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Fell Off The Wagon

Muzz

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Muzz Rookie
Muzz
Posted

I joined last week, had been gluten-free for 6 days but tonight was out GD 2nd bday and the sight of pizza was too much for me and I broke down and ate 2 pieces. I really hadn't been having too tough of a time with the dietary changes, in fact I was prob eating a bit healthier, subbing a banana or an apple for a few crackers for a snack. Is this a makor setback?

Also, I need to know..altho I was only gluten-free for 6 days, should I have not experienced SOME kind of difference? Less bloating, stomach discomfort, fatigue? I didn't feel any better at all. Now, I know that the vets will poo-poo this and tell me it take mths and yrs to see a real diff but should I notice ANY diff at all right away or is that wishful thinking ? :)

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mushroom Proficient
mushroom
Posted
I joined last week, had been gluten-free for 6 days but tonight was out GD 2nd bday and the sight of pizza was too much for me and I broke down and ate 2 pieces. I really hadn't been having too tough of a time with the dietary changes, in fact I was prob eating a bit healthier, subbing a banana or an apple for a few crackers for a snack. Is this a makor setback?

Also, I need to know..altho I was only gluten-free for 6 days, should I have not experienced SOME kind of difference? Less bloating, stomach discomfort, fatigue? I didn't feel any better at all. Now, I know that the vets will poo-poo this and tell me it take mths and yrs to see a real diff but should I notice ANY diff at all right away or is that wishful thinking ? :)

____________________________________________________________________________________________________

______________

Hi Muzz:

I think it is pretty much unique for each individual. From what I have read some have incredible changes right away, others just keep plugging on and pretty soon become aware they are feeling better. For me, the arthritis symptoms abated in two months (but unfortunately last night they started coming back so it may have just been a normal flare/regression :( . My bloating and insomnia and other gastro symptoms took about two or three weeks to recede, but come back the next day if I get glutened, but fortunately only last a day or so. We all go "off the wagon" at some point, sometimes intentionally, sometimes accidentally. I was in the supermarket and they were offering samples of a new hummus dip. I carefully checked out that it was gluten free before I tried it, and then realised I had sampled it on a piece of melba toast!! Ouch. Told him he should have some Sakata crackers. My psoriasis is still receding little by little, probably never will totally go away because that is the nature of the beast, but at least I don't feel like I have chicken pox any more, like I did for the last three years. (I have been gluten-free since November)

Don't give up, because the improvement will come, and it will get easier to resist the pizza once that happens.

Neroli

psawyer Proficient
psawyer
Posted

Reactions vary. After only six days without gluten, a relapse to gluten will not be that alien to your system, so a noticeable adverse effect is unlikely. It does take time for your body to recover from years of exposure to gluten.

Move forward. No more gluten. You can do it.

RiceGuy Collaborator
RiceGuy
Posted

Once you see improvements, it will be much easier to resist. But, you do need to hold on to your willpower long enough to get those benefits. Yes, it does take time for many, though not everyone, to get real improvement. I was gluten-free for six months before I noticed much of anything, and during that time I wondered every so often if I was on the right track. Then suddenly, like out of nowhere, boom! Boy oh boy did things start changing! Then I really knew I had struck gold.

dbmamaz Explorer
dbmamaz
Posted

I know it sounds weird, but you might want to bring something for you to eat which is similar to what's being served. I havent tried it since I'm also off dairy, but Amy's apparently makes awesome gluten-free pizza.

On the other hand, cutting out dairy too might help your symptoms ease up more quickly . ..

Muzz Rookie
Muzz
Posted
  • Author

TY all....I'll just consider this a minor relapse :) I was going to take something to munch on at the party but got in a hurry and forgot. My family isn't a prob, they're used to seeing me not eat much at family functions ;)

gfcookie Newbie
gfcookie
Posted
I joined last week, had been gluten-free for 6 days but tonight was out GD 2nd bday and the sight of pizza was too much for me and I broke down and ate 2 pieces. I really hadn't been having too tough of a time with the dietary changes, in fact I was prob eating a bit healthier, subbing a banana or an apple for a few crackers for a snack. Is this a makor setback?

Also, I need to know..altho I was only gluten-free for 6 days, should I have not experienced SOME kind of difference? Less bloating, stomach discomfort, fatigue? I didn't feel any better at all. Now, I know that the vets will poo-poo this and tell me it take mths and yrs to see a real diff but should I notice ANY diff at all right away or is that wishful thinking ? :)

you won't start to feel better untill you totally cut gluten out. you probably reversed the small amount of healing that you had over the past week. try again. you will notice a difference pretty soon, some of it is pyschological that you are finally on the road to getting better. but it can take up to six months or a year for your tummy to fully heal. don't give up. But, you won't get better eating gluten "light", and having a few pieces of pizza a week.

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Muzz Rookie
Muzz
Posted
  • Author
you won't start to feel better untill you totally cut gluten out. you probably reversed the small amount of healing that you had over the past week. try again. you will notice a difference pretty soon, some of it is pyschological that you are finally on the road to getting better. but it can take up to six months or a year for your tummy to fully heal. don't give up. But, you won't get better eating gluten "light", and having a few pieces of pizza a week.

