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Approaching Dr. For Celiac Testing

Gerri

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Gerri Explorer
Gerri
Posted

Hi my name is Gerri (54), I am new to this forum.

I was first diagnosed with mild sleep apnea back in 1987. I have GERDs (most of my life), lactose intolerant, IBS (most of my life), leaky gut, constantly constipated, bloated all the time, always gassy as shown on my many abdomenal ultra sounds. These symtoms have been going on most of my life. I believe I have small intestine crohns disease (not diagnosed). I have been diagnosed with NASH (Non-alcohol fatty liver disease with inflamation, and will be starting insulin shortly). I have been diagnosed MS by Urologist but not confirmed by Neurologist. I have lesions on my brain. I am so tired all the time. I have been diagnosed with Osteopenia. I have Central Auditory Processing disorder, with Hyperacusis, which is worsening. My dentist diagnosed me with Sjogren's, and they are checking into Lupus. I also have many allergies to sulfa, sulfites, sulfates and any derivative of sulfer. My health issues are many and are not all listed. I am also HLA B27 positive.

It's funny, I started following a glutten free diet, with low starch, months back (close to a year). My sleep apnea improved. This past week I haven't been able to follow my diet, and now my now severe obstructed sleep apnea, is worsening. Even though I take Ativan at night, I still wake with insomnia throughout the night.

I haven't been able to loose weight. I look at food and gain weight, when I eat bread. I told my Gastroenterologist I was following a celiac diet because it seemed to help my stomach, she did not rule celiac disease out, and has not ruled out Lupus.

Does any of these symptoms sound familiar.

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hayley3 Contributor
hayley3
Posted

Hi Gerri,

You sound a lot like me, except I tested negative for the HLA-B27. I'm 52.

The best way to get a doctor to test for celiac is to go in there and tell them you have noticed that anytime you eat wheat you get symptoms. Most doctors believe that you can't have gluten problems unless you have diarrhea though.

My daughter has CAPD with hyperacusis and sometimes I feel like I do. I definitely have the sensitivity to sound. I've been misdx'd with lupus, I have a fatty liver, dry eyes, and I'm also allergic to sulfa drugs and I have severe osteoporosis. Just dx'd with thyroid disease that has already started reversing itself because of the diet.

Since I have been trying the gluten free diet since November, I feel like I can now do the SCD diet. I just ordered the book. I went to Amazon and there are a lot of positive reviews where people were healed. If you don't know anything about the SCD diet, it eliminates all starch and sugar thereby killing the microorganisms that cause the bloating and inflammation of the intestines.

Your message must've got posted on a busy day. Sorry it got missed. :(

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