeman said:
Does a gluten free diet help psoriasis? We are gluten free at home because husband needs to be, but I have psoriasis (not bad; on hands and elbows). It wouldn't be so hard to go totally gluten-free myself since I'm used to the "rules."

BF

The gluten free diet may very well help. One thing I know for sure is that in Turkey my 'gluten intolerant' gene is deemed one for psoriasis. My DD had a large patch on her elbow that she had for years that did go away after a couple months on the diet. You have nothing to lose by giving it a shot.

Gwen B Rookie
  Muzz said:
TY :) I had figured that was prob the case. Actually, tho, the GI sx for me are the least of it, not alot of diahhrea but alot o bloating and discomfort but I guess I'e "gotten used" to it. My main prob is th eoverwhelming fatigue, (in spite of a hemoglobin of 12.9) and the neuropathy of feet and legs. Some days I can berely function. Is this familiar to anyone here and if so, did relief come with the gluten-free diet? I can totally go gluten-free if I know that it may help, I'm so desperate for relief.

Fatigue is also my big complaint at the moment. Even after being gluten-free for 3 months some days (not just the few after a cc incident) I get up with my kids but am so tired by the time they have gone to school that I feel I just want to sleep. Not sure if this is a symptom and beginning to doubt whether I am gluten intolerant because I have not tested with a gluten challenge yet. I take vit B12, multivit and often a 'thyroid support' supplement thinking it might help. I didn't have any bad thyroid numbers before going gluten-free and my other vit levels were deemed 'normal' although not high for all the vitamins I am taking! At least I don't have stomach ache all the time :) now. I hope it's just good days/not so good days for a few months and eventually I'll know the difference.

Muzz Rookie

Hubby went to the market and got me gluten-free cookies, bread and pizza mix..and last week he bought us a bread machine so now I have so excuse to fall off the wagon again... ;)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MichelleGrant replied to MichelleGrant's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Months of diarrhea - Testing question

    2. - fritz2 replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      13

      Question

    3. - trents replied to Nikki03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Confused about test results.

    4. - Nikki03 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Confused about test results.

    5. - trents replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      13

      Question


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,770
    • Most Online (within 30 mins)
      7,748

    Mary Carrig
    Newest Member
    Mary Carrig
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • MichelleGrant
      I received my blood test results for celiac serology (attached file). Results were negative. Only thing not great is CRP at 5mg/L (indicating inflammation), High ferritin at 165 (also indicating inflammation). My doctor said to keep following a strict gluten-free diet and that my tolerance to gluten seems to have gotten worse, and created inflammation with all the diarrhea/ stomach issues. She said to also stay away from my other triggers which are alcohol, soy, legumes and some vegetables (eg. cabbage / cauliflower / brussel sprouts). I generally follow a low fodmap diet. The gluten-free diet is going well - things are returning to normal.
    • fritz2
      So what relieves the joint pain?
    • trents
      Welcome to the forum, @Nikki03! What was the other result from the other physician's lab work? The test result you report in your post is not a celiac disease diagnostic test. It is a test for IGA deficiency. It is also known as "total IGA". There are other IGA antibody tests that are used to diagnose celiac disease but if you are IGA deficient, their scores will be artificially low. Obviously, you are not IGA deficient so if there were other IGA antibody tests run they should be trusted as accurate unless you had been on a gluten free or reduced gluten diet before the blood sample was taken. So, if you have other test results, please post them along with (this is important) their reference ranges. Raw...
    • Nikki03
      I had celiac labs done and got two different result from two physicians. I have tons of celiac symptoms and suspected it for a while now but this has me so confused can you help?    my labs results read as follows  immunoglobulin A QN =419 which was off the chart high but everything but that was in normal range.               Thanks sincerely confused!   
    • trents
      As I mentioned above, NCGS stands for Non Celiac Gluten Sensitivity. Celiac disease and NCGS share many of the same GI distress symptoms but NCGS does not damage the lining of the small bowel as does celiac disease and is not an autoimmune condition, as is celiac disease. NCGS is 10x more common than celiac disease but there are no tests for it. Celiac disease must first be ruled out. We actually know much more about celiac disease than we do about NCGS. Some experts believe NCGS can be a precursor to celiac disease. The only known antidote for either is total abstinence from gluten. Joint pain is a well-established symptom of celiac disease, one of the more than 200...
×
×
  • Create New...