Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Panhandle Wv

flourgirl

By flourgirl
in Meet Up Room

Recommended Posts

flourgirl Apprentice
flourgirl
Posted

Hi. I am newly diagnosed, about 3 months ago. Am still really struggling with health issues. I'm wondering if there are any support groups in the Martinsburg WV area? If not, how about any locals wanting to start one? I appreciate this forum, knowing there are people out there going through it too.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest j_mommy
Guest j_mommy
Posted

Here is a list of support groups by state.

https://www.celiac.com/articles/227/1/A-Lis...ters/Page1.html

  • 6 months later...
Kathinsearch Newbie
Kathinsearch
Posted
Hi. I am newly diagnosed, about 3 months ago. Am still really struggling with health issues. I'm wondering if there are any support groups in the Martinsburg WV area? If not, how about any locals wanting to start one? I appreciate this forum, knowing there are people out there going through it too.

Hi Flourgirl,

I live up near the Berkeley Springs / Hancock area and there is nothing in the way of support groups where we are. You are about 45 mins from me. If you need some support or have questions or concerns, I am most certainly willing to help by telephone and email. Maybe we can meet and go out to Outback or Carabas for a gluten-free meal periodically :) I have never gone out to eat at either one of them but both are in Hagerstown, a good midway spot.

Write me and lets exchange phone numbers. My email address kathinfred at aol dot com

Kathy

  • 3 weeks later...
sixdogssixcats Apprentice
sixdogssixcats
Posted

Hi! I don't live in WV but I grew up there so your post caught my eye. My dad and sister still live in the Eastern panhandle. We get back to visit once or twice a year from south Texas. Good luck finding a support group ... I live in a big city and can't find an active one (looking specifically for children).

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. captaincrab55
      - captaincrab55 replied to Dawn Meyers's topic in Related Issues & Disorders
      9

      Vaccines

      Hi Dawn, Back in the Fall of 2019 with Covid looming I considered getting a pneumonia vaccine. I went as far as getting in line and reading the pamphlet and saw the warning about not getting it if you ever had a reaction to diphtheria. I instantly recalled a tetanus booster shot in 1971 that caused a severe reaction. Tetanus booster shots include diphtheria...
    2. trents
      - trents replied to Dawn Meyers's topic in Related Issues & Disorders
      9

      Vaccines

      Since we don't know what you reacting to when you get vaccinated, we can't say whether or not the pneumonia vaccine will cause a reaction. Is there some common ingredient in these vaccines that is causing a reaction. I mean, with many vaccines the antigen is delivered via a solution containing albumin (chicken egg protein). Some people are allergic to chicken...
    3. ShariW
      - ShariW replied to glucel's topic in Coping with Celiac Disease
      5

      potato chip cross contamination

      Cape Cod potato chips are gluten-free, according to the company. I've never had a problem with these.
    4. Dawn Meyers
      - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      9

      Vaccines

      I'm 63 Thank you for the article. I have worked with Dietitian at Mayo and also had breath testing done. They felt I was following a strict gluten-free diet along with eliminating sugar alcohol and chicory root. Also don't eat a lot meat, eggs and peppers. Because I get so sick I use only gluten-free products for my skin food medicine my pet food is...
    5. trents
      - trents replied to Dawn Meyers's topic in Related Issues & Disorders
      9

      Vaccines

      Dawn, yes, once the genes that give the potential for the development of celiac disease are "turned on" so to speak, they will be on for the rest of your life. It is not something that is cured or comes and goes but something that must be managed. Eliminating major sources of gluten from one's diet is pretty straight forward but many don't realize the multitude...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,845
    • Most Online (within 30 mins)
      7,748
    carki
    Newest Member
    carki
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • captaincrab55
      Vaccines

      By captaincrab55 · Posted

      Hi Dawn,   Back in the Fall of 2019 with Covid looming I considered getting a pneumonia vaccine.  I went as far as getting in line and reading the pamphlet and saw the warning about not getting it if you ever had a reaction to diphtheria.  I instantly recalled a tetanus booster shot in 1971 that caused a severe reaction.  Tetanus booster shots include diphtheria.  I haven't had a tetanus shot since, but recent lab results show that I have many timed the immunity required.  Good Luck.  
    • trents
      Vaccines

      By trents · Posted

      Since we don't know what you reacting to when you get vaccinated, we can't say whether or not the pneumonia vaccine will cause a reaction. Is there some common ingredient in these vaccines that is causing a reaction. I mean, with many vaccines the antigen is delivered via a solution containing albumin (chicken egg protein). Some people are allergic to chicken egg protein so they can't take those vaccines. That kind of thing. When you say your "numbers are off the chart", what numbers do you refer to? Are you referring to celiac disease antibodies?
    • ShariW
      potato chip cross contamination

      By ShariW · Posted

      Cape Cod potato chips are gluten-free, according to the company. I've never had a problem with these.
    • Dawn Meyers
      Vaccines

      By Dawn Meyers · Posted

      I'm 63  Thank you for the article. I have worked with Dietitian at Mayo and also had breath testing done. They felt I was following a strict gluten-free diet along with eliminating sugar alcohol and chicory root. Also don't eat a lot meat, eggs and peppers. Because I get so sick I use only gluten-free products for my skin food medicine my pet food is gluten-free and I live alone so all my cooking stuff is all brand new prior to being diagnosed.  I buy only organic certified gluten free products and if not sure  look up or just don't eat or use. The Dermatologist at Mayo gave me a list of gluten-free products that I can use. ( personal products,  laundry detergent, I use vinegar and baking soda for cleaning ) . I ask family and friends to not bring  anything  in to my home that has gluten in it. I have tried  everything and my numbers still off the charts.   So as for the pneumonia vaccine I question if it has anything in it that will react negative in me? 
    • trents
      Vaccines

      By trents · Posted

      Dawn, yes, once the genes that give the potential for the development of celiac disease are "turned on" so to speak, they will be on for the rest of your life. It is not something that is cured or comes and goes but something that must be managed. Eliminating major sources of gluten from one's diet is pretty straight forward but many don't realize the multitude of places and ways gluten is hidden in the food supply and sneaks its way into our eats. So, eating "lower gluten' is easy but attaining a consistently and truly gluten free state is much harder and requires diligence. I am linking this article that might be of help to you in that regard:  
×
×
  • Create New...