TY :) I had figured that was prob the case. Actually, tho, the GI sx for me are the least of it, not alot of diahhrea but alot o bloating and discomfort but I guess I'e "gotten used" to it. My main prob is th eoverwhelming fatigue, (in spite of a hemoglobin of 12.9) and the neuropathy of feet and legs. Some days I can berely function. Is this familiar to anyone here and if so, did relief come with the gluten-free diet? I can totally go gluten-free if I know that it may help, I'm so desperate for relief.

gfcookie Newbie
gfcookie
Posted
TY :) I had figured that was prob the case. Actually, tho, the GI sx for me are the least of it, not alot of diahhrea but alot o bloating and discomfort but I guess I'e "gotten used" to it. My main prob is th eoverwhelming fatigue, (in spite of a hemoglobin of 12.9) and the neuropathy of feet and legs. Some days I can berely function. Is this familiar to anyone here and if so, did relief come with the gluten-free diet? I can totally go gluten-free if I know that it may help, I'm so desperate for relief.

even things that you never even thought could be gluten related could improve when you go gluten-free, because your body will be healing, and before, when your body was "sick", alot of things were probably not working right in your body! stick to it! you can do it!

aikiducky Apprentice
aikiducky
Posted

One of my most annoying symptoms is fatigue and brain fog. I don't mind the GI symptoms so much. One thing that helps me is taking a vitamin B complex that has all the vit. B's in it, when I get glutenend I take an extra dose. Just check that the ones you get are gluten free!

Pauliina

BFreeman Explorer
BFreeman
Posted

____________________________________________________________________________________________________

______________

My psoriasis is still receding little by little, probably never will totally go away because that is the nature of the beast, but at least I don't feel like I have chicken pox any more, like I did for the last three years. (I have been gluten-free since November)

Does a gluten free diet help psoriasis? We are gluten free at home because husband needs to be, but I have psoriasis (not bad; on hands and elbows). It wouldn't be so hard to go totally gluten-free myself since I'm used to the "rules."

BF

ravenwoodglass Mentor
ravenwoodglass
Posted
Does a gluten free diet help psoriasis? We are gluten free at home because husband needs to be, but I have psoriasis (not bad; on hands and elbows). It wouldn't be so hard to go totally gluten-free myself since I'm used to the "rules."

BF

The gluten free diet may very well help. One thing I know for sure is that in Turkey my 'gluten intolerant' gene is deemed one for psoriasis. My DD had a large patch on her elbow that she had for years that did go away after a couple months on the diet. You have nothing to lose by giving it a shot.

Gwen B Rookie
Gwen B
Posted
TY :) I had figured that was prob the case. Actually, tho, the GI sx for me are the least of it, not alot of diahhrea but alot o bloating and discomfort but I guess I'e "gotten used" to it. My main prob is th eoverwhelming fatigue, (in spite of a hemoglobin of 12.9) and the neuropathy of feet and legs. Some days I can berely function. Is this familiar to anyone here and if so, did relief come with the gluten-free diet? I can totally go gluten-free if I know that it may help, I'm so desperate for relief.

Fatigue is also my big complaint at the moment. Even after being gluten-free for 3 months some days (not just the few after a cc incident) I get up with my kids but am so tired by the time they have gone to school that I feel I just want to sleep. Not sure if this is a symptom and beginning to doubt whether I am gluten intolerant because I have not tested with a gluten challenge yet. I take vit B12, multivit and often a 'thyroid support' supplement thinking it might help. I didn't have any bad thyroid numbers before going gluten-free and my other vit levels were deemed 'normal' although not high for all the vitamins I am taking! At least I don't have stomach ache all the time :) now. I hope it's just good days/not so good days for a few months and eventually I'll know the difference.

Muzz Rookie
Muzz
Posted
  • Author

Hubby went to the market and got me gluten-free cookies, bread and pizza mix..and last week he bought us a bread machine so now I have so excuse to fall off the wagon again... ;)

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    • Rogol72
      dermatitis herpetiformis with all grains

      By Rogol72 · Posted

      @Richardo, I'm in the same boat as you! I can't handle certified gluten free oats at all. Quinoa is the worst, even when I soak it in water and then wash under the tap for 10 minutes ... I have a reaction. It must be an immune system reaction to the proteins in these gluten-free grains. 
    • trents
      dermatitis herpetiformis with all grains

      By trents · Posted

      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      dermatitis herpetiformis with all grains

      By Richardo · Posted

      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
    • trents
      dermatitis herpetiformis with all grains

      By trents · Posted

      Welcome to the forum, @Richardo! We sometimes run across terms like "rice gluten", "corn gluten", and "oat gluten" but they are used informally and, technically, it is incorrect to speak of grains other than wheat, barley and rye as having gluten. Gluten is a protein with a specific structure found only in wheat, barley and rye. Other cereal grains contain proteins that are more or less similar in structure to gluten in some ways but are not actually gluten. Having said that, the proteins found in these other cereal grains are similar enough to gluten to possibly cause cross reactivity in some celiacs. Cross reactivity also happens with non cereal grain foods as well that have a protein structure similar to gluten. A prime example is dairy (the protein "casein"). Another example may be soy. Other foods can also cause cross reactivity for different reasons, such as microbial transglutaminase (aka, "meat glue") used commonly in pressed meat products. Just so you'll know, Dr. Osborne's claims have not received wide acceptance in the celiac community and are looked upon with skepticism by the medical and scientific community. Although he is a board certified nutritionist, his doctorates are actually in chiropractic medicine and pastoral science: https://www.drpeterosborne.com/about/dr-peter-osborne/ I am not sure Osborne has the training and background to address the chemical structure that defines gluten. I would encourage you to do some research on what gluten actually is. I have done this for myself and came away convinced that only wheat, barely and rye actually contain the protein gluten. I do not doubt your claims that you have breakouts of dermatitis herpetiformis from consuming these other grains. I am just contending it is not actually from gluten.
    • Richardo
      dermatitis herpetiformis with all grains

      By Richardo · Posted

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